메뉴 건너뛰기




Volumn 51, Issue 2, 2008, Pages 285-297

Measuring Health-Related Quality of Life in Children With ESRD: Performance of the Generic and ESRD-Specific Instrument of the Pediatric Quality of Life Inventory (PedsQL)

Author keywords

children; end stage renal disease; patient reported outcomes; Pediatric Quality of Life Inventory (PedsQL)

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CHILD; CHILD PARENT RELATION; CONSTRUCT VALIDITY; CONTROLLED STUDY; FEASIBILITY STUDY; FEMALE; HUMAN; INTERNAL CONSISTENCY; KIDNEY DISEASE; MAJOR CLINICAL STUDY; MALE; QUALITY OF LIFE; SCORING SYSTEM; SELF REPORT; TEST RETEST RELIABILITY;

EID: 38149079698     PISSN: 02726386     EISSN: None     Source Type: Journal    
DOI: 10.1053/j.ajkd.2007.09.021     Document Type: Article
Times cited : (113)

References (66)
  • 1
    • 2942709630 scopus 로고    scopus 로고
    • Long-term survival of children with end-stage renal disease
    • McDonald S.P., and Craig J.C. Long-term survival of children with end-stage renal disease. N Engl J Med 350 (2004) 2654-2662
    • (2004) N Engl J Med , vol.350 , pp. 2654-2662
    • McDonald, S.P.1    Craig, J.C.2
  • 4
    • 0002726325 scopus 로고    scopus 로고
    • Pediatric health-related quality of life measurement technology: A guide for health care decision makers
    • Varni J.W., Seid M., and Kurtin P.S. Pediatric health-related quality of life measurement technology: A guide for health care decision makers. J Clin Outcomes Manage 6 (1999) 33-40
    • (1999) J Clin Outcomes Manage , vol.6 , pp. 33-40
    • Varni, J.W.1    Seid, M.2    Kurtin, P.S.3
  • 7
    • 0035097339 scopus 로고    scopus 로고
    • Validation of questionnaires to estimate physical activity and functioning in end-stage renal disease
    • Johansen K.L., Painter P., Kent-Braun J.A., et al. Validation of questionnaires to estimate physical activity and functioning in end-stage renal disease. Kidney Int 59 (2001) 1121-1127
    • (2001) Kidney Int , vol.59 , pp. 1121-1127
    • Johansen, K.L.1    Painter, P.2    Kent-Braun, J.A.3
  • 8
    • 0033824665 scopus 로고    scopus 로고
    • Quality of life benefits of early anaemia treatment
    • Valderrabano F. Quality of life benefits of early anaemia treatment. Nephrol Dial Transplant 15 suppl 3 (2000) S23-S28
    • (2000) Nephrol Dial Transplant , vol.15 , Issue.SUPPL. 3
    • Valderrabano, F.1
  • 9
    • 0033979146 scopus 로고    scopus 로고
    • Quality-of-life evaluation using Short Form 36: Comparison in hemodialysis and peritoneal dialysis patients
    • Diaz-Buxo J.A., Lowrie E.G., Lew N.L., Zhang H., and Lazarus J.M. Quality-of-life evaluation using Short Form 36: Comparison in hemodialysis and peritoneal dialysis patients. Am J Kidney Dis 35 (2000) 293-300
    • (2000) Am J Kidney Dis , vol.35 , pp. 293-300
    • Diaz-Buxo, J.A.1    Lowrie, E.G.2    Lew, N.L.3    Zhang, H.4    Lazarus, J.M.5
  • 10
    • 0033915529 scopus 로고    scopus 로고
    • Assessment of health-related quality of life in renal transplant and hemodialysis patients using the SF-36 health survey
    • Fujisawa M., Ichikawa Y., Yoshiya K., et al. Assessment of health-related quality of life in renal transplant and hemodialysis patients using the SF-36 health survey. Urology 56 (2000) 201-206
    • (2000) Urology , vol.56 , pp. 201-206
    • Fujisawa, M.1    Ichikawa, Y.2    Yoshiya, K.3
  • 11
    • 0033851607 scopus 로고    scopus 로고
    • Assessment of quality of life in a single centre dialysis population using the KDQOL-SF questionnaire
    • Carmichael P., Popoola J., John I., Stevens P.E., and Carmichael A.R. Assessment of quality of life in a single centre dialysis population using the KDQOL-SF questionnaire. Qual Life Res 9 (2000) 195-205
    • (2000) Qual Life Res , vol.9 , pp. 195-205
    • Carmichael, P.1    Popoola, J.2    John, I.3    Stevens, P.E.4    Carmichael, A.R.5
  • 12
    • 0033820353 scopus 로고    scopus 로고
    • Development of subscales from the symptoms/problems and effects of kidney disease scales of the Kidney Disease Quality of Life instrument
    • Rao S., Carter W.B., Mapes D.L., et al. Development of subscales from the symptoms/problems and effects of kidney disease scales of the Kidney Disease Quality of Life instrument. Clin Ther 22 (2000) 1099-1111
    • (2000) Clin Ther , vol.22 , pp. 1099-1111
    • Rao, S.1    Carter, W.B.2    Mapes, D.L.3
  • 13
    • 12444272603 scopus 로고    scopus 로고
    • Health-related quality of life as a predictor of mortality and hospitalization: The Dialysis Outcomes and Practice Patterns Study (DOPPS)
    • Mapes D.L., Lopes A.A., Satayathum S., et al. Health-related quality of life as a predictor of mortality and hospitalization: The Dialysis Outcomes and Practice Patterns Study (DOPPS). Kidney Int 64 (2003) 339-349
    • (2003) Kidney Int , vol.64 , pp. 339-349
    • Mapes, D.L.1    Lopes, A.A.2    Satayathum, S.3
  • 14
    • 5644244931 scopus 로고    scopus 로고
    • Health-related quality of life in the Dialysis Outcomes and Practice Patterns Study (DOPPS)
    • Mapes D.L., Bragg-Gresham J.L., Bommer J., et al. Health-related quality of life in the Dialysis Outcomes and Practice Patterns Study (DOPPS). Am J Kidney Dis 44 (2004) 54-60
    • (2004) Am J Kidney Dis , vol.44 , pp. 54-60
    • Mapes, D.L.1    Bragg-Gresham, J.L.2    Bommer, J.3
  • 15
    • 9344245679 scopus 로고    scopus 로고
    • Anemia and health-related quality of life in adolescents with chronic kidney disease
    • Gerson A., Hwang W., Fiorenza J., et al. Anemia and health-related quality of life in adolescents with chronic kidney disease. Am J Kidney Dis 44 (2004) 1017-1023
    • (2004) Am J Kidney Dis , vol.44 , pp. 1017-1023
    • Gerson, A.1    Hwang, W.2    Fiorenza, J.3
  • 16
    • 7744231098 scopus 로고    scopus 로고
    • Motor performance, exercise tolerance, and health-related quality of life in children on dialysis
    • Eijsermans R.M., Creemers D.G., Helders P.J., and Schroder C.H. Motor performance, exercise tolerance, and health-related quality of life in children on dialysis. Pediatr Nephrol 19 (2004) 1262-1266
    • (2004) Pediatr Nephrol , vol.19 , pp. 1262-1266
    • Eijsermans, R.M.1    Creemers, D.G.2    Helders, P.J.3    Schroder, C.H.4
  • 18
    • 0035432179 scopus 로고    scopus 로고
    • PedsQL 4.0: Reliability and validity of the Pediatric Quality of Life Inventory version 4.0 Generic Core Scales in healthy and patient populations
    • Varni J.W., Seid M., and Kurtin P.S. PedsQL 4.0: Reliability and validity of the Pediatric Quality of Life Inventory version 4.0 Generic Core Scales in healthy and patient populations. Med Care 39 (2001) 800-812
    • (2001) Med Care , vol.39 , pp. 800-812
    • Varni, J.W.1    Seid, M.2    Kurtin, P.S.3
  • 19
    • 0036549713 scopus 로고    scopus 로고
    • The PedsQL 4.0 Generic Core Scales: Sensitivity, responsiveness, and impact on clinical decision-making
    • Varni J.W., Seid M., Knight T.S., Uzark K., and Szer I.S. The PedsQL 4.0 Generic Core Scales: Sensitivity, responsiveness, and impact on clinical decision-making. J Behav Med 25 (2002) 175-193
    • (2002) J Behav Med , vol.25 , pp. 175-193
    • Varni, J.W.1    Seid, M.2    Knight, T.S.3    Uzark, K.4    Szer, I.S.5
  • 20
    • 0348161127 scopus 로고    scopus 로고
    • The PedsQL 4.0 as a pediatric population health measure: Feasibility, reliability, and validity
    • Varni J.W., Burwinkle T.M., Seid M., and Skarr D. The PedsQL 4.0 as a pediatric population health measure: Feasibility, reliability, and validity. Ambul Pediatr 3 (2003) 329-341
    • (2003) Ambul Pediatr , vol.3 , pp. 329-341
    • Varni, J.W.1    Burwinkle, T.M.2    Seid, M.3    Skarr, D.4
  • 21
    • 38149074442 scopus 로고    scopus 로고
    • Excerpts from the USRDS Annual Report
    • US Renal Data System
    • US Renal Data System. Excerpts from the USRDS Annual Report. Am J Kidney Dis 47 (2006) S104
    • (2006) Am J Kidney Dis , vol.47
  • 25
    • 0035432179 scopus 로고    scopus 로고
    • PedsQL™ 4.0: Reliability and validity of the Pediatric Quality of Life Inventory™ version 4.0 Generic Core Scales in healthy and patient populations
    • Varni J.W., Seid M., and Kurtin P.S. PedsQL™ 4.0: Reliability and validity of the Pediatric Quality of Life Inventory™ version 4.0 Generic Core Scales in healthy and patient populations. Med Care 39 (2001) 800-812
    • (2001) Med Care , vol.39 , pp. 800-812
    • Varni, J.W.1    Seid, M.2    Kurtin, P.S.3
  • 26
    • 0348161127 scopus 로고    scopus 로고
    • The PedsQL™ 4.0 as a pediatric population health measure: Feasibility, reliability, and validity
    • Varni J.W., Burwinkle T.M., Seid M., and Skarr D. The PedsQL™ 4.0 as a pediatric population health measure: Feasibility, reliability, and validity. Ambulatory Pediatr 3 (2003) 329-341
    • (2003) Ambulatory Pediatr , vol.3 , pp. 329-341
    • Varni, J.W.1    Burwinkle, T.M.2    Seid, M.3    Skarr, D.4
  • 30
    • 0033073557 scopus 로고    scopus 로고
    • The PedsQL™: Measurement model for the Pediatric Quality of Life Inventory
    • Varni J.W., Seid M., and Rode C.A. The PedsQL™: Measurement model for the Pediatric Quality of Life Inventory. Med Care 37 (1999) 126-139
    • (1999) Med Care , vol.37 , pp. 126-139
    • Varni, J.W.1    Seid, M.2    Rode, C.A.3
  • 32
    • 0028120266 scopus 로고
    • The MOS 36-Item Short-Form Health Survey (SF-36): III. Tests of data quality, scaling assumptions, and reliability across diverse patient groups
    • McHorney C.A., Ware J.E., Lu J.F.R., and Sherbourne C.D. The MOS 36-Item Short-Form Health Survey (SF-36): III. Tests of data quality, scaling assumptions, and reliability across diverse patient groups. Med Care 32 (1994) 40-66
    • (1994) Med Care , vol.32 , pp. 40-66
    • McHorney, C.A.1    Ware, J.E.2    Lu, J.F.R.3    Sherbourne, C.D.4
  • 33
    • 33845945922 scopus 로고
    • Coefficient alpha and the internal structure of tests
    • Cronbach L.J. Coefficient alpha and the internal structure of tests. Psychometrika 16 (1951) 297-334
    • (1951) Psychometrika , vol.16 , pp. 297-334
    • Cronbach, L.J.1
  • 37
    • 0030915795 scopus 로고    scopus 로고
    • Factor analysis, causal indicators and quality of life
    • Fayers P.M., and Hand D.J. Factor analysis, causal indicators and quality of life. Qual Life Res 6 (1997) 139-150
    • (1997) Qual Life Res , vol.6 , pp. 139-150
    • Fayers, P.M.1    Hand, D.J.2
  • 38
    • 0031484884 scopus 로고    scopus 로고
    • Exploratory and confirmatory factor analysis: Guidelines, issues, and alternatives
    • Hurley A.E., Scandura T.A., Schriesheim C.A., et al. Exploratory and confirmatory factor analysis: Guidelines, issues, and alternatives. J Organizational Behav 18 (1997) 667-683
    • (1997) J Organizational Behav , vol.18 , pp. 667-683
    • Hurley, A.E.1    Scandura, T.A.2    Schriesheim, C.A.3
  • 40
    • 0025397298 scopus 로고
    • Comparative fit indexes in structural models
    • Bentler P. Comparative fit indexes in structural models. Psychol Bull 107 (1990) 238-246
    • (1990) Psychol Bull , vol.107 , pp. 238-246
    • Bentler, P.1
  • 41
    • 84948889709 scopus 로고
    • Structural model evaluation and modification: An interval estimation approach
    • Steiger J.H. Structural model evaluation and modification: An interval estimation approach. Multivariate Behav Res 25 (1990) 173-180
    • (1990) Multivariate Behav Res , vol.25 , pp. 173-180
    • Steiger, J.H.1
  • 42
    • 6744245357 scopus 로고
    • A reliability coefficient for maximum likelihood factor analysis
    • Tucker L.R., and Lewis C. A reliability coefficient for maximum likelihood factor analysis. Psychometrika 38 (1973) 1-10
    • (1973) Psychometrika , vol.38 , pp. 1-10
    • Tucker, L.R.1    Lewis, C.2
  • 43
    • 67650706330 scopus 로고    scopus 로고
    • Cutoff criteria for fit indices in covariance structure analysis: Conventional criteria versus new alternatives
    • Hu L., and Bentler P.M. Cutoff criteria for fit indices in covariance structure analysis: Conventional criteria versus new alternatives. Structural Equation Modeling 6 (1999) 1-55
    • (1999) Structural Equation Modeling , vol.6 , pp. 1-55
    • Hu, L.1    Bentler, P.M.2
  • 44
    • 84965455705 scopus 로고
    • Alternative ways of assessing model fit
    • Browne M.W., and Cudeck R. Alternative ways of assessing model fit. Sociol Methods Res 21 (1992) 230-258
    • (1992) Sociol Methods Res , vol.21 , pp. 230-258
    • Browne, M.W.1    Cudeck, R.2
  • 46
    • 0000135659 scopus 로고    scopus 로고
    • Forming inferences about some intraclass correlation coefficients
    • McGraw K.O., and Wong S.P. Forming inferences about some intraclass correlation coefficients. Psychol Methods 1 (1996) 30-46
    • (1996) Psychol Methods , vol.1 , pp. 30-46
    • McGraw, K.O.1    Wong, S.P.2
  • 47
    • 33750018655 scopus 로고    scopus 로고
    • Factors influencing agreement between child self-report and parent proxy-reports on the Pediatric Quality of Life Inventory™ 4.0 (PedsQL™) Generic Core Scales
    • Cremeens J., Eiser C., and Blades M. Factors influencing agreement between child self-report and parent proxy-reports on the Pediatric Quality of Life Inventory™ 4.0 (PedsQL™) Generic Core Scales. Health Qual Life Outcomes 4 (2006) 1-8
    • (2006) Health Qual Life Outcomes , vol.4 , pp. 1-8
    • Cremeens, J.1    Eiser, C.2    Blades, M.3
  • 48
    • 0013941871 scopus 로고
    • The intraclass correlation coefficient as a measure of reliability
    • Bartko J.J. The intraclass correlation coefficient as a measure of reliability. Psychol Rep 19 (1966) 3-11
    • (1966) Psychol Rep , vol.19 , pp. 3-11
    • Bartko, J.J.1
  • 49
    • 0034455460 scopus 로고    scopus 로고
    • Perception of quality of life by patients, partners and treating physicians
    • Wilson K.A., Dowling A.J., Abdolell M., and Tannock I.F. Perception of quality of life by patients, partners and treating physicians. Qual Life Res 9 (2001) 1041-1052
    • (2001) Qual Life Res , vol.9 , pp. 1041-1052
    • Wilson, K.A.1    Dowling, A.J.2    Abdolell, M.3    Tannock, I.F.4
  • 50
    • 0014064461 scopus 로고
    • Coefficient alpha and the reliability of composite measurements
    • Novick M., and Lewis G. Coefficient alpha and the reliability of composite measurements. Psychometrika 32 (1967) 1-13
    • (1967) Psychometrika , vol.32 , pp. 1-13
    • Novick, M.1    Lewis, G.2
  • 51
    • 0033404589 scopus 로고    scopus 로고
    • Measuring quality of life in paediatric patients
    • Connolly M.A., and Johnson J.A. Measuring quality of life in paediatric patients. Pharmacoeconomics 16 (1999) 605-625
    • (1999) Pharmacoeconomics , vol.16 , pp. 605-625
    • Connolly, M.A.1    Johnson, J.A.2
  • 52
    • 0030850204 scopus 로고    scopus 로고
    • Measuring quality of life
    • Jenney M.E., and Campbell S. Measuring quality of life. Arch Dis Child 77 (1997) 347-350
    • (1997) Arch Dis Child , vol.77 , pp. 347-350
    • Jenney, M.E.1    Campbell, S.2
  • 53
    • 34147165006 scopus 로고
    • What is coefficient alpha?. An examination of theory and applications
    • Cortina J.M. What is coefficient alpha?. An examination of theory and applications. J Appl Psychol 78 (1993) 98-104
    • (1993) J Appl Psychol , vol.78 , pp. 98-104
    • Cortina, J.M.1
  • 54
    • 0037297709 scopus 로고    scopus 로고
    • Starting at the beginning: An introduction to coefficient alpha and internal consistency
    • Streiner D.L. Starting at the beginning: An introduction to coefficient alpha and internal consistency. J Pers Assess 80 (2003) 99-103
    • (2003) J Pers Assess , vol.80 , pp. 99-103
    • Streiner, D.L.1
  • 55
    • 0026652936 scopus 로고
    • The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease: A review
    • Sprangers M.A.G., and Aaronson N.K. The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease: A review. J Clin Epidemiol 45 (1992) 743-760
    • (1992) J Clin Epidemiol , vol.45 , pp. 743-760
    • Sprangers, M.A.G.1    Aaronson, N.K.2
  • 56
    • 0023300346 scopus 로고
    • Child/adolescent behavioral and emotional problems: Implications of cross-informant correlations for situational specificity
    • Achenbach T.M., McConaughy S.H., and Howell C.T. Child/adolescent behavioral and emotional problems: Implications of cross-informant correlations for situational specificity. Psychol Bull 101 (1987) 213-232
    • (1987) Psychol Bull , vol.101 , pp. 213-232
    • Achenbach, T.M.1    McConaughy, S.H.2    Howell, C.T.3
  • 57
    • 0031777269 scopus 로고    scopus 로고
    • The Pediatric Cancer Quality of Life Inventory (PCQL): I. Instrument development, descriptive statistics, and cross-informant variance
    • Varni J.W., Katz E.R., Seid M., Quiggins D.J.L., Friedman-Bender A., and Castro C.M. The Pediatric Cancer Quality of Life Inventory (PCQL): I. Instrument development, descriptive statistics, and cross-informant variance. J Behav Med 21 (1998) 179-204
    • (1998) J Behav Med , vol.21 , pp. 179-204
    • Varni, J.W.1    Katz, E.R.2    Seid, M.3    Quiggins, D.J.L.4    Friedman-Bender, A.5    Castro, C.M.6
  • 58
    • 0033374144 scopus 로고    scopus 로고
    • Health-related quality of life in childhood cancer: Discrepancy in parent-child reports
    • Levi R.B., and Drotar D. Health-related quality of life in childhood cancer: Discrepancy in parent-child reports. Int J Cancer 12 (1999) 58-64
    • (1999) Int J Cancer , vol.12 , pp. 58-64
    • Levi, R.B.1    Drotar, D.2
  • 59
    • 12744279617 scopus 로고    scopus 로고
    • Pain in children and adolescents with spina bifida
    • Clancy C., McGrath P., and Oddson B. Pain in children and adolescents with spina bifida. Dev Med Child Neurol 47 (2005) 27-34
    • (2005) Dev Med Child Neurol , vol.47 , pp. 27-34
    • Clancy, C.1    McGrath, P.2    Oddson, B.3
  • 60
    • 33745750818 scopus 로고    scopus 로고
    • Health-related quality of life of pediatric patients receiving allogeneic stem cell or bone marrow transplantation: Results of a longitudinal, multi-center study
    • Felder-Puig R., diGallo A., Waldenmair M., et al. Health-related quality of life of pediatric patients receiving allogeneic stem cell or bone marrow transplantation: Results of a longitudinal, multi-center study. Bone Marrow Transplant 38 (2006) 119-126
    • (2006) Bone Marrow Transplant , vol.38 , pp. 119-126
    • Felder-Puig, R.1    diGallo, A.2    Waldenmair, M.3
  • 61
    • 0034947039 scopus 로고    scopus 로고
    • Issues in measuring quality of life in childhood cancer: Measures, proxies, and parental mental health
    • Vance Y.H., Morse R.C., Jenney M.E., and Eiser C. Issues in measuring quality of life in childhood cancer: Measures, proxies, and parental mental health. J Child Psychol Psychiatry 42 (2001) 661-667
    • (2001) J Child Psychol Psychiatry , vol.42 , pp. 661-667
    • Vance, Y.H.1    Morse, R.C.2    Jenney, M.E.3    Eiser, C.4
  • 62
    • 14544274112 scopus 로고    scopus 로고
    • Agreement between child self-report and parent proxy-report to evaluate quality of life in children with cancer
    • Chang P., and Yeh C. Agreement between child self-report and parent proxy-report to evaluate quality of life in children with cancer. Psychooncology 14 (2005) 125-134
    • (2005) Psychooncology , vol.14 , pp. 125-134
    • Chang, P.1    Yeh, C.2
  • 63
    • 26844500283 scopus 로고    scopus 로고
    • Evaluating quality of life in children with cancer using children's self-reports and parent-proxy reports
    • Yeh C.H., Chang C.W., and Chang P.C. Evaluating quality of life in children with cancer using children's self-reports and parent-proxy reports. Nursing Res 54 (2005) 354-362
    • (2005) Nursing Res , vol.54 , pp. 354-362
    • Yeh, C.H.1    Chang, C.W.2    Chang, P.C.3
  • 64
    • 1942441542 scopus 로고    scopus 로고
    • Statistical considerations for use of composite health-related quality of life scores in randomized trials
    • Vickers A.J. Statistical considerations for use of composite health-related quality of life scores in randomized trials. Qual Life Res 13 (2004) 717-723
    • (2004) Qual Life Res , vol.13 , pp. 717-723
    • Vickers, A.J.1
  • 66
    • 0030015311 scopus 로고    scopus 로고
    • Functional Assessment of Cancer Therapy (FACT-G): Non-response to individual questions
    • Fairclough D.L., and Cella D.F. Functional Assessment of Cancer Therapy (FACT-G): Non-response to individual questions. Qual Life Res 5 (1996) 321-329
    • (1996) Qual Life Res , vol.5 , pp. 321-329
    • Fairclough, D.L.1    Cella, D.F.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.