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Volumn 16, Issue 2, 2007, Pages 201-210

Assessing the informational needs of adolescents with a genetic condition: What do they want to know?

Author keywords

Adolescents; Counseling needs; Genetic information; Knowledge assessment; Transition

Indexed keywords

ADOLESCENT; ARTICLE; CLINICAL ARTICLE; CONGENITAL ADRENAL HYPERPLASIA; FEMALE; GENETIC COUNSELING; GENETIC DISORDER; HUMAN; MALE; PATIENT EDUCATION; PATIENT INFORMATION; PHENYLKETONURIA; QUESTIONNAIRE;

EID: 33847646658     PISSN: 10597700     EISSN: 15733599     Source Type: Journal    
DOI: 10.1007/s10897-006-9060-5     Document Type: Article
Times cited : (25)

References (24)
  • 1
    • 0034880609 scopus 로고    scopus 로고
    • Health care information sources for adolescents: Age and gender differences on use, concerns, and needs
    • Ackard, D. M., & Neumark-Sztainer, D. (2001). Health care information sources for adolescents: Age and gender differences on use, concerns, and needs. J. Adolesc. Health, 29, 170-176.
    • (2001) J. Adolesc. Health , vol.29 , pp. 170-176
    • Ackard, D.M.1    Neumark-Sztainer, D.2
  • 2
    • 0036897603 scopus 로고    scopus 로고
    • A consensus statement on health care transitions for young adults with special health care needs
    • American Academy of Pediatrics, American Academy of Family Physicians, & American College of Physicians-American Society of Internal Medicine
    • American Academy of Pediatrics, American Academy of Family Physicians, & American College of Physicians-American Society of Internal Medicine. (2002). A consensus statement on health care transitions for young adults with special health care needs. Pediatrics, 110(6), 1304-1306.
    • (2002) Pediatrics , vol.110 , Issue.6 , pp. 1304-1306
  • 3
    • 33847650725 scopus 로고    scopus 로고
    • More on my own
    • A transition education and planning project-Final, Toronto: The Hospital for Sick Children
    • Antle, B. J., Anderson, D., Phillips, H., & Feigenbaum, A. (2001). More on my own: A transition education and planning project-Final report to the Garrod Association. Toronto: The Hospital for Sick Children.
    • (2001) report to the Garrod Association
    • Antle, B.J.1    Anderson, D.2    Phillips, H.3    Feigenbaum, A.4
  • 4
    • 0043237226 scopus 로고    scopus 로고
    • Chronically Ill adolescents' experiences of communicating with doctors: A qualitative study
    • Beresford, B. A., & Sloper, P. (2003). Chronically Ill adolescents' experiences of communicating with doctors: A qualitative study. J. Adolesc. Health, 33, 172-179.
    • (2003) J. Adolesc. Health , vol.33 , pp. 172-179
    • Beresford, B.A.1    Sloper, P.2
  • 5
    • 0034779908 scopus 로고    scopus 로고
    • Process studies in genetic counseling: Peering into the black box
    • Biesecker, B. B., & Peters, K. F. (2001). Process studies in genetic counseling: peering into the black box. Am. J. Med. Genet, 106(3), 191-198.
    • (2001) Am. J. Med. Genet , vol.106 , Issue.3 , pp. 191-198
    • Biesecker, B.B.1    Peters, K.F.2
  • 6
    • 0035489417 scopus 로고    scopus 로고
    • Health care issues facing adolescents with congenital heart disease
    • Cannobbio, M. M. (2001). Health care issues facing adolescents with congenital heart disease. J. Pediatr. Nurs, 16(5), 363-370.
    • (2001) J. Pediatr. Nurs , vol.16 , Issue.5 , pp. 363-370
    • Cannobbio, M.M.1
  • 7
    • 18344371371 scopus 로고    scopus 로고
    • Psychological and genetic counseling implications for adolescent daughters of mothers with breast cancer
    • Cappelli, M., Verma, S., Korneluk, Y., Hunter, A., Tomiak, E., Allanson, J., et al. (2005). Psychological and genetic counseling implications for adolescent daughters of mothers with breast cancer. Clin. Genet, 67(6), 481-491.
    • (2005) Clin. Genet , vol.67 , Issue.6 , pp. 481-491
    • Cappelli, M.1    Verma, S.2    Korneluk, Y.3    Hunter, A.4    Tomiak, E.5    Allanson, J.6
  • 9
    • 2642568379 scopus 로고    scopus 로고
    • Re-thinking family-centered care across the continuum of children's healthcare
    • Franck, L. S., & Callery, P. (2004). Re-thinking family-centered care across the continuum of children's healthcare. Child Care Health Dev, 30(3), 265-270.
    • (2004) Child Care Health Dev , vol.30 , Issue.3 , pp. 265-270
    • Franck, L.S.1    Callery, P.2
  • 10
    • 0011008940 scopus 로고
    • Genetic counseling
    • Fraser, F. C. (1974). Genetic counseling. Am. J. Hum. Genet, 15, 1-10.
    • (1974) Am. J. Hum. Genet , vol.15 , pp. 1-10
    • Fraser, F.C.1
  • 11
    • 0029207141 scopus 로고
    • Disability and the transition to adulthood: Issues for the disabled child, the family and the pediatrician
    • Hallum, A. (1995). Disability and the transition to adulthood: issues for the disabled child, the family and the pediatrician. Curr. Probl. Pediatr, 25(1), 12-50.
    • (1995) Curr. Probl. Pediatr , vol.25 , Issue.1 , pp. 12-50
    • Hallum, A.1
  • 12
    • 0033200514 scopus 로고    scopus 로고
    • Transitioning adolescents with sickle cell disease to adult-centered care
    • Hauser, E. S., & Dorn, L. (1999). Transitioning adolescents with sickle cell disease to adult-centered care. Pediatr. Nurs, 25(5), 479-488.
    • (1999) Pediatr. Nurs , vol.25 , Issue.5 , pp. 479-488
    • Hauser, E.S.1    Dorn, L.2
  • 14
    • 0030868986 scopus 로고    scopus 로고
    • Psychological aspects of genetic counseling. XI. Nondirectiveness revisited
    • Kessler, S. (1997). Psychological aspects of genetic counseling. XI. Nondirectiveness revisited. Am. J. Med. Genet, 72(2), 164-171.
    • (1997) Am. J. Med. Genet , vol.72 , Issue.2 , pp. 164-171
    • Kessler, S.1
  • 15
    • 0034236427 scopus 로고    scopus 로고
    • Supporting development of children with chronic conditions: From compliance toward shared management
    • Kieckhefer, G. M., & Trahms, C. M. (2000). Supporting development of children with chronic conditions: from compliance toward shared management. Pediatr. Nurs, 26(4), 354-363.
    • (2000) Pediatr. Nurs , vol.26 , Issue.4 , pp. 354-363
    • Kieckhefer, G.M.1    Trahms, C.M.2
  • 16
    • 0036182447 scopus 로고    scopus 로고
    • Delivering quality care: Adolescents' discussion of health risks with their providers
    • Klein, J. D., & Wilson, K. M. (2002). Delivering quality care: adolescents' discussion of health risks with their providers. J. Adolesc. Health, 30, 190-195.
    • (2002) J. Adolesc. Health , vol.30 , pp. 190-195
    • Klein, J.D.1    Wilson, K.M.2
  • 17
    • 0141957349 scopus 로고    scopus 로고
    • Patient education: Perspective of adolescents with a chronic disease
    • Kyngas, H. (2003). Patient education: perspective of adolescents with a chronic disease. J. Clin. Nurs, 12, 744-751.
    • (2003) J. Clin. Nurs , vol.12 , pp. 744-751
    • Kyngas, H.1
  • 18
    • 0000394169 scopus 로고    scopus 로고
    • Genetic counseling for pregnant adolescents
    • Peters-Brown, T., & Fry-Mehltretter, L. (1996). Genetic counseling for pregnant adolescents. J. Genet. Couns, 5(4), 155-168.
    • (1996) J. Genet. Couns , vol.5 , Issue.4 , pp. 155-168
    • Peters-Brown, T.1    Fry-Mehltretter, L.2
  • 19
    • 0027259092 scopus 로고
    • Issues unique to psychotherapy with adolescent girls
    • Ponton, L. (1993). Issues unique to psychotherapy with adolescent girls. Am. J. Psychother, 47(3), 353-372.
    • (1993) Am. J. Psychother , vol.47 , Issue.3 , pp. 353-372
    • Ponton, L.1
  • 20
    • 0036897604 scopus 로고    scopus 로고
    • Health care transition: Destinations unknown
    • Reiss, J., & Gibson, R. (2002). Health care transition: destinations unknown. Pediatrics, 110(6), 1307-1314.
    • (2002) Pediatrics , vol.110 , Issue.6 , pp. 1307-1314
    • Reiss, J.1    Gibson, R.2
  • 21
    • 1542603726 scopus 로고    scopus 로고
    • Transition to adult health care for adolescents and young adults with chronic conditions. Position paper of the society for adolescent medicine
    • Rosen, D. S., Blum, R. W., Britto, M., Sawyer, S. M., & Siegel, D. M. (2003). Transition to adult health care for adolescents and young adults with chronic conditions. Position paper of the society for adolescent medicine. J. Adolesc. Health, 33, 309-311.
    • (2003) J. Adolesc. Health , vol.33 , pp. 309-311
    • Rosen, D.S.1    Blum, R.W.2    Britto, M.3    Sawyer, S.M.4    Siegel, D.M.5
  • 23
    • 0026846506 scopus 로고
    • Counseling adolescents with congenital heart disease
    • Uzark, K. (1992). Counseling adolescents with congenital heart disease. J. Cardiovasc. Nurs, 6(3), 65-73.
    • (1992) J. Cardiovasc. Nurs , vol.6 , Issue.3 , pp. 65-73
    • Uzark, K.1
  • 24
    • 0003740922 scopus 로고    scopus 로고
    • New York: Oxford University Press
    • Weil, J. (2000). Psychosocial genetic counseling (pp. 199-211).New York: Oxford University Press.
    • (2000) Psychosocial genetic counseling , pp. 199-211
    • Weil, J.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.