Quality of life and health in children following allogeneic SCT

Bone Marrow Transplantation

Volumn 36, Issue 2, 2005, Pages 171-176

  Forinder, Ulla ^a,b   Lof C ^a   Winiarski, J ^a  

^a KAROLINSKA UNIVERSITY HOSPITAL   (Sweden)

^b STOCKHOLM UNIVERSITY   (Sweden)

Author keywords

Allogeneic; Children; Health; Late effects; Quality of life; Stem cell transplantation

Indexed keywords

ADOLESCENT; ADULT; AGE; ALLOGENEIC STEM CELL TRANSPLANTATION; ARTICLE; CATARACT; CHILD; CHILD HEALTH; CHILDHOOD DISEASE; CHILDHOOD LEUKEMIA; CHRONIC GRAFT VERSUS HOST DISEASE; COGNITIVE DEFECT; CONTROLLED STUDY; CORRELATION FUNCTION; DISEASE SEVERITY; FEMALE; FUNCTIONAL ASSESSMENT; GENDER; HEALTH STATUS; HUMAN; INFERTILITY; MAJOR CLINICAL STUDY; MALE; MALIGNANT NEOPLASTIC DISEASE; MEDICAL RECORD; PAIN ASSESSMENT; PHYSICIAN; PRIORITY JOURNAL; PROGNOSIS; QUALITY OF LIFE; RATING SCALE; SCORING SYSTEM; SELF CONCEPT; SELF ESTEEM; SELF EVALUATION; SELF REPORT; STATISTICAL SIGNIFICANCE; SYMPTOMATOLOGY;

ADOLESCENT; ADULT; CHILD; CHILD, PRESCHOOL; CHRONIC DISEASE; FEMALE; GRAFT VS HOST DISEASE; HEALTH STATUS; HEMATOLOGIC DISEASES; HUMANS; INFANT; MALE; QUALITY OF LIFE; QUESTIONNAIRES; STEM CELL TRANSPLANTATION;

EID: 22744432781     PISSN: 02683369     EISSN: None     Source Type: Journal    
DOI: 10.1038/sj.bmt.1705021     Document Type: Article

References (28)

1. Gustafsson Å, Remberger M, Winiarski J, Ringdén O. Unrelated bone marrow transplantation in children, outcome and a comparison with sibling donor grafting. Bone Marrow Transplant 2000; 25: 1059-1065.
2. Forinder U. Bone marrow transplantation from a parental perspective. J Child Health 2004; 8: 134-148.
3. Lindstrom B. Quality of life: a model for evaluating health for all. Conceptual considerations. Soz Präventivmed 1992; 37: 301-306.
4. WHO. Constitution of the World Health Organisation 1948. WHO: Geneva.
5. Syrjala K. Assessment of Quality of Life in hematopoietic cell transplantation recipients. In: Blume K, Forman S, Appelbaum F (eds). Thomas' Hematopoietic Cell Transplantation. Blackwell Science: Malden, 2004, pp 507-518.
6. Andrykowski MA. Review of psychosocial factors in bone marrow transplantation. Bone Marrow Transplant 1994; 13: 357-375.
7. Karnofsky DA, Burchenal JH. The clinical evaluation of chemotherapeutics in cancer. In: MacLeod CM (ed.). Evaluation of Chemotherapeutic Agents. Columbia University Press: New York, 1949, pp 191-205.
8. Lansky SB, List MA, Lansky LL. The measurement of performance in childhood cancer patients. Cancer 1987; 60: 1651-1656.
9. Antonovsky A. Unravelling the Mystery of Health. How People Manage Stress and Stay Well. Josey Bass Publ: San Francisco, 2001.
10. Torsheim T, Aaroe LE, Wold B. Sense of coherence and school-related stress as predictors of subjective health complaints in early adolescence: interactive indirect or direct relationship? Soc Sci Med 2001; 53: 603-641.
11. Hansson K, Olsson M. Känsla av sammanhang - ett mänskligt strävande. Nord Psykol 2001; 53: 238-255.
12. Räty LK, Wilde Larsson BM, Soderfeldt BA. Health-related quality of life in youth: a comparison between adolescent and young adults with uncomplicated epilepsy and healthy controls. J Adolesc Health 2003; 33: 252-258.
13. Margalit M. Loneliness and coherence among preschool children and children with learning disabilities. J Learn Disabil 1998; 331: 173-180.
14. Landgraf JM, Ware JE. The CHQ User's Manual, 2nd printing. The Health Institute, New England Medical Center: Boston, 1996.
15. Selvaag AM, Ruperto N, Asplin L. The Norwegian version of the Child Health Assessment Questionnaire and the Health Questionnaire. Clin Exp Rheumatol 2001; 19 (4 Suppl. 23): S116-S120.
16. Raat H, Landgraf JM, Bonsel GJ. Reliability and validity of child health questionnaire-child form (CHQ-CF87) in Dutch adolescent population. Qual Life Res 2002; 11: 575-581.
17. Waters E, Salmon L, Wake M. The health and well-being of adolescents: a school-based population study of the self-report Child Health Questionnaire. J Adolesc Health 2001; 29: 140-148.
18. Andersson-Gäre B, Ruperto N, Berg S. The Swedish version of the Child Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin Exp Rheumatol 2001; 19 (4 Suppl. 23): S146-S150.
19. Norrby U, Nordholm L, Fasth A. Reliability and validity of the Swedish version of Child Health Questionnaire. Scand J Rheumatol 2003; 32: 101-107.
20. Ouvinen-Birgerstam P. Jag tycker jag är (I Think I am) Manual. Psykologiförlaget: Stockholm, 1999.
21. Arvidson J, Larsson B, Lönnerholm G. A long-term follow-up study of psychosocial functioning after autologous bone marrow transplantation in childhood. Psychooncology 1999; 8: 123-134.
22. Essen v L, Enskär K, Kreuger A. Self-esteem, depression and anxiety among Swedish children and adolescents on and off cancer treatment. Acta Paediatr 2000; 89: 229-236.
23. Smedler AC, Nilsson C, Bolme P. Total body irradiation: a neuropsychological risk factor in paediatric bone marrow transplant recipients. Acta Paediatr 1995; 84: 325-330.
24. Madan-Swain A, Brown RT, Sexon SB. Adolescent cancer survivors, psychosocial and family adaptation. Psychosomatics 1994; 35: 453-459.
25. Sandberg DE, Voss LD. The psychosocial consequences of short stature: a review of the evidence. Best Pract Res Clin Endocrinol Metab 2002; 16: 449-463.
26. Calminus G, Kiebert G. Studies on health-related quality of life in childhood cancer in the European setting. An overview. Int J Cancer 1999: (Suppl. 12): 83-86.
27. Zebrack BJ, Chesler MA. Quality of life in childhood cancer survivors. Psychooncology 2002; 11: 132-141.
28. Phipps S, Mulhern RK. Family cohesion and expressiveness promote resilience to the stress of pediatric bone marrow transplant: a preliminary report. J Dev Behav Pediatr 1995; 16: 257-263.