Informed consent process in alpha-1 testing of at-risk children: Views of parents and adults tested as children

COPD: Journal of Chronic Obstructive Pulmonary Disease

Volumn 8, Issue 1, 2011, Pages 30-38

  Coors, Marilyn E ^a   Moseley, Ray ^b   McGorray, Susan ^b  

^a UNIVERSITY OF COLORADO   (United States)

^b UNIVERSITY OF FLORIDA COLLEGE OF MEDICINE   (United States)

Author keywords

Alpha 1 Antitrypsin Deficiency; Children; Genetic testing; Risks of genetic testing

Indexed keywords

ALPHA 1 ANTITRYPSIN;

ADOLESCENT; ADULT; ALPHA 1 ANTITRYPSIN DEFICIENCY; ALPHA 1 TESTING; ANXIETY; ARTICLE; CIGARETTE SMOKING; CLINICAL DECISION MAKING; CONTROLLED STUDY; EMOTION; FEMALE; GENETIC RISK; GENETIC SCREENING; HEALTH CARE PLANNING; HEALTH INSURANCE; HIGH RISK PATIENT; HUMAN; INFORMED CONSENT; INHERITANCE; MAJOR CLINICAL STUDY; MALE; MEDICAL ETHICS; MEDICAL INFORMATION; NEWBORN SCREENING; PARENTAL ATTITUDE; PILOT STUDY; PRIORITY JOURNAL; RISK BENEFIT ANALYSIS;

ADOLESCENT; ADULT; ADVISORY COMMITTEES; ALPHA 1-ANTITRYPSIN DEFICIENCY; CHILD; DECISION MAKING; EARLY DIAGNOSIS; FEMALE; FOCUS GROUPS; GENETIC TESTING; HEALTH LITERACY; HUMANS; INFANT, NEWBORN; INFORMED CONSENT; MALE; NEONATAL SCREENING; PARENTS; PATIENT ACCEPTANCE OF HEALTH CARE; PILOT PROJECTS; QUESTIONNAIRES; RISK ASSESSMENT; YOUNG ADULT;

EID: 79851471646     PISSN: 15412555     EISSN: 15412563     Source Type: Journal    
DOI: 10.3109/15412555.2010.541958     Document Type: Article

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