메뉴 건너뛰기




Volumn 13, Issue 1, 2013, Pages

Multidisciplinary teams, and parents, negotiating common ground in shared-care of children with long-term conditions: A mixed methods study

Author keywords

Activity theory; Chronic kidney disease; Common ground; Communities of practice; Ethnography; Long term; Multi disciplinary teams; Negotiation; Parents; Professionals

Indexed keywords

ADOLESCENT; ARTICLE; CHILD; CHRONIC KIDNEY FAILURE; FEMALE; HEALTH CARE SURVEY; HUMAN; HUMAN RELATION; INTERDISCIPLINARY COMMUNICATION; INTERPERSONAL COMMUNICATION; MALE; PATIENT CARE; PRESCHOOL CHILD; QUALITATIVE RESEARCH; UNITED KINGDOM;

EID: 84880812271     PISSN: None     EISSN: 14726963     Source Type: Journal    
DOI: 10.1186/1472-6963-13-264     Document Type: Article
Times cited : (26)

References (49)
  • 2
    • 36049021815 scopus 로고    scopus 로고
    • Chronic kidney disease in children: The global perspective
    • DOI 10.1007/s00467-006-0410-1
    • Chronic kidney disease in children: the global perspective. Warady B, Chadha V, Journal of Pediatric Nephrology 2007 23 1999 2009 (Pubitemid 350090707)
    • (2007) Pediatric Nephrology , vol.22 , Issue.12 , pp. 1999-2009
    • Warady, B.A.1    Chadha, V.2
  • 3
    • 0030794019 scopus 로고    scopus 로고
    • Screening of newborn babies for familial ureteric reflux
    • DOI 10.1016/S0140-6736(97)01515-8
    • Screening of newborn babies for familial ureteric reflux. Scott JES, Swallow V, Coulthard MG, Lambert HJ, Lee REJ, The Lancet 1997 350 396 400 10.1016/S0140-6736(97)01515-8 (Pubitemid 27331233)
    • (1997) Lancet , vol.350 , Issue.9075 , pp. 396-400
    • Scott, J.E.S.1    Swallow, V.2    Coulthard, M.G.3    Lambert, H.J.4    Lee, R.E.J.5
  • 5
    • 84880780624 scopus 로고    scopus 로고
    • CKD stages. [ http://www.kidney.org/professionals/kdoqi/guidelines- commentaries.cfm ]
    • CKD Stages
  • 7
    • 84880807925 scopus 로고    scopus 로고
    • Research expanding, but more solely needed
    • Goldstein S, Quality of Life in Children with CKD July
    • Research Expanding, but More Solely Needed. Goldstein S, Quality of Life in Children with CKD, Nephrology Times 2009 1517 July
    • (2009) Nephrology Times , pp. 1517
  • 8
    • 4744371901 scopus 로고    scopus 로고
    • Every child matters-national service framework for children, young people and maternity services
    • DoH/DfES, City: Department for Education and Skills
    • Every Child Matters-National Service Framework for Children, Young People and Maternity Services. DoH/DfES, Book Every Child Matters-National Service Framework for Children, Young People and Maternity Services City: Department for Education and Skills 2004
    • (2004) Book Every Child Matters-National Service Framework for Children, Young People and Maternity Services
  • 9
    • 33746592899 scopus 로고    scopus 로고
    • Shared care of children with renal disease
    • Shared care of children with renal disease. Sinha MD, Webb NJA, Current Paediatrics 2006 16 254(255)
    • (2006) Current Paediatrics , vol.16 , pp. 254255
    • Sinha, M.D.1    Webb, N.J.A.2
  • 10
    • 84859132365 scopus 로고    scopus 로고
    • Nurses as family learning brokers: Shared management in childhood chronic kidney disease
    • 10.1111/j.1365-2702.2008.01009.x
    • Nurses as family learning brokers: shared management in childhood chronic kidney disease. Swallow V, Clarke C, Campbell S, Lambert H, Journal of Nursing and Healthcare of Chronic Illness 2009 1 49 59 10.1111/j.1365-2702.2008.01009.x
    • (2009) Journal of Nursing and Healthcare of Chronic Illness , vol.1 , pp. 49-59
    • Swallow, V.1    Clarke, C.2    Campbell, S.3    Lambert, H.4
  • 11
    • 53049084912 scopus 로고    scopus 로고
    • Childhood chronic-kidney-disease: A longitudinal-qualitative study of families learning to share management early in the trajectory
    • 10.1016/j.pec.2008.07.052 18799284
    • Childhood chronic-kidney-disease: A longitudinal-qualitative study of families learning to share management early in the trajectory. Swallow V, Lambert H, Clarke C, Campbell S, Jacoby A, Patient Education and Counseling 2008 73 354 362 10.1016/j.pec.2008.07.052 18799284
    • (2008) Patient Education and Counseling , vol.73 , pp. 354-362
    • Swallow, V.1    Lambert, H.2    Clarke, C.3    Campbell, S.4    Jacoby, A.5
  • 13
    • 0036897807 scopus 로고    scopus 로고
    • Outcome of reaching end stage renal failure in children under 2 years of age
    • DOI 10.1136/adc.87.6.511
    • Outcome of reaching end stage renal failure in children under 2 years of age. Coulthard MG, Crosier J, Arch Dis Child 2002 87 511 517 10.1136/adc.87.6.511 12456551 (Pubitemid 35440702)
    • (2002) Archives of Disease in Childhood , vol.87 , Issue.6 , pp. 511-517
    • Coulthard, M.G.1    Crosier, J.2
  • 14
    • 38849124342 scopus 로고    scopus 로고
    • Experiences of parents who have children with chronic kidney disease: A systematic review of qualitative studies
    • DOI 10.1542/peds.2006-3470
    • Experiences of Parents Who Have Children With Chronic Kidney Disease: A Systematic Review of Qualitative Studies. Tong A, Lowe A, Sainsbury P, Craig JC, Pediatrics 2008 121 349 360 10.1542/peds.2006-3470 18245427 (Pubitemid 351198460)
    • (2008) Pediatrics , vol.121 , Issue.2 , pp. 349-360
    • Tong, A.1    Lowe, A.2    Sainsbury, P.3    Craig, J.C.4
  • 15
    • 84867015217 scopus 로고    scopus 로고
    • The effect of a multidisciplinary care clinic on the outcomes in pediatric chronic kidney disease
    • 10.1007/s00467-011-2008-5
    • The effect of a multidisciplinary care clinic on the outcomes in pediatric chronic kidney disease. Ajarmeh S, Er L, Brin G, Djurdjev O, Dionne JM, Pediatric Nephrology 2012 27 921 1927 10.1007/s00467-011-2008-5
    • (2012) Pediatric Nephrology , vol.27 , pp. 921-1927
    • Ajarmeh, S.1    Er, L.2    Brin, G.3    Djurdjev, O.4    Dionne, J.M.5
  • 17
    • 84880807181 scopus 로고    scopus 로고
    • Parents' experiences of living with a child with a long-term condition: A rapid structured review of the literature
    • In Press
    • Parents' experiences of living with a child with a long-term condition: a rapid structured review of the literature. Smith J, Health Expectations In Press
    • Health Expectations
    • Smith, J.1
  • 18
    • 76649112751 scopus 로고    scopus 로고
    • The views of patients and carers in treatment decision making for chronic kidney disease: Systematic review and thematic synthesis of qualitative studies
    • The views of patients and carers in treatment decision making for chronic kidney disease: systematic review and thematic synthesis of qualitative studies. Morton R, Tong A, Howard K, Snelling P, Webstar A, BMJ 2010 340 350
    • (2010) BMJ , vol.340 , pp. 350
    • Morton, R.1    Tong, A.2    Howard, K.3    Snelling, P.4    Webstar, A.5
  • 19
    • 77954742049 scopus 로고    scopus 로고
    • Parental perspectives on caring for a child with chronic kidney disease: An in-depth interview study
    • 10.1111/j.1365-2214.2010.01067.x 23874870
    • Parental perspectives on caring for a child with chronic kidney disease: an in-depth interview study. Tong A, Lowe A, Sainsbury P, Craig JC, Child: Care, Health & Development 2010 36 549 557 10.1111/j.1365-2214.2010.01067.x 23874870
    • (2010) Child: Care, Health & Development , vol.36 , pp. 549-557
    • Tong, A.1    Lowe, A.2    Sainsbury, P.3    Craig, J.C.4
  • 20
    • 3142759691 scopus 로고    scopus 로고
    • Families and chronic illness: A synthesis of current research
    • Families and Chronic Illness: a Synthesis of Current Research. Knafl K, Gilliss C, Journal of Family Nursing 2002 8 178 198
    • (2002) Journal of Family Nursing , vol.8 , pp. 178-198
    • Knafl, K.1    Gilliss, C.2
  • 22
    • 56349139623 scopus 로고    scopus 로고
    • An exploration of mothers' and fathers' views of their identities in chronic-kidney-disease management: Parents as students?
    • 10.1111/j.1365-2702.2008.02642.x 19012785
    • An exploration of mothers' and fathers' views of their identities in chronic-kidney-disease management: parents as students? Swallow V, Journal of Clinical Nursing 2008 17 3177 3186 10.1111/j.1365-2702.2008.02642.x 19012785
    • (2008) Journal of Clinical Nursing , vol.17 , pp. 3177-3186
    • Swallow, V.1
  • 23
    • 22744441996 scopus 로고    scopus 로고
    • Fathers parenting chronically ill children: Concerns and coping strategies
    • DOI 10.1080/01460860590950863
    • Fathers parenting chronically ill children: concerns and coping strategies. Hovey JK, Issues in Comprehensive Pediatric Nursing 2005 28 83 95 10.1080/01460860590950863 16006382 (Pubitemid 41032804)
    • (2005) Issues in Comprehensive Pediatric Nursing , vol.28 , Issue.2 , pp. 83-95
    • Hovey, J.K.1
  • 24
    • 84861419366 scopus 로고    scopus 로고
    • Fathers' contributions to the management of their child's long-term medical condition: A narrative review of the literature
    • Fathers' contributions to the management of their child's long-term medical condition: a narrative review of the literature. Swallow V, Macfadyen A, Santacroce S, Lambert H, Health Expectations 2011
    • (2011) Health Expectations
    • Swallow, V.1    Macfadyen, A.2    Santacroce, S.3    Lambert, H.4
  • 25
    • 0033109042 scopus 로고    scopus 로고
    • Physician-family partnerships: The adaptive practice model
    • 10.1097/00004703-199904000-00007
    • Physician-family partnerships: the adaptive practice model. Feldman H, Ploof D, Cohen W, Journal of Developmental Behavioural Pediatrics 1999 20 111 116 10.1097/00004703-199904000-00007
    • (1999) Journal of Developmental Behavioural Pediatrics , vol.20 , pp. 111-116
    • Feldman, H.1    Ploof, D.2    Cohen, W.3
  • 26
    • 0023404997 scopus 로고
    • Methodological triangulation: A vehicle for merging quantitative and qualitative research methods
    • 10.1111/j.1547-5069.1987.tb00609.x 3666768
    • Methodological triangulation: a vehicle for merging quantitative and qualitative research methods. Duffy ME, Image the Journal of Nursing Scholarship 1987 19 130 133 10.1111/j.1547-5069.1987.tb00609.x 3666768
    • (1987) Image the Journal of Nursing Scholarship , vol.19 , pp. 130-133
    • Duffy, M.E.1
  • 29
    • 0004023060 scopus 로고    scopus 로고
    • New York: Cambridge University Press Engestrom Y
    • Perspectives on activity theory New York: Cambridge University Press, Engestrom Y, 1999
    • (1999) Perspectives on Activity Theory
  • 30
    • 84859140113 scopus 로고    scopus 로고
    • Pan-Britain, mixed-methods study of multidisciplinary teams teaching parents to manage children's long-term kidney conditions at home: Study protocol
    • Pan-Britain, mixed-methods study of multidisciplinary teams teaching parents to manage children's long-term kidney conditions at home: Study protocol. Swallow V, Allen D, Williams J, Lambert H, Wirz L, Crosier J, Webb N, Quizlbach L, BMC Health Services Res 2012 12
    • (2012) BMC Health Services Res , vol.12
    • Swallow, V.1    Allen, D.2    Williams, J.3    Lambert, H.4    Wirz, L.5    Crosier, J.6    Webb, N.7    Quizlbach, L.8
  • 32
    • 34447645163 scopus 로고    scopus 로고
    • A randomized trial of mailed tools versus telephone interviews: Response patterns in a survey
    • A randomized trial of mailed tools versus telephone interviews: response patterns in a survey. Feveile H, Olsen O, Hogh A, BMC medical research methodology 200 7
    • (2007) BMC Medical Research Methodology
    • Feveile, H.1    Olsen, O.2    Hogh, A.3
  • 37
    • 0037495910 scopus 로고    scopus 로고
    • Sharing Meaning Across Occupational Communities: The Transformation of Understanding on a Production Floor
    • 10.1287/orsc.14.3.312.15162
    • Sharing Meaning Across Occupational Communities: The Transformation of Understanding on a Production Floor. Bechky B, Organization Science 2003 14 312 330 10.1287/orsc.14.3.312.15162
    • (2003) Organization Science , vol.14 , pp. 312-330
    • Bechky, B.1
  • 39
    • 2442619670 scopus 로고    scopus 로고
    • Further refinement of the family management style framework
    • DOI 10.1177/1074840703255435
    • Further refinement of the family management style framework. Knafl K, Deatrick J, Journal of Family Nursing 2003 9 232 256 10.1177/1074840703255435 (Pubitemid 36881512)
    • (2003) Journal Of Family Nursing , vol.9 , Issue.3 , pp. 232-256
    • Knafl, K.A.1    Deatrick, J.A.2
  • 41
    • 79958207533 scopus 로고    scopus 로고
    • Fathers and mothers developing skills in managing children's long-term medical conditions: How do their qualitative accounts compare?
    • 10.1111/j.1365-2214.2011.01219.x
    • Fathers and mothers developing skills in managing children's long-term medical conditions: how do their qualitative accounts compare? Swallow V, Lambert H, Santacroce S, Macfadyen A, Child: Care Health & Development 2011 37 512 523 10.1111/j.1365-2214.2011.01219.x
    • (2011) Child: Care Health & Development , vol.37 , pp. 512-523
    • Swallow, V.1    Lambert, H.2    Santacroce, S.3    Macfadyen, A.4
  • 44
    • 0035235602 scopus 로고    scopus 로고
    • Mothers' coping in chronic childhood illness: The effect of presymptomatic diagnosis of vesicoureteric reflux
    • DOI 10.1046/j.1365-2648.2001.01639.x
    • Mothers' coping in chronic childhood illness: the effect of presymptomatic diagnosis of vesicoureteric reflux. Swallow VM, Jacoby A, Journal of Advanced Nursing 2001 33 69 78 10.1046/j.1365-2648.2001.01639.x 11155110 (Pubitemid 33609380)
    • (2001) Journal of Advanced Nursing , vol.33 , Issue.1 , pp. 69-78
    • Swallow, V.M.1    Jacoby, A.2
  • 45
    • 56349108167 scopus 로고    scopus 로고
    • An ethnography of a children's renal unit: Experiences of children and young people with long-term renal illness
    • 10.1111/j.1365-2702.2008.02645.x 19012780
    • An ethnography of a children's renal unit: experiences of children and young people with long-term renal illness. Lindsay Waters A, Journal of Clinical Nursing 2008 17 3103 3114 10.1111/j.1365-2702.2008.02645.x 19012780
    • (2008) Journal of Clinical Nursing , vol.17 , pp. 3103-3114
    • Lindsay Waters, A.1
  • 46
    • 84880795851 scopus 로고    scopus 로고
    • 'It is life threatening but i don't mind'. A qualitative study using photo elicitation interviews to explore adolescents' experiences of renal replacement therapies
    • no-no
    • 'It is life threatening but I don't mind'. A qualitative study using photo elicitation interviews to explore adolescents' experiences of renal replacement therapies. Wells F, Ritchie D, McPherson AC, Child: Care, Health and Development 2012 no-no
    • (2012) Child: Care, Health and Development
    • Wells, F.1    Ritchie, D.2    McPherson, A.C.3
  • 47
    • 84984641785 scopus 로고    scopus 로고
    • Developing and evaluating complex interventions: New guidance
    • City: Medical Research Council
    • Developing and evaluating complex interventions: new guidance. MRC, Book Developing and evaluating complex interventions: new guidance City: Medical Research Council 2008
    • (2008) Book Developing and Evaluating Complex Interventions: New Guidance
  • 48
    • 33847347419 scopus 로고    scopus 로고
    • An exploration of best practice in multi-agency working and the experiences of families of children with complex health needs
    • 10.1111/j.1365-2702.2006.01554.x 17335529
    • An exploration of best practice in multi-agency working and the experiences of families of children with complex health needs. Carter B, Cummings J, Cooper L, Journal of Clinical Nursing 2007 16 527 539 10.1111/j.1365-2702.2006.01554.x 17335529
    • (2007) Journal of Clinical Nursing , vol.16 , pp. 527-539
    • Carter, B.1    Cummings, J.2    Cooper, L.3
  • 49
    • 0031317855 scopus 로고    scopus 로고
    • Families and children's chronic conditions: Knowledge development and methodological considerations
    • Families and Children's Chronic Conditions: Knowledge Development and Methodological Considerations. Hayes V, Scholarly Inquiry for Nursing Practice: An International Journal 1997 11 259 290
    • (1997) Scholarly Inquiry for Nursing Practice: An International Journal , vol.11 , pp. 259-290
    • Hayes, V.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.