Construction of the pediatric asthma impact scale (PAIS) for the patient-reported outcomes measurement information system (PROMIS)

Journal of Asthma

Volumn 47, Issue 3, 2010, Pages 295-302

  Yeatts, Karin B ^a   Stucky, Brian ^b   Thissen, David ^b   Irwin, Deb ^a   Varni, James W ^c,d   Dewitt, Esi Morgan ^e   Lai, Jin Shei ^f   Dewalt, Darren A ^g  

^a IL   (United States)

^b University of North Carolina at Chapel Hill   (United States)

^c TEXAS A M COLLEGE OF MEDICINE   (United States)

^d TEXAS A AND M UNIVERSITY   (United States)

^e DUKE UNIVERSITY MEDICAL CENTER   (United States)

^f NORTHWESTERN UNIVERSITY   (United States)

^g UNIVERSITY OF NORTH CAROLINA SCHOOL OF MEDICINE   (United States)

Author keywords

Asthma; Item response theory; Pediatric; Quality of life

Indexed keywords

ADOLESCENT; ARTICLE; ASTHMA; CHILD; COMPUTERIZED ADAPTIVE TESTING; FEMALE; HUMAN; MAJOR CLINICAL STUDY; MALE; NAMED INVENTORIES, QUESTIONNAIRES AND RATING SCALES; PATIENT REPORTED OUTCOMES MEASUREMENT INFORMATION SYSTEM; PEDIATRIC ASTHMA IMPACT SCALE; PSYCHOMETRY; SCHOOL CHILD;

ADOLESCENT; ASTHMA; CHILD; FEMALE; HUMANS; MALE; OUTCOME ASSESSMENT (HEALTH CARE); PSYCHOMETRICS;

EID: 77951097996     PISSN: 02770903     EISSN: 15324303     Source Type: Journal    
DOI: 10.3109/02770900903426997     Document Type: Article

References (46)

1. Bloom B, Cohen RA, Freeman G. Summary health statistics for U.S. children: National Health Interview Survey, 2007. Vital Health Stat 2009; 10(239):1-80.
2. Kamble S, Bharmal M. Incremental direct expenditure of treating asthma in the United States. J Asthma 2009; 46:73-80.
3. Expert Panel Report 3 (EPR-3). Guidelines for the Diagnosis and Management of Asthma-Summary Report 2007. J Allergy Clin Immunol 2007; 120(5 Suppl):S94-S138.
4. Castro M, Ramirez MI, Gern JE, Cutting G, Redding G, Hagood JS, et al. Strategic plan for pediatric respiratory diseases research: an NHLBI working group report. Proc Am Thorac Soc 2009; 6:1-10.
5. Mangione-Smith R, Schonlau M, Chan KS, Keesey J, Rosen M, Louis TA, et al. Measuring the effectiveness of a collaborative for quality improvement in pediatric asthma care: does implementing the chronic caremodel improve processes and outcomes of care? Ambul Pediatr 2005; 5:75-82.
6. Juniper EF, Guyatt GH, Feeny DH, Ferrie PJ, Griffith LE, Townsend M. Measuring quality of life in the parents of children with asthma. Qual Life Res 1996; 5:27-34. (Pubitemid 26100500)
7. Creer TL,Wigal JK,Kotses H, McConnaughyK,Winder JA.Alife activities questionnaire for adult asthma. J Asthma 1992; 29:393-399.
8. Hyland ME, Finnis S, Irvine SH. A scale for assessing quality of life in adult asthma sufferers. J Psychosom Res 1991; 35:99-110.
9. Varni JW, Burwinkle TM, Rapoff MA, Kamps JL, Olson N. The PedsQL in pediatric asthma: reliability and validity of the Pediatric Quality of Life Inventory generic core scales and asthma module. J Behav Med 2004; 27:297-318.
10. Chan KS, Mangione-Smith R, Burwinkle TM, Rosen M, Varni JW. The PedsQL: reliability and validity of the short-form generic core scales and asthma module. Med Care 2005; 43:256-265.
11. Santanello NC. Pediatric asthma assessment: validation of 2 symptom diaries. J Allergy Clin Immunol. 2001; 107(5 Suppl):S465-S472.
12. Santanello NC, Barber BL, Reiss TF, Friedman BS, Juniper EF, Zhang J. Measurement characteristics of two asthma symptom diary scales for use in clinical trials. Eur Respir J 1997; 10:646-651.
13. Santanello NC,Demuro-Mercon C, Davies G, Ostrom N, NoonanM, Rooklin A, et al. Validation of a pediatric asthma caregiver diary. J Allergy Clin Immunol 2000; 106:861-866.
14. Baars RM, Atherton CI, Koopman HM, Bullinger M, Power M. The European DISABKIDS project: development of seven condition-specific modules to measure health related quality of life in children and adolescents. Health Qual Life Outcomes 2005; 3:70.
15. Simeoni MC, Schmidt S, Muehlan H, Debensason D, Bullinger M. Field testing of a European quality of life instrument for children and adolescents with chronic conditions: the 37-item DISABKIDS Chronic Generic Module. Qual Life Res 2007; 16:881-893.
16. Marks GB, Dunn SM,Woolcock AJ. A scale for the measurement of quality of life in adults with asthma. J Clin Epidemiol 1992; 45:461-472.
17. Vollmer WM, Markson LE, O'Connor E, Sanocki LL, Fitterman L, Berger M, et al. Association of asthma control with health care utilization and quality of life. Am J Respir Crit Care Med 1999; 160(5 Pt 1):1647-1652.
18. Bukstein DA,McGrath MM, Buchner DA, Landgraf J, Goss TF. Evaluation of a short form for measuring health-related quality of life among pediatric asthma patients. J Allergy Clin Immunol 2000; 105(2 Pt 1):245-251.
19. Liu AH, Zeiger R, Sorkness C, Mahr T, Ostrom N, Burgess S, et al. Development and cross-sectional validation of the Childhood Asthma Control Test. J Allergy Clin Immunol 2007; 119:817-825.
20. Murphy KR, Zeiger RS, Kosinski M, Chipps B, Mellon M, Schatz M, et al. Test for respiratory and asthma control in kids (TRACK): a caregivercompleted questionnaire for preschool-aged children. J Allergy Clin Immunol 2009; 123:833-839, e9.
21. Streiner D, Norman D. Health Measurement Scales: A Practical Guide to Their Development and Use. (3rd ed.). New York: Oxford University Press, 2003.
22. AdamsR,Rosier M, Campbell D, RuffinR.Assessment of an asthma quality of life scale using item-response theory. Respirology 2005; 10:587-593.
23. Ahmed S, Ernst P, Tamblyn R, Colman N. Evaluating asthma control: a comparison of measures using an item response theory approach. J Asthma 2007; 44:547-554.
24. Cella D, Yount S, Rothrock N, Gershon R, Cook K, Reeve B, et al. The Patient-Reported Outcomes Measurement Information System (PROMIS): progress of an NIH Roadmap cooperative group during its first two years. Med Care 2007; 45(5 Suppl 1):S3-S11.
25. DeWalt DA, Rothrock N, Yount S, Stone AA. Evaluation of item candidates: the PROMIS qualitative item review. Med Care 2007; 45(5 Suppl 1):S12-S21.
26. Irwin DE, Varni JW, Yeatts K, DeWalt DA. Cognitive interviewingmethodology in the development of a pediatric item bank: a patient reported outcomesmeasurement information system (PROMIS) study. Health Qual Life Outcomes 2009;7:3.
27. Walsh TR, Irwin DE, Meier A, Varni JW, DeWalt DA. The use of focus groups in the development of the PROMIS pediatrics item bank. Qual Life Res. 2008; 17:725-735.
28. Reeve BB, Hays RD, Bjorner JB, Cook KF, Crane PK, Teresi JA, et al. Psychometric evaluation and calibration of health-related quality of life item banks: plans for the Patient-Reported Outcomes Measurement Information System (PROMIS). Med Care 2007; 45(5 Suppl 1):S22-S31.
29. Hill CD, Edwards MC, Thissen D, Langer MM, Wirth RJ, Burwinkle TM, et al. Practical issues in the application of item response theory-a demonstration using items from the pediatric quality of life inventory (PedsQL) 4.0 generic core scales. Med Care 2007; 45:S39-S47.
30. Muthen L, Muthen B. Mplus Users Guide. 2nd ed. Los Angeles: Muthen & Muthen, 2004.
31. Samejima F. Estimation of latent ability using a response pattern of graded scores. Psychometrika 1969; 34(4 Pt 2):1-100.
32. Samejima F. Graded response model. In: van der Linden W, Hambleton RK, (Eds.) Handbook of Modern Item Response Theory. New York, NY: Springer-Verlag, 1997:85-100.
33. du Toit M, ed. IRT from SSI. Lincolnwood, IL: Scientific Software International, 2003.
34. 2: an item fit index for use with dichotomous item response theory models. Appl Psychol Meas 2003; 27:289-298.
35. Bjorner J, Smith J, Edelen M, Stone C, Thissen D, Sun X. IRTFIT: A Macro for Item Fit and Local Dependence Tests Under IRT Models. Lincoln, RI: QualityMetric Incorporated, 2007.
36. ThissenD, Steinberg L,Wainer H. Detection of differential item functioning using the parameters of item response models. In: Holland P, Wainer H, (Eds.) Differential Item Functioning. Hillsdale, NJ: Lawerence Erlbaum Associates, 1993:67-113.
37. Thissen D. IRTLRDIF: Software for the Computation of the Statistics Involved in Item Response Theory Likelihood-Ratio Tests for Differential Item Functioning. Chapel Hill, NC: University of North Carolina at Chapel Hill, 2001.
38. Benjamini Y, Hochberg Y. Controlling the false discovery rate: a practical and powerful approach to multiple testing. J R Stat Soc B 1995; 57: 289-300.
39. Williams VSL, Jones LV, Tukey JW. Controlling error in multiple comparisons, with examples from state-to-state differences in educational achievement. J Educ Behav Stat 1999; 24:42-69.
40. Thissen D, Nelson L, Rosa K, McLeod LD. Item response theory for items scored in more than two categories. In: Thissen D, Wainer H, (Eds.) Test Scoring. Mahwah, NJ: Lawrence Erlbaum Associates, 2001:141-186.
41. Juniper EF, Norman GR, Cox FM, Roberts JN. Comparison of the standard gamble, rating scale, AQLQ and SF-36 for measuring quality of life in asthma. Eur Respir J 2001; 18:38-44.
42. Juniper EF, Svensson K,Mork AC, Stahl E.Measuring health-related quality of life in adults during an acute asthma exacerbation. Chest 2004; 125:93-97.
43. Juniper EF, Svensson K, O'Byrne PM, Barnes PJ, Bauer CA, Lofdahl CG, et al. Asthma quality of life during 1 year of treatment with budesonide with or without formoterol. Eur Respir J 1999; 14:1038-1043.
44. Juniper EF, Wisniewski ME, Cox FM, Emmett AH, Nielsen KE, O'Byrne PM. Relationship between quality of life and clinical status in asthma: a factor analysis. Eur Respir J 2004; 23:287-291.
45. Schatz M, Mosen D, Apter AJ, Zeiger RS, Vollmer WM, Stibolt TB, et al. Relationship of validated psychometric tools to subsequent medical utilization for asthma. J Allergy Clin Immunol 2005; 115: 564-570.
46. Schatz M, Mosen DM, Kosinski M, Vollmer WM, Magid DJ, O'Connor E, et al. The relationship between asthma-specific quality of life and asthma control. J Asthma 2007; 44:391-395. (Pubitemid 47026914)