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Volumn 41, Issue 6 SUPPL.4, 2011, Pages

A public health framework for rare blood disorders

Author keywords

[No Author keywords available]

Indexed keywords

PENICILLIN G; PNEUMOCOCCUS VACCINE;

EID: 81355150261     PISSN: 07493797     EISSN: 18732607     Source Type: Journal    
DOI: 10.1016/j.amepre.2011.09.010     Document Type: Note
Times cited : (12)

References (37)
  • 1
    • 0003561541 scopus 로고
    • IOM National Academy Press Washington DC
    • IOM The future of public health 1988 National Academy Press Washington DC
    • (1988) The Future of Public Health
  • 3
    • 77949506710 scopus 로고    scopus 로고
    • The public health response to blood disorders
    • H.K. Atrash, and C.S. Parker The public health response to blood disorders Am J Prev Med 38 4S 2010 S451 S455
    • (2010) Am J Prev Med , vol.38 , Issue.4 S
    • Atrash, H.K.1    Parker, C.S.2
  • 5
    • 81355153360 scopus 로고    scopus 로고
    • Developing surveillance activities for deep vein thrombosis and pulmonary embolism
    • M.G. Beckman, S.D. Grosse, K.M. Kenney, A.M. Grant, and H.K. Atrash Developing surveillance activities for deep vein thrombosis and pulmonary embolism Am J Prev Med 41 6S4 2011 S428 S434
    • (2011) Am J Prev Med , vol.41 , Issue.6 S4
    • Beckman, M.G.1    Grosse, S.D.2    Kenney, K.M.3    Grant, A.M.4    Atrash, H.K.5
  • 7
    • 81355150248 scopus 로고    scopus 로고
    • Public health implications of sickle cell trait: A report of the CDC meeting
    • A.M. Grant, C.S. Parker, and L.B. Jordan Public health implications of sickle cell trait: a report of the CDC meeting Am J Prev Med 41 6S4 2011 S435 S439
    • (2011) Am J Prev Med , vol.41 , Issue.6 S4
    • Grant, A.M.1    Parker, C.S.2    Jordan, L.B.3
  • 9
    • 81355142674 scopus 로고    scopus 로고
    • Knowledge and therapeutic gaps: A public health problem in the rare coagulation disorders population
    • UDC Rare Bleeding and Clotting Disorders Working Group and the European Network Rare Bleeding Disorders Database
    • A.D. Shapiro, J.M. Soucie, F. Peyvandi, D.J. Aschman, D.M. DiMichelle UDC Rare Bleeding and Clotting Disorders Working Group and the European Network Rare Bleeding Disorders Database Knowledge and therapeutic gaps: a public health problem in the rare coagulation disorders population Am J Prev Med 41 6S4 2011 S324 S331
    • (2011) Am J Prev Med , vol.41 , Issue.6 S4
    • Shapiro, A.D.1    Soucie, J.M.2    Peyvandi, F.3    Aschman, D.J.4    Dimichelle, D.M.5
  • 10
    • 81355153332 scopus 로고    scopus 로고
    • Concerted global effort to combat sickle cell disease: The First Global Congress on Sickle Cell Disease in Accra, Ghana
    • I. Odame, R. Kulkarni, and K. Ohene-Frempong Concerted global effort to combat sickle cell disease: the First Global Congress on Sickle Cell Disease in Accra, Ghana Am J Prev Med 41 6S4 2011 S417 S421
    • (2011) Am J Prev Med , vol.41 , Issue.6 S4
    • Odame, I.1    Kulkarni, R.2    Ohene-Frempong, K.3
  • 11
    • 81355153361 scopus 로고    scopus 로고
    • First Conference of the Worldwide Initiative on Social Studies of Hemoglobinopathies: Sickle cell over the next 100 years
    • S.M. Dyson First Conference of the Worldwide Initiative on Social Studies of Hemoglobinopathies: sickle cell over the next 100 years Am J Prev Med 41 6S4 2011 S413 S416
    • (2011) Am J Prev Med , vol.41 , Issue.6 S4
    • Dyson, S.M.1
  • 15
    • 81355163490 scopus 로고    scopus 로고
    • Self-reported barriers to hemophilia care in people with factor VIII deficiency
    • Z.-Y. Zhou, B. Riske, and A.D. Forsberg Self-reported barriers to hemophilia care in people with factor VIII deficiency Am J Prev Med 41 6S4 2011 S346 S353
    • (2011) Am J Prev Med , vol.41 , Issue.6 S4
    • Zhou, Z.-Y.1    Riske, B.2    Forsberg, A.D.3
  • 16
    • 81355153392 scopus 로고    scopus 로고
    • Insurance, home therapy, and prophylaxis in U.S. youth with severe hemophilia
    • J.R. Baker, B. Riske, M. Voutsis, S. Cutter, and R. Presley Insurance, home therapy, and prophylaxis in U.S. youth with severe hemophilia Am J Prev Med 41 6S4 2011 S338 S345
    • (2011) Am J Prev Med , vol.41 , Issue.6 S4
    • Baker, J.R.1    Riske, B.2    Voutsis, M.3    Cutter, S.4    Presley, R.5
  • 17
    • 81355132467 scopus 로고    scopus 로고
    • Physical functioning in boys with hemophilia in the U.S.
    • P.E. Monahan, J.R. Baker, B. Riske, and J.M. Soucie Physical functioning in boys with hemophilia in the U.S. Am J Prev Med 41 6S4 2011 S360 S368
    • (2011) Am J Prev Med , vol.41 , Issue.6 S4
    • Monahan, P.E.1    Baker, J.R.2    Riske, B.3    Soucie, J.M.4
  • 18
    • 81355153391 scopus 로고    scopus 로고
    • Overweight and obesity in hemophilia: A systematic review of the literature
    • T.E. Wong, S. Majumdar, and E. Adams Overweight and obesity in hemophilia: a systematic review of the literature Am J Prev Med 41 6S4 2011 S369 S375
    • (2011) Am J Prev Med , vol.41 , Issue.6 S4
    • Wong, T.E.1    Majumdar, S.2    Adams, E.3
  • 19
    • 81355132516 scopus 로고    scopus 로고
    • Hemoglobinopathy newborn screening knowledge of pediatricians
    • K.M. McWalter, E.M. White, D.K. Hayes, and S.M. Au Hemoglobinopathy newborn screening knowledge of pediatricians Am J Prev Med 41 6S4 2011 S384 S389
    • (2011) Am J Prev Med , vol.41 , Issue.6 S4
    • McWalter, K.M.1    White, E.M.2    Hayes, D.K.3    Au, S.M.4
  • 20
    • 81355132495 scopus 로고    scopus 로고
    • Disability among individuals with sickle cell disease: Literature review from a public health perspective
    • M.E. Swanson, S.D. Grosse, and R. Kulkarni Disability among individuals with sickle cell disease: literature review from a public health perspective Am J Prev Med 41 6S4 2011 S390 S397
    • (2011) Am J Prev Med , vol.41 , Issue.6 S4
    • Swanson, M.E.1    Grosse, S.D.2    Kulkarni, R.3
  • 21
    • 77949471992 scopus 로고    scopus 로고
    • Surveillance for deep vein thrombosis and pulmonary embolism: Recommendations from a national workshop
    • G.E. Raskob, R. Silverstein, D.W. Bratzler, J.A. Heit, and R.H. White Surveillance for deep vein thrombosis and pulmonary embolism: recommendations from a national workshop Am J Prev Med 38 4S 2010 S502 S509
    • (2010) Am J Prev Med , vol.38 , Issue.4 S
    • Raskob, G.E.1    Silverstein, R.2    Bratzler, D.W.3    Heit, J.A.4    White, R.H.5
  • 23
    • 79751531393 scopus 로고    scopus 로고
    • Heart disease and stroke statistics2011 update: A report from the American Heart Association
    • V.L. Roger, A.S. Go, and D.M. Lloyd-Jones Heart disease and stroke statistics2011 update: a report from the American Heart Association Circulation 123 2011 e18 e209
    • (2011) Circulation , vol.123
    • Roger, V.L.1    Go, A.S.2    Lloyd-Jones, D.M.3
  • 27
    • 77953952024 scopus 로고    scopus 로고
    • The inherited diseases of hemoglobin are an emerging global health burden
    • D.J. Weatherall The inherited diseases of hemoglobin are an emerging global health burden Blood 115 2010 4331 4336
    • (2010) Blood , vol.115 , pp. 4331-4336
    • Weatherall, D.J.1
  • 28
    • 77949482609 scopus 로고    scopus 로고
    • Population estimates of sickle cell disease in the U.S.
    • K.L. Hassell Population estimates of sickle cell disease in the U.S. Am J Prev Med 38 4S 2010 S512 S521
    • (2010) Am J Prev Med , vol.38 , Issue.S
    • Hassell, K.L.1
  • 29
    • 27644457882 scopus 로고    scopus 로고
    • A model for a regional system of care to promote the health and well-being of people with rare chronic genetic disorders
    • DOI 10.2105/AJPH.2004.051318
    • J.R. Baker, S.O. Crudder, B. Riske, V. Bias, and A. Forsberg A model for a regional system of care to promote the health and well-being of people with rare chronic genetic disorders Am J Public Health 95 11 2005 1910 1916 (Pubitemid 41572360)
    • (2005) American Journal of Public Health , vol.95 , Issue.11 , pp. 1910-1916
    • Baker, J.R.1    Crudder, S.O.2    Riske, B.3    Bias, V.4    Forsberg, A.5
  • 30
    • 0031785486 scopus 로고    scopus 로고
    • Occurrence of hemophilia in the United States
    • DOI 10.1002/(SICI)1096-8652(199812)59:4<288::AID-AJH4>3.0.CO;2-I
    • J.M. Soucie, B. Evatt, D. Jackson The Hemophilia Surveillance System Project Investigators Occurrence of hemophilia in the United States Am J Hematol 59 4 1998 288 294 (Pubitemid 28543617)
    • (1998) American Journal of Hematology , vol.59 , Issue.4 , pp. 288-294
    • Soucie, J.M.1    Evatt, B.2    Jackson, D.3
  • 31
    • 14644440466 scopus 로고    scopus 로고
    • Estimating rare disease prevalence from administrative hospitalization databases [1]
    • DOI 10.1097/01.ede.0000153643.88019.92
    • M.M. Ward Estimating rare disease prevalence from administrative hospitalization databases Epidemiology 16 2 2005 270 271 (Pubitemid 40314423)
    • (2005) Epidemiology , vol.16 , Issue.2 , pp. 270-271
    • Ward, M.M.1
  • 32
    • 33846672378 scopus 로고    scopus 로고
    • Newborn screening coupled with comprehensive follow-up reduced early mortality of sickle cell disease in Connecticut
    • T. Frempong Newborn screening coupled with comprehensive follow-up reduced early mortality of sickle cell disease in Connecticut Conn Med 71 2007 9 12 (Pubitemid 46190764)
    • (2007) Connecticut Medicine , vol.71 , Issue.1 , pp. 9-12
    • Frempong, T.1    Pearson, H.A.2
  • 34
    • 62649144053 scopus 로고    scopus 로고
    • Trends in pediatric sickle cell disease-related mortality in the United States, 19832002
    • E. Yanni, S.D. Grosse, Q. Yang, and R.S. Olney Trends in pediatric sickle cell disease-related mortality in the United States, 19832002 J Pediatr 154 2009 541 545
    • (2009) J Pediatr , vol.154 , pp. 541-545
    • Yanni, E.1    Grosse, S.D.2    Yang, Q.3    Olney, R.S.4
  • 35
    • 77951712618 scopus 로고    scopus 로고
    • Improved survival of children and adolescents with sickle cell disease
    • C.T. Quinn, Z.R. Rogers, T.L. McCavit, and G.R. Buchanan Improved survival of children and adolescents with sickle cell disease Blood 115 2010 3447 3452
    • (2010) Blood , vol.115 , pp. 3447-3452
    • Quinn, C.T.1    Rogers, Z.R.2    McCavit, T.L.3    Buchanan, G.R.4
  • 36
    • 62449272809 scopus 로고    scopus 로고
    • Newborn screening for hemoglobinopathies in California
    • J. Michlitsch, M. Azimi, and C. Hoppe Newborn screening for hemoglobinopathies in California Pediatr Blood Cancer 52 4 2009 486 490
    • (2009) Pediatr Blood Cancer , vol.52 , Issue.4 , pp. 486-490
    • Michlitsch, J.1    Azimi, M.2    Hoppe, C.3


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