Sense of coherence as a predictor of quality of life in adolescents with congenital heart defects: A register-based 1-year follow-up study

Journal of Developmental and Behavioral Pediatrics

Volumn 32, Issue 4, 2011, Pages 316-327

  Neuner, Bruno ^a   Busch, Markus A ^b   Singer, Susanne ^c   Moons, Philip ^d   Wellmann, Jürgen ^a   Bauer, Ulrike ^e   Nowak Göttl, Ulrike ^a   Hense, Hans Werner ^a  

^a UNIVERSITY OF MÜNSTER   (Germany)

^b ROBERT KOCH INSTITUTE   (Germany)

^c UNIVERSITY OF LEIPZIG   (Germany)

^d UNIVERSITY OF LEUVEN   (Belgium)

^e DEUTSCHES HERZZENTRUM BERLIN   (Germany)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; CONGENITAL HEART MALFORMATION; FEMALE; FOLLOW UP; HUMAN; MALE; PHYSIOLOGY; PSYCHOLOGY; QUALITY OF LIFE; REGISTER; SENSE OF COHERENCE;

ADOLESCENT; FEMALE; FOLLOW-UP STUDIES; HEART DEFECTS, CONGENITAL; HUMANS; MALE; QUALITY OF LIFE; REGISTRIES; SENSE OF COHERENCE;

EID: 79959854865     PISSN: 0196206X     EISSN: None     Source Type: Journal    
DOI: 10.1097/DBP.0b013e31821102ee     Document Type: Article

References (60)

1. Antonovsky A. Health, Stress, and Coping. San Francisco: 175 Jossey-Bass; 1979.
2. Antonovsky A. Unraveling the Mystery of Health. San Francisco: 175 Jossey-Bass; 1987.
3. Lindstrom B, Eriksson M. Salutogenesis. J Epidemiol Community Health. 2005;59:440-442.
4. Eriksson M, Lindstrom B. Antonovsky's sense of coherence scale and the relation with health: a systematic review. J Epidemiol Community Health. 2006;60:376-381.
5. Kuuppelomaki M, Utriainen P. A 3 year follow-up study of health care students' sense of coherence and related smoking, drinking and physical exercise factors. Int J Nurs Stud. 2003;40:383-388. (Pubitemid 36875826)
6. Lindmark U, Stegmayr B, Nilsson B, Lindahl B, Johansson I. Food selection associated with sense of coherence in adults. Nutr J. 2005;4:9.
7. Neuner B, Miller P, Maulhardt A, et al. Hazardous alcohol consumption and sense of coherence in emergency department patients with minor trauma. Drug Alcohol Depend. 2006;82:143-150.
8. Smith KW, Avis NE, Assmann SF. Distinguishing between quality of life and health status in quality of life research: a metaanalysis. Qual Life Res. 1999;8:447-459. (Pubitemid 29379029)
9. Eriksson M, Lindstrom B. Antonovsky's sense of coherence scale and its relation with quality of life: a systematic review. J Epidemiol Community Health. 2007;61:938-944. (Pubitemid 350032589)
10. Hasson D, Arnetz BB, Theorell T, Anderberg UM. Predictors of self-rated health: a 12-month prospective study of IT and media workers. Popul Health Metr. 2006;4:8.
11. Nasermoaddeli A, Sekine M, Hamanishi S, Kagamimori S. Associations between sense of coherence and psychological work characteristics with changes in quality of life in Japanese civil servants: a 1-year follow-up study. Ind Health. 2003;41:236-241. (Pubitemid 36934951)
12. Norekval TM, Fridlund B, Moons P, et al. Sense of coherence - a determinant of quality of life over time in older female acute myocardial infarction survivors. J Clin Nurs. 2010;19:820-831.
13. Skarsater I, Rayens MK, Peden A, et al. Sense of coherence and recovery from major depression: a 4-year follow-up. Arch Psychiatr Nurs. 2009;23:119-127.
14. Honkinen PL, Suominen SB, Valimaa RS, Helenius HY, Rautava PT. Factors associated with perceived health among 12-year-old school children. Relevance of physical exercise and sense of coherence. Scand J Public Health. 2005;33:35-41. (Pubitemid 40287621)
15. Forinder U, Lof C, Winiarski J. Quality of life and health in children following allogeneic SCT. Bone Marrow Transplant. 2005;36:171-176. (Pubitemid 41030634)
16. Moons P, Norekval TM. Is sense of coherence a pathway for improving the quality of life of patients who grow up with chronic diseases? A hypothesis. Eur J Cardiovasc Nurs. 2006;5:16-20. (Pubitemid 43212977)
17. Berkes A, Varni JW, Pataki I, Kardos L, Kemeny C, Mogyorosy G. Measuring health-related quality of life in Hungarian children attending a cardiology clinic with the Pediatric Quality of Life Inventory. Eur J Pediatr. 2010;169:333-347.
18. Brosig CL, Mussatto KA, Kuhn EM, Tweddell JS. Psychosocial outcomes for preschool children and families after surgery for complex congenital heart disease. Pediatr Cardiol. 2007;28:255-262. (Pubitemid 46976646)
19. Favreau A, Legendre A, Bergoend E, et al. [Quality of life of patients with total cavopulmonary anastomosis]. Arch Mal Coeur Vaiss. 2006;99:463-469.
20. Grootenhuis MA, Koopman HM, Verrips EG, Vogels AG, Last BF. Health-related quality of life problems of children aged 8-11 years with a chronic disease. Dev Neurorehabil. 2007;10:27-33. (Pubitemid 47555467)
21. Landolt MA, Valsangiacomo Buechel ER, Latal B. Health-related quality of life in children and adolescents after open-heart surgery. J Pediatr. 2008;152:349-355.
22. Latal B, Helfricht S, Fischer JE, Bauersfeld U, Landolt MA. Psychological adjustment and quality of life in children and adolescents following open-heart surgery for congenital heart disease: a systematic review. BMC Pediatr. 2009;9:6.
23. Macran S, Birks Y, Parsons J, et al. The development of a new measure of quality of life for children with congenital cardiac disease. Cardiol Young. 2006;16:165-172.
24. Majnemer A, Limperopoulos C, Shevell M, Rohlicek C, Rosenblatt B, Tchervenkov C. Health and well-being of children with congenital cardiac malformations, and their families, following open-heart surgery. Cardiol Young. 2006;16:157-164. (Pubitemid 44274705)
25. Pike NA, Evangelista LS, Doering LV, Koniak-Griffin D, Lewis AB, Child JS. Health-related quality of life: a closer look at related research in patients who have undergone the Fontan operation over the last decade. Heart Lung. 2007;36:3-15. (Pubitemid 46096592)
26. Spijkerboer AW, Utens EM, De Koning WB, Bogers AJ, Helbing WA, Verhulst FC. Health-related Quality of Life in children and adolescents after invasive treatment for congenital heart disease. Qual Life Res. 2006;15:663-673.
27. Tahirovic E, Begic H, Nurkic M, Tahirovic H, Varni JW. Does the severity of congenital heart defects affect disease-specific health-related quality of life in children in Bosnia and Herzegovina? Eur J Pediatr. 2010;169:349-353.
28. Uzark K, Jones K, Slusher J, Limbers CA, Burwinkle TM, Varni JW. Quality of life in children with heart disease as perceived by children and parents. Pediatrics. 2008;121:e1060-e1067.
29. Varni JW, Limbers CA, Burwinkle TM. Impaired health-related quality of life in children and adolescents with chronic conditions: a comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQL 4.0 Generic Core Scales. Health Qual Life Outcomes. 2007;5:43.
30. Bauer U, Niggemeyer E, Lange PE. [The competence network for congenital heart defects. Networking instead of isolated efforts for optimized research and care]. Med Klin (Munich). 2006;101:753-758.
31. Franklin RC, Anderson RH, Daniels O, et al. Report of the Coding Committee of the Association for European Paediatric Cardiology. Cardiol Young. 2002;12:611-618. (Pubitemid 41238795)
32. Franklin RC. The European Paediatric Cardiac Code Long List: structure and function. Cardiol Young. 2000;10(suppl 1):27-146.
33. Warnes CA, Liberthson R, Danielson GK, et al. Task force 1: the changing profile of congenital heart disease in adult life. J Am Coll Cardiol. 2001;37:1170-1175.
34. Ravens-Sieberer U, Bullinger M. Assessing health-related quality of life in chronically ill children with the German KINDL: first psychometric and content analytical results. Qual Life Res. 1998;7:399-407. (Pubitemid 28343449)
35. Ravens-Sieberer U. Der KINDL-R fragebogen zur Erfassung der gesundheitsbezogenen Lebensqualität bei Kindern und Jugendlichen. Revidierte Form. In: Schumacher JKA, Brahler E, eds. Diagnostische Verfahren zu Lebensqualität und Wohlbefinden. Goettingen, Germany: Hogrefe; 2003:184-188.
36. Ravens-Sieberer U, Kurth BM. The mental health module (BELLA study) within the German Health Interview and Examination Survey of Children and Adolescents (KiGGS): study design and methods. Eur Child Adolesc Psychiatry. 2008;17(suppl 1):10-21.
37. Schumacher J, Wilz G, Gunzelmann T, Brahler E. [The Antonovsky Sense of Coherence Scale. Test statistical evaluation of a representative population sample and construction of a brief scale]. Psychother Psychosom Med Psychol. 2000;50:472-482.
38. Eriksson M, Lindstrom B. Validity of Antonovsky's sense of coherence scale: a systematic review. J Epidemiol Community Health. 2005;59:460-466. (Pubitemid 40791030)
39. Antonovsky A. The Sense of Coherence: Development of a Research Instrument. W.S. Schwartz Research Center for Behavioral Medicine, Tel Aviv University, Newsletter and Research Reports 1, 1-11.
40. Honkinen PL, Suominen S, Rautava P, Hakanen J, Kalimo R. The adult sense of coherence scale is applicable to 12-year-old schoolchildren - an additional tool in health promotion. Acta Paediatr. 2006;95:952-955. (Pubitemid 44181215)
41. Torsheim T, Aaroe LE, Wold B. Sense of coherence and school-related stress as predictors of subjective health complaints in early adolescence: interactive, indirect or direct relationships? Soc Sci Med. 2001;53:603-614.
42. SAS Institute Inc. SAS 9.1. Cary, NC: SAS Institute Inc.; 2008.
43. Bengtsson-Tops A, Hansson L. The validity of Antonovsky's Sense of Coherence measure in a sample of schizophrenic patients living in the community. J Adv Nurs. 2001;33:432-438. (Pubitemid 33609389)
44. Johnson M. Approaching the salutogenesis of sense of coherence: the role of 'active' self-esteem and coping. Br J Health Psychol. 2004, 9:419-432.
45. Linn JG, Lewis FM, Cain VA, Kimbrough GA. HIV-illness, social support, sense of coherence, and psychosocial well-being in a sample of help-seeking adults. AIDS Educ Prev. 1993;5:254-262. (Pubitemid 23288548)
46. Wiesmann U, Niehorster G, Hannich HJ. Subjective health in old age from a salutogenic perspective. Br J Health Psychol. 2009;14:767-787.
47. Schnyder U, Buchi S, Sensky T, Klaghofer R. Antonovsky's sense of coherence: trait or state? Psychother Psychosom. 2000;69:296-302.
48. Geyer S. Some conceptual considerations on the sense of coherence. Soc Sci Med. 1997;44:1771-1779. (Pubitemid 27246192)
49. Wainwright NW, Surtees PG, Welch AA, Luben RN, Khaw KT, Bingham SA. Healthy lifestyle choices: could sense of coherence aid health promotion? J Epidemiol Community Health. 2007;61:871-876.
50. Wainwright NW, Surtees PG, Welch AA, Luben RN, Khaw KT, Bingham SA. Sense of coherence, lifestyle choices and mortality. J Epidemiol Community Health. 2008;62:829-831.
51. Bronikowski M, Bronikowska M. Salutogenesis as a framework for improving health resources of adolescent boys. Scand J Public Health. 2009;37:525-531.
52. Feldt T, Leskinen E, Koskenvuo M, Suominen S, Vahtera J, Kivimaki M. Development of sense of coherence in adulthood: a person-centered approach. The population-based HeSSup cohort study. Qual Life Res. 2011;20:69-79.
53. Moons P, Van Deyk K, De Bleser L, et al. Quality of life and health status in adults with congenital heart disease: a direct comparison with healthy counterparts. Eur J Cardiovasc Prev Rehabil. 2006;13:407-413.
54. Lindinger A, Schwedler G, Olchvary J, Hense HW. Prevalence of congenital heart disease (CHD) in newborns in Germany: preliminary data of the PAN study [abstract]. Cardiol Young. 2008;18:17.
55. Gesundheitsberichterstattung des Bundes. Lebensphasenspezifische Gesundheit von Kindern und Jugendlichen in Deutschland. Bericht für den Sachverständigenrat zur Begutachtung der Entwicklung im Gesundheitswesen. Berlin, Germany: Robert Koch-Institut; 2008:1-189.
56. Bullinger M, Brutt AL, Erhart M, Ravens-Sieberer U. Psychometric properties of the KINDL-R questionnaire: results of the BELLA study. Eur Child Adolesc Psychiatry. 2008;17(suppl 1):125-132.
57. Kennedy P, Lude P, Elfstrom ML, Smithson E. Sense of coherence and psychological outcomes in people with spinal cord injury: appraisals and behavioural responses. Br J Health Psychol. 2010;15:611-621.
58. Klevsgard R, Risberg BO, Thomsen MB, Hallberg IR. A 1-year follow-up quality of life study after hemodynamically successful or unsuccessful surgical revascularization of lower limb ischemia. J Vasc Surg. 2001;33:114-122. (Pubitemid 32109614)
59. Langeland E, Wahl AK, Kristoffersen K, Nortvedt MW, Hanestad BR. Sense of coherence predicts change in life satisfaction among home-living residents in the community with mental health problems: a 1-year follow-up study. Qual Life Res. 2007; 16:939-946. (Pubitemid 47174886)
60. Wettergren L, Langius A, Bjorkholm M, Bjorvell H. Physical and psychosocial functioning in patients undergoing autologous bone marrow transplantation - a prospective study. Bone Marrow Transplant. 1997;20:497-502. (Pubitemid 27434899)