메뉴 건너뛰기




Volumn 34, Issue 1, 2009, Pages 45-54

Research ethics and the use of visual images in research with people with intellectual disability

Author keywords

Methodology; Research ethics; Visual methods

Indexed keywords

ARTICLE; INFORMED CONSENT; INTELLECTUAL IMPAIRMENT; INTERNET; MEDICAL RESEARCH; METHODOLOGY; PUBLICATION; RESEARCH ETHICS;

EID: 61649111753     PISSN: 13668250     EISSN: 14699532     Source Type: Journal    
DOI: 10.1080/13668250802688306     Document Type: Article
Times cited : (79)

References (78)
  • 1
    • 33845307615 scopus 로고    scopus 로고
    • Picture this: The use of participatory photographic research methods with people with learning disabilities
    • Aldridge, J. (2007). Picture this: The use of participatory photographic research methods with people with learning disabilities. Disability & Society, 22, 1-17.
    • (2007) Disability & Society , vol.22 , pp. 1-17
    • Aldridge, J.1
  • 7
    • 0038374090 scopus 로고    scopus 로고
    • In the frame: Photovoice and mothers with learning difficulties
    • Booth, T., & Booth, W. (2003). In the frame: Photovoice and mothers with learning difficulties. Disability & Society, 18, 431-442.
    • (2003) Disability & Society , vol.18 , pp. 431-442
    • Booth, T.1    Booth, W.2
  • 8
    • 1842538128 scopus 로고    scopus 로고
    • Room at the academy? People with learning difficulties and higher education
    • Boxall, K., Carson, I., & Docherty, D. (2004). Room at the academy? People with learning difficulties and higher education. Disability & Society, 19, 99-112.
    • (2004) Disability & Society , vol.19 , pp. 99-112
    • Boxall, K.1    Carson, I.2    Docherty, D.3
  • 9
    • 33847350276 scopus 로고    scopus 로고
    • Putting words into their mouths? Interviewing people with learning disabilities and little/no speech
    • Brewster, S. J. (2004). Putting words into their mouths? Interviewing people with learning disabilities and little/no speech. British Journal of Learning Disabilities, 32, 166-169.
    • (2004) British Journal of Learning Disabilities , vol.32 , pp. 166-169
    • Brewster, S.J.1
  • 10
    • 61649114580 scopus 로고    scopus 로고
    • British Institute of Learning Disabilities, Retrieved 8 March 2008 from
    • British Institute of Learning Disabilities. (2008). People's stories. Retrieved 8 March 2008 from http://www.bild.org.uk/ 01stories.htm
    • (2008) People's stories
  • 11
    • 33745733409 scopus 로고    scopus 로고
    • A re-examination of the relationship between action research and human subjects review processes
    • Brydon-Miller, M., & Greenwood, D. (2006). A re-examination of the relationship between action research and human subjects review processes. Action Research, 4, 117-128.
    • (2006) Action Research , vol.4 , pp. 117-128
    • Brydon-Miller, M.1    Greenwood, D.2
  • 12
    • 0033033451 scopus 로고    scopus 로고
    • On, to, for, with - vulnerable people and the practices of the research community
    • Clements, J., Rapley, M., & Cummins, R. A. (1999). On, to, for, with - vulnerable people and the practices of the research community. Behavioural and Cognitive Psychotherapy, 27, 103-115.
    • (1999) Behavioural and Cognitive Psychotherapy , vol.27 , pp. 103-115
    • Clements, J.1    Rapley, M.2    Cummins, R.A.3
  • 13
    • 84986398260 scopus 로고
    • The participatory research paradigm and intellectual disability
    • Cocks, E., & Cockram, J. (1995). The participatory research paradigm and intellectual disability. Mental Handicap Research, 8, 25-37.
    • (1995) Mental Handicap Research , vol.8 , pp. 25-37
    • Cocks, E.1    Cockram, J.2
  • 14
    • 17844379131 scopus 로고    scopus 로고
    • Ethics guidelines for international multicenter research involving people with intellectual disabilities
    • Dalton, A., & McVilly, K. (2004). Ethics guidelines for international multicenter research involving people with intellectual disabilities. Journal of Policy and Practice in Intellectual Disability, 1(2), 57-70.
    • (2004) Journal of Policy and Practice in Intellectual Disability , vol.1 , Issue.2 , pp. 57-70
    • Dalton, A.1    McVilly, K.2
  • 15
    • 61649115542 scopus 로고    scopus 로고
    • Department for Work and Pensions DWP, Retrieved 28 July 2007 from
    • Department for Work and Pensions (DWP). (2007). Images of disability. Retrieved 28 July 2007 from http://www.imagesofdisability.gov. uk/
    • (2007) Images of disability
  • 19
    • 61649101633 scopus 로고    scopus 로고
    • Dingwall, R. (2006). Confronting the anti-democrats: The unethical nature of ethical regulation in social science. Medical Sociology Online, 1(1), 51-58. Retrieved 28 July 2007 from http://www.medicalsociologyonline.org/ archives/issue1/pdf/conf-anti.pdf
    • Dingwall, R. (2006). Confronting the anti-democrats: The unethical nature of ethical regulation in social science. Medical Sociology Online, 1(1), 51-58. Retrieved 28 July 2007 from http://www.medicalsociologyonline.org/ archives/issue1/pdf/conf-anti.pdf
  • 20
    • 27544493363 scopus 로고    scopus 로고
    • Economic and Social Research Council ESRC, Retrieved 8 March 2008 from
    • Economic and Social Research Council (ESRC). (2005). Research ethics framework. Retrieved 8 March 2008 from http://www.esrc.ac.uk/ESRCInfoCentre/ Images/ESRC-Re-Ethics-Frame-tcm6-11291.pdf
    • (2005) Research ethics framework
  • 22
    • 0346834994 scopus 로고
    • Knowing about knowing: Margin notes on disability research
    • M. Rioux & M. Bach Eds, Ontario, Canada: Roeher Institute
    • Felske, A. W. (1994). Knowing about knowing: Margin notes on disability research. In M. Rioux & M. Bach (Eds.), Disability is not measles (pp. 181-194). Ontario, Canada: Roeher Institute.
    • (1994) Disability is not measles , pp. 181-194
    • Felske, A.W.1
  • 23
    • 30344467204 scopus 로고    scopus 로고
    • A summary of important documents in the field of research ethics
    • Fischer, B. A. (2006). A summary of important documents in the field of research ethics. Schizophrenia Bulletin, 32, 69-80.
    • (2006) Schizophrenia Bulletin , vol.32 , pp. 69-80
    • Fischer, B.A.1
  • 26
    • 3042771197 scopus 로고    scopus 로고
    • Involving people with learning disabilities in research: Issues and possibilities
    • Gilbert, T. (2004). Involving people with learning disabilities in research: Issues and possibilities. Health & Social Care in the Community, 12, 298-308.
    • (2004) Health & Social Care in the Community , vol.12 , pp. 298-308
    • Gilbert, T.1
  • 27
    • 84948956797 scopus 로고    scopus 로고
    • Ethical research involving people with intellectual disabilities
    • E. Emerson, C. Hatton, T. Thompson, & T. Parmenter Eds, Chichester, UK: Wiley
    • Griffin, T., & Balandin, S. (2004). Ethical research involving people with intellectual disabilities. In E. Emerson, C. Hatton, T. Thompson, & T. Parmenter (Eds.), The international handbook of applied research in intellectual disabilities (pp. 61-82). Chichester, UK: Wiley.
    • (2004) The international handbook of applied research in intellectual disabilities , pp. 61-82
    • Griffin, T.1    Balandin, S.2
  • 29
    • 27944500565 scopus 로고    scopus 로고
    • Profitability, diversity and disability: Images in advertising in the United States of America and Great Britain
    • Retrieved 28 July 2007 from
    • Haller, B., & Ralph, S. (2001). Profitability, diversity and disability: Images in advertising in the United States of America and Great Britain. Disability Studies Quarterly, 21(2). Retrieved 28 July 2007 from http://www.dsq-sds.org
    • (2001) Disability Studies Quarterly , vol.21 , Issue.2
    • Haller, B.1    Ralph, S.2
  • 30
    • 0042261928 scopus 로고    scopus 로고
    • A tale of two studies: Research governance issues arising from two ethnographic investigations into the organisation of health and social care
    • Hannigan, B., & Allen, D. (2003). A tale of two studies: Research governance issues arising from two ethnographic investigations into the organisation of health and social care. International Journal of Nursing Studies, 40, 685-695.
    • (2003) International Journal of Nursing Studies , vol.40 , pp. 685-695
    • Hannigan, B.1    Allen, D.2
  • 31
    • 37449013997 scopus 로고    scopus 로고
    • Determining priorities in intellectual disability research [Editorial]
    • Holland, T. (2008). Determining priorities in intellectual disability research [Editorial]. Journal of Intellectual Disability Research, 52, 1-2.
    • (2008) Journal of Intellectual Disability Research , vol.52 , pp. 1-2
    • Holland, T.1
  • 32
    • 18044403648 scopus 로고    scopus 로고
    • Medical research under threat after Alder Hey scandal
    • Hunter, M. (2001). Medical research under threat after Alder Hey scandal. British Medical Journal, 322, 448.
    • (2001) British Medical Journal , vol.322 , pp. 448
    • Hunter, M.1
  • 33
    • 84963651049 scopus 로고    scopus 로고
    • Photo-interviewing for research
    • Retrieved 15 May 2007 from
    • Hurworth, R. (2003). Photo-interviewing for research. Social Research Update, 40. Retrieved 15 May 2007 from http://sru.soc.surrey.ac.uk/SRU40. html
    • (2003) Social Research Update , vol.40
    • Hurworth, R.1
  • 34
    • 33748482007 scopus 로고    scopus 로고
    • Ethical challenges and complexities of including people with intellectual disability as participants in research
    • Iacono, T. (2006). Ethical challenges and complexities of including people with intellectual disability as participants in research. Journal of Intellectual & Developmental Disability, 31, 173-179.
    • (2006) Journal of Intellectual & Developmental Disability , vol.31 , pp. 173-179
    • Iacono, T.1
  • 35
    • 0037289540 scopus 로고    scopus 로고
    • Issues of informed consent in conducting medical research involving people with intellectual disabilities
    • Iacono, T., & Murray, V. (2003). Issues of informed consent in conducting medical research involving people with intellectual disabilities. Journal of Applied Research in Intellectual Disability, 15, 41-52.
    • (2003) Journal of Applied Research in Intellectual Disability , vol.15 , pp. 41-52
    • Iacono, T.1    Murray, V.2
  • 36
    • 51249141795 scopus 로고    scopus 로고
    • Who decides now? Protecting and empowering vulnerable adults who lose the capacity to make decisions for themselves
    • Johns, R. (2007). Who decides now? Protecting and empowering vulnerable adults who lose the capacity to make decisions for themselves. British Journal of Social Work, 37, 557-564.
    • (2007) British Journal of Social Work , vol.37 , pp. 557-564
    • Johns, R.1
  • 37
    • 61649122026 scopus 로고    scopus 로고
    • Joint Information Systems Committee/Open Society Institute JISC/OSI, Retrieved 9 March 2008 from
    • Joint Information Systems Committee/Open Society Institute (JISC/OSI). (2004). Journal Authors Survey Report. Retrieved 9 March 2008 from http://www.jisc.ac.uk/uploaded-documents/JISCOAreport1.pdf
    • (2004) Journal Authors Survey Report
  • 38
    • 61649116822 scopus 로고    scopus 로고
    • Journal of Intellectual Disability Research JIDR, Retrieved 9 March 2008 from
    • Journal of Intellectual Disability Research (JIDR). (2008). Open access exclusive licence form. Retrieved 9 March 2008 from http://www.blackwellpublishing.com/pdf/jidr-elf.pdf
    • (2008) Open access exclusive licence form
  • 39
    • 34247234735 scopus 로고    scopus 로고
    • Seeing through different eyes': Exploring the value of participatory research using images in school
    • Kaplan, I., & Howes, A. (2004). 'Seeing through different eyes': Exploring the value of participatory research using images in school. Cambridge Journal of Education, 34, 143-155.
    • (2004) Cambridge Journal of Education , vol.34 , pp. 143-155
    • Kaplan, I.1    Howes, A.2
  • 40
    • 52349115689 scopus 로고    scopus 로고
    • Participation in research by people with learning difficulties: Origins and issues
    • Kiernan, C. (1999). Participation in research by people with learning difficulties: Origins and issues. British Journal of Learning Disabilities, 27, 43-47.
    • (1999) British Journal of Learning Disabilities , vol.27 , pp. 43-47
    • Kiernan, C.1
  • 41
    • 0003334662 scopus 로고
    • Ethical issues in ethnography
    • J. Morse Ed, Thousand Oaks, CA: Sage
    • Lipson, J. (1994). Ethical issues in ethnography. In J. Morse (Ed.), Critical issues in qualitative research methods (pp. 333-355). Thousand Oaks, CA: Sage.
    • (1994) Critical issues in qualitative research methods , pp. 333-355
    • Lipson, J.1
  • 42
    • 0000379968 scopus 로고    scopus 로고
    • Interviewing people with learning disabilities about sensitive topics: A discussion of ethical issues
    • McCarthy, M. (1998). Interviewing people with learning disabilities about sensitive topics: A discussion of ethical issues. British Journal of Learning Disabilities, 26, 140-151.
    • (1998) British Journal of Learning Disabilities , vol.26 , pp. 140-151
    • McCarthy, M.1
  • 43
    • 33748479075 scopus 로고    scopus 로고
    • Commentary on Iacono (2006): "Ethical challenges and complexities of including people with intellectual disability as participants in research
    • McVilly, K. R., & Dalton, A. J. (2006). Commentary on Iacono (2006): "Ethical challenges and complexities of including people with intellectual disability as participants in research". Journal of Intellectual & Developmental Disability, 31, 186-188.
    • (2006) Journal of Intellectual & Developmental Disability , vol.31 , pp. 186-188
    • McVilly, K.R.1    Dalton, A.J.2
  • 45
    • 61649093181 scopus 로고    scopus 로고
    • Retrieved 10 December 2008 from
    • Mencap. (2007). Snap! 2007 Photo Gallery. Retrieved 10 December 2008 from http://www.mencap.org.uk/snap/snap-2007/
    • (2007) Snap! 2007 Photo Gallery
  • 47
    • 34250621200 scopus 로고    scopus 로고
    • Retrieved 9 March 2008 from
    • National Health and Medical Research Council (NHMRC). (2007). National statement on ethical conduct in human research. Retrieved 9 March 2008 from http://www.nhmrc.gov.au/publications/synopses/e72syn.htm
    • (2007) National statement on ethical conduct in human research
  • 48
    • 61649090134 scopus 로고    scopus 로고
    • Norah Fry Research Centre, Retrieved 9 March 2008 from
    • Norah Fry Research Centre. (2008). Plain Facts. Retrieved 9 March 2008 from http://www.bristol.ac.uk/Depts/NorahFry/PlainFacts/index.html
    • (2008) Plain Facts
  • 49
    • 61649094405 scopus 로고    scopus 로고
    • Office for Human Research Protections OHRP, 2005, Code of Federal Regulations, Title 45, Public Welfare, Department of Health and Human Services, Part 46, Protection of Human Subjects. Retrieved 9 March 2008 from
    • Office for Human Research Protections (OHRP). (2005). Code of Federal Regulations, Title 45, Public Welfare, Department of Health and Human Services, Part 46, Protection of Human Subjects. Retrieved 9 March 2008 from http://www.hhs.gov/ohrp
  • 54
    • 85071136101 scopus 로고    scopus 로고
    • The moral maze of image ethics
    • R. Usher & H. Simon Eds, London: Routledge
    • Prosser, J. (2000). The moral maze of image ethics. In R. Usher & H. Simon (Eds.), Situated ethics in educational research (pp. 116-132). London: Routledge.
    • (2000) Situated ethics in educational research , pp. 116-132
    • Prosser, J.1
  • 56
    • 84948993480 scopus 로고    scopus 로고
    • Emancipatory and participatory research: How far have we come?
    • E. Emerson, C. Hatton, T. Thompson, & T. Parmenter Eds, Chichester, UK: Wiley
    • Ramcharan, P., Grant, G., & Flynn, M. (2004). Emancipatory and participatory research: How far have we come? In E. Emerson, C. Hatton, T. Thompson, & T. Parmenter (Eds.), The international handbook of applied research in intellectual disabilities (pp. 83-114). Chichester, UK: Wiley.
    • (2004) The international handbook of applied research in intellectual disabilities , pp. 83-114
    • Ramcharan, P.1    Grant, G.2    Flynn, M.3
  • 57
    • 61649126762 scopus 로고    scopus 로고
    • Reason, P., & Heron, J. (1995). Cooperative inquiry. In J. Smith, R. Harre, & L. van Hagenhove (Eds.), Rethinking psychology-2: Evolving methods (pp. 122-142). London: Sage.
    • Reason, P., & Heron, J. (1995). Cooperative inquiry. In J. Smith, R. Harre, & L. van Hagenhove (Eds.), Rethinking psychology-Volume 2: Evolving methods (pp. 122-142). London: Sage.
  • 60
    • 0347345326 scopus 로고
    • Speaking for, speaking about, speaking with, or speaking alongside: An anthropological and documentary dilemma
    • Ruby, J. (1991). Speaking for, speaking about, speaking with, or speaking alongside: An anthropological and documentary dilemma. Visual Anthropology Review, 7, 50-67.
    • (1991) Visual Anthropology Review , vol.7 , pp. 50-67
    • Ruby, J.1
  • 61
    • 0039079197 scopus 로고
    • Visual ethnography: Using photographs in qualitative research
    • Schwartz, D. (1989). Visual ethnography: Using photographs in qualitative research. Qualitative Sociology, 12, 119-154.
    • (1989) Qualitative Sociology , vol.12 , pp. 119-154
    • Schwartz, D.1
  • 62
    • 0035365446 scopus 로고    scopus 로고
    • The same but different: The use of the personal home page by adults with Down Syndrome as a tool for self-presentation
    • Seale, J. K. (2001). The same but different: The use of the personal home page by adults with Down Syndrome as a tool for self-presentation. British Journal of Educational Technology, 32, 343-352.
    • (2001) British Journal of Educational Technology , vol.32 , pp. 343-352
    • Seale, J.K.1
  • 63
    • 34247116889 scopus 로고    scopus 로고
    • Strategies for supporting the online publishing activities of adults with learning difficulties
    • Seale, J. K. (2007). Strategies for supporting the online publishing activities of adults with learning difficulties. Disability & Society, 22, 173-186.
    • (2007) Disability & Society , vol.22 , pp. 173-186
    • Seale, J.K.1
  • 64
    • 61649111266 scopus 로고    scopus 로고
    • Hopelessly devotee'd to you
    • Retrieved 28 July 2007 from
    • Shakespeare, T. (2007). Hopelessly devotee'd to you. BBC Ouch! Website. Retrieved 28 July 2007 from http://www.bbc.co.uk/ouch/opinion/ hopelessly-devoteed-to-you.shtml
    • (2007) BBC Ouch! Website
    • Shakespeare, T.1
  • 65
    • 58049128647 scopus 로고    scopus 로고
    • Social Services Research Group, Department of Health Research Governance in Social Care Advisory Group/Association of Directors of Social Services. Retrieved 28 July 2007 from
    • Social Services Research Group. (2005). Research governance framework resource pack. Department of Health Research Governance in Social Care Advisory Group/Association of Directors of Social Services. Retrieved 28 July 2007 from http://www.ssrg.org.uk/governance
    • (2005) Research governance framework resource pack
  • 66
    • 61649099738 scopus 로고
    • Introduction
    • J. Spence & J. Solomon Eds, London: Scarlet Press
    • Solomon, J. (1995). Introduction. In J. Spence & J. Solomon (Eds.), What can a woman do with a camera? London: Scarlet Press.
    • (1995) What can a woman do with a camera
    • Solomon, J.1
  • 67
    • 80053107755 scopus 로고    scopus 로고
    • Soper, K. L, Ed, Bethesda, MD:Woodbine House. Retrieved 28 July 2007 from
    • Soper, K. L. (Ed.). (2007). Gifts: Mothers reflect on how children with Down syndrome enrich their lives. Bethesda, MD:Woodbine House. Retrieved 28 July 2007 from http://www.giftsds.segullah.org/photo-montage.htm
    • (2007) Gifts: Mothers reflect on how children with Down syndrome enrich their lives
  • 68
    • 0033043115 scopus 로고    scopus 로고
    • Proxy respondents and the reliability of the Quality of Life Questionnaire Empowerment factor
    • Stancliffe, R. J. (1999). Proxy respondents and the reliability of the Quality of Life Questionnaire Empowerment factor. Journal of Intellectual Disability Research, 43, 185-193.
    • (1999) Journal of Intellectual Disability Research , vol.43 , pp. 185-193
    • Stancliffe, R.J.1
  • 69
    • 33645568621 scopus 로고    scopus 로고
    • Christmas in Purgatory: A retrospective look
    • Taylor, S. J. (2006). Christmas in Purgatory: A retrospective look. Mental Retardation, 44, 145-149.
    • (2006) Mental Retardation , vol.44 , pp. 145-149
    • Taylor, S.J.1
  • 70
    • 16244399705 scopus 로고    scopus 로고
    • Seeing the disabled: Visual rhetorics of disability in popular photography
    • P. K. Longmore & L. Umansky Eds, New York: New York University Press
    • Thomson, R. G. (2001). Seeing the disabled: Visual rhetorics of disability in popular photography. In P. K. Longmore & L. Umansky (Eds.), The new disability history: American perspectives (pp. 335-374). New York: New York University Press.
    • (2001) The new disability history: American perspectives , pp. 335-374
    • Thomson, R.G.1
  • 71
    • 32344445830 scopus 로고    scopus 로고
    • Ouch! An examination of the self-representation of disabled people on the Internet
    • Thoreau, E. (2006). Ouch! An examination of the self-representation of disabled people on the Internet. Journal of Computer-Mediated Communication, 11, 442-468.
    • (2006) Journal of Computer-Mediated Communication , vol.11 , pp. 442-468
    • Thoreau, E.1
  • 72
    • 85121160413 scopus 로고    scopus 로고
    • Truman, C. (2003). Ethics and the ruling relations of research production. Sociological Research Online, 8(1). Retrieved 28 July 2007 from http://www.socresonline.org.uk/8/1/truman.html
    • Truman, C. (2003). Ethics and the ruling relations of research production. Sociological Research Online, 8(1). Retrieved 28 July 2007 from http://www.socresonline.org.uk/8/1/truman.html
  • 74
    • 61649118556 scopus 로고    scopus 로고
    • Retrieved 28 July 2007 from
    • Wang, C. (2007). Photovoice: Background. Retrieved 28 July 2007 from http://www.photovoice.com/background/index.html
    • (2007) Photovoice: Background
    • Wang, C.1
  • 75
    • 0028454130 scopus 로고
    • Empowerment through photo novella: Portraits of participation
    • Wang, C., & Burris, M. A. (1994). Empowerment through photo novella: Portraits of participation. Health Education Quarterly, 21, 171-186.
    • (1994) Health Education Quarterly , vol.21 , pp. 171-186
    • Wang, C.1    Burris, M.A.2
  • 76
    • 0031159690 scopus 로고    scopus 로고
    • Photovoice: Concept, methodology, and use for participatory needs assessment
    • Wang, C., & Burris, M. A. (1997). Photovoice: Concept, methodology, and use for participatory needs assessment. Health Education and Behavior, 24, 369-387.
    • (1997) Health Education and Behavior , vol.24 , pp. 369-387
    • Wang, C.1    Burris, M.A.2
  • 77
    • 0001845678 scopus 로고    scopus 로고
    • Photovoice as a tool for participatory evaluation: The community's view of process and impact
    • Wang, C., Yuan, Y. L., & Feng, M. L. (1996). Photovoice as a tool for participatory evaluation: The community's view of process and impact. Journal of Contemporary Health, 4, 47-49.
    • (1996) Journal of Contemporary Health , vol.4 , pp. 47-49
    • Wang, C.1    Yuan, Y.L.2    Feng, M.L.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.