Disability among individuals with sickle cell disease: Literature review from a public health perspective

American Journal of Preventive Medicine

Volumn 41, Issue 6 SUPPL.4, 2011, Pages

  Swanson, Mark E ^a   Grosse, Scott D ^a   Kulkarni, Roshni ^b  

^a NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL DISABILITIES   (United States)

^b MICHIGAN STATE UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

BEHAVIOR DISORDER; COGNITION; COMMUNICATION DISORDER; DISABILITY; DISEASE ASSOCIATION; EMOTIONAL DISORDER; HEARING; HUMAN; LANGUAGE DISABILITY; LEARNING DISORDER; PAIN; REVIEW; SENSORY DYSFUNCTION; SICKLE CELL ANEMIA; SOCIAL INTERACTION; VISION; WALKING DIFFICULTY;

EID: 81355132495     PISSN: 07493797     EISSN: 18732607     Source Type: Journal    
DOI: 10.1016/j.amepre.2011.09.006     Document Type: Article

References (60)

1. G.L. Krahn, M. Putnam, C.E. Drum, and L. Powers Disabilities and health J Disabil Policy Stud 17 2006 18 27
2. World Health Organization Classifications: International Classification of Functioning, Disability and Health (ICF) www.who.int/classifications/icf/en 2011
3. R. Simeonson, M. Leonardi, and E. Bjorck-Akesson ICF-CY: a universal tool for practice policy and research Meeting of WHO Collaborating Centres for the Family of International Classifications, Tunis, Tunisia October 2006 WHO Geneva, Switzerland www.rivm.nl/who-fic/Annuals/Tunis%20P107%20-%20ICF- CY%20a%20universal%20tool%20for%20practice%20policy%20and%20research.pdf
4. O.S. Platt, D.J. Brambilla, and W.F. Rosse Mortality in sickle cell disease Life expectancy and risk factors for early death N Engl J Med 330 1994 1639 1644
5. C.T. Quinn, Z.R. Rogers, T.L. McCavit, and G.R. Buchanan Improved survival of children and adolescents with sickle cell disease Blood 115 2010 3447 3452
6. H. Abuateya, K. Atkin, L.A. Culley, S.E. Dyson, and S.M. Dyson Young people with sickle cell disorder and education: a knowledge review Divers Health Soc Care 5 2008 123 135
7. S.M. Dyson, K. Atkin, L.A. Culley, and S.E. Dyson The educational experiences of young people with sickle cell disorder: a commentary on the existing literature Disabil Soc 22 2007 581 594
8. S.M. Dyson, H. Abuateya, K. Atkin, L. Culley, S.E. Dyson, and D. Rowley Reported school experiences of young people living with sickle cell disorder in England Br Educ Res J 36 1 2010 125 142
9. A.K. Brown, L.A. Sleeper, and S.T. Miller Reference values and hematologic changes from birth to five years in patients with sickle cell disease Arch Pediatr Adolesc Med 148 1994 796 804 (Pubitemid 24243769)
10. W.R. Smith, L.T. Penberthy, and V.E. Bovbjerg Daily assessment of pain in adults with sickle cell disease Ann Intern Med 148 2008 94 101 (Pubitemid 351651552)
11. K.M. Gil, J.W. Carson, L.S. Porter, C. Scipio, S.M. Bediako, and E. Orringer Daily mood and stress predict pain, health care use, and work activity in African American adults with sickle-cell disease Health Psychol 23 2004 267 274 (Pubitemid 38542358)
12. P. Fuggle, P.A. Shand, L.J. Gill, and S.C. Davies Pain, quality of life, and coping in sickle cell disease Arch Dis Child 75 1996 199 203 (Pubitemid 26313263)
13. A.M. Brandow, D.C. Brousseau, N.M. Pajewski, and J.A. Panepinto Vaso-occlusive painful events in sickle cell disease: impact on child well-being Pediatr Blood Cancer 54 2010 92 97
14. L.E. Taylor, N.A. Stotts, J. Humphreys, M.J. Treadwell, and C. Miaskowski A review of the literature on the multiple dimensions of chronic pain in adults with sickle cell disease J Pain Symptom Manage 40 2010 416 435
15. D.K. McClish, L.T. Penberthy, and V.E. Bovbjerg Health related quality of life in sickle cell patients: the PiSCES project Health Qual Life Outcomes 3 2005 50
16. J.L. Levenson, D.K. McClish, and B.A. Dahman Depression and anxiety in adults with sickle cell disease: the PiSCES project Psychosom Med 70 2008 192 196 (Pubitemid 351252967)
17. S.K. Ballas, F.B. Baron, and M.W. Waclawiw Hydroxyurea and sickle cell anemia: effect on quality of life Health Qual Life Outcomes 4 2006 59
18. K.A. Anie, A. Steptoe, and D.H. Bevan Sickle cell disease: pain, coping and quality of life in a study of adults in the UK Br J Health Psychol 7 2002 331 344 (Pubitemid 34975967)
19. C. Dampier, P. LeBeau, and S. Rhee Health-related quality of life in adults with sickle cell disease (SCD): a report from the comprehensive sickle cell centers clinical trial consortium Am J Hematol 86 2011 203 205
20. S.K. Ballas, R.L. Bauserman, and W.F. McCarthy The impact of hydroxyurea on career and employment of patients with sickle cell anemia J Natl Med Assoc 102 2010 993 999
21. S.M. Downes, I.R. Hambleton, E.L. Chuang, N. Lois, G.R. Serjeant, and A.C. Bird Incidence and natural history of proliferative sickle cell retinopathy: observations from a cohort study Ophthalmology 112 2005 1869 1875 (Pubitemid 41551912)
22. A. Ashley-Koch, C.C. Murphy, M.J. Khoury, and C.A. Boyle Contribution of sickle cell disease to the occurrence of developmental disabilities: a population-based study Genet Med 3 2001 181 186
23. S.L. Boulet, E.A. Yanni, M.S. Creary, and R.S. Olney Health status and healthcare use in a national sample of children with sickle cell disease Am J Prevent Med 38 4S 2010 S528 S535
24. O. Piltcher, L. Cigana, J. Friedriech, F.A. Ribeiro, and S.S. da Costa Sensorineural hearing loss among sickle cell disease patients from southern Brazil Am J Otolaryngol 21 2000 75 79 (Pubitemid 30158310)
25. S.O. Ajulo, A.I. Osiname, and H.M. Myatt Sensorineural hearing loss in sickle cell anaemiaa United Kingdom study J Laryngol Otol 107 1993 790 794 (Pubitemid 23289730)
26. J.B. Porter, and F.T. Shah Iron overload in thalassemia and related conditions: therapeutic goals and assessment of response to chelation therapies Hematol Oncol Clin North Am 24 2010 1109 1130
27. K. Ohene-Frempong, S.J. Weiner, and L.A. Sleeper Cerebrovascular accidents in sickle cell disease: rates and risk factors Blood 91 1998 288 294 (Pubitemid 28018756)
28. F.D. Armstrong, R.J. Thompson Jr. , and W. Wang Cognitive functioning and brain magnetic resonance imaging in children with sickle cell disease Pediatrics 97 1996 864 870 (Pubitemid 26170948)
29. J.I. Gold, C.B. Johnson, M.J. Treadwell, N. Hans, and E. Vichinsky Detection and assessment of stroke in patients with sickle cell disease: neuropsychological functioning and magnetic resonance imaging Pediatr Hematol Oncol 25 2008 409 421 (Pubitemid 351874093)
30. M.R. DeBaun, J. Schatz, and M.J. Siegel Cognitive screening examinations for silent cerebral infarcts in sickle cell disease Neurology 50 1998 1678 1682 (Pubitemid 28283234)
31. J. Schatz, R.T. Brown, J.M. Pascual, L. Hsu, and M.R. DeBaun Poor school and cognitive functioning with silent cerebral infarcts and sickle cell disease Neurology 56 2001 1109 1111 (Pubitemid 32336325)
32. C.T. Hijmans, M.A. Grootenhuis, and J. Oosterlaan Neurocognitive deficits in children with sickle cell disease are associated with the severity of anemia Pediatr Blood Cancer 57 2011 297 302
33. R.G. Steen, C. Fineberg-Buchner, and G. Hankins Cognitive deficits in children with sickle cell disease J Child Neurol 20 2005 102 107 (Pubitemid 40484847)
34. W. Wang, L. Enos, and D. Gallagher Neuropsychologic performance in school-aged children with sickle cell disease: a report from the Cooperative Study of Sickle Cell Disease J Pediatr 139 2001 391 397 (Pubitemid 32889516)
35. F. Bernaudin, S. Verlhac, and F. Fréard Multicenter prospective study of children with sickle cell disease: radiographic and psychometric correlation J Child Neurol 15 2000 333 343 (Pubitemid 30341365)
36. M.C. Kral, R.T. Brown, and M. Connelly Radiographic predictors of neurocognitive functioning in pediatric sickle cell disease J Child Neurol 21 2006 37 44 (Pubitemid 43778763)
37. E.S. Puffer, J.C. Schatz, and C.W. Roberts Relationships between somatic growth and cognitive functioning in young children with sickle cell disease J Pediatr Psychol 35 2010 892 904
38. R.T. Brown, I. Buchanan, K. Doepke, and J.R. Eckman Cognitive and academic functioning in children with sickle cell disease J Clin Child Psychol 22 1993 207 218
39. J. Schatz, R.L. Finke, J.M. Kellett, and J.H. Kramer Cognitive functioning in children with sickle cell disease: a meta-analysis J Pediatr Psychol 27 2002 739 748 (Pubitemid 35387238)
40. J. Schatz, E.S. Puffer, C. Sanchez, M. Stancil, and C.W. Roberts Language processing deficits in sickle cell disease in young school-age children Dev Neuropsychol 34 2009 122 136
41. E.P. Vichinsky, L.D. Neumayr, and J.I. Gold Neuropsychological dysfunction and neuroimaging abnormalities in neurologically intact adults with sickle cell anemia JAMA 303 2010 1823 1831
42. A. Almeida, and I. Roberts Bone involvement in sickle cell disease Br J Haematol 129 2005 482 490 (Pubitemid 40769897)
43. M.R. Brinker, K.A. Thomas, and S.J. Meyers Bone mineral density of the lumbar spine and proximal femur is decreased in children with sickle cell anemia Am J Orthop 27 1998 43 49
44. E.M. Barden, D.A. Kawchak, K. Ohene-Frempong, V.A. Stallings, and B.S. Zemel Body composition in children with sickle cell disease Am J Clin Nutr 76 2002 218 225 (Pubitemid 34686570)
45. J. Schatz, and C.B. McClellan Sickle cell disease as a neurodevelopmental disorder Ment Retard Dev Disabil Res Rev 12 2006 200 207 (Pubitemid 44646329)
46. J.I. Gold, N.E. Mahrer, M. Treadwell, L. Weissman, and E. Vichinsky Psychosocial and behavioral outcomes in children with sickle cell disease and their healthy siblings J Behav Med 31 2008 506 516
47. R.S. Kell, W. Kliewer, M.T. Erickson, and K. Ohene-Frempong Psychological adjustment of adolescents with sickle cell disease: relations with demographic, medical, and family competence variables J Pediatr Psychol 23 1998 301 312 (Pubitemid 28432422)
48. T.D. Benton, J.A. Ifeagwu, and K. Smith-Whitley Anxiety and depression in children and adolescents with sickle cell disease Curr Psychiatry Rep 9 2 2007 114 121 (Pubitemid 46579149)
49. C.N. Roy Anemia in frailty Clin Geriatr Med 27 2011 67 78
50. R.I. Liem, M.A. Nevin, A. Prestridge, L.T. Young, and A.A. Thompson Functional capacity in children and young adults with sickle cell disease undergoing evaluation for cardiopulmonary disease Am J Hematol 84 2009 645 649
51. A.L. Nettles Scholastic performance of children with sickle cell disease J Health Soc Policy 5 1994 123 140 (Pubitemid 24363192)
52. S. Day, and E. Chismark The cognitive and academic impact of sickle cell disease J Sch Nurs 22 2006 330 335
53. J. Schatz Brief report: academic attainment in children with sickle cell disease J Pediatr Psychol 29 2004 627 633 (Pubitemid 39435329)
54. K. Koontz, A.D. Short, K. Kalinyak, and R.B. Noll A randomized, controlled pilot trial of a school intervention for children with sickle cell anemia J Pediatr Psychol 29 2004 7 17 (Pubitemid 38197538)
55. D.H. Barrett, I.E. Wisotzek, and G.G. Abel Assessment of psychosocial functioning of patients with sickle cell disease South Med J 81 1988 745 750
56. I.M. Franklin, and K. Atkin Employment of persons with sickle-cell disease and sickle-cell trait J Soc Occup Med 36 1986 76 79 (Pubitemid 16010000)
57. M.R. Abrams, G. Phillips Jr. , and E. Whitworth Adaptation and coping: a look at a sickle cell patient population over age 30an integral phase of the life long developmental process J Health Soc Policy 5 1994 141 160 (Pubitemid 24363193)
58. M.O. Harrison, C.L. Edwards, H.G. Koenig, H.B. Bosworth, L. DeCastro, and M. Wood Religiosity/spirituality and pain in patients with sickle cell disease J Nerv Ment Dis 193 2005 250 257
59. V.J. Thomas, and L.M. Taylor The psychosocial experience of people with sickle cell disease and its impact on quality of life: qualitative findings from focus groups Br J Health Psychol 7 2002 345 363 (Pubitemid 34975968)
60. M.C. Hocking, and J.E. Lochman Applying the transactional stress and coping model to sickle cell disorder and insulin-dependent diabetes mellitus: identifying psychosocial variables related to adjustment and intervention Clin Child Fam Psychol Rev 8 2005 221 246 (Pubitemid 44289419)