Occurrence of hemophilia in the United States

American Journal of Hematology

Volumn 59, Issue 4, 1998, Pages 288-294

  Soucie, J Michael ^a   Evatt, Bruce ^a   Jackson, Debra ^a  

^a NATL CENTER FOR INFECTIOUS DISEASES   (United States)

Author keywords

Bleeding disorder; Epidemiology; Haemophilia; Hematology; Hemophilia; Incidence; Prevalence; Public health; Surveillance

Indexed keywords

ADOLESCENT; ADULT; AGED; ARTICLE; CHILD; DISEASE SEVERITY; ETHNIC GROUP; HEMOPHILIA; HEMOPHILIA A; HEMOPHILIA B; HUMAN; MAJOR CLINICAL STUDY; PREVALENCE; PRIORITY JOURNAL; UNITED STATES;

ADULT; CONTINENTAL POPULATION GROUPS; ETHNIC GROUPS; HEMOPHILIA A; HUMANS; MALE; POPULATION SURVEILLANCE; PREVALENCE; RETROSPECTIVE STUDIES; UNITED STATES;

EID: 0031785486     PISSN: 03618609     EISSN: None     Source Type: Journal    
DOI: 10.1002/(SICI)1096-8652(199812)59:4<288::AID-AJH4>3.0.CO;2-I     Document Type: Article

References (24)

1. Merritt AD, Conneally PM. Hemophilia: Genetics and counseling. In Hilgartner MW, ed. Hemophilia in Children. Littleton, MA: Publishing Sciences Group, Inc., 1976.
2. Rosendaal FR, Briet E: The increasing prevalence of haemophilia. Thromb Haemostasis 63:145, 1990.
3. PL 9463: The Public Health Service Act establishing the hemophilia diagnostic and treatment center program. No. 1131 of Public Law 9463. Washington, DC: Government Printing Office, 1975.
4. National Center for Infectious Diseases, Hematologic Diseases Branch: 1996 Hemophilia minimal data set for risk reduction. Atlanta: Centers for Disease Control and Prevention, 1997.
5. Rothman KJ: Modern Epidemiology. Boston: Little, Brown, and Company, 1986, p 41.
6. Byerly ER, Deardorff K: National and state population estimates: 1990 to 1994. U.S. Bureau of the Census. Current population reports, P25-1127. Washington, DC: U.S. Government Printing Office, 1995.
7. National Center for Health Statistics: Vital statistics of the United States, 1992, vol I, natality. Washington, DC: Public Health Service, 1995.
8. Freeman J, Hutchison GB: Prevalence, incidence and duration. Am J Epidemiol 112:707, 1980.
9. U.S. Department of Health and Human Services: Vital statistics mortality data, multiple cause detail, 1979-1995. Public use data tape contents and documentation package. Hyattsville, MD: Centers for Disease Control and Prevention, National Center for Health Statistics, 1997.
10. Larsson SA, Nilsson IM, Blomback M: Current status of Swedish hemophiliacs. I. A demographic survey. Acta Med Scand 212:195, 1982.
11. Rosendaal FR, Varekamp I, Smit C, Brocker-Vriends AHJT, van Dijck H, Vandenbroucke JP, Hermans J, Suurmeijer TPBM, Briet E: Mortality and causes of death in Dutch haemophiliacs, 1973-86. Br J Haematol 71:71, 1989.
12. Walker I: Survey of the Canadian hemophilia population. Can J Public Health 82:127, 1991.
13. Rizza CR, Spooner RJD: Treatment of haemophilia and related disorders in Britain and Northern Ireland during 1976-80: Report on behalf of the directors of haemophilia centres in the United Kingdom. Br Med J 286:929, 1983.
14. Koumbarelis E, Rosendaal FR, Gialeraki A, Karafoulidou A, Noteboom WMP, Loizou C, Panayotopoulou C, Markakis C, Mandalaki T: Epidemiology of haemophilia in Greece: An overview. Thromb Haemostasis 72:808, 1994.
15. Ghirardini A, Schinaia N, Chiarotti F, De Biasi R, Rodeghiero F, Binkin N, and the GICC: Epidemiology of hemophilia and of HIV infection in Italy. J Clin Epidemiol 47:1297, 1994.
16. Eyster ME, Schaefer JH, Ragni MV, Gorenc TJ, Shapiro S, Cutter S, Kajani MK, Abrams J, Barron LE, Odenwelder A, Lusch C, Brennan M, DeGreen HP, Phillips L, Cohen AR, Butler RB: Changing causes of death in Pennsylvania's hemophiliacs 1976-1991: Impact of liver disease and acquired immunodeficiency syndrome. Blood 79:2494, 1992.
17. Triemstra M, Rosendaal FR, Smit C, Van der Ploeg HM, Briet E: Mortality in patients with hemophilia: Changes in a Dutch population from 1986 to 1992 and 1973 to 1986. Ann Intern Med 123:823, 1995.
18. Chorba TL, Holman RC, Strine TW, Clarke MJ, Evatt BL: Changes in longevity and causes of death among persons with hemophilia A. Am J Hematol 45:112, 1994.
19. Chan V, Chan TK, Liu VWS, Wong ACK: Restriction fragment length polymorphisms associated with factor VIII:C gene in Chinese. Hum Genet 79:128, 1988.
20. Smith PS, Levine PH: The benefits of comprehensive care for hemophilia: A five-year study of outcomes. Am J Public Health 74:616, 1984.
21. Association of Hemophilia Clinic Directors of Canada: Hemophilia and von Willebrand's disease: 1. Diagnosis, comprehensive care and assessment (Clinical Practice Guidelines). Can Med Assoc J 153:19, 1995.
22. Lewis JH, Didisheim P, Ferguson JH, Li CC: Genetic considerations in familial hemorrhagic disease. I. The sex-linked recessive disorders, hemophilia and PTC deficiency. Am J Hum Genet 15:53, 1963.
23. Stevenson AC, Kerr CB: On the distributions of frequencies of mutation to genes determining harmful traits in man. Mutat Res 4:339, 1967.
24. Barrai I, Cann HM, Cavalli-Sforza LL, de Nicola P: The effect of parental age on rates of mutation for hemophilia and evidence for differing mutation rates for hemophilia A and B. Am J Hum Genet 20:175, 1968.