Self-reported barriers to hemophilia care in people with factor VIII deficiency

American Journal of Preventive Medicine

Volumn 41, Issue 6 SUPPL.4, 2011, Pages

  Zhou, Zhengyi ^a   Riske, Brenda ^e   Forsberg, Ann D ^f   Ullman, Megan ^g   Baker, Judith R ^b   Koerper, Marion A ^c   Curtis, Randall G ^d   Lou, Mimi ^a   Joanne, Wu ^a   Johnson, Kathleen A ^a  

^a UNIVERSITY OF SOUTHERN CALIFORNIA   (United States)

^b UNIVERSITY OF CALIFORNIA   (United States)

^c UNIVERSITY OF CALIFORNIA   (United States)

^d Factor VIII Computing   (United States)

^e UNIVERSITY OF COLORADO   (United States)

^f UMASS MEMORIAL MEDICAL CENTER   (United States)

^g UNIVERSITY OF TEXAS MEDICAL SCHOOL   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CHILD; CLINICAL FEATURE; DEMOGRAPHY; DISEASE SEVERITY; HEALTH CARE; HEALTH SERVICE; HEMOPHILIA A; HEPATITIS; HOSPITAL; HUMAN; INCOME; INSURANCE; LIVER DISEASE; MAJOR CLINICAL STUDY; MALE; PATIENT CARE; PRESCHOOL CHILD; SCHOOL CHILD;

ADOLESCENT; ADULT; AMBULATORY CARE FACILITIES; CHILD; HEALTH SERVICES ACCESSIBILITY; HEMOPHILIA A; HUMANS; INTERVIEWS AS TOPIC; MALE; SELF REPORT; UNITED STATES; YOUNG ADULT;

EID: 81355163490     PISSN: 07493797     EISSN: 18732607     Source Type: Journal    
DOI: 10.1016/j.amepre.2011.09.003     Document Type: Article

References (16)

1. E.H. Wagner, B.T. Austin, C. Davis, M. Hindmarsh, J. Schaefer, and A. Bonomi Improving chronic illness care: translating evidence into action Health Aff (Millwood) 20 6 2001 64 78 (Pubitemid 33707442)
2. S.D. Grosse, M.S. Schechter, R. Kulkarni, M.A. Lloyd-Puryear, B. Strickland, and E. Trevathan Models of comprehensive multidisciplinary care for individuals in the United States with genetic disorders Pediatrics 123 1 2009 407 412
3. W.K. Hoots Comprehensive care for hemophilia and related inherited bleeding disorders: why it matters Curr Hematol Rep 2 5 2003 395 401
4. J.M. Soucie, B. Evatt, and D. Jackson Occurrence of hemophilia in the United States The Hemophilia Surveillance System Project Investigators Am J Hematol 59 4 1998 288 294
5. The Centers for Disease Control and Prevention: Hemophilia Data and Statistics wwwcdc.gov/ncbddd/hemophilia/data.html
6. J.R. Baker, S.O. Crudder, B. Riske, V. Bias, and A. Forsberg A model for a regional system of care to promote the health and well-being of people with rare chronic genetic disorders Am J Public Health 95 11 2005 1910 1916 (Pubitemid 41572360)
7. J.M. Soucie, R. Nuss, B. Evatt The Hemophilia Surveillance System Project Investigators Mortality among males with hemophilia: relations with source of medical care Blood 96 2 2000 437 442 (Pubitemid 30463360)
8. B.L. Evatt The natural evolution of haemophilia care: developing and sustaining comprehensive care globally Haemophilia 12 S3 2006 13 21
9. P.H. Levine, B.A. McVerry, A.E. Segelman, C.M. Cranford, and S. Zimbler Comprehensive health care clinic for hemophiliacs Arch Intern Med 136 7 1976 792 794
10. P.S. Smith, and P.H. Levine The benefits of comprehensive care of hemophilia: a five-year study of outcomes Am J Public Health 74 6 1984 616 617 (Pubitemid 14146684)
11. P.S. Smith, N.C. Keyes, and E.N. Forman Socioeconomic evaluation of a state-funded comprehensive hemophilia-care program N Engl J Med 306 10 1982 575 579 (Pubitemid 12180060)
12. J.M. Soucie, J.T. Symons, B. Evatt, D. Brettler, H. Huszti, and J. Linden Home-based factor infusion therapy and hospitalization for bleeding complications among males with haemophilia Haemophilia 7 2 2001 198 206 (Pubitemid 32243803)
13. Z.Y. Zhou, J. Wu, and J. Baker Haemophilia Utilization Group StudyPart Va (HUGS Va): design, methods and baseline data Haemophilia 17 5 2011 729 736
14. J.S. Weissman, A.M. Zaslavsky, R.E. Wolf, and J.Z. Ayanian State Medicaid coverage and access to care for low-income adults J Health Care Poor Underserved 19 1 2008 307 319
15. Kaiser Commission on Medicaid and the Uninsured Health insurance coverage in America: 2006 data update Table 23 Health Insurance Coverage of Low-Income Nonelderly Adults by State, 20052006 www.kff.org/uninsured/upload/2006-DATA%20- UPDATE.pdf
16. K.A. Johnson, and Z. Zhou Costs of care in hemophilia and possible implications of health care reform Hematology 2011 In press