Educating Nursing Home Staff About the Progression of Dementia and the Comfort Care Option: Impact on Family Satisfaction with End-of-Life Care

Journal of the American Medical Directors Association

Volumn 10, Issue 1, 2009, Pages 50-55

  Arcand, Marcel ^a   Monette, Johanne ^b,c,d   Monette, Michèle ^c,d   Sourial, Nadia ^c   Fournier, Lynn ^d   Gore, Brian ^d   Bergman, Howard ^b,c,d  

^a UNIVERSITÉ DE SHERBROOKE   (Canada)

^b MCGILL UNIVERSITY   (Canada)

^c UNIVERSITÉ DE MONTRÉAL   (Canada)

^d MCGILL UNIVERSITY   (Canada)

Author keywords

Dementia; end of life care; interdisciplinary educational program; nursing home; palliative care

Indexed keywords

AGED; ARTICLE; CLINICAL EFFECTIVENESS; CONSENSUS DEVELOPMENT; CONTROLLED STUDY; DEATH; DEMENTIA; DISEASE SEVERITY; EDUCATION PROGRAM; FAMILY ATTITUDE; FAMILY DECISION MAKING; FEMALE; HEALTH CARE PERSONNEL MANAGEMENT; HUMAN; INTERDISCIPLINARY EDUCATION; INTERVIEW; MALE; NURSING HOME; NURSING HOME PERSONNEL; NURSING STAFF; PAIN; PALLIATIVE THERAPY; PILOT STUDY; RELATIVE; SCORING SYSTEM; STAFF TRAINING; TEAM NURSING; TERMINAL CARE; VALIDATION PROCESS;

EID: 57849093940     PISSN: 15258610     EISSN: 15389375     Source Type: Journal    
DOI: 10.1016/j.jamda.2008.07.008     Document Type: Article

References (38)

1. Olson E. Dementia and neurodegenerative diseases. In: Morrisson R.S., and Meier D.E. (Eds). Geriatric Palliative Care (2003), Oxford University Press, New York 160-172
2. Hanrahan P., Luchins D.J., and Murphy K. Palliative care for patients with dementia. In: Addington-Hall J.M., and Higginson I.J. (Eds). Palliative Care for Non Cancer Patients (2001), Oxford University Press, Oxford 114-125
3. Mitchell S.L., Teno J.M., Miller S.C., and Mor V. A national study of the location of death for older persons with dementia. J Am Geriatr Soc 53 (2005) 299-305
4. Hertogh C.M.P.M., and Ribbe M.W. Ethical aspects of decision-making in demented patients: a report from the Netherlands. Alzheimer Dis Assoc Disord 10 (1996) 11-19
5. Olson E., Chichin E.R., and Libow L.S. Controversies in ethics in long-term care (1995), Springer, New York
6. Volicer L., Rheaume Y., Brown J., et al. Hospice approach to the treatment of patients with advanced dementia of the Alzheimer type. JAMA 256 (1986) 2210-2213
7. Dwenda K., Gjerdringen M.D., Heff J.A., et al. Older person's opinions about life-sustaining procedures in the face of dementia. Arch Fam Med 8 (1999) 421-425
8. Purdy W. Nursing home to emergency room?. The troubling last transfer. The Hastings Cent Re 32 (2002) 46-48
9. Hertogh C.M.P.M. Advance care planning and the relevance of a palliative care approach in dementia. Age Ageing 35 (2006) 553-556
10. Callahan D. Treating people with dementia: When is it okay to stop?. In: Olson E., Chichin E.R., and Libow L.S. (Eds). Controversies in Ethics and Long-Term Care (1995), Springer, New York 109-125
11. Parker-Oliver D., Porock D., and Zweig S. End-of-life care in US Nursing Homes: A review of the evidence. J Am Med Dir Assoc 6 (2005) S21-S30
12. Sampson E.L., Ritchie C.W., Lai R., et al. A systematic review of the scientific evidence for the efficacy of a palliative care approach in advanced dementia. Int Psychogeriatr 17 (2005) 31-40
13. Pasman H.R.W., Onwuteaka-Philipsen B.D., Kriegsman D.M.W., et al. Discomfort in nursing home patient with severe dementia in whom artificial nutrition and hydration is forgone. Arch Int Med 165 (2005) 1729-1735
14. van der Steen J.T., Ooms M.E., van der Wal G., and Ribbe M.W. Pneumonia: The demented patient's best friend?. Discomfort after starting or withholding antibiotic treatment. J Am Geriatr Soc 50 (2002) 1681-1688
15. Sachs G.A., Shega J.W., and Cox-Hayley D. Barriers to excellent end-of-life care for patients with dementia. J Gen Intern Med 19 (2004) 1057-1063
16. Wolf-Klein G., Pekmezaris R., Chin L., and Weiner J. Conceptualizing Alzheimer's disease as a terminal medical illness. Am J Hosp Palliat Care 24 (2007) 77-82
17. Mitchell S.L., Kiely D.K., and Hamel M. Dying with advanced dementia in the nursing home. Arch Intern Med 164 (2004) 321-326
18. Winn P., Cook J.B., and Bonnel W. Improving communication among attending physicians, long-term care facilities, residents and resident's families. J Am Med Dir Assoc 5 (2004) 114-122
19. Forbes S., Bern-Klug M., and Gessert C. End-of-life decision making for nursing home residents with dementia. J Nurs Scholarsh 32 3 (2000) 251-258
20. Snyder L. Care of patients with Alzheimer's disease and their families. Clin Geriatr Med 17 (2001) 319-335
21. Ersek M., Grant M.M., and Miller-Kraybill B. Enhancing end-of-life care in the nursing home: Palliative Care Educational Resource Team (PERT) Program. J Palliat Med 8 (2005) 556-566
22. Mockus Parks S., Haines C., Foreman D., et al. Evaluation of an educational program for long-term care nursing assistants. J Am Med Dir Assoc 6 (2005) 61-65
23. Volicer L., Collard A., Hurley A., et al. Impact of a special care unit for patients with advanced Alzheimer's disease on patients' discomfort and costs. J Am Geriatr Soc 42 (1994) 2210-2213
24. Arcand M., and Caron C. Comfort care at the end of life for persons with Alzheimer's disease or other degenerative diseases of the brain: A guide for caregivers. Centre de santé et de services sociaux-Institut universitaire de gériatrie de Sherbrooke 2005. www.expertise-sante.com/guides-pratiques.htm Accessed August 20, 2008
25. Pinderhughes S.T., and Morrisson R.S. Evidence-based approach to management of fever in patients with end-stage dementia. J Palliat Med 6 (2003) 351-354
26. Caron C., Griffith J., and Arcand M. End-of-life decision making in dementia: The perspective of family caregivers. Dementia 4 (2005) 113-136
27. Caron C., Griffith J., and Arcand M. Decision-making at the end-of-life in dementia: how family caregivers perceive their interactions with healthcare providers in long-term care settings. J Appl Gerontol 22 (2005) 1-17
28. McPherson C., and Addington-Hall J. Judging the quality of care at the end-of-life: Can proxies provide reliable information?. Soc Sci Med 56 (2003) 95-109
29. Teno J.M., Clarridge B., Casey V., et al. Validation of toolkit after death bereaved family member interview. J Pain Symptom Manage 22 (2001) 752-758
30. Kiely D.K., Volicer L.D., Teno J.M., et al. The validity and reliability of scales for the evaluation of end-of-life care in advanced dementia. Alzheimer Dis Assoc Disord 20 (2006) 176-181
31. TIME: Toolkit of Instruments to Measure End-of-life care. Dr Joan Teno 2001. www.chcr.brown.edu/pcoc/toolkit/htm Accessed August 20, 2008
32. Teno J.M., Clarridge B.R., Casey V., et al. Family perspectives on end-of-life care at the last place of care. JAMA 291 (2004) 88-93
33. Davis Furman C., Pirkle R., O'Brien J.G., et al. Barriers to the implementation of palliative care in the nursing home. J Am Med Dir Assoc 8 (2006) 506-509
34. Hall P., Schroder C., and Weaver L. The last 48 hours of life in long-term care: A focused chart audit. J Am Geriatr Soc 50 3 (2002) 501-506
35. Hanson L.C., Eckert J.K., Dobbs D., et al. Symptom experience of dying long-term care residents. J Am Geriatr Soc 56 (2008) 91-98
36. Brazil K. Gender differences in spousal caregiving at the end of life. J Palliat Care 23 (2007) 235-236
37. Bern-Klug M. The emotional context facing nursing home resident's families: A call for role reinforcement strategies from nursing homes and the community. J Am Med Dir Assoc 9 (2008) 36-44
38. Engel S.E., Kiely D.K., and Mitchell S.L. Satisfaction with end-of-life care for nursing home residents with advanced dementia. J Am Geriatr Soc 54 (2006) 1567-1572