Fatigue and Health-Related Quality of Life in Pediatric Inflammatory Bowel Disease

Clinical Gastroenterology and Hepatology

Volumn 7, Issue 5, 2009, Pages 554-561

  Marcus, Seth B ^a   Strople, Jennifer A ^a   Neighbors, Katie ^a   Weissberg Benchell, Jill ^b   Nelson, Suzanne P ^a   Limbers, Christine ^c   Varni, James W ^c   Alonso, Estella M ^a  

^a NORTHWESTERN UNIVERSITY   (United States)

^b NORTHWESTERN UNIVERSITY   (United States)

^c TEXAS A AND M UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ARTICLE; BODY MASS; CHILD; COGNITION; CONTROLLED STUDY; CROHN DISEASE; DEMOGRAPHY; DEPRESSION; DISEASE ACTIVITY; DISEASE DURATION; ENTERITIS; ETHNICITY; FATIGUE; FEMALE; HUMAN; JUVENILE RHEUMATOID ARTHRITIS; MAJOR CLINICAL STUDY; MALE; NEOPLASM; QUALITY OF LIFE; QUESTIONNAIRE; REMISSION; SCHOOL CHILD; SELF REPORT; SLEEP TIME; STATISTICAL ANALYSIS; ULCERATIVE COLITIS;

ADOLESCENT; CHILD; FATIGUE; FEMALE; HUMANS; INFLAMMATORY BOWEL DISEASES; MALE; QUALITY OF LIFE; QUESTIONNAIRES;

EID: 65249131729     PISSN: 15423565     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.cgh.2009.01.022     Document Type: Article

References (29)

1. Kappelman M.D., Rifas-Shiman S.L., Kleinman K., et al. The prevalence and geographic distribution of Crohn's disease and ulcerative colitis in the United States. Clin Gastroenterol Hepatol 5 (2007) 1424-1429
2. Kappelman M.D., Rifas-Shiman S.L., and Porter C.Q. Direct health care costs of Crohn's disease and ulcerative colitis in US children and adults. Gastroenterology 135 (2008) 1907-1913
3. Mendeloff A.I. The epidemiology of idiopathic inflammatory bowel disease. CB. In: Kirsner J.B. (Ed). Inflammatory bowel disease (1988), Lea & Febiger, Philadelphia 3-34 SR
4. Baldassano R.N., and Piccoli D.A. Inflammatory bowel disease in pediatric and adolescent patients. Gastroenterol Clin North Am 28 (1999) 445-458
5. Kugathasan S., Judd R.H., Hoffmann R.G., et al. Epidemiologic and clinical characteristics of children with newly diagnosed inflammatory bowel disease in Wisconsin: a statewide population-based study. J Pediatr 143 (2003) 525-531
6. Otley A., Smith C., Nicholas D., et al. The IMPACT questionnaire: a valid measure of health-related quality of life in pediatric inflammatory bowel disease. J Pediatr Gastroenterol Nutr 35 (2002) 557-563
7. Varni J.W., Burwinkle T.M., Katz E.R., et al. The PedsQL in pediatric cancer: reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales, Multidimensional Fatigue Scale, and Cancer Module. Cancer 94 (2002) 2090-2106
8. Griffiths A.M., Otley A.R., Hyams J., et al. A review of activity indices and end points for clinical trials in children with Crohn's disease. Inflamm Bowel Dis 11 (2005) 185-196
9. Swain M.G. Fatigue in chronic disease. Clin Sci (Lond) 99 (2000) 1-8
10. Varni J.W., Burwinkle T.M., and Szer I.S. The PedsQL Multidimensional Fatigue Scale in pediatric rheumatology: reliability and validity. J Rheumatol 31 (2004) 2494-2500
11. Minderhoud I.M., Oldenburg B., van Dam P.S., et al. High prevalence of fatigue in quiescent inflammatory bowel disease is not related to adrenocortical insufficiency. Am J Gastroenterol 98 (2003) 1088-1093
12. Griffiths A.M., Nicholas D., Smith C., et al. Development of a quality-of-life index for pediatric inflammatory bowel disease: dealing with differences related to age and IBD type. J Pediatr Gastroenterol Nutr 28 (1999) S46-S52
13. Meeske K., Katz E.R., Palmer S.N., et al. Parent proxy-reported health-related quality of life and fatigue in pediatric patients diagnosed with brain tumors and acute lymphoblastic leukemia. Cancer 101 (2004) 2116-2125
14. Palmer S.N., Meeske K.A., Katz E.R., et al. The PedsQL Brain Tumor Module: initial reliability and validity. Pediatr Blood Cancer 49 (2007) 287-293
15. ™ as a patient-reported outcome in children and adolescents with fibromyalgia: an analysis of OMERACT domains. Health Qual Life Outcomes 5 (2007) 9
16. Varni J.W., Seid M., and Kurtin P.S. PedsQL™ 4.0: reliability and validity of the Pediatric Quality of Life Inventory™ version 4.0 Generic Core Scales in healthy and patient populations. Med Care 39 (2001) 800-812
17. Varni J.W., Burwinkle T.M., Seid M., et al. The PedsQL 4.0™ as a pediatric population health measure: feasibility, reliability, and validity. Ambul Pediatr 3 (2003) 329-341
18. Varni J.W., Burwinkle T.M., Rapoff M.A., et al. The PedsQL™ in pediatric asthma: reliability and validity of the Pediatric Quality of Life Inventory™ Generic Core Scales and Asthma Module. J Behav Med 27 (2004) 297-318
19. Kovacs M. Children's Depression Inventory (CDI): technical manual update (2003), Multi-Health Systems, Toronto
20. Hyams J.S., Ferry G.D., Mandel F.S., et al. Development and validation of a pediatric Crohn's disease activity index. J Pediatr Gastroenterol Nutr 12 (1991) 439-447
21. Lichtiger S., Present D.H., Kornbluth A., et al. Cyclosporine in severe ulcerative colitis refractory to steroid therapy. N Engl J Med 330 (1994) 1841-1845
22. Hollingshead A. Four factor index of social status. Unpublished manuscript (1975)
23. Cirino P.T., Chin C.E., Sevcik R.A., et al. Measuring socioeconomic status: reliability and preliminary validity for different approaches. Assessment 9 (2002) 145-155
24. Lichstein K.L., Means M.K., Noe S.L., et al. Fatigue and sleep disorders. Behav Res Ther 35 (1997) 733-740
25. Ranjbaran Z., Keefer L., Farhadi A., et al. Impact of sleep disturbances in inflammatory bowel disease. J Gastroenterol Hepatol 22 (2007) 1748-1753
26. Szigethy E., Levy-Warren A., Whitton S., et al. Depressive symptoms and inflammatory bowel disease in children and adolescents: a cross-sectional study. J Pediatr Gastroenterol Nutr 39 (2004) 395-403
27. Engstrom I. Mental health and psychological functioning in children and adolescents with inflammatory bowel disease: a comparison with children having other chronic illnesses and with healthy children. J Child Psychol Psychiatry 33 (1992) 563-582
28. Maity S., and Thomas A.G. Quality of life in paediatric gastrointestinal and liver disease: a systematic review. J Pediatr Gastroenterol Nutr 44 (2007) 540-554
29. Turner D., Otley A.R., Mack D., et al. Development, validation, and evaluation of a pediatric ulcerative colitis activity index: a prospective multicenter study. Gastroenterology 133 (2007) 423-432