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Volumn 117, Issue 4, 2012, Pages 263-274

We want respect: Adults with intellectual and developmental disabilities address respect in research

Author keywords

Inclusion; People with intellectual and developmental disabilities; Research participation; Respect

Indexed keywords

ADULT; AGED; ARTICLE; DEVELOPMENTAL DISORDER; ETHICS; FEMALE; HUMAN; HUMAN RELATION; INTELLECTUAL IMPAIRMENT; MALE; MEDICAL RESEARCH; METHODOLOGY; MIDDLE AGED; PATIENT PARTICIPATION; PSYCHOLOGIC TEST; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; STANDARD;

EID: 84865117198     PISSN: 19447515     EISSN: 19447558     Source Type: Journal    
DOI: 10.1352/1944-7558-117.4.263     Document Type: Article
Times cited : (38)

References (46)
  • 1
    • 33845307615 scopus 로고    scopus 로고
    • Picture this: The use of participatory photographic research methods with people with learning disabilities
    • DOI 10.1080/09687590601056006, PII R212142326118283
    • Aldridge, J. (2007). Picture this: The use of participatory photographic research methods with people with learning disabilities. Disability & Society, 22, 1-17. (Pubitemid 44878927)
    • (2007) Disability and Society , vol.22 , Issue.1 , pp. 1-17
    • Aldridge, J.1
  • 2
    • 33748478835 scopus 로고    scopus 로고
    • Reactions to Ethical challenges and complexities of including people with intellectual disability as participants in research by Dr Teresa Iacono
    • DOI 10.1080/13668250600876400, PII V2V3042K12271037
    • Aman, M., & Handen, B. (2006). Reactions to ''Ethical challenges and complexities of including people with intellectual disability as participants in research'' by Dr. Teresa Iacono. Journal of Intellectual & Developmental Disability, 31, 180-182. (Pubitemid 44359323)
    • (2006) Journal of Intellectual and Developmental Disability , vol.31 , Issue.3 , pp. 180-182
    • Aman, M.G.1    Handen, B.2
  • 3
    • 55249087038 scopus 로고    scopus 로고
    • What to tell and how to tell: A qualitative study of information sharing in research with adults with intellectual disability
    • Andre-Barron, D., Strydom, A., & Hassiotis, A. (2008). What to tell and how to tell: A qualitative study of information sharing in research with adults with intellectual disability. Journal of Medical Ethics, 34, 501-506.
    • (2008) Journal of Medical Ethics , vol.34 , pp. 501-506
    • Andre-Barron, D.1    Strydom, A.2    Hassiotis, A.3
  • 4
    • 84865124020 scopus 로고    scopus 로고
    • Atlasti Scientific Software Development. Berlin, Germany: Author
    • Atlasti Scientific Software Development. (2009). Atlas.ti (v.6.0). Software. Berlin, Germany: Author.
    • (2009) Atlasti (v.6.0). Software
  • 5
    • 9444248633 scopus 로고    scopus 로고
    • Recruiting people with disabilities as research participants: Challenges and strategies to address them
    • DOI 10.1352/0047-6765(2004)42<471:RPWDAR>2.0.CO;2
    • Becker, H., Roberts, G., Morrison, J., & Silver, J. (2004). Recruiting people with disabilities as research participants: Challenges and strategies to address them. Mental Retardation, 42, 471-475. (Pubitemid 39563549)
    • (2004) Mental Retardation , vol.42 , Issue.6 , pp. 471-475
    • Becker, H.1    Roberts, G.2    Morrison, J.3    Silver, J.4    Taub, S.5
  • 6
    • 61649111753 scopus 로고    scopus 로고
    • Research ethics and the use of visual images in research with people with intellectual disability
    • Boxall, K., & Ralph, S. (2009). Research ethics and the use of visual images in research with people with intellectual disability. Journal of Intellectual & Developmental Disability, 34, 45-54.
    • (2009) Journal of Intellectual & Developmental Disability , vol.34 , pp. 45-54
    • Boxall, K.1    Ralph, S.2
  • 7
    • 0002669264 scopus 로고    scopus 로고
    • Representing the lives of women with learning difficulties: Ethical dilemmas in the research process
    • Brigham, L. (1998). Representing the lives of women with learning difficulties: Ethical dilemmas in the research process. British Journal of Learning Disabilities, 26, 146-150.
    • (1998) British Journal of Learning Disabilities , vol.26 , pp. 146-150
    • Brigham, L.1
  • 8
    • 0035723038 scopus 로고    scopus 로고
    • Ethical reflections in research on persons with intellectual disabilities
    • Brodin, J., & Renblad, K. (2000). Ethical reflections in research on persons with intellectual disabilities. Technology & Disability, 13, 151-159.
    • (2000) Technology & Disability , vol.13 , pp. 151-159
    • Brodin, J.1    Renblad, K.2
  • 9
    • 34249790303 scopus 로고    scopus 로고
    • Obtaining consent to participate in research: The issues involved in including people with a range of learning and communication disabilities
    • Cameron, L., & Murphy, J. (2006). Obtaining consent to participate in research: The issues involved in including people with a range of learning and communication disabilities. British Journal of Learning Disabilities, 35, 113-120.
    • (2006) British Journal of Learning Disabilities , vol.35 , pp. 113-120
    • Cameron, L.1    Murphy, J.2
  • 10
    • 84865150388 scopus 로고    scopus 로고
    • Nothing about us without us: Disability oppression and empowerment
    • Charlton, J. (1998). Nothing about us without us: Disability oppression and empowerment. British Journal of Learning Disabilities, 32, 186-190.
    • (1998) British Journal of Learning Disabilities , vol.32 , pp. 186-190
    • Charlton, J.1
  • 11
    • 0033033451 scopus 로고    scopus 로고
    • On, to, for, with - Vulnerable people and the practices of the research community
    • Clements, J., Rapley, M., & Cummins, R. A. (1999). On, to, for, with -Vulnerable people and the practices of the research community. Behavioural & Cognitive Psychotherapy, 27, 103-115. (Pubitemid 29265505)
    • (1999) Behavioural and Cognitive Psychotherapy , vol.27 , Issue.2 , pp. 103-115
    • Clements, J.1    Rapley, M.2    Cummins, R.A.3
  • 12
    • 17844379131 scopus 로고    scopus 로고
    • Ethics guidelines for international multicenter research involving people with intellectual disabilities
    • Dalton, A., & McVilly, K. (2004). Ethics guidelines for international multicenter research involving people with intellectual disabilities. Journal of Policy & Practice in Intellectual Disabilities, 1, 57-70.
    • (2004) Journal of Policy & Practice in Intellectual Disabilities , vol.1 , pp. 57-70
    • Dalton, A.1    McVilly, K.2
  • 13
    • 0033483592 scopus 로고    scopus 로고
    • International and ethical safeguards: Genetics and people with learning disabilities
    • Diesfeld, K. (1999). International and ethical safeguards: Genetics and people with learning disabilities. Disability & Society, 14, 21-36.
    • (1999) Disability & Society , vol.14 , pp. 21-36
    • Diesfeld, K.1
  • 14
  • 16
    • 33846946436 scopus 로고    scopus 로고
    • Capacity of people with intellectual disabilities to consent to take part in a research study
    • Dye, L., Hare, D. J., & Hendy, S. (2007). Capacity of people with intellectual disabilities to consent to take part in a research study. Journal of Applied Research in Intellectual Disabilities, 20, 168-174.
    • (2007) Journal of Applied Research in Intellectual Disabilities , vol.20 , pp. 168-174
    • Dye, L.1    Hare, D.2    Hendy, S.3
  • 17
    • 34548230875 scopus 로고    scopus 로고
    • Capacity to consent to participate in research - A recontextualization
    • DOI 10.1111/j.1468-3156.2004.00262.x
    • Dye, L., Hendy, S., Hare, D. J., & Burton, M. (2004). Capacity to consent to participate in research -A recontextualization. British Journal of Learning Disabilities, 32, 144-150. (Pubitemid 39064551)
    • (2004) British Journal of Learning Disabilities , vol.32 , Issue.3 , pp. 144-150
    • Dye, L.1    Hendy, S.2    Hare, D.J.3    Burton, M.4
  • 18
    • 48849087803 scopus 로고    scopus 로고
    • Ethical challenges of life story research with ex-prisoners with intellectual disability
    • Ellem, K., Wilson, J., Hong Chui, W., & Knox, M. (2008). Ethical challenges of life story research with ex-prisoners with intellectual disability. Disability & Society, 23, 497-509.
    • (2008) Disability & Society , vol.23 , pp. 497-509
    • Ellem, K.1    Wilson, J.2    Chui, H.W.3    Knox, M.4
  • 19
    • 84865128378 scopus 로고    scopus 로고
    • Learning disability research: A discussion paper
    • Ferguson, D. (2004). Learning disability research: A discussion paper. Learning Disability Practice, 7, 17-19. (Pubitemid 38920779)
    • (2004) Learning Disability Practice , vol.7 , Issue.6 , pp. 17-19
    • Ferguson, D.1
  • 20
    • 0037217971 scopus 로고    scopus 로고
    • Goodness-of-fit ethic for informed consent to research involving adults with mental retardation and developmental disabilities
    • DOI 10.1002/mrdd.10052
    • Fisher, C. B. (2003). Goodness-of-fit ethic for informed consent to research involving adults with mental retardation and developmental disabilities. Mental Retardation & Developmental Disabilities Research Reviews, 9, 27-31. (Pubitemid 36298305)
    • (2003) Mental Retardation and Developmental Disabilities Research Reviews , vol.9 , Issue.1 , pp. 27-31
    • Fisher, C.B.1
  • 21
    • 33749465805 scopus 로고    scopus 로고
    • Capacity of persons with mental retardation to consent to participate in randomized clinical trials
    • DOI 10.1176/appi.ajp.163.10.1813
    • Fisher, C. B., Cea, C. D., Davidson, P. W., & Fried, A. L. (2006). Capacity of persons with mental retardation to consent to participate in randomized clinical trials. American Journal of Psychiatry, 163, 1813-1820. (Pubitemid 44522492)
    • (2006) American Journal of Psychiatry , vol.163 , Issue.10 , pp. 1813-1820
    • Fisher, C.B.1    Cea, C.D.2    Davidson, P.W.3    Fried, A.L.4
  • 22
    • 0035316321 scopus 로고    scopus 로고
    • Ethical challenges in the conduct of research involving persons with mental retardation
    • DOI 10.1352/0047-6765(2001)039<0130:ECITCO>2.0.CO;2
    • Freedman, R. I. (2001). Ethical challenges in the conduct of research involving persons with mental retardation. Mental Retardation, 39, 130-141. (Pubitemid 33653132)
    • (2001) Mental Retardation , vol.39 , Issue.2 , pp. 130-141
    • Freedman, R.I.1
  • 23
    • 3042771197 scopus 로고    scopus 로고
    • Involving people with learning disabilities in research: Issues and possibilities
    • DOI 10.1111/j.1365-2524.2004.00499.x
    • Gilbert, T. (2004). Involving people with learning disabilities in research: Issues and possibilities. Health & Social Care in the Community, 12, 298-308. (Pubitemid 38882502)
    • (2004) Health and Social Care in the Community , vol.12 , Issue.4 , pp. 298-308
    • Gilbert, T.1
  • 24
    • 11044225406 scopus 로고    scopus 로고
    • 'I'm a researcher!' Working together to gain ethical approval for a participatory research study
    • DOI 10.1177/1469004704047507
    • Ham, M., Jones, N., Mansell, I., Northway, R., Price, L., & Walker, G. (2004). ''I'm a researcher!'' Working together to gain ethical approval for a participatory research study. Journal of Learning Disabilities, 8, 397-407. (Pubitemid 40045375)
    • (2004) Journal of Learning Disabilities , vol.8 , Issue.4 , pp. 397-407
    • Ham, M.1    Jones, N.2    Mansell, I.3    Northway, R.4    Price, L.5    Walker, G.6
  • 25
    • 0029892517 scopus 로고    scopus 로고
    • Guidelines from the consumer: Improving consumer involvement in research and training for persons with mental retardation
    • Heller, T., Pederson, E., & Miller, A. (1996). Guidelines from the consumer: Improving consumer involvement in research and training for persons with mental retardation. Mental Retardation, 34, 141-148. (Pubitemid 26187616)
    • (1996) Mental Retardation , vol.34 , Issue.3 , pp. 141-148
    • Heller, T.1    Pederson, E.L.2    Miller, A.B.3
  • 26
    • 33748482007 scopus 로고    scopus 로고
    • Ethical challenges and complexities of including people with intellectual disability as participants in research
    • DOI 10.1080/13668250600876392, PII X3M77G522116211V
    • Iacono, T. (2006). Ethical challenges and complexities of including people with intellectual disability as participants in research. Journal of Intellectual & Developmental Disability, 31, 173-179. (Pubitemid 44359322)
    • (2006) Journal of Intellectual and Developmental Disability , vol.31 , Issue.3 , pp. 173-179
    • Iacono, T.1
  • 27
    • 0037289540 scopus 로고    scopus 로고
    • Issues of informed consent in conducting medical research involving people with intellectual disability
    • Iacono, T., & Murray, V. (2003). Issues of informed consent in conducting medical research involving people with intellectual disability. Journal of Applied Research in Intellectual Disabilities, 16, 41-51. (Pubitemid 38422523)
    • (2003) Journal of Applied Research in Intellectual Disabilities , vol.16 , Issue.1 , pp. 41-51
    • Iacono, T.1    Murray, V.2
  • 28
    • 56649092237 scopus 로고    scopus 로고
    • Attitudes of research ethics committee members towards individuals with intellectual disabilities: The need for more research
    • Lai, R., Elliott, D., & Ouellette-Kuntz, H. (2006). Attitudes of research ethics committee members towards individuals with intellectual disabilities: The need for more research. Journal of Policy & Practice in Intellectual Disabilities, 3, 114-118.
    • (2006) Journal of Policy & Practice in Intellectual Disabilities , vol.3 , pp. 114-118
    • Lai, R.1    Elliott, D.2    Ouellette-Kuntz, H.3
  • 30
    • 73349139101 scopus 로고    scopus 로고
    • Notes from a radical behaviorist: Is it morally defensible to use the developmentally disabled as guinea pigs?
    • Malott, R. W. (2002). Notes from a radical behaviorist: Is it morally defensible to use the developmentally disabled as guinea pigs? Behavior & Social Issues, 11, 105-106.
    • (2002) Behavior & Social Issues , vol.11 , pp. 105-106
    • Malott, R.W.1
  • 31
    • 0000379968 scopus 로고    scopus 로고
    • Interviewing people with learning disabilities about sensitive topics: A discussion of ethical issues
    • McCarthy, M. (1998). Interviewing people with learning disabilities about sensitive topics: A discussion of ethical issues. British Journal of Learning Disabilities, 26, 140-145.
    • (1998) British Journal of Learning Disabilities , vol.26 , pp. 140-145
    • McCarthy, M.1
  • 32
    • 56649084861 scopus 로고    scopus 로고
    • The gatekeepers of science: Attitudes toward the research participation of adults with intellectual disability
    • McDonald, K., Keys, C., & Henry, D. (2008). The gatekeepers of science: Attitudes toward the research participation of adults with intellectual disability. American Journal of Mental Retardation, 113, 466-478.
    • (2008) American Journal of Mental Retardation , vol.113 , pp. 466-478
    • McDonald, K.1    Keys, C.2    Henry, D.3
  • 35
    • 33748479075 scopus 로고    scopus 로고
    • Commentary on Iacono (2006): Ethical challenges and complexities of including people with intellectual disability as participants in research
    • DOI 10.1080/13668250600876426, PII K06K5002X3650830
    • McVilly, K. R., & Dalton, A. J. (2006). Commentary on Iacono (2006): ''Ethical challenges and complexities of including people with intellectual disability as participants in research.'' Journal of Intellectual & Developmental Disability, 31, 186-188. (Pubitemid 44359325)
    • (2006) Journal of Intellectual and Developmental Disability , vol.31 , Issue.3 , pp. 186-188
    • McVilly, K.R.1    Dalton, A.J.2
  • 37
    • 0029818216 scopus 로고    scopus 로고
    • Awareness, action, and collaboration: How the self-advocacy movement is empowering for persons with developmental disabilities
    • Miller, A., & Keys, C. (1996). Awareness, action, and collaboration: How the self-advocacy movement is empowering for persons with developmental disabilities. Mental Retardation, 34, 312-319. (Pubitemid 26337262)
    • (1996) Mental Retardation , vol.34 , Issue.5 , pp. 312-319
    • Miller, A.B.1    Keys, C.B.2
  • 38
    • 0003392972 scopus 로고
    • National Commission For The Protection Of Human Subjects Of Biomedical Behavioral Research, Washington, DC: U.S. Government Printing Office
    • National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research. (1979). Belmont report: Ethical principles and guidelines for the protections of human subjects of research. Washington, DC: U.S. Government Printing Office.
    • (1979) Belmont Report: Ethical Principles and Guidelines for the Protections of Human Subjects of Research
  • 40
    • 9744229197 scopus 로고    scopus 로고
    • Influence of ethical safeguards on research participation: Comparison of perspectives of people with schizophrenia and psychiatrists
    • DOI 10.1176/appi.ajp.161.12.2309
    • Roberts, L., Hammond, K., Warner, & Lewis, R. (2004). Influence of ethical safeguards on research participation: Comparison of perspectives of people with schizophrenia and psychiatrists. American Journal of Psychiatry, 161, 2309-2311. (Pubitemid 39587299)
    • (2004) American Journal of Psychiatry , vol.161 , Issue.12 , pp. 2309-2311
    • Roberts, L.W.1    Green Hammond, K.A.2    Warner, T.D.3    Lewis, R.4
  • 41
    • 0033412789 scopus 로고    scopus 로고
    • Trying to get it right: Undertaking research involving people with learning difficulties
    • Rodgers, J. (1999). Trying to get it right: Undertaking research involving people with learning difficulties. Disability & Society, 14, 421-433.
    • (1999) Disability & Society , vol.14 , pp. 421-433
    • Rodgers, J.1
  • 42
    • 0009540724 scopus 로고    scopus 로고
    • Ethical dilemmas in historical research with people with learning difficulties
    • Rolph, S. (1998). Ethical dilemmas in historical research with people with learning difficulties. British Journal of Learning Disabilities, 26, 135-139.
    • (1998) British Journal of Learning Disabilities , vol.26 , pp. 135-139
    • Rolph, S.1
  • 43
    • 3042882679 scopus 로고    scopus 로고
    • Some ethical and methodological issues in research with people with learning difficulties
    • Stalker, K. (1998). Some ethical and methodological issues in research with people with learning difficulties. Disability & Society, 13, 5-19. (Pubitemid 128539574)
    • (1998) Disability and Society , vol.13 , Issue.1 , pp. 5-19
    • Stalker, K.1
  • 46
    • 33750153361 scopus 로고    scopus 로고
    • Focus groups and methodological reflections: Conscientious flexibility in the field
    • DOI 10.1177/10442073060160040601
    • Woodring, J., Foley, S., Rado, G., Brown, K., & Hamner, D. (2006). Focus groups and methodological reflections: Conscientious flexibility in the field. Journal of Disability Policy Studies, 16, 248-258. (Pubitemid 44599531)
    • (2006) Journal of Disability Policy Studies , vol.16 , Issue.4 , pp. 248-258
    • Woodring, J.C.1    Foley, S.M.2    Rado, G.S.3    Brown, K.R.4    Hamner, D.M.5


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