-
1
-
-
33846170870
-
Children's competence to consent to medical treatment
-
Alderson, P., Sutcliffe, K., & Curtis, K. (2006). 'Children's competence to consent to medical treatment,' Hastings Center Report, 36, 625-34.
-
(2006)
Hastings Center Report
, vol.36
, pp. 625-634
-
-
Alderson, P.1
Sutcliffe, K.2
Curtis, K.3
-
2
-
-
0038624107
-
-
American Academy of Pediatrics, Committee on Bioethics. (2005). Nelson, R. M., Botkjin, J. R., Kodish, E. D. et al. (Eds.) 'Ethical issues with genetic testing in pediatrics,' Pediatric,s 107(6), 1451-5. Policy statement issued May 1, 2005.
-
American Academy of Pediatrics, Committee on Bioethics. (2005). Nelson, R. M., Botkjin, J. R., Kodish, E. D. et al. (Eds.) 'Ethical issues with genetic testing in pediatrics,' Pediatric,s 107(6), 1451-5. Policy statement issued May 1, 2005.
-
-
-
-
3
-
-
0035089993
-
Genetic testing for late-onset Alzheimer's Disease
-
American Geriatric Society Ethics Committee
-
American Geriatric Society Ethics Committee. (2001). 'Genetic testing for late-onset Alzheimer's Disease,' Journal of the American Geriatric Society, 49, 225-226.
-
(2001)
Journal of the American Geriatric Society, 49
, pp. 225-226
-
-
-
4
-
-
34548093603
-
-
American Medical Association. (1995). CEJM Report 4-A-95: Testing Children for Genetic Status [On-line]. Available: http://www.ama-assn.org/ ama1/pub/upload/mm/369/ceja_4a95.pdf, Accessed July 16, 2007.
-
American Medical Association. (1995). CEJM Report 4-A-95: Testing Children for Genetic Status [On-line]. Available: http://www.ama-assn.org/ ama1/pub/upload/mm/369/ceja_4a95.pdf, Accessed July 16, 2007.
-
-
-
-
5
-
-
0035797540
-
The limits of state law to protect genetic information
-
Annas, G. J. (2001). 'The limits of state law to protect genetic information.,' New England Journal of Medicine, 345, 385-388.
-
(2001)
New England Journal of Medicine
, vol.345
, pp. 385-388
-
-
Annas, G.J.1
-
7
-
-
33749473075
-
Presymptomatic and predictive genetic testing in minors: A systematic review of guidelines and position papers
-
Borry, P., & Stultiens, L., Nys, H., Cassiman, J-J. Dieriokx, K. (2006). 'Presymptomatic and predictive genetic testing in minors: A systematic review of guidelines and position papers,' Clinical Genetics, 70(5), 374-81.
-
(2006)
Clinical Genetics
, vol.70
, Issue.5
, pp. 374-381
-
-
Borry, P.1
Stultiens, L.2
Nys, H.3
Cassiman, J.-J.4
Dieriokx, K.5
-
8
-
-
0037222942
-
Guidelines for genetic testing of healthy children
-
Canadian Pediatrics Society, Bioethics Committee
-
Canadian Pediatrics Society, Bioethics Committee. (2003). 'Guidelines for genetic testing of healthy children,' Pediatric & Child Health, 8(1), 42-45.
-
(2003)
Pediatric & Child Health
, vol.8
, Issue.1
, pp. 42-45
-
-
-
9
-
-
0026514822
-
Canadian experience with predictive testing for Huntington disease: Lessons for genetic testing centers and policy makers
-
Chapman, M. A. (1992). 'Canadian experience with predictive testing for Huntington disease: lessons for genetic testing centers and policy makers,' American Journal of Medical Genetics, 42(4), 491-8.
-
(1992)
American Journal of Medical Genetics
, vol.42
, Issue.4
, pp. 491-498
-
-
Chapman, M.A.1
-
10
-
-
0032085733
-
Wrestling with the future: Should we test children for adult-onset genetic conditions?
-
Cohen, C. B. (1998). 'Wrestling with the future: should we test children for adult-onset genetic conditions?.' Kennedy Institute of Ethics Journal, 8(2), 111-130.
-
(1998)
Kennedy Institute of Ethics Journal
, vol.8
, Issue.2
, pp. 111-130
-
-
Cohen, C.B.1
-
11
-
-
0037279620
-
To test or not to test: Interest in genetic testing for Alzheimer's disease among middle-aged adults
-
Cutler, S. J., & Hodgson, L. G. (2003). 'To test or not to test: Interest in genetic testing for Alzheimer's disease among middle-aged adults,' American Journal of Alzheimer's Disease and Other Dementias, 18(1), 9-20.
-
(2003)
American Journal of Alzheimer's Disease and Other Dementias
, vol.18
, Issue.1
, pp. 9-20
-
-
Cutler, S.J.1
Hodgson, L.G.2
-
12
-
-
0031087198
-
Genetic dilemmas and the child's right to an open future
-
Davis, D. (1997). 'Genetic dilemmas and the child's right to an open future, ' Hastings Center Report, 27, 7-25.
-
(1997)
Hastings Center Report
, vol.27
, pp. 7-25
-
-
Davis, D.1
-
13
-
-
23744498197
-
-
Duncan, R. E., Savulescu, J., Gillam, L., Williamson, R., & Delatycki, M. B. (2005). 'An international survey of predictive genetic testing in children for adult onset conditions,' Genetics in Medicine, 7(6), 390-6.
-
Duncan, R. E., Savulescu, J., Gillam, L., Williamson, R., & Delatycki, M. B. (2005). 'An international survey of predictive genetic testing in children for adult onset conditions,' Genetics in Medicine, 7(6), 390-6.
-
-
-
-
14
-
-
33644850253
-
Predictive genetic testing in young people for adult-onset conditions: Where is the empirical evidence?
-
Duncan, R. E., & Delatycki, M. B. (2006). 'Predictive genetic testing in young people for adult-onset conditions: where is the empirical evidence?' Clinical Genetics, 69, 8-16.
-
(2006)
Clinical Genetics
, vol.69
, pp. 8-16
-
-
Duncan, R.E.1
Delatycki, M.B.2
-
15
-
-
0002058978
-
The child's right to an open future
-
W. Aiken & H. LaFollette Eds, Totowa, NJ: Littlefield Adams
-
Feinberg, J. (1980). The child's right to an open future. In: W. Aiken & H. LaFollette (Eds.) Whose Child? Children's rights,, parental authority, and state power (pp. 124-153). Totowa, NJ: Littlefield Adams.
-
(1980)
Whose Child? Children's rights, parental authority, and state power
, pp. 124-153
-
-
Feinberg, J.1
-
16
-
-
33750607434
-
The routinisation of genomics and genetics: Implications for ethical practices
-
Foster, M. W., Royal, C. D., & Sharp, R. R. (2006). 'The routinisation of genomics and genetics: implications for ethical practices, ' Journal of Medical Ethics, 32(11), 635-8.
-
(2006)
Journal of Medical Ethics
, vol.32
, Issue.11
, pp. 635-638
-
-
Foster, M.W.1
Royal, C.D.2
Sharp, R.R.3
-
17
-
-
0033803705
-
Inappropriate genetic testing of children
-
Fryer, A. (2000). 'Inappropriate genetic testing of children,' Archives of Disease in Childhood, 83, 283-285.
-
(2000)
Archives of Disease in Childhood
, vol.83
, pp. 283-285
-
-
Fryer, A.1
-
18
-
-
33644778482
-
Ethical issues in predictive genetic testing: A public health perspective
-
Fulda, K. G., & Lykens, K. (2006). 'Ethical issues in predictive genetic testing: a public health perspective,'. Journal of Medical Ethics, 32(3), 143-7.
-
(2006)
Journal of Medical Ethics
, vol.32
, Issue.3
, pp. 143-147
-
-
Fulda, K.G.1
Lykens, K.2
-
20
-
-
0037387855
-
Genetic exceptionalism in medicine: Clarifying the differences between genetic and non-genetic tests
-
Green, M. J., & Botkin, J. R. (2003). 'Genetic exceptionalism in medicine: Clarifying the differences between genetic and non-genetic tests,' Annals of Internal Medicine, 138 (7), 571-5.
-
(2003)
Annals of Internal Medicine
, vol.138
, Issue.7
, pp. 571-575
-
-
Green, M.J.1
Botkin, J.R.2
-
21
-
-
34548088995
-
-
Grimes v. Kennedy Krieger Institute, Inc. 782 A. 2d 807, 366 Md. 29 (Court of Appeals of Maryland, 2001).
-
Grimes v. Kennedy Krieger Institute, Inc. 782 A. 2d 807, 366 Md. 29 (Court of Appeals of Maryland, 2001).
-
-
-
-
23
-
-
34548098200
-
-
The Huntington's Disease Society of American, On-line, Available:, Accessed July 16
-
The Huntington's Disease Society of American. (1996). " Genetic Testing for Huntington's Disease [On-line]. Available: http://www.hdsa.org/site/ PageServer?pagename=help_info_ed_faq, Accessed July 16, 2007.
-
(1996)
Genetic Testing for Huntington's Disease
-
-
-
24
-
-
3042558817
-
-
Institute of Medicine of the National Academics, Washington DC: The National Academics Press
-
Institute of Medicine of the National Academics. (2004). Ethical Conduct of Clinical Research Involving Children. Washington DC: The National Academics Press.
-
(2004)
Ethical Conduct of Clinical Research Involving Children
-
-
-
25
-
-
34447136074
-
The ethics of genetic testing: Is more always better?
-
King, N. (2007). 'The ethics of genetic testing: Is more always better?,' North Carolina Medical Journal, 68, 112-114.
-
(2007)
North Carolina Medical Journal
, vol.68
, pp. 112-114
-
-
King, N.1
-
26
-
-
0031158249
-
The best interest standard as threshold, ideal and standard of reasonableness
-
Kopelman, L. M. (1997). 'The best interest standard as threshold, ideal and standard of reasonableness,' Journal of Medicine and Philosophy, 22, 271-289.
-
(1997)
Journal of Medicine and Philosophy
, vol.22
, pp. 271-289
-
-
Kopelman, L.M.1
-
27
-
-
0036519078
-
Pediatric research regulations under legal scrutiny: Grimes narrows their interpretation
-
Kopelman, L. M. (2002). 'Pediatric research regulations under legal scrutiny: Grimes narrows their interpretation,' Journal of Law, Medicine & Ethics, 30, 38-49.
-
(2002)
Journal of Law, Medicine & Ethics
, vol.30
, pp. 38-49
-
-
Kopelman, L.M.1
-
28
-
-
23744462884
-
Rejecting the 'Baby Doe' regulations and defending a 'negative' analysis of the best interests standard
-
Kopelman, L. M. (2005). 'Rejecting the 'Baby Doe' regulations and defending a 'negative' analysis of the best interests standard,' Journal of Medicine and Philosophy, 30, 346.
-
(2005)
Journal of Medicine and Philosophy
, vol.30
, pp. 346
-
-
Kopelman, L.M.1
-
29
-
-
33847390712
-
The best interests standard for incompetent or incapacitated persons of all ages
-
Kopelman, L. M. (2007). 'The best interests standard for incompetent or incapacitated persons of all ages, ' The Journal of Law, Medicine and Ethics, 35, 187-196.
-
(2007)
The Journal of Law, Medicine and Ethics
, vol.35
, pp. 187-196
-
-
Kopelman, L.M.1
-
30
-
-
34548067488
-
Using a new analysis of the best interests standard to address cultural disputes: Whose data, which values?
-
January forthcoming
-
Kopelman, L. M., & Kopelman, A. E. (2008). 'Using a new analysis of the best interests standard to address cultural disputes: Whose data, which values?' Theoretical Medicine and Biology, January forthcoming.
-
(2008)
Theoretical Medicine and Biology
-
-
Kopelman, L.M.1
Kopelman, A.E.2
-
32
-
-
15844404355
-
BRCA1 testing in families with hereditary breast-ovarian cancer. A prospective study of patient decision making and outcomes
-
Lerman, C., Narod, S., Schulman, K., Hughes, C., Gomez-Caminero, A., Bonney, G., Gold, K., Trock, B., Main, D., Lynch, J., Fulmore, C., Snyder, C., Lemon, S. J., Conway, T., Tonin, P., Lenoir, G., & Lynch, H. (1996). 'BRCA1 testing in families with hereditary breast-ovarian cancer. A prospective study of patient decision making and outcomes,' Journal of the American Medical Association, 275(24), 1885-92.
-
(1996)
Journal of the American Medical Association
, vol.275
, Issue.24
, pp. 1885-1892
-
-
Lerman, C.1
Narod, S.2
Schulman, K.3
Hughes, C.4
Gomez-Caminero, A.5
Bonney, G.6
Gold, K.7
Trock, B.8
Main, D.9
Lynch, J.10
Fulmore, C.11
Snyder, C.12
Lemon, S.J.13
Conway, T.14
Tonin, P.15
Lenoir, G.16
Lynch, H.17
-
33
-
-
34548070065
-
Guidelines for genetic testing
-
On-line, Available:, Accessed July 16
-
Matsuda, I., Niikawa, N., Sato, K., et al. (2000). Guidelines for genetic testing. Japan Society of Human Genetics, Council Committee of Ethics [On-line]. Available: http://jshg.jp/introduction/notifications/20001100e.htm, Accessed July 16, 2007.
-
(2000)
Japan Society of Human Genetics, Council Committee of Ethics
-
-
Matsuda, I.1
Niikawa, N.2
Sato, K.3
-
34
-
-
0033785340
-
Psychological impact of genetic testing for Huntington's disease: An update of the literature
-
Meiser, B., & Dunn, S. (2000). 'Psychological impact of genetic testing for Huntington's disease: an update of the literature,' Journal of Neurology, Neurosurgery and Psychiatry, 69, 574-78.
-
(2000)
Journal of Neurology, Neurosurgery and Psychiatry
, vol.69
, pp. 574-578
-
-
Meiser, B.1
Dunn, S.2
-
35
-
-
24644523736
-
Insurance, unfair discrimination, and genetic testing
-
Morrison, P. J. (2005). 'Insurance, unfair discrimination, and genetic testing,' The Lancet, 366, 877-880.
-
(2005)
The Lancet
, vol.366
, pp. 877-880
-
-
Morrison, P.J.1
-
36
-
-
33744830840
-
Genetic testing of children for adult-onset diseases: Is testing in the child's best interests?
-
Pelias, M. K. (2006). 'Genetic testing of children for adult-onset diseases: is testing in the child's best interests?' Mount Sinai Journal of Medicine, 73, 605-8.
-
(2006)
Mount Sinai Journal of Medicine
, vol.73
, pp. 605-608
-
-
Pelias, M.K.1
-
37
-
-
34548082902
-
-
President's Council on Bioethics. (2005). Taking Care: Ethical Care-Giving in Our Aging Society, presentation at The President's Council, Washington DC.
-
President's Council on Bioethics. (2005). Taking Care: Ethical Care-Giving in Our Aging Society, presentation at The President's Council, Washington DC.
-
-
-
-
38
-
-
33744812397
-
Why test children for adult-onset genetic diseases?
-
Rhodes, R. (2006). 'Why test children for adult-onset genetic diseases?,' Mount Sinai Journal of Medicine, 73(3), 609-16.
-
(2006)
Mount Sinai Journal of Medicine
, vol.73
, Issue.3
, pp. 609-616
-
-
Rhodes, R.1
-
39
-
-
33746911211
-
DNA testing, banking, and genetic privacy
-
Roche, P. A., & Annas, G. J. (2006) 'DNA testing, banking, and genetic privacy,' New England Journal of Medicine, 355, 545-546.
-
(2006)
New England Journal of Medicine
, vol.355
, pp. 545-546
-
-
Roche, P.A.1
Annas, G.J.2
-
40
-
-
34548072912
-
-
T.D. v. N.Y. State Office of Mental Health, 228 A.D.2d 95 (Court 1996).
-
T.D. v. N.Y. State Office of Mental Health, 228 A.D.2d 95 (Court 1996).
-
-
-
-
41
-
-
34548065008
-
-
United Nations. (1989). The Office of the High Commission for Human Rights. 'Convention on the Rights of the Child,' Adopted and opened for signature, ratification and accession by General Assembly resolution 44/25 of 20 November 1989, entry into force 2 September 1990, in accordance with article 49. http://www.unhchr.ch/html/menu3/b/k2crc.htm (Accessed January 23, 2007).
-
United Nations. (1989). The Office of the High Commission for Human Rights. 'Convention on the Rights of the Child,' Adopted and opened for signature, ratification and accession by General Assembly resolution 44/25 of 20 November 1989, entry into force 2 September 1990, in accordance with article 49. http://www.unhchr.ch/html/menu3/b/k2crc.htm (Accessed January 23, 2007).
-
-
-
-
42
-
-
0028132846
-
Genetic testing for children and adolescents: Who decides?
-
Wertz, D. C., Fanos, J. H., & Reilly, P. R. (1994). 'Genetic testing for children and adolescents: Who decides?' Journal of the American Medical Association, 272, 875-881.
-
(1994)
Journal of the American Medical Association
, vol.272
, pp. 875-881
-
-
Wertz, D.C.1
Fanos, J.H.2
Reilly, P.R.3
-
43
-
-
0030807885
-
Laboratory policies and practices for the genetic testing of children: A survey of the Helix network
-
Wertz, D. C., & Reilly, P. R. (1997). 'Laboratory policies and practices for the genetic testing of children: a survey of the Helix network,' American Journal of Human Genetics, 61, 1163-8.
-
(1997)
American Journal of Human Genetics
, vol.61
, pp. 1163-1168
-
-
Wertz, D.C.1
Reilly, P.R.2
|