The PedsQL in pediatric cerebral palsy: Reliability, validity, and sensitivity of the Generic Core Scales and Cerebral Palsy Module

Developmental Medicine and Child Neurology

Volumn 48, Issue 6, 2006, Pages 442-449

  Varni, James W ^a,b   Burwinkle, Tasha M ^c   Berrin, Susan J ^d   Sherman, Sandra A ^e   Artavia, Kanela ^f   Malcarne, Vanessa L ^g   Chambers, Henry G ^e  

^a TEXAS A AND M UNIVERSITY   (United States)

^b TEXAS A M COLLEGE OF MEDICINE   (United States)

^c UNIVERSITY OF WASHINGTON   (United States)

^d SAN DIEGO STATE UNIVERSITY   (United States)

^e UNIVERSITY OF CALIFORNIA   (United States)

^f UNIVERSITY OF CALIFORNIA   (United States)

^g SAN DIEGO STATE UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CEREBRAL PALSY; CHILD; CLINICAL ASSESSMENT TOOL; CONTROLLED STUDY; DISEASE CLASSIFICATION; FACIAL NERVE PARALYSIS; FEMALE; HEMIPLEGIA; HUMAN; MAJOR CLINICAL STUDY; MALE; MOTOR DYSFUNCTION; PEDIATRIC QUALITY OF LIFE INVENTORY; PRIORITY JOURNAL; QUADRIPLEGIA; QUALITY OF LIFE; RATING SCALE; RELIABILITY; SELF REPORT; SENSITIVITY ANALYSIS; VALIDITY;

ADOLESCENT; CEREBRAL PALSY; CHILD; CHILD, PRESCHOOL; FEMALE; HUMANS; MALE; MOTOR SKILLS DISORDERS; QUALITY OF LIFE; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS; SENSITIVITY AND SPECIFICITY;

EID: 33646546182     PISSN: 00121622     EISSN: 14698749     Source Type: Journal    
DOI: 10.1017/S001216220600096X     Document Type: Article

References (24)

1. Aday LA. (1996) Designing and Conducting Health Surveys: A Comprehensive Guide. 2nd edition. San Francisco: Jossey-Bass.
2. Bartko JJ. (1966) The intraclass correlation coefficient as a measure of reliability. Psychol Rep 19: 3-11.
3. Bjornson KF, McLaughlin JF. (2001) The measurement of health-related quality of life (HRQL) in children with CP. Eur J Neurol 8 (Suppl 5): 183-193.
4. Cohen J. (1988) Statistical Power Analysis for the Behavioral Sciences. 2nd edition. New Jersey: Lawrence Erlbaum Associates.
5. Cronbach LJ. (1951) Coefficient alpha and the internal structure of tests. Psychometrika 16: 297-334.
6. Fairclough DL. (2002) Design and Analysis of Quality of Life Studies in Clinical Trials: Interdisciplinary Statistics. New York: Chapman & Hall/ CRC.
7. Fayers PM, Machin D. (2000) Quality of life: Assessment, Analysis, and Interpretation. New York: Wiley.
8. Hollingshead AB. (1975) Four factor index of social status. New Haven, CT: Yale University Press.
9. Liptak GS, O'Donnell M, Conaway M, Chumlea WC, Worley G, Henderson RC, Fung E, Stallings VA, Samson-Fang L, Calvert R, Rosenbaum P, Stevenson RD. (2001) Health status of children with moderate to severe CP. Dev Med Child Neurol 43: 364-370.
10. Matza LS, Swensen AR, Flood EM, Secnik K, Leidy NK. (2004) Assessment of health-related quality of life in children: A review of conceptual, methodological, and regulatory issues. Value Health 7: 79-92.
11. McHorney CA, Ware JE Jr, Lu JF, Sherbourne CD. (1994) The MOS 36-item short-form health survey (SF-36): III. Tests of data quality, scaling assumptions, and reliability across diverse patient groups. Med Care 32: 40-66.
12. Novick M, Lewis G. (1967) Coefficient alpha and the reliability of composite measurements. Psychometrika 32: 1-13.
13. Nunnally JC, Bernstein IR. (1994) Psychometric theory. 3rd edition. New York: McGraw Hill.
14. Palisano R, Rosenbaum P, Walter S, Russell D, Wood E, Galuppi B. (1997) Development and reliability of a system to classify gross motor function in children with CP. Dev Med Child Neurol 39: 214-223.
15. Pedhazur EJ, Schmelkin LP. (1991) Measurement, Design, and Analysis: An Integrated Approach. New Jersey: Lawrence Erlbaum Associates.
16. Schwarz N, Sudman N, editors. (1995) Answering Questions: Methodology for Determining Cognitive and Communicative Processes in Survey Research. San Francisco: Jossey-Bass.
17. Smith KW, Avis NE, Assmann SF. (1999) Distinguishing between quality of life and health status in quality of life research: A meta-analysis. Qual Life Res 8: 447-459.
18. Varni JW, Burwinkle TM, Katz ER, Meeske K, Dickinson P. (2002a) The PedsQL in pediatric cancer: Reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales, Multidimensional Fatigue Scale, and Cancer Module. Cancer 94: 2090-2106.
19. Varni JW, Burwinkle TM, Rapoff MA, Kamps JL, Olson N. (2004) The PedsQL in pediatric asthma: Reliability and validity of the Pediatric Quality of Life Inventory generic core scales and asthma module. J Behav Med 27: 297-318.
20. Varni JW, Burwinkle TM, Seid M, Skarr D. (2003) The PedsQL 4.0 as a pediatric population health measure: Feasibility, reliability, and validity. Ambul Pediatr 3: 329-341.
21. Varni JW, Burwinkle TM, Sherman SA, Hanna K, Berrin SJ, Malcarne VL, Chambers HG. (2005) Health-related quality of life of children and adolescents with cerebral palsy: Hearing the voices of the children. Dev Med Child Neurol 47: 592-597.
22. Varni JW, Seid M, Knight T, Burwinkle TM, Brown J, Szer IS. (2002b) The PedsQL in pediatric rheumatology: Reliability, validity, and responsiveness of the Pediatric Quality of Life Inventory Generic Core Scales and Rheumatology Module. Arthritis Rheum 46: 714-725.
23. Varni JW, Seid M, Kurtin PS. (2001) The PedsQL 4.0: Reliability and validity of the Pediatric Quality of Life Inventory Version 4.0 Generic Core Scales in healthy and patient populations. Med Care 39: 800-812.
24. Vickers AJ. (2004) Statistical considerations for use of composite health-related quality-of-life scores in randomized trials. Qual Life Res 13: 717-723.