Psychosocial outcomes for preschool children and families after surgery for complex congenital heart disease

Pediatric Cardiology

Volumn 28, Issue 4, 2007, Pages 255-262

  Brosig, C L ^a   Mussatto, K A ^b   Kuhn, E M ^b   Tweddell, J S ^a  

^a MEDICAL COLLEGE OF WISCONSIN   (United States)

^b CHILDREN S HOSPITAL OF WISCONSIN   (United States)

Author keywords

Congenital heart disease; Psychosocial outcomes

Indexed keywords

AGE DISTRIBUTION; ARTICLE; CARDIOPULMONARY BYPASS; CLINICAL ARTICLE; CONGENITAL HEART DISEASE; CONTROLLED STUDY; FAMILY FUNCTIONING; FEMALE; FOLLOW UP; GREAT VESSELS TRANSPOSITION; HOSPITALIZATION; HUMAN; HYPOPLASTIC LEFT HEART SYNDROME; LENGTH OF STAY; MALE; OPEN HEART SURGERY; OUTCOME ASSESSMENT; PARENTAL STRESS; PRESCHOOL CHILD; QUALITY OF LIFE; RATING SCALE; SCORING SYSTEM; SOCIAL PSYCHOLOGY; SOCIAL STATUS; STATISTICAL ANALYSIS;

CHILD; CHILD, PRESCHOOL; FAMILY HEALTH; FEMALE; HUMANS; HYPOPLASTIC LEFT HEART SYNDROME; MALE; PARENTING; STRESS, PSYCHOLOGICAL; TRANSPOSITION OF GREAT VESSELS;

EID: 34250834457     PISSN: 01720643     EISSN: None     Source Type: Journal    
DOI: 10.1007/s00246-006-0013-4     Document Type: Article

References (34)

1. Abidin RR (1995) Parenting Stress Index Professional Manual. Psychological Assessment Resources, Odessa, FL
2. Achenbach T, Rescorla L (2000) Child Behavior Checklist for Ages 11/2-5. University of Vermont, Burlington
3. Brosig CL, Mussatto KA, Kuhn EM, Tweddell JS (2007) Neurodevelopmental outcome in preschool survivors of complex congenital heart disease: implications for clinical practice. J Pediatr Health Care 21:3-12
4. Carey LK, Nicholson BC, Fox RA (2002) Maternal factors related to parenting young children with congenital heart disease. J Pediatr Nurs 17:174-183
5. Casey FA, Sykes DH, Craig BG, Power R, Mulholland HC (1996) Behavioral adjustment of children with surgically palliated complex congenital heart disease. J Pediatr Psychol 27:335-352
6. Cohen J (1977) Statistical Power Analysis for the Behavioral Sciences-Revised Edition. zAcademic Press, New York
7. Culbert EL, Ashburn DA, Cullen-Dean G, et al (2003) Quality of life in children after repair of transposition of the great arteries. Circulation 108:857-862
8. Davis CC, Brown RT, Bakeman R, Campbell R (1998) Psychological adaptation and adjustment of mothers of children with congenital heart disease: stress, coping, and family functioning. J Pediatr Psychol 23:219-228
9. DeMaso DR, Beardslee WR, Silbert AR, Fyler DC (1990) Psychological functioning in children with cyanotic heart defects. J Dev Behav Pediatr 11:289-294
10. Dibardino DJ, Allison AE, Vaughn WK, McKenzie ED, Fraser CD (2004) Current expectations for newborns undergoing the arterial switch operation. Ann Surg 239:588-596
11. Fox R (1994) Parent Behavior Checklist. PRO-ED, Austin, TX
12. Goldbeck L, Melches J (2005) Quality of life in families of children with congenital heart disease. Qual Life Res 14:1915-1924
13. Goldberg S, Janus M, Washington J, et al (1997) Prediction of preschool behavioral problems in healthy and pediatric samples. J Dev Behav Pediatr 18:304-313
14. Goldberg S, Morris P, Simmons RJ, Fowler RS, Levison H (1990) Chronic illness in infancy and parenting stress: a comparison of three groups of parents. J Pediatr Psychol 15:347-358
15. Hollingshead A (1975) Four Factor Index of Social Status. Yale University, New Haven, CT
16. Hovels-Gurich HH, Konrad K, Wiesner M, et al (2002) Long term behavioral outcome after neonatal arterial switch operation for transposition of the great arteries. Arch Dis Child 87:506-510
17. Krol Y, Grootenhuis MA, Destree-Vonk A, et al (2003) Health related quality of life in children with congenital heart disease. Psychol Health 18:251-260
18. Laane KM, Meberg A, Otterstad JE, et al (1997) Quality of life in children with congenital heart defects. Acta Paediatr 86:975-980
19. Lawoko S, Soares J (2002) Distress and hopelessness among parents of children with congenital heart disease, parents of children with other diseases, and parents of healthy children. J Psychosom Res 52:193-208
20. Lawoko S, Soares J (2003) Quality of life among parents of children with congenital heart disease, parents of children with other diseases and parents of healthy children. Qual Life Res 12:655-666
21. McKenzie ED, Andropoulos DB, DiBardino D, Fraser CD (2005) Congenital heart surgery 2005: the brain: it's the heart of the matter. Am J Surg 190:289-294
22. Mussatto KA (2006) Adaptation of the child and family to life with a chronic illness. Cardiol Young 16:110-116
23. Mussatto KA, Tweddell JS (2005) Quality of life following surgery for congenital cardiac malformations in neonates and infants. Cardiol Young 15(Suppl 1):174-178
24. Pelchat D, Ricard N, Bouchard JM, et al (1999) Adaptation of parents in relation to their 6-month old infant's type of disability. Child Health Care Dev 25:377-397
25. Stein RK (1985) Impact of the Illness on the Family Scale. Montefiore Medical Center, PACTS Papers/AECOM, Bronx, NY
26. Tak YR, McCubbin M (2002) Family stress, perceived social support and coping following the diagnosis of a child's congenital heart disease. J Adv Nurs 39:190-198
27. Tweddell JS, Hoffman GM, Mussatto KA, et al (2002) Improved survival of patients undergoing palliation of hypoplastic left heart syndrome: lessons learned from 115 consecutive patients. Circulation 106(Suppl 1):182-189
28. Tweddell JS, Spray TL (2004) Newborn heart surgery: reasonable expectations and outcomes. Pediatr Clin North Am 51:1611-1623
29. Uzark K, Jones K (2003) Parenting stress and children with heart disease. J Pediatr Health Care 17:163-168
30. Varni JW (1999) Reliability and Validity of the Pediatric Quality of Life Inventory Version 4.0. Children's Hospital and Health Center, San Diego
31. Varni JW, Seid M, Kurtin PS (2001) PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations. Med Care 39:800-812
32. Visconti KJ, Saudino KJ, Rappaport LA, Newburger JW, Bellinger DC (2002) Influence of parental stress and social support on the behavioral adjustment of children with transposition of the great arteries. J Dev Behav Pediatr 23:314-321
33. Wernovsky G, Shillingford AJ, Gaynor JW (2005) Central nervous system outcomes in children with complex congenital heart disease. Curr Opin Cardiol 20:94-99
34. Wetter J, Belli E, Sinzobahamvya N, et al (2001) Transposition of the great arteries associated with ventricular septal defect: surgical results and long-term outcome. Eur J Cardiothorac Surg 20:816-823