메뉴 건너뛰기




Volumn 6, Issue 4, 2009, Pages 244-252

Including adults with intellectual disabilities in research: Scientists' perceptions of risks and protections

Author keywords

Human research ethics; Intellectual disabilities; Research participation

Indexed keywords


EID: 73349086223     PISSN: 17411122     EISSN: 17411130     Source Type: Journal    
DOI: 10.1111/j.1741-1130.2009.00225.x     Document Type: Article
Times cited : (19)

References (37)
  • 1
    • 33748478835 scopus 로고    scopus 로고
    • Reactions to "Ethical challenges and complexities of including people with intellectual disability as participants in research
    • by Dr. Teresa Iacono
    • Aman, M., & Handen, B. (2006). Reactions to "Ethical challenges and complexities of including people with intellectual disability as participants in research" by Dr. Teresa Iacono. Journal of Intellectual & Developmentally Disability, 31, 180-182.
    • (2006) Journal of Intellectual & Developmentally Disability , vol.31 , pp. 180-182
    • Aman, M.1    Handen, B.2
  • 2
    • 50249102413 scopus 로고    scopus 로고
    • Consent to psychological research by people with an intellectual disability
    • Arscott, K., Dagnan, D., & Kroese, B. S. (1998). Consent to psychological research by people with an intellectual disability. Psychological Medicine, 29, 1367-1375.
    • (1998) Psychological Medicine , vol.29 , pp. 1367-1375
    • Arscott, K.1    Dagnan, D.2    Kroese, B.S.3
  • 3
    • 9444248633 scopus 로고    scopus 로고
    • Recruiting people with disabilities as research participants: Challenges and strategies to address them
    • Becker, H., Roberts, G., Morrison, J., & Silver, J. (2004). Recruiting people with disabilities as research participants: Challenges and strategies to address them. Mental Retardation, 42, 471-475.
    • (2004) Mental Retardation , vol.42 , pp. 471-475
    • Becker, H.1    Roberts, G.2    Morrison, J.3    Silver, J.4
  • 4
    • 0002669264 scopus 로고    scopus 로고
    • Representing the lives of women with learning difficulties: Ethical dilemmas in the research process
    • Brigham, L. (1998). Representing the lives of women with learning difficulties: Ethical dilemmas in the research process. British Journal of Learning Disabilities, 26, 146-150.
    • (1998) British Journal of Learning Disabilities , vol.26 , pp. 146-150
    • Brigham, L.1
  • 5
    • 0031517025 scopus 로고    scopus 로고
    • The ethics of research with men who have learning disabilities and abusive sexual behaviour: A minefield in a vacuum
    • Brown, H., & Thompson, D. (1997). The ethics of research with men who have learning disabilities and abusive sexual behaviour: A minefield in a vacuum. Disability and Society, 12, 695-707.
    • (1997) Disability and Society , vol.12 , pp. 695-707
    • Brown, H.1    Thompson, D.2
  • 6
    • 0038032012 scopus 로고    scopus 로고
    • Using individualized communication for interviewing people with intellectual disability: A case study of user-centred research
    • Cambridge, P., & Forester-Jones, R. (2003). Using individualized communication for interviewing people with intellectual disability: A case study of user-centred research. Journal of Intellectual and Developmental Disability, 28, 5-23.
    • (2003) Journal of Intellectual and Developmental Disability , vol.28 , pp. 5-23
    • Cambridge, P.1    Forester-Jones, R.2
  • 7
    • 34249790303 scopus 로고    scopus 로고
    • Obtaining consent to participate in research: The issues involved in including people with a range of learning and communication disabilities
    • Cameron, L., & Murphy, J. (2007). Obtaining consent to participate in research: The issues involved in including people with a range of learning and communication disabilities. British Journal of Learning Disabilities, 35, 113-120.
    • (2007) British Journal of Learning Disabilities , vol.35 , pp. 113-120
    • Cameron, L.1    Murphy, J.2
  • 8
    • 0032697389 scopus 로고    scopus 로고
    • Ethics and intellectual disability
    • Clegg, J. (1999). Ethics and intellectual disability. Current Opinion in Psychiatry, 12, 537-541.
    • (1999) Current Opinion In Psychiatry , vol.12 , pp. 537-541
    • Clegg, J.1
  • 9
    • 41049096306 scopus 로고    scopus 로고
    • Practice in focus: A hermeneutic approach to research ethics
    • Clegg, J. (2004). Practice in focus: A hermeneutic approach to research ethics. British Journal of Learning Disabilities, 32, 186-190.
    • (2004) British Journal of Learning Disabilities , vol.32 , pp. 186-190
    • Clegg, J.1
  • 11
    • 17844379131 scopus 로고    scopus 로고
    • Ethics guidelines for international multicenter research involving people with intellectual disabilities
    • Dalton, A., & McVilly, K. (2004). Ethics guidelines for international multicenter research involving people with intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities, 1, 57-70.
    • (2004) Journal of Policy and Practice In Intellectual Disabilities , vol.1 , pp. 57-70
    • Dalton, A.1    McVilly, K.2
  • 12
    • 0033483592 scopus 로고    scopus 로고
    • International and ethical safeguards: Genetics and people with learning disabilities
    • Diesfeld, K. (1999). International and ethical safeguards: Genetics and people with learning disabilities. Disability and Society, 14, 21-36.
    • (1999) Disability and Society , vol.14 , pp. 21-36
    • Diesfeld, K.1
  • 14
    • 33846946436 scopus 로고    scopus 로고
    • Capacity of people with intellectual disabilities to consent to take part in a research study
    • Dye, L., Hare, D. J., & Hendy, S. (2007). Capacity of people with intellectual disabilities to consent to take part in a research study. Journal of Applied Research in Intellectual Disabilities, 20, 168-174.
    • (2007) Journal of Applied Research In Intellectual Disabilities , vol.20 , pp. 168-174
    • Dye, L.1    Hare, D.J.2    Hendy, S.3
  • 15
    • 34548230875 scopus 로고    scopus 로고
    • Capacity to consent to participate in research-A recontextualization
    • Dye, L., Hendy, S., & Hare, D. (2004). Capacity to consent to participate in research-A recontextualization. British Journal of Learning Disabilities, 32, 144-150.
    • (2004) British Journal of Learning Disabilities , vol.32 , pp. 144-150
    • Dye, L.1    Hendy, S.2    Hare, D.3
  • 16
    • 33749465805 scopus 로고    scopus 로고
    • Capacity of persons with mental retardation to consent to participate in randomized clinical trials
    • Fisher, C. B., Cea, C. D., Davidson, P. W., & Fried, A. L. (2006). Capacity of persons with mental retardation to consent to participate in randomized clinical trials. American Journal of Psychiatry, 163, 1813-1820.
    • (2006) American Journal of Psychiatry , vol.163 , pp. 1813-1820
    • Fisher, C.B.1    Cea, C.D.2    Davidson, P.W.3    Fried, A.L.4
  • 17
    • 0035316321 scopus 로고    scopus 로고
    • Ethical challenges in the conduct of research involving persons with mental retardation
    • Freedman, R. I. (2001). Ethical challenges in the conduct of research involving persons with mental retardation. Mental Retardation, 39, 130-141.
    • (2001) Mental Retardation , vol.39 , pp. 130-141
    • Freedman, R.I.1
  • 18
    • 46249129485 scopus 로고    scopus 로고
    • Reflections on conducting focus groups with people with learning disabilities: Theoretical and practical issues
    • Gates, B., & Waight, M. (2007). Reflections on conducting focus groups with people with learning disabilities: Theoretical and practical issues. Journal of Research in Nursing, 12, 111-126.
    • (2007) Journal of Research In Nursing , vol.12 , pp. 111-126
    • Gates, B.1    Waight, M.2
  • 19
    • 3042771197 scopus 로고    scopus 로고
    • Involving people with learning disabilities in research: Issues and possibilities
    • Gilbert, T. (2004). Involving people with learning disabilities in research: Issues and possibilities. Health and Social Care in the Community, 12, 298-308.
    • (2004) Health and Social Care In the Community , vol.12 , pp. 298-308
    • Gilbert, T.1
  • 20
    • 34250615524 scopus 로고    scopus 로고
    • The many ways of saying yes and no: Reflections on the research coordinator's role in recruiting research participants and obtaining informed consent
    • Huntington, I., & Robinson, W. (2007). The many ways of saying yes and no: Reflections on the research coordinator's role in recruiting research participants and obtaining informed consent. IRB: Ethics and Human Research, 29, 6-10.
    • (2007) Irb: Ethics and Human Research , vol.29 , pp. 6-10
    • Huntington, I.1    Robinson, W.2
  • 21
    • 33748482007 scopus 로고    scopus 로고
    • Ethical challenges and complexities of including people with intellectual disability as participants in research
    • Iacono,T. (2006). Ethical challenges and complexities of including people with intellectual disability as participants in research. Journal of Intellectual and Developmental Disability, 31, 173-179.
    • (2006) Journal of Intellectual and Developmental Disability , vol.31 , pp. 173-179
    • Iacono, T.1
  • 22
    • 56649092237 scopus 로고    scopus 로고
    • Attitudes of research ethics committee members toward individuals with intellectual disabilities: The need for more research
    • Lai, R., Elliot, D., & Ouellette-Kuntz, H. (2006). Attitudes of research ethics committee members toward individuals with intellectual disabilities: The need for more research. Journal of Policy and Practice in Intellectual Disabilities, 3, 114-118.
    • (2006) Journal of Policy and Practice In Intellectual Disabilities , vol.3 , pp. 114-118
    • Lai, R.1    Elliot, D.2    Ouellette-Kuntz, H.3
  • 24
    • 73349139101 scopus 로고    scopus 로고
    • Notes from a radical behaviorist: Is it morally defensible to use the developmentally disabled as guinea pigs?
    • Malott, R. W. (2002). Notes from a radical behaviorist: Is it morally defensible to use the developmentally disabled as guinea pigs? Behavior and Social Issues, 11, 105-106.
    • (2002) Behavior and Social Issues , vol.11 , pp. 105-106
    • Malott, R.W.1
  • 25
    • 50249157420 scopus 로고    scopus 로고
    • How the powerful decide: Access to research participation by those at the margins
    • McDonald, K., & Keys, C. (2008). How the powerful decide: Access to research participation by those at the margins. American Journal of Community Psychology, 42, 79-93.
    • (2008) American Journal of Community Psychology , vol.42 , pp. 79-93
    • McDonald, K.1    Keys, C.2
  • 26
    • 56649084861 scopus 로고    scopus 로고
    • The gatekeepers of science: Attitudes toward the research participation of adults with intellectual disabilities
    • McDonald, K., Keys, C., & Henry, D. (2008). The gatekeepers of science: Attitudes toward the research participation of adults with intellectual disabilities. The American Journal on Mental Retardation, 113, 466-478.
    • (2008) The American Journal On Mental Retardation , vol.113 , pp. 466-478
    • McDonald, K.1    Keys, C.2    Henry, D.3
  • 27
    • 33748479075 scopus 로고    scopus 로고
    • Commentary on Iacono (2006):"Ethical challenges and complexities of including people with intellectual disability as participants in research
    • McVilly, K., & Dalton, A. (2006). Commentary on Iacono (2006):"Ethical challenges and complexities of including people with intellectual disability as participants in research." Journal of Intellectual and Developmental Disability, 31, 186-188.
    • (2006) Journal of Intellectual and Developmental Disability , vol.31 , pp. 186-188
    • McVilly, K.1    Dalton, A.2
  • 29
    • 0027170506 scopus 로고
    • Determining the capability of individuals with mental retardation to give informed consent
    • Morris, C., Niederbuhl, J., & Mahr, J. (1993). Determining the capability of individuals with mental retardation to give informed consent. American Journal on Mental Retardation, 98, 263-272.
    • (1993) American Journal On Mental Retardation , vol.98 , pp. 263-272
    • Morris, C.1    Niederbuhl, J.2    Mahr, J.3
  • 30
    • 0036780736 scopus 로고    scopus 로고
    • Risks and wrongs in social science research
    • Oakes, J. M. (2002). Risks and wrongs in social science research. Evaluation Review, 26, 443-479.
    • (2002) Evaluation Review , vol.26 , pp. 443-479
    • Oakes, J.M.1
  • 31
    • 3543116105 scopus 로고    scopus 로고
    • Effect sizes in qualitative research: A prolegomenon
    • Onwuegbuzie, A. J. (2003). Effect sizes in qualitative research: A prolegomenon. Quality and Quantity, 37, 393-409.
    • (2003) Quality and Quantity , vol.37 , pp. 393-409
    • Onwuegbuzie, A.J.1
  • 32
    • 12444336175 scopus 로고    scopus 로고
    • Doing research with people with learning difficulties
    • Stalker, K. (1997). Doing research with people with learning difficulties. Research, Policy and Planning, 15, 46.
    • (1997) Research, Policy and Planning , vol.15 , pp. 46
    • Stalker, K.1
  • 33
    • 3042882679 scopus 로고    scopus 로고
    • Some ethical and methodological issues in research with people with learning difficulties
    • Stalker, K. (1998). Some ethical and methodological issues in research with people with learning difficulties. Disability and Society, 13, 5-19.
    • (1998) Disability and Society , vol.13 , pp. 5-19
    • Stalker, K.1
  • 37
    • 6344270195 scopus 로고    scopus 로고
    • Regulatory and ethical principles in research involving children and individuals with developmental disabilities
    • Yan, E., & Munir, K. (2004). Regulatory and ethical principles in research involving children and individuals with developmental disabilities. Ethics and Behavior, 14, 31-49.
    • (2004) Ethics and Behavior , vol.14 , pp. 31-49
    • Yan, E.1    Munir, K.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.