Mothers' coping in chronic childhood illness: The effect of presymptomatic diagnosis of vesicoureteric reflux

Journal of Advanced Nursing

Volumn 33, Issue 1, 2001, Pages 69-78

  Swallow, Veronica M ^a   Jacoby, Ann ^b  

^a NORTHUMBRIA UNIVERSITY   (United Kingdom)

^b UNIVERSITY OF LIVERPOOL   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ADAPTIVE BEHAVIOR; ARTICLE; CHRONIC DISEASE; CLINICAL TRIAL; COMPARATIVE STUDY; FEMALE; HEALTH EDUCATION; HEALTH SERVICE; HUMAN; INFANT; MOTHER; MULTICENTER STUDY; NEWBORN; NURSING; PSYCHOLOGICAL ASPECT; SELF CONCEPT; SOCIAL SUPPORT; UNITED KINGDOM; VESICOURETERAL REFLUX;

ADAPTATION, PSYCHOLOGICAL; CHRONIC DISEASE; ENGLAND; FEMALE; HEALTH EDUCATION; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; INFANT; INFANT, NEWBORN; MOTHERS; SELF CONCEPT; SOCIAL SUPPORT; VESICO-URETERAL REFLUX;

EID: 0035235602     PISSN: 03092402     EISSN: None     Source Type: Journal    
DOI: 10.1046/j.1365-2648.2001.01639.x     Document Type: Article

References (81)

1. Arthur V.A.M. (1995) Written patient information: a review of the literature. Journal of Advanced Nursing 21, 1081-1086.
2. Atkin K. & Ahmad W.I.U. (2000) Family care-giving and chronic illness: how parents cope with a child with a sickle cell disorder or thalasaemia. Health and Social Care in the Community 8, 57-69.
3. Baker G.A., Jacoby A. & Buck D. (1997) Quality of life of people with epilepsy: a European study. Epilepsia 38, 353-362.
4. Barlow J., Harrison K. & Shaw K. (1998) The experiences of parenting in juvenile chronic arthritis. Clinical Child Psychology and Psychiatry 3, 445-463.
5. Bartlett E.E. (1984) Effective approaches to patient education for the busy paediatrician. Pediatrics 74, 920-923.
6. Bredin H.C., Winchester P., McGovern J.H. & Degnam M. (1975) Family study of vesicoureteral reflux. Journal of Urology 113, 623-625.
7. Burton E. (1975) The Family Life of Sick Children. Routledge & Kegan Paul, London and Boston.
8. Bury M. (1982) Chronic illness as biographical disruption. Sociology of Health and Illness 4, 167-182.
9. Callery P. (1997) Caring for parents of hospitalised children: a hidden area of nursing work. Journal of Advanced Nursing 26, 992-998.
10. Canam C. (1993) Common adaptive tasks facing parents of children with chronic conditions. Journal of Advanced Nursing 18, 46-53.
11. Charmaz K. (1983) Loss of self: a fundamental form of suffering in the chronically ill. Sociology of Health and Illness 5, 168-195.
12. Clayton E.W., Hannig V.L., Pfotenhauer J.P., Parker R.A., Campbell P.W. & Phillips J.A. (1995) Teaching about cystic fibrosis carrier screening by using written and video information. American Journal of Human Genetics 57, 171-181.
13. Cohen M.H. (1995) The triggers of heightened parental uncertainty in chronic life threatening childhood illness. Qualitative Health Research 5, 63-77.
14. Cohen M.H. (1997) The stages of prediagnostic period in chronic life threatening childhood illness: a process analysis. Research in Nursing and Health 18, 39-48.
15. Conrad P. (1990) Qualitative research on chronic illness: a commentary on method and conceptual development. Social Science and Medicine 30, 1257-1263.
16. Corbin J.M. & Strauss A. (1991) A nursing model for chronic illness management based upon the trajectory framework. Scholarly Inquiry for Nursing Practice 5, 155-174.
17. Goyne I.T. (1995) Partnership in care: parents views of participation in their hospitalised child's care. Journal of Clinical Nursing 4, 71-79.
18. Coyne I.T. (1997) Chronic illness: the importance of support for families caring for a child with cystic fibrosis. Journal of Clinical Nursing 6, 121-129.
19. Darbyshire P. (1994) Living with a Sick Child in Hospital: The Experiences of Parents and Nurses. Chapman & Hall, London.
20. Denayer L., Evers-kiebooms G. & Van den berghe H. (1990) A child with cystic fibrosis: I. Parental knowledge about the genetic transmission of CF and about DNA-diagnostic procedures. Clinical Genetics 37, 198-206.
21. De wet B. & Cywes S. (1985a) The birth of a child with congenital abnormality, Part I. South African Medical Journal 67, 292-296.
22. De wet B. & Cywes S. (1985b) The birth of a child with a congenital abnormality, Part II. South African Medical Journal 67, 340-343.
23. Eiser C. (1990) Chronic Childhood Disease: An Introduction to Psychological Theory and Research. Cambridge University Press, Cambridge.
24. Eiser C. (1993) Growing up with a Chronic Disease. The Impact on Children and Their Families. Jessica Kingsley Publishers, London.
25. Eiser C. (1994) Making sense of chronic disease. The 11th Tizard, Jack memorial lecture. Journal of Child Psychology and Psychiatry and Allied Disciplines 35, 1373-1389.
26. Finch J. & Groves D. (1983) A Labour of Love: Women, Work and Caring. Routledge and Kegan Paul, London.
27. Freeling P. (1986) The doctor-patient relationship in diagnosis and treatment. In Doctor-Patient Communication (Pendleton D. & Hasler J. eds), Academic Press, London.
28. Gallo A.M. (1991) Family adaptation in childhood chronic illness: a case report. Journal of Pediatric Health Care 5, 78-85.
29. Gibson C.H. (1995) The process of empowerment in mothers of chronically ill children. Journal of Advanced Nursing 21, 1201-1210.
30. Glaser B.G. & Strauss A.L. (1967) The Discovery of Grounded Theory: Strategies for Qualitative Research. Aldine, New York.
31. Glasper A. & Burge D. (1992) Developing family information leaflets. Nursing Standard 6, 24-27.
32. Guba E.G. & Lincoln Y.S. (1989) Fourth Generation Evaluation. Newbury Park, Sage, California.
33. Hames A., Beesley J. & Nelson R. (1991) Cystic fibrosis: what do patients know and what else would they like to know? Respiratory Medicine 85, 389-392.
34. Hartman A.F., Radin M.B. & Mcconnell B. (1992) Parent-to-parent support: a critical component of health care services for families. Issues in Comprehensive Pediatric Nursing 15, 55-67.
35. Havermans T. & EiSeries C. (1991) Mothers' perceptions of parenting a child with spina bifida. Child: Care, Health and Development 17, 259-273.
36. Hilton B.A. (1992) Perception of uncertainty: its relevance to life-threatening and chronic illness. Critical Care Nurse 12, 70-73.
37. Hogbin B. & Fallowfield L. (1989) Getting it taped: The 'bad news' consultation with cancer patients. British Journal of Hospital Medicine 41, 330-333.
38. Horowitz M.J. & Kaltreider N.B. (1980) Brief psychotherapy of stress response syndromes. In Specialized Techniques in Individual Psychotherapy (Karasu T. & Bellak L. eds), Brunner/Mazel, New York, pp. 162-183.
39. Jacoby A. (1992) Epilepsy and the quality of everyday life; findings from a study of people with well-controlled epilepsy. Social Science and Medicine 34, 657-666.
40. Lincoln Y.S. & Guba E.G. (1985) Naturalistic Enquiry. Newbury Park, Sage, California.
41. Kubler-Ross E. (1969) On Death and Dying. MacMillan, New York.
42. Koch T. (1994) Establishing rigour in qualitative research: the decision trail. Journal of Advanced Nursing 19, 976-986.
43. Lazarus R.S. & Folkman S. (1984) Coping and adaptation. In Handbook of Behavioural Medicine (Gentry W.G. ed.), Guilford, London, pp. 25-30).
44. Maykut P. & Morehouse R. (1994) Beginning Qualitative Research: A Philosophical and Practical Guide. The Falmer Press.
45. Middence K. (1994) The effects of chronic illness on children and their families: an overview. Genetic, Social and General Psychological Monographs 20, 309-326.
46. Mishel M.H. (1983) Parents' perception of uncertainty concerning their hospitalized child. Nursing Research 32, 324-330.
47. Murphy E., Dingwell R., Greatbatch D. et al. (1998) Qualitative research methods in health technology assessment: a review of the literature. Health Technology Assessment 2(16): Southampton.
48. Newacheck P.W. & Taylor R.W. (1992) Childhood chronic illness: prevalence, severity, and impact. American Journal of Public Health 82, 364-371.
49. Noe H.N. (1992) The long term results of prospective sibling reflux screening. Journal of Urology 148, 1730-1742.
50. Oakley A. (1976) The family, marriage, and its relationship to illness. In An Introduction to Medical Sociology (Tuckett D. ed.), Tavistock, London, pp. 74-109.
51. Olsen D.G. (1994) Parental adjustment to a child with genetic disease: one parent's reflections. Journal of Obstetric, Gynecologic and Neonatal Nursing 23, 516-518.
52. Patterson J.M., McCubbin H.I. & Warwick W.J. (1990) The impact of family functioning on health changes in children with cystic fibrosis. Social Science and Medicine 31, 159-164.
53. Patterson J.M., Leonard B.J. & Titus J.C. (1992) Home care for medically fragile children: Impact on family health and well-being. Journal of Developmental and Behavioural Pediatrics 13, 248-255.
54. Ray L.D. & Ritchie J.A. (1993) Caring for chronically ill children at home: factors that influence parents' coping. Journal of Pediatric Nursing 8, 217-225.
55. Reid J., Ewan C. & Lowy E. (1991) Pilgrimage of pain: the illness experiences of women with repetitive strain injury and the search for credibility. Social Science and Medicine 32, 601-612.
56. Ritchie J. & Spenser L. (1994) Qualitative data analysis for applied policy research. In Analysing Qualitative Data (Bryman A. & Burgess R.G. eds), Routledge, London, pp. 173-194.
57. Rolleston G.I., Shannon F.T. & Utley W.L.F. (1970) Relationship of infantile vesicoureteric reflux to renal damage. British Medical Journal 1, 460-463.
58. Royal College of Physicans Research Unit Working Group (1991) Guidelines for the management of acute urinary tract infection in childhood. Journal of the Royal College of Physicians of London 25, 36-42.
59. Scambler G. & Hopkins A. (1990) Generating a model of epileptic stigma: the role of qualitative analysis. Social Science and Medicine 30, 1187-1194.
60. Scott J.E.S. & Stansfield J.M. (1968) Ureteric reflux and kidney scarring in children. Archives of Disease in Childhood 43, 468-470.
61. Scott J.E.S. (1996) The management of ureteric reflux. European Urology Update Series 5, 25-33.
62. Scott J.E.S., Swallow V., Coulthard M.G., Lambert H.J. & Lee R.E.J. (1997) Screening the newborn for familial ureteric reflux. The Lancet 350, 396-400.
63. Smellie J.M., Poulton A. & Prescod N.P. (1994) Retrospective study of children with renal scarring associated with reflux and urinary infection. British Medical Journal 308, 1193-1196.
64. Spinetta J.J. (1981) Adjustment and adaptation in children with cancer. In Living with Childhood Cancer (Spinetta J.J. & Spinetta P. eds), Mosby, St Louis.
65. Stephens E.D., Joske R.A. & Sommons R.T. (1955) Megaureter with vesicoureteric reflux in twins. Australian and New Zealand Journal of Surgery 24, 192-194.
66. Stewart M.J., Ritchie J.A., Mcgrath P., Thompson D. & Bruce B. (1994) Mothers of children with chronic conditions: supportive and stressful interactions with partners and professionals regarding caregiving burdens. Canadian Journal of Nursing Research 26, 61-82.
67. Swallow V.M. & Thompson E. (1992) Childrens asthma support for parents: a parent support group. Paediatric Nursing 4, 23-24.
68. Swallow V.M. (1997) A Study to Investigate the Views of Mothers Coping with a Chronic Childhood Condition (Vesicoureteric Reflux). Mmed Sci Thesis, Newcastle University, Newcastle upon Tyne.
69. Tavriger R. (1966) Some parental theories about the causes of epilepsy. Epilepsia (New York) 7, 339-343.
70. Thompson R.J., Gill K.R., Burdach D.J., Keith B.R. & Kinney T.R. (1993) Role of child and maternal processes in the psychological adjustment to sickle cell disease. Journal of Consultant and Clinical Psychology 61, 468-474.
71. Thorne S.E. & Robinson C.A. (1988) Health care relationships: the chronic illness perspective. Research in Nursing and Health 11, 293-300.
72. Tizzano E.F. & Buchwald M. (1993) Recent advances in cystic fibrosis research. Journal of Pediatrics 122, 985-987.
73. Ventners M. (1981) Familial coping with chronic and severe childhood illness: the case of cystic fibrosis. Social Science and Medicine 15A, 289-297.
74. Verrier Jones K. (1997) Screening babies for vesicoureteric reflux. The Lancet 350, 380.
75. Wallander J.L., Varni J.W., Babani L., DeHann C.B., Wilcox K.T. & Banis H.T. (1989) The social environment and the adaptation of mothers of physically handicapped children. Journal of Paediatric Psychology 14, 371-387.
76. Wallander J.L. & Noojin A.B. (1995) Mothers' reports of stressful experiences related to having a child with a physical disability. Children's Health Care 24, 245-256.
77. Walsh M. (1992) Sources of stress in children with asthma. Journal of School Health 62, 459-462.
78. Williams G. (1984) The genesis of chronic illness: narrative reconstruction. Sociology of Health and Illness 6, 175-200.
79. Williams P.D., Lorenzo F.D. & Borja M. (1993) Paediatric chronic illness: effects on siblings and mothers. Maternal-Child Nursing Journal 21, 111-121.
80. Wilson J.M.G. & Jungner G. (1968) Principles and Practice of Screening for Disease. World Health Organisation, Geneva.
81. Wortman C.B. & Silver R.C. (1987) Coping with irrevocable loss. In Cataclysms, Crises and Catastrophes (Vandenbos G.R. & Bryant B.K. eds), APA, Washington, DC, pp. 185-235.