-
1
-
-
0029025475
-
Effect of hydroxyurea on the frequency of painful crises in sickle cell anemia. Investigators of the multicenter study of hydroxyurea in sickle cell anemia
-
Charache, S., Terrin, M. L., Moore, R. D., Dover, G. J., Barton, F. B., Eckert, S. V., et al. (1995). Effect of hydroxyurea on the frequency of painful crises in sickle cell anemia. Investigators of the multicenter study of hydroxyurea in sickle cell anemia. New England Journal of Medicine, 332, 1317-1322.
-
(1995)
New England Journal of Medicine
, vol.332
, pp. 1317-1322
-
-
Charache, S.1
Terrin, M.L.2
Moore, R.D.3
Dover, G.J.4
Barton, F.B.5
Eckert, S.V.6
-
2
-
-
0028291736
-
Mortality in sickle cell disease. Life expectancy and risk factors for early death
-
Platt, O. S., Brambilla, D. J., Rosse, W. F., Milner, P. F., Castro, O., Steinberg, M. H., et al. (1994). Mortality in sickle cell disease. Life expectancy and risk factors for early death. New England Journal of Medicine, 330, 1639-1644.
-
(1994)
New England Journal of Medicine
, vol.330
, pp. 1639-1644
-
-
Platt, O.S.1
Brambilla, D.J.2
Rosse, W.F.3
Milner, P.F.4
Castro, O.5
Steinberg, M.H.6
-
3
-
-
0025770390
-
Pain in sickle cell disease. Rates and risk factors
-
Platt, O. S., Thorington, B. D., Brambilla, D. J., Milner, P. F., Rosse, W. F., Vichinsky, E., et al. (1991). Pain in sickle cell disease. Rates and risk factors. New England Journal of Medicine, 325, 11-16.
-
(1991)
New England Journal of Medicine
, vol.325
, pp. 11-16
-
-
Platt, O.S.1
Thorington, B.D.2
Brambilla, D.J.3
Milner, P.F.4
Rosse, W.F.5
Vichinsky, E.6
-
4
-
-
77955486134
-
Health-related quality of life in children with sickle cell disease: A report from the comprehensive sickle cell centers clinical trial consortium
-
Dampier, C., Lieff, S., LeBeau, P., Rhee, S., McMurray, M., Rogers, Z., et al. (2010). Health-related quality of life in children with sickle cell disease: A report from the comprehensive sickle cell centers clinical trial consortium. Pediatric Blood & Cancer, 55, 485-494.
-
(2010)
Pediatric Blood & Cancer
, vol.55
, pp. 485-494
-
-
Dampier, C.1
Lieff, S.2
LeBeau, P.3
Rhee, S.4
McMurray, M.5
Rogers, Z.6
-
5
-
-
4544300142
-
Validity of the Child Health Questionnaire for use in children with sickle cell disease
-
DOI 10.1097/01.mph.0000136453.93704.2e
-
Panepinto, J. A., O'Mahar, K. M., DeBaun, M. R., Rennie, K. M., & Scott, J. P. (2004). Validity of the Child Health Questionnaire for use in children with sickle cell disease. Journal of Pediatric Hematology/oncology, 26, 574-578. (Pubitemid 39223666)
-
(2004)
Journal of Pediatric Hematology/Oncology
, vol.26
, Issue.9
, pp. 574-578
-
-
Panepinto, J.A.1
O'Mahar, K.M.2
DeBaun, M.R.3
Rennie, K.M.4
Scott, J.P.5
-
6
-
-
59449092216
-
The performance of the PedsQLTM Generic Core Scales in children with sickle cell disease
-
Panepinto, J. A., Pajewski, N. M., Foerster, L. M., & Hoffmann, R. G. (2008). The performance of the PedsQLTM Generic Core Scales in children with sickle cell disease. Journal of Pediatric Hematology/oncology, 30, 666-673.
-
(2008)
Journal of Pediatric Hematology/oncology
, vol.30
, pp. 666-673
-
-
Panepinto, J.A.1
Pajewski, N.M.2
Foerster, L.M.3
Hoffmann, R.G.4
-
7
-
-
24944563944
-
Health-related quality of life in children with sickle cell disease: Child and parent perception
-
DOI 10.1111/j.1365-2141.2005.05622.x
-
Panepinto, J. A., O'Mahar, K. M., DeBaun, M. R., Loberiza, F. R., & Scott, J. P. (2005). Health-related quality of life in children with sickle cell disease: Child and parent perception. British Journal Haematology, 130, 437-444. (Pubitemid 43899594)
-
(2005)
British Journal of Haematology
, vol.130
, Issue.3
, pp. 437-444
-
-
Panepinto, J.A.1
O'Mahar, K.M.2
DeBaun, M.R.3
Loberiza, F.R.4
Scott, J.P.5
-
8
-
-
67949100466
-
The Pediatric Quality of Life Inventory: Measuring pediatric health-related quality of life from the perspective of children and their parents
-
Varni, J. W., & Limbers, C. A. (2009). The Pediatric Quality of Life Inventory: Measuring pediatric health-related quality of life from the perspective of children and their parents. Pediatric Clinics of North America, 56, 843-863.
-
(2009)
Pediatric Clinics of North America
, vol.56
, pp. 843-863
-
-
Varni, J.W.1
Limbers, C.A.2
-
9
-
-
0024637480
-
Generic and disease-specific measures in assessing health status and quality of life
-
Patrick, D. L., & Deyo, R. A. (1989). Generic and disease-specific measures in assessing health status and quality of life. Medical Care, 27, S217-S233.
-
(1989)
Medical Care
, vol.27
-
-
Patrick, D.L.1
Deyo, R.A.2
-
10
-
-
79951722885
-
Pro development: Rigorous qualitative research as the crucial foundation
-
Lasch, K. E., Marquis, P., Vigneux, M., Abetz, L., Arnould, B., Bayliss, M., et al. (2010). Pro development: Rigorous qualitative research as the crucial foundation. Quality of Life Research, 19, 1087-1096.
-
(2010)
Quality of Life Research
, vol.19
, pp. 1087-1096
-
-
Lasch, K.E.1
Marquis, P.2
Vigneux, M.3
Abetz, L.4
Arnould, B.5
Bayliss, M.6
-
11
-
-
60949098405
-
Cognitive interviewing methodology in the development of a pediatric item bank: A patient reported outcomes measurement information system (PROMIS) study
-
Irwin, D. E., Varni, J. W., Yeatts, K., & DeWalt, D. A. (2009). Cognitive interviewing methodology in the development of a pediatric item bank: A patient reported outcomes measurement information system (PROMIS) study. Health and Quality of Life Outcomes, 7(3), 1-10.
-
(2009)
Health and Quality of Life Outcomes
, vol.7
, Issue.3
, pp. 1-10
-
-
Irwin, D.E.1
Varni, J.W.2
Yeatts, K.3
DeWalt, D.A.4
-
12
-
-
33646546182
-
The PedsQL in pediatric cerebral palsy: Reliability, validity, and sensitivity of the Generic Core Scales and Cerebral Palsy Module
-
DOI 10.1017/S001216220600096X, PII S001216220600096X
-
Varni, J. W., Burwinkle, T. M., Berrin, S. J., Sherman, S. A., Artavia, K., Malcarne, V. L., et al. (2006). The PedsQLTM in pediatric cerebral palsy: Reliability, validity, and sensitivity of the generic core scales and cerebral palsy module. Developmental Medicine and Child Neurology, 48, 442-449. (Pubitemid 43740904)
-
(2006)
Developmental Medicine and Child Neurology
, vol.48
, Issue.6
, pp. 442-449
-
-
Varni, J.W.1
Burwinkle, T.M.2
Berrin, S.J.3
Sherman, S.A.4
Artavia, K.5
Malcarne, V.L.6
Chambers, H.G.7
-
13
-
-
0043236349
-
The PedsQL™ in type 1 and type 2 diabetes: Reliability and validity of the Pediatric Quality of Life Inventory™ Generic Core Scales and Type 1 Diabetes Module
-
DOI 10.2337/diacare.26.3.631
-
Varni, J. W., Burwinkle, T. M., Jacobs, J. R., Gottschalk, M., Kaufman, F., & Jones, K. L. (2003). The PedsQLTM in type 1 and type 2 diabetes: Reliability and validity of the Pediatric Quality of Life InventoryTM Generic Core Scales and type 1 diabetes module. Diabetes Care, 26, 631-637. (Pubitemid 36929319)
-
(2003)
Diabetes Care
, vol.26
, Issue.3
, pp. 631-637
-
-
Varni, J.W.1
Burwinkle, T.M.2
Jacobs, J.R.3
Gottschalk, M.4
Kaufman, F.5
Jones, K.L.6
-
14
-
-
0036525747
-
The PedsQL™ in pediatric cancer: Reliability and validity of the Pediatric Quality of Life Inventory™ Generic Core Scales, Multidimensional Fatigue Scale, and Cancer Module
-
DOI 10.1002/cncr.10428
-
Varni, J. W., Burwinkle, T. M., Katz, E. R., Meeske, K., & Dickinson, P. (2002). The PedsQLTM in pediatric cancer: Reliability and validity of the Pediatric Quality of Life InventoryTM Generic Core Scales, Multidimensional Fatigue Scale, and Cancer Module. Cancer, 94, 2090-2106. (Pubitemid 34270065)
-
(2002)
Cancer
, vol.94
, Issue.7
, pp. 2090-2106
-
-
Varni, J.W.1
Burwinkle, T.M.2
Katz, E.R.3
Meeske, K.4
Dickinson, P.5
-
15
-
-
3543133546
-
The PedsQL™in pediatric asthma: Reliability and validity of the Pediatric Quality of Life Inventory™ Generic Core Scales and Asthma Module
-
DOI 10.1023/B:JOBM.0000028500.53608.2c
-
Varni, J. W., Burwinkle, T. M., Rapoff, M. A., Kamps, J. L., & Olson, N. (2004). The PedsQLTM in pediatric asthma: Reliability and validity of the Pediatric Quality of Life InventoryTM Generic Core Scales and Asthma Module. Journal of Behavioral Medicine, 27, 297-318. (Pubitemid 39024007)
-
(2004)
Journal of Behavioral Medicine
, vol.27
, Issue.3
, pp. 297-318
-
-
Varni, J.W.1
Burwinkle, T.M.2
Rapoff, M.A.3
Kamps, J.L.4
Olson, N.5
-
16
-
-
0036008765
-
The PedsQL™ in pediatric rheumatology: Reliability, validity, and responsiveness of the Pediatric Quality of Life Inventory™ Generic Core Scales and Rheumatology Module
-
DOI 10.1002/art.10095
-
Varni, J. W., Seid, M., Knight, T. S., Burwinkle, T. M., Brown, J., & Szer, I. S. (2002). The PedsQLTM in pediatric rheumatology: Reliability, validity, and responsiveness of the Pediatric Quality of Life InventoryTM Generic Core Scales and Rheumatology Module. Arthritis and Rheumatism, 46, 714-725. (Pubitemid 34214252)
-
(2002)
Arthritis and Rheumatism
, vol.46
, Issue.3
, pp. 714-725
-
-
Varni, J.W.1
Seid, M.2
Knight, T.S.3
Burwinkle, T.4
Brown, J.5
Szer, I.S.6
-
17
-
-
38149079698
-
Measuring healthrelated quality of life in children with ESRD: Performance of the Generic and ESRD-Specific Instrument of the Pediatric Quality of Life InventoryTM (PedsQLTM)
-
Goldstein, S. L., Graham, N., Warady, B. A., Seikaly, M., McDonald, R., Burwinkle, T. M., et al. (2008). Measuring healthrelated quality of life in children with ESRD: Performance of the Generic and ESRD-Specific Instrument of the Pediatric Quality of Life InventoryTM (PedsQLTM). American Journal of Kidney Diseases, 51, 285-297.
-
(2008)
American Journal of Kidney Diseases
, vol.51
, pp. 285-297
-
-
Goldstein, S.L.1
Graham, N.2
Warady, B.A.3
Seikaly, M.4
McDonald, R.5
Burwinkle, T.M.6
-
18
-
-
33846673840
-
The PedsQL™ brain tumor module: Initial reliability and validity
-
DOI 10.1002/pbc.21026
-
Palmer, S. N., Meeske, K. A., Katz, E. R., Burwinkle, T. M., & Varni, J. W. (2007). The PedsQLTM Brain Tumor Module: Initial reliability and validity. Pediatric Blood & Cancer, 49, 287-293. (Pubitemid 47236218)
-
(2007)
Pediatric Blood and Cancer
, vol.49
, Issue.3
, pp. 287-293
-
-
Palmer, S.N.1
Meeske, K.A.2
Katz, E.R.3
Burwinkle, T.M.4
Varni, J.W.5
-
19
-
-
77954069840
-
Pediatric health-related quality of life: Feasibility, reliability and validity of the PedsQLTM Transplant Module
-
Weissberg-Benchell, J., Zielinski, T. E., Rodgers, S., Greenley, R. N., Askenazi, D., Goldstein, S. L., et al. (2010). Pediatric health-related quality of life: Feasibility, reliability and validity of the PedsQLTM Transplant Module. American Journal of Transplantation, 10, 1677-1685.
-
(2010)
American Journal of Transplantation
, vol.10
, pp. 1677-1685
-
-
Weissberg-Benchell, J.1
Zielinski, T.E.2
Rodgers, S.3
Greenley, R.N.4
Askenazi, D.5
Goldstein, S.L.6
-
21
-
-
79951722885
-
Pro development: Rigorous qualitative research as the crucial foundation
-
Lasch, K. E., Marquis, P., Vigneux, M., Abetz, L., Arnould, B., Bayliss, M., et al. (2010). Pro development: Rigorous qualitative research as the crucial foundation. Quality of Life Research, 19, 1087-1096.
-
(2010)
Quality of Life Research
, vol.19
, pp. 1087-1096
-
-
Lasch, K.E.1
Marquis, P.2
Vigneux, M.3
Abetz, L.4
Arnould, B.5
Bayliss, M.6
-
22
-
-
70349959880
-
Qualitative research and content validity: Developing best practices based on science and experience
-
Brod, M., Tesler, L. E., & Christensen, T. L. (2009). Qualitative research and content validity: Developing best practices based on science and experience. Quality of Life Research, 18, 1263-1278.
-
(2009)
Quality of Life Research
, vol.18
, pp. 1263-1278
-
-
Brod, M.1
Tesler, L.E.2
Christensen, T.L.3
-
25
-
-
77956393568
-
Sampling plan and patient characteristics of the promis pediatrics large-scale survey
-
Irwin, D. E., Stucky, B. D., Thissen, D., DeWitt, E. M., Lai, J. S., Yeatts, K., et al. (2010). Sampling plan and patient characteristics of the promis pediatrics large-scale survey. Quality of Life Research, 19, 585-594.
-
(2010)
Quality of Life Research
, vol.19
, pp. 585-594
-
-
Irwin, D.E.1
Stucky, B.D.2
Thissen, D.3
DeWitt, E.M.4
Lai, J.S.5
Yeatts, K.6
-
26
-
-
78149280770
-
PROMIS pediatric pain interference scale: An item response theory analysis of the pediatric pain item bank
-
Varni, J. W., Stucky, B. D., Thissen, D., DeWitt, E. M., Irwin, D. E., Lai, J. S., et al. (2010). PROMIS pediatric pain interference scale: An item response theory analysis of the pediatric pain item bank. Journal of Pain, 11, 1109-1119.
-
(2010)
Journal of Pain
, vol.11
, pp. 1109-1119
-
-
Varni, J.W.1
Stucky, B.D.2
Thissen, D.3
DeWitt, E.M.4
Irwin, D.E.5
Lai, J.S.6
-
27
-
-
77956393412
-
An item response analysis of the pediatric PROMIS anxiety and depressive symptoms scales
-
Irwin, D. E., Stucky, B. D., Langer, M. M., Thissen, D., DeWitt, E. M., Lai, J. S., et al. (2010). An item response analysis of the pediatric PROMIS anxiety and depressive symptoms scales. Quality of Life Research, 19, 595-607.
-
(2010)
Quality of Life Research
, vol.19
, pp. 595-607
-
-
Irwin, D.E.1
Stucky, B.D.2
Langer, M.M.3
Thissen, D.4
DeWitt, E.M.5
Lai, J.S.6
-
28
-
-
77951097996
-
Construction of the pediatric asthma impact scale (PAIS) for the patient-reported outcomes measurement information system (PROMIS)
-
Yeatts, K., Stucky, B. D., Thissen, D., Irwin, D. E., Varni, J. W., DeWitt, E. M., et al. (2010). Construction of the pediatric asthma impact scale (PAIS) for the patient-reported outcomes measurement information system (PROMIS). Journal of Asthma, 47, 295-302.
-
(2010)
Journal of Asthma
, vol.47
, pp. 295-302
-
-
Yeatts, K.1
Stucky, B.D.2
Thissen, D.3
Irwin, D.E.4
Varni, J.W.5
DeWitt, E.M.6
-
29
-
-
65249131729
-
Fatigue and healthrelated quality of life in pediatric inflammatory bowel disease
-
Marcus, S. B., Strople, J. A., Neighbors, K., Weissberg-Benchell, J., Nelson, S. P., Limbers, C. A., et al. (2009). Fatigue and healthrelated quality of life in pediatric inflammatory bowel disease. Clinical Gastroenterology and Hepatology, 7, 554-561.
-
(2009)
Clinical Gastroenterology and Hepatology
, vol.7
, pp. 554-561
-
-
Marcus, S.B.1
Strople, J.A.2
Neighbors, K.3
Weissberg-Benchell, J.4
Nelson, S.P.5
Limbers, C.A.6
-
30
-
-
68349139559
-
The PedsQLTM Multidimensional Fatigue Scale in type 1 diabetes: Feasibility, reliability, and validity
-
Varni, J. W., Limbers, C. A., Bryant, W. P., & Wilson, D. P. (2009). The PedsQLTM Multidimensional Fatigue Scale in type 1 diabetes: Feasibility, reliability, and validity. Pediatric Diabetes, 10, 321-328.
-
(2009)
Pediatric Diabetes
, vol.10
, pp. 321-328
-
-
Varni, J.W.1
Limbers, C.A.2
Bryant, W.P.3
Wilson, D.P.4
-
31
-
-
75749118485
-
The PedsQLTM Multidimensional Fatigue Scale in pediatric obesity: Feasibility, reliability, and validity
-
Varni, J. W., Limbers, C. A., Bryant, W. P., & Wilson, D. P. (2010). The PedsQLTM Multidimensional Fatigue Scale in pediatric obesity: Feasibility, reliability, and validity. International Journal of Pediatric Obesity, 5, 34-42.
-
(2010)
International Journal of Pediatric Obesity
, vol.5
, pp. 34-42
-
-
Varni, J.W.1
Limbers, C.A.2
Bryant, W.P.3
Wilson, D.P.4
-
32
-
-
67649562963
-
Pain, fatigue, and health-related quality of life in children and adolescents with chronic pain
-
Gold, J. I., Mahrer, N. E., Yee, J., & Palermo, T. M. (2009). Pain, fatigue, and health-related quality of life in children and adolescents with chronic pain. Clinical Journal of Pain, 25, 407-412.
-
(2009)
Clinical Journal of Pain
, vol.25
, pp. 407-412
-
-
Gold, J.I.1
Mahrer, N.E.2
Yee, J.3
Palermo, T.M.4
-
33
-
-
33847346557
-
The PedsQLTM as a patient-reported outcome in children and adolescents with fibromyalgia: An analysis of OMERACT domains
-
Varni, J. W., Burwinkle, T. M., Limbers, C. A., & Szer, I. S. (2007). The PedsQLTM as a patient-reported outcome in children and adolescents with fibromyalgia: An analysis of OMERACT domains. Health and Quality of Life Outcomes, 5(9), 1-12.
-
(2007)
Health and Quality of Life Outcomes
, vol.5
, Issue.9
, pp. 1-12
-
-
Varni, J.W.1
Burwinkle, T.M.2
Limbers, C.A.3
Szer, I.S.4
-
34
-
-
10044273165
-
The PedsQL™ multidimensional fatigue scale in pediatric rheumatology: Reliability and validity
-
Varni, J. W., Burwinkle, T. M., & Szer, I. S. (2004). The PedsQLTM Multidimensional Fatigue Scale in pediatric rheumatology: Reliability and validity. Journal of Rheumatology, 31, 2494-2500. (Pubitemid 39603103)
-
(2004)
Journal of Rheumatology
, vol.31
, Issue.12
, pp. 2494-2500
-
-
Varni, J.W.1
Burwinkle, T.M.2
Szer, I.S.3
-
35
-
-
33646698557
-
How many interviews are enough? An experiment with data saturation and variability
-
Guest, G., Bunce, A., & Johnson, L. (2006). How many interviews are enough? An experiment with data saturation and variability. Field Methods, 18, 59-82.
-
(2006)
Field Methods
, vol.18
, pp. 59-82
-
-
Guest, G.1
Bunce, A.2
Johnson, L.3
|