-
1
-
-
31344443014
-
Carrier testing in minors: A systematic review of guidelines and position papers
-
Borry P, Fryns JP, Schotsmans P, Dierickx K. Carrier testing in minors: a systematic review of guidelines and position papers. Eur J Hum Genet 2006;14:133-138.
-
(2006)
Eur J Hum Genet
, vol.14
, pp. 133-138
-
-
Borry, P.1
Fryns, J.P.2
Schotsmans, P.3
Dierickx, K.4
-
2
-
-
33749473075
-
Presymptomatic and predictive genetic testing in minors: A systematic review of guidelines and position papers
-
Borry P, Stultiens L, Nys H, Cassiman JJ, Dierickx K. Presymptomatic and predictive genetic testing in minors: a systematic review of guidelines and position papers. Clin Genet 2006;70:374-381.
-
(2006)
Clin Genet
, vol.70
, pp. 374-381
-
-
Borry, P.1
Stultiens, L.2
Nys, H.3
Cassiman, J.J.4
Dierickx, K.5
-
3
-
-
77249093312
-
Brief assessment of parents' attitudes toward testing minor children for hereditary breast/ovarian cancer genes: Development and validation of the Pediatric BRCA1/2 Testing Attitudes Scale (P-TAS)
-
Peshkin BN, DeMarco TA, Garber JE, et al. Brief assessment of parents' attitudes toward testing minor children for hereditary breast/ovarian cancer genes: development and validation of the Pediatric BRCA1/2 Testing Attitudes Scale (P-TAS). J Pediatr Psychol 2009;34:627-638.
-
(2009)
J Pediatr Psychol
, vol.34
, pp. 627-638
-
-
Peshkin, B.N.1
Demarco, T.A.2
Garber, J.E.3
-
4
-
-
30444436185
-
Attitudes towards carrier testing in minors: A systematic review
-
Borry P, Fryns JP, Schotsmans P, Dierickx K. Attitudes towards carrier testing in minors: a systematic review. Genet Couns 2005;16:341-352.
-
(2005)
Genet Couns
, vol.16
, pp. 341-352
-
-
Borry, P.1
Fryns, J.P.2
Schotsmans, P.3
Dierickx, K.4
-
5
-
-
35649023114
-
Attitudes towards predictive genetic testing in minors for familial breast cancer: A systematic review
-
Borry P, Stultiens L, Nys H, Dierickx K. Attitudes towards predictive genetic testing in minors for familial breast cancer: a systematic review. Crit Rev Oncol Hematol 2007;64:173-181.
-
(2007)
Crit Rev Oncol Hematol
, vol.64
, pp. 173-181
-
-
Borry, P.1
Stultiens, L.2
Nys, H.3
Dierickx, K.4
-
6
-
-
77249149895
-
Genetic testing in children and young people
-
Parker M. Genetic testing in children and young people. Fam Cancer 2010;9:15-18.
-
(2010)
Fam Cancer
, vol.9
, pp. 15-18
-
-
Parker, M.1
-
7
-
-
68949124840
-
Ensuring the safe use of genomic medicine in children
-
Haga SB, Terry SF. Ensuring the safe use of genomic medicine in children. Clin Pediatr (Phila) 2009;48:703-708.
-
(2009)
Clin Pediatr (Phila)
, vol.48
, pp. 703-708
-
-
Haga, S.B.1
Terry, S.F.2
-
8
-
-
34250718607
-
Foundations, promises and uncertainties of personalized medicine
-
Bottinger EP. Foundations, promises and uncertainties of personalized medicine. Mt Sinai J Med 2007;74:15-21.
-
(2007)
Mt Sinai J Med
, vol.74
, pp. 15-21
-
-
Bottinger, E.P.1
-
10
-
-
33744830065
-
A vision of the future of newborn screening
-
Alexander D, van Dyck PC. A vision of the future of newborn screening. Pediatrics 2006;117(5 Pt 2):S350-S354.
-
(2006)
Pediatrics
, vol.117
, Issue.5 PART 2
-
-
Alexander, D.1
Van Dyck, P.C.2
-
11
-
-
4444261920
-
Research issues in genetic testing of adolescents for obesity
-
Segal ME, Sankar P, Reed DR. Research issues in genetic testing of adolescents for obesity. Nutri Rev 2004;62:307-320.
-
(2004)
Nutri Rev
, vol.62
, pp. 307-320
-
-
Segal, M.E.1
Sankar, P.2
Reed, D.R.3
-
12
-
-
85012480728
-
The $1000 genome: Ethical and legal issues in whole genome sequencing of individuals
-
Robertson JA. The $1000 genome: ethical and legal issues in whole genome sequencing of individuals. Am J Bioeth 2003;3:W-IF1.
-
(2003)
Am J Bioeth
, vol.3
-
-
Robertson, J.A.1
-
13
-
-
29244477572
-
Genetic profiling of newborns: Ethical and social issues
-
Almond B. Genetic profiling of newborns: ethical and social issues. Nat Rev Genet 2006;7:67-71.
-
(2006)
Nat Rev Genet
, vol.7
, pp. 67-71
-
-
Almond, B.1
-
14
-
-
0030972226
-
Developmental tasks of childhood and adolescence: Implications for genetic testing
-
Fanos JH. Developmental tasks of childhood and adolescence: Implications for genetic testing. Am J Med Genet 1997;71:22-28.
-
(1997)
Am J Med Genet
, vol.71
, pp. 22-28
-
-
Fanos, J.H.1
-
15
-
-
33751201217
-
Why tell asymptomatic children of the risk of an adult-onset disease in the family but not test them for it?
-
Malpas PJ. Why tell asymptomatic children of the risk of an adult-onset disease in the family but not test them for it? J Med Ethics 2006;32:639-642.
-
(2006)
J Med Ethics
, vol.32
, pp. 639-642
-
-
Malpas, P.J.1
-
16
-
-
47749116951
-
Predictive genetic testing of children for adult-onset diseases and psychological harm
-
Malpas PJ. Predictive genetic testing of children for adult-onset diseases and psychological harm. J Med Ethics 2008;34:275-278.
-
(2008)
J Med Ethics
, vol.34
, pp. 275-278
-
-
Malpas, P.J.1
-
17
-
-
77249151732
-
From genetics to genomics: Ethics, policy, and parental decision-making
-
Wilfond B, Ross LF. From genetics to genomics: ethics, policy, and parental decision-making. J Pediatr Psychol 2009;34:639-647.
-
(2009)
J Pediatr Psychol
, vol.34
, pp. 639-647
-
-
Wilfond, B.1
Ross, L.F.2
-
18
-
-
33644850253
-
Predictive genetic testing in young people for adult-onset conditions: Where is the empirical evidence?
-
Duncan RE, Delatycki MB. Predictive genetic testing in young people for adult-onset conditions: where is the empirical evidence? Clin Genet 2006; 69:8-16.
-
(2006)
Clin Genet
, vol.69
, pp. 8-16
-
-
Duncan, R.E.1
Delatycki, M.B.2
-
19
-
-
33749495220
-
Maturity of judgement in decision making for predictive testing for nontreatable adult-onset neurogenetic conditions: A case against predictive testing of minors
-
Richards FH. Maturity of judgement in decision making for predictive testing for nontreatable adult-onset neurogenetic conditions: a case against predictive testing of minors. Clin Genet 2006;70:396-401.
-
(2006)
Clin Genet
, vol.70
, pp. 396-401
-
-
Richards, F.H.1
-
20
-
-
33744812397
-
Why test children for adult-onset genetic diseases?
-
Rhodes R. Why test children for adult-onset genetic diseases? Mt Sinai J Med 2006;73:609-616.
-
(2006)
Mt Sinai J Med
, vol.73
, pp. 609-616
-
-
Rhodes, R.1
-
21
-
-
0028132846
-
Genetic testing for children and adolescents: Who decides?
-
Wertz DC, Fanos JH, Reilly PR. Genetic testing for children and adolescents: who decides?. JAMA 1994;272:875-881.
-
(1994)
JAMA
, vol.272
, pp. 875-881
-
-
Wertz, D.C.1
Fanos, J.H.2
Reilly, P.R.3
-
22
-
-
0032039712
-
Implications of genetic testing of children and adolescents
-
Lessick M, Faux S. Implications of genetic testing of children and adolescents. Holist Nurs Pract 1998;12:38-46.
-
(1998)
Holist Nurs Pract
, vol.12
, pp. 38-46
-
-
Lessick, M.1
Faux, S.2
-
23
-
-
0001849560
-
Psychosocial impact of predictive testing for illness on children and families: Challenges for a new millennium
-
Tercyak KP, Streisand R, Peshkin BN, Lerman C. Psychosocial impact of predictive testing for illness on children and families: challenges for a new millennium. J Clin Psychol Med Sett 2000;7:55-68.
-
(2000)
J Clin Psychol Med Sett
, vol.7
, pp. 55-68
-
-
Tercyak, K.P.1
Streisand, R.2
Peshkin, B.N.3
Lerman, C.4
-
24
-
-
77953958157
-
Task Force on Genetic Testing. Promoting safe and effective genetic testing in the United States
-
Washington DC: NIH-DOE
-
Task Force on Genetic Testing. Promoting safe and effective genetic testing in the United States. Final Report of the Task Force on Genetic Testing. Washington, DC: NIH-DOE, 1997.
-
(1997)
Final Report of the Task Force on Genetic Testing
-
-
-
25
-
-
33645771508
-
Empirical research in bioethical journals. A quantitative analysis
-
Borry P, Schotsmans P, Dierickx K. Empirical research in bioethical journals. A quantitative analysis. J Med Ethics 2006;32:240-245.
-
(2006)
J Med Ethics
, vol.32
, pp. 240-245
-
-
Borry, P.1
Schotsmans, P.2
Dierickx, K.3
-
26
-
-
70449730610
-
The role of empirical research in bioethics
-
Kon AA. The role of empirical research in bioethics. Am J Bioeth 2009;9: 59-65.
-
(2009)
Am J Bioeth
, vol.9
, pp. 59-65
-
-
Kon, A.A.1
-
27
-
-
0033913215
-
Threat to parental role: A possible mechanism of altered self-concept related to carrier knowledge
-
McConkie-Rosell A, Devellis BM. Threat to parental role: a possible mechanism of altered self-concept related to carrier knowledge. J Genet Couns 2000;9:285-302.
-
(2000)
J Genet Couns
, vol.9
, pp. 285-302
-
-
McConkie-Rosell, A.1
Devellis, B.M.2
-
28
-
-
84986543095
-
Equifinality and multifinality in developmental psychology
-
Cicchetti D, Rogosch F. Equifinality and multifinality in developmental psychology. Dev Psychopathol 1996;8:597-600.
-
(1996)
Dev Psychopathol
, vol.8
, pp. 597-600
-
-
Cicchetti, D.1
Rogosch, F.2
-
29
-
-
38149036642
-
A systematic review of perceived risks, psychological and behavioral impacts of genetic testing
-
Heshka JT, Palleschi C, Howley H, Wilson B, Wells PS. A systematic review of perceived risks, psychological and behavioral impacts of genetic testing. Genet Med 2008;10:19-32.
-
(2008)
Genet Med
, vol.10
, pp. 19-32
-
-
Heshka, J.T.1
Palleschi, C.2
Howley, H.3
Wilson, B.4
Wells, P.S.5
-
30
-
-
0017332127
-
Knowledge about and attitudes toward genetic screening among high school students: The Tay Sachs experience
-
Clow CL, Scriver CR. Knowledge about and attitudes toward genetic screening among high school students: the Tay Sachs experience. Pediatrics 1977;59:86-91.
-
(1977)
Pediatrics
, vol.59
, pp. 86-91
-
-
Clow, C.L.1
Scriver, C.R.2
-
31
-
-
0027200884
-
What young people think and do when the option for cystic fibrosis carrier testing is available
-
Mitchell J, Scriver CR, Clow CL, Kaplan F. What young people think and do when the option for cystic fibrosis carrier testing is available. J Med Genet 1993;30:538-542.
-
(1993)
J Med Genet
, vol.30
, pp. 538-542
-
-
Mitchell, J.1
Scriver, C.R.2
Clow, C.L.3
Kaplan, F.4
-
32
-
-
0033674010
-
Carrier testing of children for two X-linked diseases: A retrospective study of comprehension of the test results and social and psychological significance of the testing
-
Jarvinen O, Lehesjoki AE, Lindlof M, Uutela A, Kaäriainen H. Carrier testing of children for two X-linked diseases: a retrospective study of comprehension of the test results and social and psychological significance of the testing. Pediatrics 2000;106:1460-1465.
-
(2000)
Pediatrics
, vol.106
, pp. 1460-1465
-
-
Jarvinen, O.1
Lehesjoki, A.E.2
Lindlof, M.3
Uutela, A.4
Kaäriainen, H.5
-
33
-
-
2442725198
-
Carrier testing of children for two X linked diseases in a family based setting: A retrospective long term psychosocial evaluation
-
Jarvinen O, Aalto AM, Lehesjoki AE, et al. Carrier testing of children for two X linked diseases in a family based setting: a retrospective long term psychosocial evaluation. J Med Genet 1999;36:615-620.
-
(1999)
J Med Genet
, vol.36
, pp. 615-620
-
-
Jarvinen, O.1
Aalto, A.M.2
Lehesjoki, A.E.3
-
34
-
-
0034528371
-
A retrospective study of long-term psychosocial consequences and satisfaction after carrier testing in childhood in an autosomal recessive disease: Aspartylglucosaminuria
-
Jarvinen O, Hietala M, Aalto AM, et al. A retrospective study of long-term psychosocial consequences and satisfaction after carrier testing in childhood in an autosomal recessive disease: aspartylglucosaminuria. Clin Genet 2000; 58:447-454.
-
(2000)
Clin Genet
, vol.58
, pp. 447-454
-
-
Jarvinen, O.1
Hietala, M.2
Aalto, A.M.3
-
35
-
-
0037387870
-
A genetic screening programme for Tay-Sachs disease and cystic fibrosis for Australian Jewish high school students
-
Barlow-Stewart K, Burnett L, Proos A, et al. A genetic screening programme for Tay-Sachs disease and cystic fibrosis for Australian Jewish high school students. J Med Genet 2003;40:e45.
-
(2003)
J Med Genet
, vol.40
-
-
Barlow-Stewart, K.1
Burnett, L.2
Proos, A.3
-
36
-
-
39749124208
-
Living with genetic risk: Effect on adolescent self-concept
-
McConkie-Rosell A, Spiridigliozzi GA, Melvin E, Dawson DV, Lachiewicz AM. Living with genetic risk: effect on adolescent self-concept. Am J Med Genet C Semin Med Genet 2008;148:56-69.
-
(2008)
Am J Med Genet C Semin Med Genet
, vol.148
, pp. 56-69
-
-
McConkie-Rosell, A.1
Spiridigliozzi, G.A.2
Melvin, E.3
Dawson, D.V.4
Lachiewicz, A.M.5
-
37
-
-
0021259895
-
A private view of heterozygosity: Eight-year follow-up study on carriers of the Tay-Sachs gene detected by high school screening in Montreal
-
Zeesman S, Clow CL, Cartier L, Scriver CR. A private view of heterozygosity: eight-year follow-up study on carriers of the Tay-Sachs gene detected by high school screening in Montreal. Am J Med Genet 1984;18:769-778.
-
(1984)
Am J Med Genet
, vol.18
, pp. 769-778
-
-
Zeesman, S.1
Clow, C.L.2
Cartier, L.3
Scriver, C.R.4
-
38
-
-
0021751126
-
3-Thalassemia disease prevention: Genetic medicine applied
-
Scriver CR, Bardanis M, Cartier L./3-Thalassemia disease prevention: genetic medicine applied. Am J Hum Genet 1984;36:1024-1038.
-
(1984)
Am J Hum Genet
, vol.36
, pp. 1024-1038
-
-
Scriver, C.R.1
Bardanis, M.2
Cartier, L.3
-
39
-
-
0343503037
-
Carrier testing of children for two X-linked diseases: A retrospective evaluation of experience and satisfaction of subjects and their mothers
-
Jarvinen O, Lehesjoki AE, Lindlof M, Uutela A, Kaäriainen H. Carrier testing of children for two X-linked diseases: a retrospective evaluation of experience and satisfaction of subjects and their mothers. Genet Test 1999; 3:347-355. (Pubitemid 30002536)
-
(1999)
Genetic Testing
, vol.3
, Issue.4
, pp. 347-355
-
-
Jarvinen, O.1
Lehesjoki, A.-E.2
Lindlof, M.3
Uutela, A.4
Kaariainen, H.5
-
40
-
-
0029904635
-
Genetic testing for cancer in children: Short-term psychological effect
-
Codori AM, Petersen GM, Boyd PA, Brandt J, Giardiello FM. Genetic testing for cancer in children: short-term psychological effect. Arch Pediatri Adolesc Med 1996;150:1131-1138.
-
(1996)
Arch Pediatri Adolesc Med
, vol.150
, pp. 1131-1138
-
-
Codori, A.M.1
Petersen, G.M.2
Boyd, P.A.3
Brandt, J.4
Giardiello, F.M.5
-
41
-
-
12244260094
-
Genetic testing for hereditary colorectal cancer in children: Long-term psychological effects
-
Codori AM, Zawacki KL, Petersen GM, et al. Genetic testing for hereditary colorectal cancer in children: long-term psychological effects. Am J Med Genet A 2003;116A:117-128.
-
(2003)
Am J Med Genet A
, vol.116 A
, pp. 117-128
-
-
Codori, A.M.1
Zawacki, K.L.2
Petersen, G.M.3
-
42
-
-
0034881346
-
Predictive genetic testing in children and adults: A study of emotional impact
-
Michie S, Bobrow M, Marteau TM. Predictive genetic testing in children and adults: a study of emotional impact. J Med Genet 2001;38:519-526.
-
(2001)
J Med Genet
, vol.38
, pp. 519-526
-
-
Michie, S.1
Bobrow, M.2
Marteau, T.M.3
-
43
-
-
40449108169
-
Health-related quality of life of children with a positive carrier status for inherited cardiovascular diseases
-
Smets EMA, Stam MMH, Meulenkamp TM, et al. Health-related quality of life of children with a positive carrier status for inherited cardiovascular diseases. Am J Med Genet A 2008;146:700-707.
-
(2008)
Am J Med Genet A
, vol.146
, pp. 700-707
-
-
Ema, S.1
Mmh, S.2
Meulenkamp, T.M.3
-
44
-
-
34249911707
-
Adolescents at risk for MODY3 diabetes prefer genetic testing before adulthood
-
Liljestrom B, Tuomi T, Isomaa B, Sarelin L, Aktan-Collan K, Kaäriainen H. Adolescents at risk for MODY3 diabetes prefer genetic testing before adulthood. Diabetes Care 2007;30:1571-1573.
-
(2007)
Diabetes Care
, vol.30
, pp. 1571-1573
-
-
Liljestrom, B.1
Tuomi, T.2
Isomaa, B.3
Sarelin, L.4
Aktan-Collan, K.5
Kaäriainen, H.6
-
45
-
-
57149094879
-
Predictive genetic testing for cardiovascular diseases: Impact on carrier children
-
Meulenkamp TM, Tibben A, Mollema ED, et al. Predictive genetic testing for cardiovascular diseases: impact on carrier children. Am J Med Genet A 2008;146A:3136-3146.
-
(2008)
Am J Med Genet A
, vol.146 A
, pp. 3136-3146
-
-
Meulenkamp, T.M.1
Tibben, A.2
Mollema, E.D.3
-
46
-
-
1242284405
-
Validity of adult retrospective reports of adverse childhood experiences: Review of the evidence
-
Hardt J, Rutter M. Validity of adult retrospective reports of adverse childhood experiences: review of the evidence. J Child Psychol Psychiatry 2004;45:260-273.
-
(2004)
J Child Psychol Psychiatry
, vol.45
, pp. 260-273
-
-
Hardt, J.1
Rutter, M.2
-
47
-
-
0028063091
-
The genetic testing of children
-
Marteau TM. The genetic testing of children. J Med Genet 1994;31:743.
-
(1994)
J Med Genet
, vol.31
, pp. 743
-
-
Marteau, T.M.1
-
48
-
-
8744268164
-
Predictive genetic testing in young people: When is it appropriate?
-
Duncan RE. Predictive genetic testing in young people: when is it appropriate? J Paediatr Child Health 2004;40:593-595.
-
(2004)
J Paediatr Child Health
, vol.40
, pp. 593-595
-
-
Duncan, R.E.1
-
49
-
-
70449715429
-
Direct-to-consumer genetics and health policy: A worst-case scenario?
-
Caulfield T. Direct-to-consumer genetics and health policy: a worst-case scenario? Am J Bioeth 2009;9:48-50.
-
(2009)
Am J Bioeth
, vol.9
, pp. 48-50
-
-
Caulfield, T.1
-
51
-
-
33748309284
-
Opportunities and challenges in the prevention and control of cancer and other chronic diseases: Children's diet and nutrition and weight and physical activity
-
Tercyak KP, Tyc VL. Opportunities and challenges in the prevention and control of cancer and other chronic diseases: children's diet and nutrition and weight and physical activity. J Pediatr Psychol 2006;31:750-763.
-
(2006)
J Pediatr Psychol
, vol.31
, pp. 750-763
-
-
Tercyak, K.P.1
Tyc, V.L.2
-
52
-
-
77249134069
-
Health-related direct-to-con-sumer genetic testing: A review of companies' policies with regard to genetic testing in minors
-
Borry P, Howard HC, Senecal K, Avard D. Health-related direct-to-con-sumer genetic testing: a review of companies' policies with regard to genetic testing in minors. Fam Cancer 2010;9:51-59.
-
(2010)
Fam Cancer
, vol.9
, pp. 51-59
-
-
Borry, P.1
Howard, H.C.2
Senecal, K.3
Avard, D.4
-
53
-
-
0034615174
-
Psychological impact of genetic testing for adult-onset disorders. An update for clinicians
-
Meiser B, Gleeson MA, Tucker KM. Psychological impact of genetic testing for adult-onset disorders. An update for clinicians. Med J Aust 2000;172: 126-129.
-
(2000)
Med J Aust
, vol.172
, pp. 126-129
-
-
Meiser, B.1
Gleeson, M.A.2
Tucker, K.M.3
-
54
-
-
0033785340
-
Psychological impact of genetic testing for Huntington's disease: An update of the literature
-
Meiser B, Dunn S. Psychological impact of genetic testing for Huntington's disease: an update of the literature. J Neurol Neurosurg Psychiatry 2000; 69:574-578.
-
(2000)
J Neurol Neurosurg Psychiatry
, vol.69
, pp. 574-578
-
-
Meiser, B.1
Dunn, S.2
-
55
-
-
0035020644
-
Psychological effect of genetic testing for Huntington's disease: An update of the literature
-
Meiser B, Dunn S. Psychological effect of genetic testing for Huntington's disease: an update of the literature. West J Med 2001;174:336-340.
-
(2001)
West J Med
, vol.174
, pp. 336-340
-
-
Meiser, B.1
Dunn, S.2
-
56
-
-
0037455386
-
Psychological outcomes and risk perception after genetic testing and counselling in breast cancer: A systematic review
-
Butow PN, Lobb EA, Meiser B, Barratt A, Tucker KM. Psychological outcomes and risk perception after genetic testing and counselling in breast cancer: a systematic review. Med J Aust 2003;178:77-81.
-
(2003)
Med J Aust
, vol.178
, pp. 77-81
-
-
Butow, P.N.1
Lobb, E.A.2
Meiser, B.3
Barratt, A.4
Tucker, K.M.5
-
57
-
-
29644445236
-
Psychological impact of genetic testing for cancer susceptibility: An update of the literature
-
Meiser B. Psychological impact of genetic testing for cancer susceptibility: an update of the literature. Psychooncology 2005;14:1060-1074.
-
(2005)
Psychooncology
, vol.14
, pp. 1060-1074
-
-
Meiser, B.1
-
58
-
-
63849230777
-
Genetic counselling and testing for inherited gene mutations in newly diagnosed patients with breast cancer: A review of the existing literature and a proposed research agenda
-
Meiser B, Tucker K, Friedlander M, et al. Genetic counselling and testing for inherited gene mutations in newly diagnosed patients with breast cancer: a review of the existing literature and a proposed research agenda. Breast Cancer Res 2008;10:216.
-
(2008)
Breast Cancer Res
, vol.10
, pp. 216
-
-
Meiser, B.1
Tucker, K.2
Friedlander, M.3
-
59
-
-
0027433020
-
Psychosocial aspects of sickle cell disease (SCD) in childhood and adolescence: A review
-
Midence K, Fuggle P, Davies SC. Psychosocial aspects of sickle cell disease (SCD) in childhood and adolescence: a review. Br J Clin Psychol 1993;32(Pt 3):271-280.
-
(1993)
Br J Clin Psychol
, vol.32
, Issue.PART 3
, pp. 271-280
-
-
Midence, K.1
Fuggle, P.2
Davies, S.C.3
-
61
-
-
39749139380
-
"You're one of us now": Young people describe their experiences of predictive genetic testing for Huntington disease (HD) and familial adeno-matous polyposis (FAP)
-
Duncan RE, Gillam L, Savulescu J, Williamson R, Rogers JG, Delatycki MB. "You're one of us now": Young people describe their experiences of predictive genetic testing for Huntington disease (HD) and familial adeno-matous polyposis (FAP). Am J Med Genet C Semin Med Genet 2008;148: 47-55.
-
(2008)
Am J Med Genet C Semin Med Genet
, vol.148
, pp. 47-55
-
-
Duncan, R.E.1
Gillam, L.2
Savulescu, J.3
Williamson, R.4
Rogers, J.G.5
Delatycki, M.B.6
-
62
-
-
57149086686
-
The role of qualitative research in medical genetics: Listening to the voices of our patients
-
Bernhardt BA. The role of qualitative research in medical genetics: listening to the voices of our patients. Am J Med Genet A 2008;146A:3132-3135.
-
(2008)
Am J Med Genet A
, vol.146 A
, pp. 3132-3135
-
-
Bernhardt, B.A.1
-
63
-
-
35448936854
-
Adaptive style in children with cancer: Implications for a positive psychology approach
-
Phipps S. Adaptive style in children with cancer: implications for a positive psychology approach. J Pediatr Psychol 2007;32:1055-1066.
-
(2007)
J Pediatr Psychol
, vol.32
, pp. 1055-1066
-
-
Phipps, S.1
-
64
-
-
70450179314
-
Children's response to serious illness: Perceptions of benefit and burden in a pediatric cancer population
-
Currier JM, Hermes S, Phipps S. Children's response to serious illness: perceptions of benefit and burden in a pediatric cancer population. J Pediatr Psychol 2009;34:1129-1134.
-
(2009)
J Pediatr Psychol
, vol.34
, pp. 1129-1134
-
-
Currier, J.M.1
Hermes, S.2
Phipps, S.3
-
66
-
-
33750699257
-
Future orientation in the self-system: Possible selves, self-regulation, and behavior
-
Hoyle RH, Sherrill MR. Future orientation in the self-system: possible selves, self-regulation, and behavior. J Pers 2006;74:1673-1696.
-
(2006)
J Pers
, vol.74
, pp. 1673-1696
-
-
Hoyle, R.H.1
Sherrill, M.R.2
-
67
-
-
0035320506
-
Older women and mammography screening behavior: Do possible selves contribute?
-
Black ME, Stein KF, Loveland-Cherry CJ. Older women and mammography screening behavior: do possible selves contribute? Health Educ Behav 2001;28:200-216.
-
(2001)
Health Educ Behav
, vol.28
, pp. 200-216
-
-
Black, M.E.1
Stein, K.F.2
Loveland-Cherry, C.J.3
-
68
-
-
33644514659
-
Genetic susceptibility testing from a stress and coping perspective
-
Gooding HC, Organista K, Burack J, Biesecker BB. Genetic susceptibility testing from a stress and coping perspective. Soc Sci Med 2006;62:1880-1890.
-
(2006)
Soc Sci Med
, vol.62
, pp. 1880-1890
-
-
Gooding, H.C.1
Organista, K.2
Burack, J.3
Biesecker, B.B.4
-
69
-
-
32344432305
-
Relationship of resilience to personality, coping, and psychiatric symptoms in young adults
-
Campbell-Sills L, Cohan SL, Stein MB. Relationship of resilience to personality, coping, and psychiatric symptoms in young adults. Behav Res Ther 2006;44:585-599.
-
(2006)
Behav Res Ther
, vol.44
, pp. 585-599
-
-
Campbell-Sills, L.1
Cohan, S.L.2
Stein, M.B.3
-
70
-
-
51649111254
-
Sisters in hereditary breast and ovarian cancer families: Communal coping, social integration, and psychological well-being
-
Koehly LM, Peters JA, Kuhn N, et al. Sisters in hereditary breast and ovarian cancer families: communal coping, social integration, and psychological well-being. Psychooncology 2008;17:812-821.
-
(2008)
Psychooncology
, vol.17
, pp. 812-821
-
-
Koehly, L.M.1
Peters, J.A.2
Kuhn, N.3
-
71
-
-
40949112321
-
Delivery of genomic medicine for common chronic adult diseases: A systematic review
-
Scheuner MT, Sieverding P, Shekelle PG. Delivery of genomic medicine for common chronic adult diseases: a systematic review. JAMA 2008;299: 1320-1334.
-
(2008)
JAMA
, vol.299
, pp. 1320-1334
-
-
Scheuner, M.T.1
Sieverding, P.2
Shekelle, P.G.3
-
72
-
-
0037386964
-
A social network analysis of communication about hereditary nonpolyposis colorectal cancer genetic testing and family functioning
-
Koehly LM, Peterson SK, Watts BG, Kempf KK, Vernon SW, Gritz ER. A social network analysis of communication about hereditary nonpolyposis colorectal cancer genetic testing and family functioning. Cancer Epidemiol Biomarkers Prev 2003;12:304-313.
-
(2003)
Cancer Epidemiol Biomarkers Prev
, vol.12
, pp. 304-313
-
-
Koehly, L.M.1
Peterson, S.K.2
Watts, B.G.3
Kempf, K.K.4
Vernon, S.W.5
Gritz, E.R.6
-
73
-
-
0032087562
-
Social support among African-American adults with diabetes. Part 1: Theoretical framework
-
Ford ME, Tilley BC, McDonald PE. Social support among African-American adults with diabetes. Part 1: theoretical framework. J Natl Med Assoc 1998;90:361-365.
-
(1998)
J Natl Med Assoc
, vol.90
, pp. 361-365
-
-
Ford, M.E.1
Tilley, B.C.2
McDonald, P.E.3
-
74
-
-
0032110275
-
Social support among African-American adults with diabetes. Part 2: A review
-
Ford ME, Tilley BC, McDonald PE. Social support among African-American adults with diabetes. Part 2: a review. J Natl Med Assoc 1998;90:425-432.
-
(1998)
J Natl Med Assoc
, vol.90
, pp. 425-432
-
-
Ford, M.E.1
Tilley, B.C.2
McDonald, P.E.3
-
75
-
-
0033610734
-
Improving the quality of reports of meta-analyses of randomised controlled trials: The QUOROM statement Quality of Reporting of Meta-analyses
-
Moher D, Cook DJ, Eastwood S, Olkin I, Rennie D, Stroup DF. Improving the quality of reports of meta-analyses of randomised controlled trials: the QUOROM statement. Quality of Reporting of Meta-analyses. Lancet 1999; 354:1896-1900.
-
(1999)
Lancet
, vol.354
, pp. 1896-1900
-
-
Moher, D.1
Cook, D.J.2
Eastwood, S.3
Olkin, I.4
Rennie, D.5
Stroup, D.F.6
|