Can I play? A concept analysis of participation in children with disabilities

Physical and Occupational Therapy in Pediatrics

Volumn 30, Issue 4, 2010, Pages 325-339

  Hoogsteen, Lindsey ^a   Woodgate, Roberta L ^a  

^a UNIVERSITY OF MANITOBA   (Canada)

Author keywords

children; Concept analysis; disability; participation; quality of life

Indexed keywords

ARTICLE; CHILD; HANDICAPPED CHILD; HUMAN; PATIENT PARTICIPATION; QUALITY OF LIFE; RECREATION; SOCIAL ENVIRONMENT;

CHILD; DISABLED CHILDREN; HUMANS; PATIENT PARTICIPATION; PLAY AND PLAYTHINGS; QUALITY OF LIFE; SOCIAL ENVIRONMENT;

EID: 77958065281     PISSN: 01942638     EISSN: 15413144     Source Type: Journal    
DOI: 10.3109/01942638.2010.481661     Document Type: Article

References (84)

1. Babcock, P. (Ed.). (2002). Webster's third international dictionary of the English language unabridged. Springfield, MA: Merriam-Webster.
2. Badham, B. (2004). Participation\for a change: Disabled young people lead the way. Children and Society, 18, 143-154.
3. Baum, C.M., & Christiansen, C.H. (2005). Person-environment- occupation-performance: An occupation-based framework for practice in Christiansen. In C.H. Baum & J.B. Bass-Haugen (Eds.), Occupational therapy: Performance, participation, and well-being. (3rd ed., pp. 243-266). Thorofare, NJ: SLACK.
4. Bedell, G.M. (2004). Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after discharge from inpatient rehabilitation. NeuroRehabilitation, 19, 191-205.
5. Bedell, G., & Coster, W. (2008). Measuring participation of school-aged children with traumatic brain injuries: Considerations and approaches. The Journal of Head Trauma Rehabilitation, 23(4), 220-229.
6. Brooke, J. (2008). My question box. Learning Disability Practice, 11(2), 30-34.
7. Brown, M., & Gordon, W.A. (1987). Impact of impairment on activity patterns of children. Archives of Physical Medicine and Rehabilitation, 68, 828-832.
8. Brownlea, A. (1987). Participation: Myths, realities and prognosis. Social Science and Medicine, 25(6), 605-614.
9. Cahill, C., & Hart, R.A. (2007). Re-thinking the boundaries of civic participation by children and youth in North America. Children, Youth and Environments, 17(2), 213-225.
10. Cardno Investments. (2007). Glossary. Cardno Acil Proprietary Limited. Retrieved September 26, 2008, from www.acil.com.au/glossary.htm.
11. Cardol, M., de Jong, B.A., & Ward, C.D. (2002). On autonomy and participation in rehabilitation. Disability and Rehabilitation, 24(18), 970-974.
12. Castro, E.P.P., Camacho, A.Z.V., Balanon, F.A.G., Ong, M.G., & Yacat, J.A. (2007). Walking the road together: Issues and challenges in facilitating children's participation in the Philippines. Children, Youth and Environments, 17(1), 105-122.
13. Chan, H.S.S., Lau, P.H.B., Fong, K.H., Poon, D., & Lam, C.C.C. (2005). Neuroimpairment, activ¬ity limitation, and participation restrictions among children with cerebral palsy in Hong Kong. Hong Kong Medical Journal, 11(5), 342-350.
14. Chapman, R.L. (1977). Roget's international thesaurus (4th ed.). New York, NY: Harper and Row.
15. Charles, C., & DeMaio, S. (1993). Lay participation in health care decision making: A conceptual framework. Journal of Health Politics, Policy and Law, 18(4), 927-935.
16. Chin, P.L., & Kramer, M.K. (1991). Theory and nursing: A systematic approach (3rd ed.). St. Louis, MO: Mosby Year Book.
17. Convention on the Rights of the Child. (1990). Retrieved September 20, 2008, from http://www2.ohchr.org/english/law/crc.htm.
18. Coster, W., & Khetani, M.A. (2008). Measuring participation of children with disabilities: Issues and challenges. Disability and Rehabilitation, 30(8), 639-648.
19. Dahl, T. (2002). International classification of functioning, disability and health: An introduction and discussion of its potential impact on rehabilitation services and research. Journal of Rehabilitation Medicine, 34, 201-204.
20. Davies, P.L., Soon, P.L., Young, M., & Clausen-Yamaki. (2004). Validity and reliability of the school function assessment in elementary school students with disabilities. Physical & Occupational Therapy in Pediatrics, 24(3), 23-43.
21. Disability Creation Process (DCP). (2006). Concept map. International Net¬work on the Disability Creation Process. Retrieved September 24, 2008, from http://www.ripph.qc.ca/?rub2=2&rub=6&lang=en).
22. Dumas, H.M., Haley, S.M., Fragala, M.A., & Steva, B.J. (2001). Self-care recovery of children with brain injury: Descriptive analysis using pediatric evaluation of disability inventory (PEDI) functional classification levels. Physical & Occupational Therapy in Pediatrics, 2(2/3), 7-27.
23. Dumas, H.M., Haley, S.M., & Rabin, J.P. (2001). Short-term durability and improvement of function in traumatic brain injury: A pilot study using the paediatric evaluation of disability inventory (PEDI) classification levels. Brain Injury, 15(10), 891-902.
24. Evans, R., & Spicer, N. (2008). Is participation prevention? A blurring of discourse in children's preventive initiatives in the UK. Childhood, 15(1), 50-73.
25. Farm Credit Administration. (2008). Glossary. Farm Credit Administration. Retrieved October 1, 2008, from http://www.fca.gov/info/glossary.html.
26. Forsyth, R., & Jarvis, S. (2002). Participation in childhood. Child: Care, Health and Development, 28(4), 277-279.
27. Garth, B., Murphy, G.C., & Reddihough, D.S. (2009). Perceptions of participation: Child patients with a disability in the doctor-parent-child partnership. Patient Education and Counseling, 74(1), 45-52.
28. Gates, P.E., Otsuka, N.Y., Sanders, J.O., & McGee-Brown, J. (2008). Relationship between parental PODCI questionnaire and school function assessment in measuring performance in children with CP. Developmental Medicine and Child Neurology, 50, 690-695.
29. Harding, J., Harding, K., Jamieson, P., Mullally, M., Politi, C., Wong-Sing, E., et al. (2009). Children with disabilities' perception of activity participation and environments: A pilot study. Canadian Journal of Occupational Therapy, 76(3), 133-144.
30. Hart, R.A. (1992). Children's participation: From tokenism to citizenship. UNICEF International Child Development Centre. Florence, Italy: Spedale degli Innocenti.
31. Heah, T., Case, T., McGuire, B., & Law, M. (2007). Successful participation: The lived experience among children with disabilities. Canadian Journal of Occupational Therapy, 71(1), 38-47.
32. Holden, C., & Clough, N. (Eds.). (1998). Children as citizens: Education for participation. London: Jessica Kingsley.
33. Hupcey, J.E., Morse, J.M., Lenz, E.R., & Tasón, M.C. (1996). Wilsonian methods of concept analysis: A critique. Scholarly Inquiry for Nursing Practice, 10(3), 185-210.
34. ICF International Classification of Functioning, Disability and Health.(2001). Geneva: World Health Organization.
35. Imms, C., Reilly, S., Carlin, J., & Dodd, K. (2008). Diversity of participation in children with cerebral palsy. Developmental Medicine and Child Neurology, 50, 363-369.
36. Jette, A.M., Haley, S.M., & Kooyoomijian, J.T. (2003). Are the ICF activity and participation dimen¬sions distinct? Journal of Rehabilitation Medicine, 35, 145-149.
37. Kielhofner, G. (2002). Model of human occupation: Theory and application (3rd ed.). Baltimore, MD: Lippincott Williams & Wilkins.
38. King, G., Law, M., King, S., Hurley, P., Hanna, S., Kertoy, M., et al. (2004). Children's assessment of participation and enjoyment (CAPE) and preferences for activities of children (PAC). San Antonio, TX: Harcourt Assessment.
39. King, G.A., Law, M., King, S., Hurley, P., Hanna, S., Kertoy, M., et al. (2006). Measuring children's participation in recreation and leisure activities: Construct validation of the CAPE and PAC. Child: Care, Health and Development, 33(1), 28-39.
40. King, G., Law, M., King, S., Rosenbaum, P., Kertoy, M.K., & Young, N.L. (2003). A conceptual model of the factors affecting the recreation and leisure participation of children with disabilities. Physical & Occupational Therapy in Pediatrics, 23(1), 63-89.
41. King, G., Tucker, M.A., Baldwin, P., Lowry, K., LaPorta, J., & Martens, L. (2002). A life needs model of pediatric service delivery: Services to support community participation and quality of life for children and youth with disabilities. Physical & Occupational Therapy in Pediatrics, 22(2), 53-77.
42. Kirkcaldy, B.D., Shephard R.J., & Siefen, R.G. (2002). The relationship between physical activity and self-image and problem behaviour among adolescents. Social Psychiatry and Psychiatric Epidemiology, 37, 544-550.
43. Kothari, D.H., Haley, S.M., Gill-Body, K.M., & Dumas, H.M. (2003). Measuring functional change in children with acquired brain injury (ABI): Comparison of generic and ABI-specific scales using the pediatric evaluation of disability inventory (PEDI). Physical Therapy, 83(9), 776-785.
44. Law, M. (2002). Participation in the occupations of everyday life. The American Journal of Occupa¬tional Therapy, 56(6), 640-649.
45. Law, M., Cooper, B., Strong, S., Stewart, D., Rigby, P., & Letts, L. (1996). The Person-Environment-Occupation Model: A transactive approach to occupation performance. Canadian Journal of Occupational Therapy, 63(1), 9-23.
46. Law, M., Dunn, W., & Baum, C.M. (2005). Measuring participation. In M. Law, C.M. Baum, & W. Dunn (Eds.), Measuring occupational performance: Supporting best practice in occupational therapy (2nd ed., pp. 107-128). Thorofare, NJ: SLACK.
47. Law, M., Finkelman, S., Hurley, P., Rosenbaum, P., King, S., & King, G., et al. (2004). Participa¬tion in children with physical disabilities: Relationships with diagnosis, physical function, and demographic variables. Scandinavian Journal of Occupational Therapy, 11, 156-162.
48. Law, M., King, G., King, S., Kertoy, M., Hurley, P., Rosenbaum, P., et al. (2006). Patterns of participation in recreation and leisure activities among children with complex physical disabilities. Developmental Medicine and Child Neurology, 48, 337-342.
49. Law, M., Petrenchik, T., King, G., & Hurley, P. (2007). Perceived environmental barriers to recre¬ational, community, and social participation for children and youth with physical disabilities. Archives of Physical Medicine and Rehabilitation, 88, 1636-1642.
50. Lepage, C., Noreau, L., & Bernard, P. (1998). Association between characteristics of locomotion and accomplishment of life habits in children with cerebral palsy. Physical Therapy, 78(5), 458-469.
51. Lepage, C., Noreau, L., Bernard, P., & Fougeyrollas, P. (1998). Profile of handicap situations in children with cerebral palsy. Scandinavian Journal of Rehabilitation Medicine, 30, 263-272.
52. Leyin, A. (2008). Social inclusion: Ten years on. Learning Disability Review, 13(1), 10-17.
53. D Mandzuk, L.L., & McMillan, D.E. (2005). A concept analysis of quality of life. Journal of Orthopaedic Nursing, 9(1), 12-18.
54. McConachie, H., Colver, A.F., Forsyth, R.J., Jarvis, S.N., & Parkinson, K.N. (2006). Participation of disabled children: How should it be characterized and measured? Disability and Rehabilitation, 28(18), 1157-1164.
55. Meleis, A.I. (1997). Theoretical nursing: Development and progress. Philadelphia: Lippincott Williams & Wilkins.
56. Morris, C. (2007). Measuring children's participation. Developmental Medicine and Child Neurology, 49(9), 645.
57. Morris, C., Kurinczuk, J.J., Fitzpatrick, R., & Rosenbaum, P.L. (2006). Do the abilities of children with cerebral palsy explain their activities and participation? Developmental Medicine and Child Neurology, 48(12), 954-961.
58. Morse, J.M. (1995). Exploring the theoretical basis of nursing using advanced techniques of concept analysis. Advanced in Nursing Science, 17(3), 31-46.
59. Morse, J.M., Hupcey, J.E., Mitcham, C., & Lenz, E.R. (1996). Concept analysis in nursing research: A critical appraisal. Scholarly Inquiry for Nursing Practice, 10(3), 253-277.
60. Motto, M.J. (2002). An advertising glossary. Michael J. Motto Advertising and Public Relations. Retrieved September 24, 2008, from http://www.motto.com/ glossary.html.
61. Muller, M.S., Lyer, A., Keita, M., Sacko, B., & Traore, D. (2002). Differing interpretations of community participation in waste management in Bamako and Bangalore: Some methodical considerations. Environment and Urbanization, 14(2), 241-258.
62. Murphy, N.A., Carbone, P.S., & the Council on Children with Disabilities. (2008). Promoting the participation of children with disabilities in sports, recreation, and physical activities. Pediatrics, 121(5), 1057-1061.
63. Noreau, L., Lepage, C., Boissiere, L., Picard, R., Fougeyrollas, P., Mathieu, et al. (2007). Measuring participation in children with disabilities using the assessment of life habits. Development Medicine and Child Neurology, 49, 666-671.
64. Paley, J. (1996). How not to clarify concepts in nursing. Journal of Advanced Nursing, 24, 572-578.
65. Perenboom, R.J.M., & Chorus, A.M.J. (2003). Measuring participation according to the international classification of functioning, disability and health (ICF). Disability and Rehabilitation, 25(11), 577-587.
66. Reynolds, S. (2006). Get in the game! Participation in sports for children on the autism spectrum. Occupational Therapy Practice, 11(20), 13-17.
67. Richardson, A. (1983). Participation (Concepts in Social Policy). Padstow, Cornwall: T.J. Press.
68. Ridley, R.T. (2007). Interactive teaching: A concept analysis. The Journal of Nursing Education, 46(5), 203-209.
69. Rietbergen-McCracken, J., Narayan-Parker, D., & Narayan, D. (1998). Participation and social assessment: Tools and techniques. Washington, DC: World Bank Publications.
70. Rodgers, B.L. (1989). Concepts, analysis, and the development of nursing knowledge. Journal of Advanced Nursing, 14(4), 330-335.
71. Rosenbaum, P., Jaffer, S., Russell, D., Law, M., King, S. Hanna, S., et al. (2005). Measuring outcomes for children with complex needs and their families: A report for the Ontario Ministry of children and youth services. Hamilton, Ontario: McMaster University, CanChild Centre for Childhood Disability Research.
72. Simeonsson, R.J., Carlson, D., Huntington, G.S., McMillen, J.S., & Brent, J.L. (2001). Students with disabilities: A national survey of participation in school activities. Disability and Rehabilitation, 23(2), 49-63.
73. Simeonsson, R.J., Leonardi, M., Bjorck-Akesson, E., Hollenweger, J., Lollar, D., Martinuzzi, A., et al. (2006). ICF-YC: A universal tool for practice policy and research (P 107). Tunis, Tunisia: World Health Organization.
74. Steptoe, A., & Butler, N. (1996). Sports participation and emotional wellbeing in adolescents. The Lancet, 347, 1789-1792.
75. The World Bank Group. (2008). Participation at project, program and policy level. The World Bank Group. Retrieved October 1, 2008, from: http://go.worldbank.org/1S57LH08E0.
76. Turner, J., Muller, L., & Verma, S.K. (2003). Defining participation in defined contribution pension plans. Monthly Labor Review, 128(8), 36-43.
77. Ueda, S., & Okawa, Y. (2003). The subjective dimension of functioning and disability: What is it and what is it for? Disability and Rehabilitation, 25(11-12), 596-601.
78. Ü stün, T.B. (Ed.). (1999). ICIDH-2 International classification of functioning and disability, Beta-2 draft. Geneva: World Health Organization.
79. Vedeld, T. (2001). Participation in project preparation: Lessons from World Bank-assisted projects in India. Washington, DC: World Bank Publications.
80. Wai, E.K., Owen, J., Fehlings, D., Darcy, M.D., & Wright, J.G. (2000). Assessing physical disability in children with spina bifida and scoliosis. Journal of Pediatric Orthopaedics, 20(6), 765-770.
81. Walker, L., & Avant, K. (2005). Concept analysis. In L. Walker & K. Avant (Eds.), Strategies for theory construction in nursing (4th ed., pp. 63-84). Norwalk, CT: Appleton & Lange.
82. Weaver, K., & Mitcham, C. (2008). Nursing concept analysis in North America: State of the art. Nursing Philosophy, 9, 180-194.
83. Xyrichis, A., & Ream, E. (2007). Teamwork: A concept analysis. Journal of Advanced Nursing, 61(2), 232-241.
84. Young, N.L., Williams, J.I., Yoshida, K.K., & Wright, J.G. (2000). Measurement properties of the activities scale for kids. Journal of Clinical Epidemiology, 53, 125-137.