Estimating rare disease prevalence from administrative hospitalization databases [1]

Epidemiology

Volumn 16, Issue 2, 2005, Pages 270-271

  Ward, Michael M ^a  

^a NATIONAL INSTITUTE OF ARTHRITIS AND MUSCULOSKELETAL AND SKIN DISEASES   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

COMPARATIVE STUDY; CROHN DISEASE; CYSTIC FIBROSIS; DATA BASE; HEMOPHILIA A; HOSPITALIZATION; HUMAN; LETTER; MULTIPLE SCLEROSIS; PREVALENCE; PRIORITY JOURNAL; SCLERODERMA; UNITED STATES;

CALIFORNIA; DATABASES, FACTUAL; HOSPITALIZATION; HUMANS; PREVALENCE; RARE DISEASES; REPRODUCIBILITY OF RESULTS; SENSITIVITY AND SPECIFICITY;

EID: 14644440466     PISSN: 10443983     EISSN: None     Source Type: Journal    
DOI: 10.1097/01.ede.0000153643.88019.92     Document Type: Letter

References (14)

1. Soucie JM, Evatt B, Jackson D, Hemophilia Surveillance System Project Investigators. Occurrence of hemophilia in the United States. Am J Hematol. 1998;59:288-294.
2. Nelson LM, Hamman RF, Thompson DS, et al. Higher than expected prevalence of multiple sclerosis in Northern Colorado: dependence on methodologic issues. Neuroepidemiology. 1986;5:17-28.
3. Hader WJ, Elliot M, Ebers GC. Epidemiology of multiple sclerosis in London and Middlesex County, Ontario, Canada. Neurology. 1988;38:617-621.
4. Sweeny VP, Sadovnick AD, Brandejs V. Prevalence of multiple sclerosis in British Columbia. Can J Neurol Sci. 1986;13:47-51.
5. Mayr WT, Pittock SJ, McClelland RL, et al. Incidence and prevalence of multiple sclerosis in Olmsted County, Minnesota, 1985-2000. Neurology. 2003;61:1373-1377.
6. Whetten-Goldstein K, Sloan FA, Goldstein LB, et al. A comprehensive assessment of the cost of multiple sclerosis in the United States. Multiple Sclerosis. 1998;4:419-425.
7. Loftus EV Jr., Silverstein MD, Sandborn WJ, et al. Crohn's disease in Olmsted County, Minnesota, 1940-1933: Incidence, prevalence, and survival. Gastroenterology. 1998;114:1161-1168.
8. Loftus EV Jr. The epidemiology of Crohn's disease (letter). Gastroenterology. 1999;116:1504.
9. Silverstein MD, Loftus EV, Sandborn WJ, et al. Clinical course and costs of care for Crohn's disease: Markov model analysis of a population-based cohort. Gastroenterology. 1999;117:49-57.
10. Cystic Fibrosis Foundation. Patient Registry 2001 Annual Report. Bethesda, MD: Cystic Fibrosis Foundation, 2002.
11. FitzSimmons SC. The changing epidemiology of cystic fibrosis. J Pediatr. 1993;122:1-9.
12. Mayes MD, Lacey JV Jr., Beebe-Dimmer J, et al. Prevalence, incidence, survival, and disease characteristics of systemic sclerosis in a large U.S. population. Arthritis Rheum. 2003;48:2246-2255.
13. Steen VD, Medsger TA Jr. Severe organ involvement in systemic sclerosis with diffuse scleroderma. Arthritis Rheum. 2000;43:2437-2444.
14. State of California Department of Finance. Race/ethnic population with age and sex detail, 1970-2040. Sacramento, CA, December 1998. URL: www.dof.ca.gov/HTML/DEMOGRAP/race.htm. Accessed on 9/18/2003.