Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after discharge from inpatient rehabilitation

NeuroRehabilitation

Volumn 19, Issue 3, 2004, Pages 191-205

  Bedell, Gary M ^a  

^a TUFTS UNIVERSITY   (United States)

Author keywords

International Classification of Functioning; Outcome measurement; Pediatric rehabilitation

Indexed keywords

ADOLESCENT; ADULT; AGE; ANALYSIS; BRAIN INJURY; CHILD; CHILD AND ADOLESCENT SCALE OF PARTICIPATION; CHILD AND FAMILY FOLLOW UP SURVEY; CHILDHOOD INJURY; CLASSIFICATION; COMMUNITY CARE; CRITERION RELATED VALIDITY; ENVIRONMENTAL FACTOR; EXPLORATORY FACTOR ANALYSIS; FAMILY; FEMALE; FOLLOW UP; FUNCTIONAL ASSESSMENT; HEALTH CARE NEED; HEALTH SURVEY; HOME CARE; HOSPITAL DISCHARGE; HUMAN; INFANT; INTERNAL CONSISTENCY; INTERNATIONAL CLASSIFICATION OF FUNCTIONING; MALE; MEASUREMENT; MONITORING; NORMAL HUMAN; OUTCOMES RESEARCH; PARAMETER; PHYSICAL ACTIVITY; RASCH ANALYSIS; REHABILITATION CENTER; REHABILITATION MEDICINE; RELIABILITY; REVIEW; SCHOOL; SOCIAL BEHAVIOR; UNITED STATES;

EID: 4944244443     PISSN: 10538135     EISSN: None     Source Type: Journal    
DOI: 10.3233/nre-2004-19303     Document Type: Review

References (48)

1. G.M. Bedell and H.M. Dumas, Social participation of children and youth with acquired brain injuries discharged from inpatient rehabilitation: A follow-up study, Brain Injury 18 (2004), 65-82.
2. G. M. Bedell, S.M. Haley, W.J. Coster and K. Smith, Participation readiness at discharge from inpatient rehabilitation in children and adolescents with acquired brain injuries, Pediatric Rehabilitation 5 (2002), 107-116.
3. World Health Organization, International Classification of Functioning, Disability and Health (ICF; Final Version), Author, Geneva, 2002.
4. E.E. Werner, High risk children in young adulthood: a longitudinal study from birth to 32 years, American Journal of Orthopsychiatry 59 (1989), 72-81.
5. M. Law, Participation in the occupations of everyday life, American Journal of Occupational Therapy 56 (2002), 640-649.
6. P.W. Newacheck and N. Halfon, Prevalence and impact of disabling chronic conditions in childhood, American Journal of Public Health 88 (1998), 610-617.
7. G. King, M. Law, S. King, P. Rosenbaum, M.K. Kertoy and N. Young, Conceptual model of the factors affecting recreation and leisure participation of children with disabilities, Physical and Occupational Therapy in Pediatrics 23 (2003), 63-90.
8. M. Law, M. Haight, B. Milroy, D. Willms, D. Stewart and P. Rosenbaum, Environmental factors affecting the occupations of children with physical disabilities, Journal of Occupational Science 6 (1999), 102-110.
9. T.C. Edwards, D.L. Patrick and T.D. Topolski, Quality of life of adolescents with perceived disabilities, Journal of Pediatric Psychology 28 (2003), 233-241.
10. M.C. Mancini, W.J. Coster, C.A. Trombly and T.C. Heeren, Predicting elementary school participation in children with disabilities, Archives of Physical Medicine and Rehabilitation 81 (2000); 339-346.
11. S.A. Meijer, G. Sinnema, J.O. Bijstra, G.J. Mellenbergh and W.H.G. Wolters, Social functioning in children with a chronic illness, Journal of Child Psychology and Psychiatry 41 (2000), 309-317.
12. M. Brown and W.A. Gordon, Impact of impairment on activity patterns of children, Archives of Physical Medicine & Rehabilitation 68 (1987), 828-832.
13. R.J. Simeonsson, D. Carlson, G.S. Huntington, J.S. McMillen and J.L. Brent, Students with disabilities: a national survey of participation in school activities, Disability & Rehabilitation 23 (2001), 49-63.
14. Craig Hospital Research Department, Craig Hospital Inventory of Environmental Factors (CHIEF) Manual, Draft Version 2.0, Author, Englewood, CO, 2000.
15. P. Fougeyrollas, Documenting environmental factors for preventing the handicap creation process: Quebec contributions relating to ICIDH and social participation of people with functional differences, Disability and Rehabilitation 17 (1995), 145-153.
16. J. Rivara, K.M. Jaffe, N.L. Polissar, G. Fay, K. Martin, H. Shurtleff and S. Liao, Family functioning and children's academic performance and behavior problems in the year following traumatic brain injury, Archives of Physical Medicine & Rehabilitation 75 (1994), 369-379.
17. K.O. Yeates, H.G. Taylor, D. Drotar, S.L. Wade, S. Klein, T. Stancin and C. Schatschneider, Pre-injury family environment as a determinant of recovery from traumatic brain injuries in school-age children, Journal of the International Neuropsychological Society 3 (1997), 617-630.
18. H.G. Taylor, K.O. Yeates, S.L. Wade, D. Drotar, T. Stancin and C. Burant, Bidirectional child-family influences on outcomes of traumatic brain injury in children, Journal of the International Neuropsychological Society 7 (2001), 755-767.
19. H.G. Taylor and J. Alden, Age-related differences in outcomes following childhood brain insults: an introduction and overview, Journal of the International Neuropsychological Society 3 (1997), 555-567.
20. K.M. Jaffe, N.L. Polissar, G.C. Fay and S. Liao, Recovery trends over three years following pediatric traumatic brain injury, Archives of Physical Medicine & Rehabilitation 6 (1995), 17-26.
21. C.T. Barry, H.G. Taylor, S. Klein and K. Yeates, Validity of neurobehavioral symptoms reported in children with traumatic brain injury, Child Neuropsychology 2 (1996), 213-226.
22. K.O. Yeates, H.G. Taylor, C.T. Barry, D. Drotar and S.L. Wade, Neurobehavioral symptoms in childhood closed-head injuries: Changes in prevalence and correlates during the first year postinjury, Journal of Pediatric Psychology 26 (2001), 79-91.
23. U.S. Department of Health and Human Services, Healthy People 2010, conference edition, Author, Washington DC, 2000.
24. C. Di Scala, S. Osberg, B.M. Gans, L.J. Chin and C.C. Grant, Children with traumatic head injury: morbidity and postacute treatment, Archives of Physical Medicine & Rehabilitation 72 (1991), 662-666.
25. C. Brooks, B. Gabella, R. Hoffman, D. Sosin and G. Whiteneck, Traumatic Brain Injury: Designing and implementing a population-based follow-up system, Archives of Physical Medicine & Rehabilitation 78 (1997), S26-S30.
26. C. Harrison-Felix, C. Newton, K. Hall and J. Kreutzer, Descriptive findings from the Traumatic Brain Injury Model systems Database, Journal of Head Trauma & Rehabilitation 11 (1997), 1-12.
27. Centers for Disease Control and Prevention, Traumatic brain injury in the United States: Assessing outcomes in children, Author, Atlanta, 2000.
28. G.G. Whiteneck, S.W. Charlifue, K.A. Gerhart, J.D. Overhosler and G.N. Richardson, Quantifying handicap: a new measure of long-term rehabilitation outcomes, Archives of Physical Medicine Rehabilitation 73 (1992), 519-526.
29. M. Dijkers, Measuring the long term outcomes of traumatic brain injury; a review of Community Integration Questionnaire studies, Journal of Head Trauma Rehabilitation 12 (1997), 74-91.
30. D. Lansky, Overview: Performance Measures: The next generation, Joint Commission Journal on Quality Improvement 22 (1996), 439-442.
31. G.M. Bedell, S.M. Haley, W.J. Coster and K. Smith, Developing a responsive measure of change for pediatric brain injury inpatient rehabilitation, Brain Injury 16 (2002), 659-671.
32. R. Cattelani, F. Lombardi, R. Brianti and A. Mazzuchi, Traumatic brain injury in childhood: intellectual, behavioral and social outcome into adulthood, Brain Injury 12 (1998), 283-296.
33. A. Colantonio, D.R. Dawson and B.A. McClellan, Head injury in young adults: Long-term outcome, Archives of Physical Medicine & Rehabilitation 79 (1998), 550-558.
34. H.M. Dumas, G.M. Bedell and S. Hamill, Strategies to promote activity performance and participation in children and youth with acquired brain injuries, International Journal of Rehabilitation Research 26 (2003), 303-308.
35. S.M. Haley, W.J. Coster, L.H. Ludlow, J.T. Haltiwanger and P.J. Andrellos, Pediatric Evaluation of Disability Inventory: Standardization and Administration Manual, Trustees of Boston University, Boston, 1992.
36. D.S. Nichols and J. Case-Smith, Reliability and validity of the Pediatric Evaluation of Disability Inventory, Pediatric Physical Therapy 8 (1996), 15-24.
37. J. Ziviani, K.J. Ottenbacher, K. Shephard, S. Foreman, W. Astbury and P. Ireland, Concurrent validity of the Functional Independence Measure for Children (WeeFIM) and the Pediatric Evaluation of Disabilities Inventory in children with developmental disabilities and acquired brain injuries, Physical and Occupational Therapy in Pediatrics 21 (2001), 91-101.
38. G.M. Bedell, Measuring social participation in children and youth with Acquired brain injuries, Paper presented at the American Congress of Rehabilitation Medicine, Philadelphia, USA, 2002.
39. G.M. Bedell, Measuring Environmental factors in children and youth with Acquired brain injuries, Poster presented at the American Congress of Rehabilitation Medicine, Philadelphia, USA, 2002.
40. B.G. Tabachnik and L.S. Fidell, Using Multivariate Statistics, (3rd Ed.), Harper Collins, New York, 1996.
41. B.D. Wright and G.N. Masters, Rating Scale Analysis, MESA Press, Chicago, 1998.
42. TG. Bond and C.M. Fox, Applying the Rasch Model: Fundamental measurement in the human sciences, Lawrence Erlbaum Associates, Mahwah, NJ, 2001.
43. J. Linacre and B. Wright, A user's guide to WINSTEPS, MESA Press, Chicago, 1999.
44. W. Coster, T. Deeney, J. Haltiwanger and S. Haley, School Function Assessment: User's manual, Psychological Corporation, San Antonio, TX, 1998.
45. W. Coster, L. Ludlow and M. Mancini, Using IRT variable maps to enrich understanding of rehabilitation data, Journal of Outcome Measurement 3 (1999), 123-133.
46. M.M. Sohlberg, K.A. McLaughlin, B. Todis, J. Larsen and A. Glang, What does it take to collaborate with families affected by brain injury? Journal of Head Trauma Rehabilitation 16 (2001), 498-511.
47. M. Law, Client-Centered Occupational Therapy, Slack: Thorofare, NJ, 1998.
48. G.M. Bedell, E.C. Cohn and H.M. Dumas, Exploring parents' use of strategies to promote social participation in school-age children with acquired brain injuries, American Journal of Occupational Therapy, in press.