Parental perceptions of the outcome and meaning of normalization

Research in Nursing and Health

Volumn 33, Issue 2, 2010, Pages 87-98

  Knafl, Kathleen A ^a   Darney, Blair G ^b   Gallo, Agatha M ^c   Angst, Denise B ^d  

^a UNIVERSITY OF NORTH CAROLINA   (United States)

^b UNIVERSITY OF WASHINGTON   (United States)

^c UNIVERSITY OF ILLINOIS AT CHICAGO   (United States)

^d ADVOCATE HEALTH CARE   (United States)

Author keywords

Family; Genetic condition; Normalization

Indexed keywords

ADAPTIVE BEHAVIOR; ADOLESCENT; ADULT; ARTICLE; ATTITUDE TO HEALTH; CHILD; CHRONIC DISEASE; COST OF ILLNESS; EDUCATION; FEMALE; GENETIC DISORDER; HEALTH; HUMAN; LIFE EVENT; MALE; NURSING METHODOLOGY RESEARCH; PARENT; PRESCHOOL CHILD; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; QUESTIONNAIRE; ROLE PLAYING; SELF CONCEPT; UNITED STATES;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; ADULT; ATTITUDE TO HEALTH; CHILD; CHILD, PRESCHOOL; CHRONIC DISEASE; COST OF ILLNESS; FEMALE; GENETIC DISEASES, INBORN; HEALTH; HUMANS; LIFE CHANGE EVENTS; MALE; MIDWESTERN UNITED STATES; NURSING METHODOLOGY RESEARCH; PARENTS; QUALITY OF LIFE; QUESTIONNAIRES; ROLE; SELF EFFICACY;

EID: 77950501353     PISSN: 01606891     EISSN: 1098240X     Source Type: Journal    
DOI: 10.1002/nur.20367     Document Type: Article

References (25)

1. Austin, J.K., & Huberty, T.J. (1989). Revision of the family APGAR for use by 8-year-olds. Family Systems Medicine, 7, 323-327.
2. Deatrick, J.A., Knafl, K.A., & Murphy-Moore, C. (1999). Clarifying the concept of normalization. Image: The Journal of Nursing Scholarship, 31, 209-214.
3. Dochterman J., & Bulechek G. (Eds.), (2004). Nursing interventions classification. (NIC; 4th ed.) St. Louis, MO: Mosby.
4. Gallo, A.M., Angst, D., Knafl, K.A., Hadley, E., & Smith, C. (2005). Parents sharing information with their children about genetic conditions. Journal of Pediatric Health Care, 19(5), 267-275.
5. Gallo, A.M., Hadley, E.K., Angst, D.B., Knafl, K.A., & Smith, C.A. (2008). Parents' concerns about issues related to their children's genetic conditions. Journal for Specialists in Pediatric Nursing, 13(1), 4-14.
6. Gallo, A.M., & Knafl, K.A. (1998). Parents' reports of "tricks of the trade"for managing childhood chronic illness. Journal of the Society of Pediatric Nurses, 3(3), 93-100.
7. Gallo, A.M., Knafl, K.A., & Angst, D.B. (2009). Information management in families who have a child with a genetic condition. Journal of Pediatric Nursing, 24(3), 194-204.
8. Gantt, L. (2002). As normal a life as possible: Mothers and their daughters with congenital heart disease. Health Care for Women International, 23(5), 481- 491.
9. Gjengedal, E., Rustoen, T.,Wahl, A.K.,&Hanesta, B.R. (2003). Growing up and living with cystic fibrosis: Everyday life and encounters with the health care and social services-A qualitative study. ANS: Advances in Nursing Science, 26(2), 149-159.
10. Glaser, B., & Strauss, A. (1967). The discovery of grounded theory. Chicago: Aldine.
11. Knafl, K., Breitmayer, B., Gallo, A., & Zoeller, L. (1996). Family response to childhood chronic illness: Description of management styles. Journal of Pediatric Nursing, 11(5), 315-326.
12. Knafl, K.A.,&Deatrick, J.A. (2003). Further refinement of the family management style framework. Journal of Family Nursing, 9(3), 232-256.
13. Knafl, K.A., Knafl, G.J., Gallo, A.M., & Angst, D. (2007). Parents' perceptions of functioning in families having a child with a genetic condition. Journal of Genetic Counseling, 16(4), 481-492.
14. McCubbin, H.I., & Thompson, A.I. (1991). Family assessment inventories for research and practice. Madison, WI: University of Wisconsin Press.
15. McCubbin, H.I., Thompson, A.I., & McCubbin, M.A. (1996). Family assessment: Resiliency, coping, and adaptation. Madison, WI: University of Wisconsin Press.
16. McDougal, J. (2002). Promoting normalization in families with preschool children with type 1 diabetes. Journal for Specialists in Pediatric Nursing, 7(3), 113-120.
17. Miles, M.B., & Huberman, A.M. (1994). Qualitative data analysis: An expanded sourcebook (2nd ed.) Thousand Oaks, CA: Sage.
18. Morse, J.M., Wilson, S., & Penrod, J. (2000). Mothers and their disabled children: Refining the concept of normalization. Health Care forWomen International, 21(8), 659-676.
19. Park, C.L., & Folkman, S. (1997). Meaning in the context of stress and coping. Review of General Psychology, 1(2), 115-144.
20. Patton, M. (2002). Qualitative research and evaluation methods (3rd ed.) Thousand Oaks, CA: Sage.
21. Rehm, R.S., & Bradley, J.F. (2005). Normalization in families raising a child who is medically fragile/ technology dependent and developmentally delayed. Qualitative Health Research, 15(6), 807-820.
22. Robinson, C.A. (1993). Managing life with a chronic condition: The story of normalization. Qualitative Health Research, 3(1), 6-28.
23. Robinson, C.A. (1996). Health care relationships revisited. Journal of Family Nursing, 2(2), 152- 173.
24. Sawin, K.J., & Harrigan, M.P. (1995). Measures of family functioning for research and practice. New York: Springer.
25. Smilkstein, G. (1978). The family APGAR: A proposal for a family function test and its use by physicians. The Journal of Family Practice, 6(6), 1231-1239.