An exploration of mothers' and fathers' views of their identities in chronic-kidney-disease management: Parents as students?

Journal of Clinical Nursing

Volumn 17, Issue 23, 2008, Pages 3177-3186

  Swallow, Veronica ^a  

^a UNIVERSITY OF MANCHESTER   (United Kingdom)

Author keywords

Children; Chronic kidney disease; Nurses; Nursing; Parents

Indexed keywords

ARTICLE; CHRONIC DISEASE; FATHER; FEMALE; HUMAN; KIDNEY DISEASE; LONGITUDINAL STUDY; MALE; MOTHER; UNITED KINGDOM;

CHRONIC DISEASE; FATHERS; FEMALE; GREAT BRITAIN; HUMANS; KIDNEY DISEASES; LONGITUDINAL STUDIES; MALE; MOTHERS;

EID: 56349139623     PISSN: 09621067     EISSN: 13652702     Source Type: Journal    
DOI: 10.1111/j.1365-2702.2008.02642.x     Document Type: Article

References (42)

1. Barlow JH Ellard DR (2006) The psychosocial well-being of children with chronic disease, their parents and siblings: an overview of the research evidence base. Child: Care, Health and Development 32, 19 31.
2. Biddle B (1979) Role Theory: Expectations, Identities and Behaviours. Academic Press, New York.
3. Callery P Smith L (1991) A study of role negotiation between nurses and the parents of hospitalized children. Journal of Advanced Nursing 16, 772 781.
4. Caress A, Luker KA Owens R (2001) A descriptive study of meaning of illness in chronic renal disease. Journal of Advanced Nursing 33, 716 727.
5. Cargill A Watson A (2002) Sources of information on renal conditions used by families. Pediatric Nephrology 17, 648 651.
6. Coulthard MG Crosier J (2002) Outcome of reaching end stage renal failure in children under 2 years of age. Archives of Disease in Childhood 87, 511 517.
7. Coyne IT (1996) Parent participation: a concept analysis. Journal of Advanced Nursing 23, 733 740.
8. Davies B Harre R (1990) Positioning: the discursive production of selves. Journal for the Theory of Social Behaviour 20, 43 63.
9. Davies B Harre R (1999) Positioning and personhood. In Positioning Theory (Harre R Langenhove L eds). Blackwell, Oxford, pp. 32 52.
10. DOH (2006) The National Service Framework for Renal Services: Working for Children and Young People. Department of Health, London.
11. DoH/DfES (2004) Every Child Matters - National Service Framework for Children, Young People and Maternity Services. Department for Education and Skills, Nottingham.
12. Franck LS Callery P (2004) Re-thinking family-centred care across the continuum of children's healthcare. Child Care Health and Development 30, 265 277.
13. Gerson AC, Furth SL et al. (2004) Assessing associations between medication adherence and potentially modifiable psychosocial variables in pediatric kidney transplant recipients and their families. Pediatric Transplantation 8, 543 550.
14. Glaser BG Strauss AL (1967) The Discovery of Grounded Theory: Strategies for Qualitative Research. Aldine de Gruyter, New York.
15. Harre R Langenhove L (1992) Varieties of positioning. Journal for the Theory of Social Behavior 20, 393 407.
16. Harre R Langenhove L (1999) The dynamics of social episodes. In Positioning Theory: Moral Contexts of Intentional Action (Harre R Langenhove L eds). Blackwell, Oxford, pp. 1 13.
17. Jones R (2006) Older people talking as if they are not older people: positioning theory as an explanation. Journal of Aging Studies 20, 79 91.
18. Kirk S (2001) Negotiating lay and professional roles in the care of children with complex health care needs. Journal of Advanced Nursing 34, 593 602.
19. Kvale S (1996) Interviews: An Introduction to Qualitative Research Interviewing. Sage, Thousand Oaks, CA.
20. Legard R, Keegan J et al. (2003) In-depth interviews. In : Qualitative Research Practice (Ritchie J Lewis J eds). Sage Publications, London, pp. 138 169.
21. Lewis M (2008) Demography of renal disease in childhood. Seminars in Fetal & Neonatal Medicine 13, 118 124.
22. Lewis M, Shaw J et al. (2007) Demography and management of childhood established renal failure the UK. Nephrology, Dialysis, Transplantation 22, 165 175.
23. MacDonald H (1995) Chronic renal disease: the mother's experience. Pediatric Nursing 21, 503 507.
24. Major DA (2003) Utilizing role theory to help employed parents cope with children's chronic illness. Health Education Research 18, 45 57.
25. McKenzie P (2004) Positioning theory and the negotiation of information needs in a clinical midwifery setting. Journal of the American Society for Information Sciences and Technology 55, 685 694.
26. O'Connor D (2007) Self-identifying as a caregiver: exploring the positioning process. Journal of Aging Studies 21, 165 174.
27. Ritchie J Spencer L (1994) Qualitative Data Analysis For Applied Policy Research. In Analyzing Qualitative Data (Bryman A Burgess RG eds). Routledge, London, pp. 173 194.
28. Savage E Callery P (2000) Parental participation in the care of hospitalised children: a review of the research evidence. In L Ireland (Glasper EA ed). Palgrave, Basingstoke, Hampshire, pp. 57 89.
29. Schmidt S, Peterson C et al. (2003) Coping with chronic disease from the perspective of children and adolescents - a conceptual framework and its implications for participation. Child Care, Health and Development 29, 63 75.
30. Schreiber RS Stern PN (2001) Using Grounded Theory in Nursing. Springer Publishing, New York.
31. Scott JES, Swallow V et al. (1997) Screening the Newborn for familial Ureteric reflux. The Lancet 350, 396 400.
32. Sinha MD Webb NJA 2006) Shared care of children with renal disease. Current Paediatrics 16, 254 258.
33. Spouse J (2003) Professional Learning in Nursing. Blackwell Publishing, Oxford.
34. Strauss A Corbin J (1998) Basics of Qualitative Research: Techniques and Procedures for Developing Grounded Theory. Sage, Thousand Oaks.
35. Swallow V (2006) Learning to manage chronic childhood renal disease: the experiences of children and families. School of Health, Community and Education Studies, Northumbria University, Newcastle upon Tyne.
36. Swallow VM Jacoby A (2001a) Mothers' coping in chronic childhood illness: the effect of presymptomatic diagnosis of VUR. Journal of Advanced Nursing 33, 69 78.
37. Swallow VM Jacoby A (2001b) Mothers' evolving relationships with doctors and nurses during the chronic childhood illness trajectory. Journal of Advanced Nursing 36, 755 764.
38. Swallow V, Newton J et al. (2003) How to manage and display qualitative data using 'Framework' and Microsoft Excel. Journal of Clinical Nursing 12, 610 612.
39. Swallow V, Lambert M, Clarke C, Campbell S Jacoby A (2008) Childhood chronic-kidney-disease: A longitudinal - qualitative study of families learning to share management early in the trajectory. Patient Education and Counseling (in press available at: http://dx.doi.org/10.1016/j.pec.2008.07.052).
40. Tong A, Lowe A et al. (2008) Experiences of parents who have children with chronic kidney disease: a systematic review of qualitative studies. Pediatrics 121, 340 360.
41. Vygotsky L (1962) Language and Thought. MIT Press, Cambridge MA.
42. Wenger E (1998) Communities of Practice: Learning, Meaning and Identity. Cambridge University Press, Cambridge.