Socio-communicative perspectives on research and evidence-based practice in the education of students with profound and multiple disabilities

Journal of Developmental and Physical Disabilities

Volumn 19, Issue 3, 2007, Pages 161-176

  Arthur Kelly, Michael ^a   Bochner, Sandra ^b   Center, Yola ^b   Mok, Magdalena ^c  

^a UNIVERSITY OF NEWCASTLE   (Australia)

^b MACQUARIE UNIVERSITY   (Australia)

^c THE EDUCATION UNIVERSITY OF HONG KONG   (Hong Kong)

Author keywords

Behavior states; Communication; Educational practices; Multiple disability; Profound disability

Indexed keywords

EID: 34249905873     PISSN: 1056263X     EISSN: None     Source Type: Journal    
DOI: 10.1007/s10882-007-9045-9     Document Type: Article

References (81)

1. Agran, M., Alper, S., & Wehmeyer, M. (2002). Access to the general curriculum for students with significant disabilities: What it means to teachers. Education and Training in Mental Retardation and Developmental Disabilities, 37, 123-133.
2. Arthur, M. (2003). Socio-communicative variables and behavior states in students with profound and multiple disabilities: Descriptive data from school settings. Education and Training in Developmental Disabilities, 38(2), 200-219.
3. Arthur, M. (2004). Patterns amongst behavior states, socio-communicative and activity variables in educational programs for students with profound and multiple disabilities. Journal of Developmental and Physical Disabilities, 16(2), 125-149.
4. Arthur, M., & Butterfield, N. (1993). Teacher reports about student communication: Integrating form and function. Australia and New Zealand Journal of Developmental Disabilities, 18, 235-252.
5. Arthur, M., Butterfield, N., & MacKinnon, D. (1998). Communication intervention for students with severe disability: Results of a partner training program. International Journal of Disability, Development and Education, 45, 97-115.
6. Arthur, M., Hook, J., & Butterfield, N. (1995). Behavior state: Exploring issues in best practice for students with the most severe and multiple disabilities. Australian Journal of Special Education, 19, 37-44.
7. Ault, M. M., Guy, B., Guess, D., Bashinski, S., & Roberts, S. (1995). Analyzing behavior state and learning environments: Application in instructional settings. Mental Retardation, 33, 304-316.
8. Ault, M. M., Guy, B., Rues, J., Noto, L., & Guess, D. (1994). Some educational implications for students with profound disabilities at risk for inadequate nutrition and the nontherapeutic effects of medication. Mental Retardation, 32, 200-205.
9. Bates, E., Camaioni, L., & Volterra, V. (1975). The acquisition of performatives prior to speech. Merrill-Palmer Quarterly, 21, 205-226.
10. Belfiore, P. J., Browder, D. M., & Mace, F. C. (1993). Effects of community and center-based settings on the alertness of persons with profound mental retardation. Journal of Applied Behavior Analysis, 26, 401-402.
11. Bricker, D., & Woods Cripe, J. J. (1992). An activity-based approach to early intervention. Baltimore: Paul H. Brookes.
12. Bronfenbrenner, U. (1979). The ecology of human development. Cambridge, MA: Harvard University Press.
13. Brown, F., Gothelf, C. R., Guess, D., & Lehr, D. H. (1998). Self-determination for individuals with the most severe disabilities: Moving beyond chimera. Journal of The Association for Persons with Severe Handicaps, 23, 17-26.
14. Brown, F., & Lehr, D. H. (1993). Making activities meaningful for students with severe multiple disabilities. Teaching Exceptional Children, 25, 12-16.
15. Bruner, J. S. (1977). Early social interaction and language acquisition. In H. F Schaffer (Ed.), Studies in mother-infant interaction (pp. 271-289). New York: Academic.
16. Butterfield, N., & Arthur, M. (1994). Formal communication systems use by students with a moderate or severe intellectual disability: A New South Wales perspective. Australian Journal of Human Communication Disorders, 23, 47-60.
17. Butterfield, N., & Arthur, M. (1995). Shifting the focus: Emerging priorities in communication programming for students with a severe intellectual disability. Education and Training in Mental Retardation and Developmental Disabilities, 30, 41-50.
18. Butterfield, N., Arthur, M., & Sigafoos, J. (1995). Partners in everyday communicative exchanges: A guide to promoting interaction involving people with severe intellectual disability. Sydney: MacLennan and Petty.
19. Calculator, S. N., & Jorgensen, C. M. (1991). Integrating AAC instruction into regular education settings: Expounding on best practices. Augmentative and Alternative Communication, 7, 204-214.
20. Campbell, P. H. (1993). Physical management and handling procedures. In M. E. Snell (Ed.), Instruction of students with severe disabilities (4th ed.) (pp. 248-263). New York: Macmillan.
21. Carr, E. G., & Durand, V. M. (1985). Reducing behavior problems through functional communication training. Journal of Applied Behavior Analysis, 18, 111-126.
22. Carter, M. (1997). Communicative spontaneity of children with high support needs who use augmentative and alternative communication systems. Doctoral thesis, Macquarie University.
23. Ferguson, D. L. (1994). Is communication really the point? Some thoughts on intervention and membership. Mental Retardation, 32, 7-18.
24. Ford, A., Davern, L., & Schnorr, R. (2001). Learners with significant disabilities: Curricular relevance in an era of standards-based reform. Remedial and Special Education, 22(4), 214-222.
25. Foreman, P., Arthur-Kelly, M., Pascoe, S., & Smyth King, B. (2004). Evaluating the educational experiences of students with profound and multiple disabilities in inclusive and segregated classroom settings: An Australian perspective. Research and Practice for Persons with Severe Disabilities, 29 (3), 183-193.
26. Granlund, M., Terneby, J., & Olsson, C. (1992). Creating communicative opportunities through a combined in-service training and supervision package. European Journal of Special Needs Education, 7, 229-251.
27. Grove, N., & Peacey, N. (1999). Teaching subjects to pupils with profound and multiple learning difficulties: Considerations for the new framework. British Journal of Special Education, 26(2), 83-86.
28. Guess, D., Roberts, S., Behrens, G. A., & Rues, J. (1998). Response to Mudford, Hogg, and Roberts on continuous recording of behavior state. American Journal on Mental Retardation, 103, 75-79.
29. Guess, D., Roberts, S., & Guy, B. (1999). Implications of behavior state for the assessment and education of students with profound disabilities. In A. C. Repp & R. H. Horner (Eds.), Functional analysis of problem behavior: From effective assessment to effective support (pp. 338-394). Belmont, CA: Wadsworth.
30. Guess, D., Roberts, S., & Rues, J. (2002). Longitudinal analysis of state patterns and related variables among infants and children with significant disabilities. Research and Practice for Persons with Severe Disabilities, 27(2), 112-124.
31. Guess, D., Roberts, S., Siegel-Causey, E., Ault, M. M., Guy, B., Thompson, B., et al. (1993a). Analysis of behavior state conditions and associated environmental variables among students with profound handicaps. American Journal on Mental Retardation, 97, 634-653.
32. Guess, D., Roberts, S., Siegel-Causey, E., Mulligan-Ault, M., Guy, B., Thompson, B., et al. (1991). Investigations into the state behaviors of students with severe and profound handicapping conditions. Monograph of the Department of Special Education, University of Kansas, Lawrence.
33. Guess, D., Roberts, S., Siegel-Causey, E., & Rues, J. (1995). Replication and extended analysis of behavior state, environmental events, and related variables among individuals with profound disabilities. American Journal on Mental Retardation, 100, 36-50.
34. Guess, D., Rues, J., Roberts, S., & Siegel-Causey, E. (1993b). Extended analysis of behavior state, environmental events, and related variables among students with profound disabilities: A final report (Contract No. H133G00078). Washington, DC: National. Institute of Disability Rehabilitation and Research.
35. Guess, D., & Siegel-Causey, D. (1995). Attractor dimensions of behavior state changes among individuals with profound disabilities. American Journal on Mental Retardation, 99, 642-663.
36. Guess, D., Siegel-Causey, E., Roberts, S., Guy, B., Mulligan Ault, M., & Rues, J. (1993c). Analysis of state organizational patterns among students with profound disabilities. Journal of the Association for Persons with Severe Handicaps, 18, 93-108.
37. Guess, D., Siegel-Causey, E., Roberts, S., Rues, J., Thompson, B., & Siegel-Causey, D. (1990). Assessment and analysis of behavior state and related variables among students with profoundly handicapping conditions. Journal of the Association for Persons with Severe Handicaps, 15, 211-230.
38. Guy, B., Guess, D., & Mulligan Ault, M. (1993). Classroom procedures for the measurement of behavior state among students with profound disabilities. Journal of the Association for Persons with Severe Handicaps, 18, 52-60.
39. Helm, J. M., & Simeonsson, R. J. (1989). Assessment of behavioral state organization. In D. B. Bailey, & M. Wolery, Assessing infants and preschoolers with handicaps (pp. 202-224). Columbus: Merrill.
40. Helmstetter, E. (1989). Curriculum for school-age students: The ecological model. In F. Brown, & D. H. Lehr, (Eds.), Persons with profound disabilities: Issues and practices (pp. 239-263). Baltimore: Paul H. Brookes.
41. Houghton, J., Bronicki, G. J. B., & Guess, D. (1987). Opportunities to express preferences and make choices among students with severe disabilities in classroom settings. Journal of the Association for Persons with Severe Handicaps, 12, 18-27.
42. International Association for the Scientific Study of Intellectual Disabilities (2005). Special Interest Research Group: Profound Multiple Disabilities Home Page (accessed 23.8.2005) http://www.iassid.org/index.php? module-ContentExpress&func-display&ceid-22&bid-23&btitle- SIRG&meid-23
43. King, D. L. (1995). Behavior state of students with the most severe and multiple disabilities: Physical positioning as one environmental variable. Master of Special Education, The University of Newcastle, NSW, Australia.
44. McLean, L. K. S., Brady, N. C., & McLean, J. E. (1996). Reported communication abilities of individuals with severe mental retardation. American Journal on Mental Retardation, 100, 580-591.
45. McLean, J. E., McLean, L. K. S., Brady, N. C., & Etter, R. (1991). Communication profiles of two types of gesture using nonverbal persons with severe to profound mental retardation. Journal of Speech and Hearing Research, 34, 294-308.
46. McLean, J. E., & Snyder-McLean, L. K. S. (1987). Form and function of communicative behavior among persons with severe developmental disabilities. Australian and New Zealand Journal of Developmental Disabilities, 13, 83-98.
47. Mirenda, P. (1997). Supporting individuals with challenging behavior through Functional Communication Training and AAC: Research review. Augmentative and Alternative Communication, 13, 207-225.
48. Mudford, O. C., Hogg, J., & Roberts, J. (1999). Behavior states: Now you see them, now you don't. American Journal on Mental Retardation, 104, 385-391.
49. National Joint Committee for the Communicative Needs of Persons with Severe Disabilities. (1992). Guidelines for meeting the communication needs of persons with severe disabilities. American Speech-Language-Hearing Association, 34, 1-8.
50. Nelson, C., van Dijk, J., McDonnell, A. P., & Thompson, K. (2002). A framework for understanding young children with severe multiple disabilities: The van Dijk approach to assessment. Research and Practice for Persons with Severe Disabilities, 27(2), 97-111.
51. New South Wales Department of Education (1988). Curriculum statement for the education of students with severe intellectual disability. Sydney: Author.
52. New South Wales Department of Education (1989). Strategies for teaching students with severe intellectual disability. Sydney: Author.
53. Noonan, M. J., & Reese, M. (1984). Educability: Public policy and the role of research. Journal of the Association for Persons with Severe Handicaps, 9, 3-12.
54. Ogletree, B. T., Wetherby, A. M., & Westling, D. L. (1992). Profile of the prelinguistic intentional communicative behaviors of children with profound mental retardation. American Journal on Mental Retardation, 97, 186-196.
55. Peck, C. A. (1985). Increasing opportunities for social control by children with autism and severe handicaps: Effects on student behavior and perceived classroom climate. Journal of the Association for Persons with Severe Handicaps, 10, 183-193.
56. Peck, C. A. (1989). Assessment of social communicative competence: Evaluating environments. Seminars in Speech and Language, 10, 1-15.
57. Pecyna Rhyner, P. M., Lehr, D. H., & Pudlas, K. A. (1990). An analysis of teacher responsiveness to communicative initiations of preschool children with handicaps. Language, Speech, and Hearing Services in Schools, 21, 91-97.
58. Reese, M. R. (1997). Biobehavior analysis of self-injurious behavior in a person with profound handicaps. Focus on Autism and Other Developmental Disabilities, 12(2), 87-94.
59. Richards, S. B., & Richards, R. Y. (1997). Implications for assessing biobehavioral states in individuals with profound disabilities. Focus on Autism and Other Developmental Disabilities, 12(2), 79-86.
60. Richards, S. B., & Sternberg, L. (1992). A preliminary analysis of environmental variables affecting the observed biobehavioral states of individuals with profound handicaps. Journal of Intellectual Disability Research, 36, 403-414.
61. Richards, S., & Sternberg, L. (1993). Corroborating previous findings: Laying stepping stones in the analysis of biobehavioral states in students with profound disabilities. Education and Training in Mental Retardation, 28, 262-268.
62. Rowland, C., & Schweigert, P. (1993). Analyzing the communication environment to increase functional communication. Journal of the Association for Persons with Severe Handicaps, 18, 161-176.
63. Sailor, W., Gee, K., Goetz, L., & Graham, N. (1988a). Progress in educating students with the most severe disabilities: Is there any? Journal of the Association for Persons with Severe Handicaps, 13, 287-299.
64. Sailor, W., Goetz, L., Anderson, J., Hunt, P., & Gee, K. (1988b). Research on community intensive instruction as a model for building functional, generalized skills. In R. Horner, G. Dunlap, & R. Koegel, (Eds.), Generalization and maintenance: Life-style changes in applied settings (pp. 67-98). Baltimore: Paul H. Brookes.
65. Schwartz, I. S., Anderson, S. R., & Halle, J. W. (1989). Training teachers to use naturalistic time delay: Effects on teacher behavior and on the language use of students. Journal of the Association for Persons with Severe Handicaps, 14, 48-57.
66. Siegel-Causey, E., & Bashinski, S. (1997). Enhancing initial communication and responsiveness of learners with multiple disabilities: A tri-focus framework for partners. Focus on Autism and Other Developmental Disabilities, 12, 105-120.
67. Siegel-Causey, E., & Guess, D. (1989). Enhancing nonsymbolic communication interactions among learners with severe disabilities. Baltimore: Paul H. Brookes.
68. Siegel-Causey, E., Sims, C., Ernst, B., & Guess, D. (1986). Elements of prelanguage communication and early interactional processes. In M. Bullis (Ed.), Communication development in young children with deaf-blindness: Literature review 2 (pp. 59-83). Monmouth, OR: Oregon State System of Higher Education.
69. Siegel-Causey, E., & Wetherby, A. (1993). Nonsymbolic communication. In M. E. Snell (Ed.), Instruction of students with severe disabilities (4th ed.) (pp. 290-318). New York: Macmillan.
70. Sigafoos, J., Arthur-Kelly, M., & Butterfield, N. (2006). Enhancing everyday communication for children with disabilities. Baltimore: Paul H. Brookes.
71. Sigafoos, J., Kerr, M., Roberts, D., & Couzens, D. (1994a). Increasing opportunities for requesting in classrooms serving children with developmental disabilities. Focus on Autism and Other Developmental Disabilities, 24, 631-645.
72. Sigafoos, J., Roberts, D., Kerr, M., Couzens, D., & Baglioni, A. J. (1994b). Opportunities for communication in classrooms serving children with developmental disabilities. Focus on Autism and Other Developmental Disabilities, 24, 259-279.
73. Snow, C. E. (1981). Social interaction and language acquisition. In P. S. Dale, & D. Ingram (Eds.), Child language - An international perspective (pp. 195-214). Baltimore: University Park Press.
74. Thompson, B., & Guess, D. (1989). Students who experience the most profound disabilities: Teacher perspectives. In F. Brown, & D. H. Lehr, (Eds.), Persons with profound disabilities: Issues and practices (pp. 3-41). Baltimore: Paul H. Brookes.
75. Wetherby, A. M., & Prizant, B. M. (1992). Profiling young children's communicative competence. In S. F. Warren, & J. Reichle, (Eds), Causes and effects in communication and language intervention (pp. 217-253). Baltimore: Paul H. Brookes.
76. Wilcox, J. M. (1993). Partner-based prelinguistic intervention: A preliminary report. OSERS News in Print, V, 4-9.
77. Wilcox, B., & Bellamy, G. T. (1982). Design of high school programs for severely handicapped students. Baltimore: Paul H. Brookes.
78. Wilcox, B., & Bellamy, G. T. (1987). The activities catalog: An alternative curriculum for youth and adults with severe intellectual disabilities. Baltimore: Paul H. Brookes.
79. Wilcox, M. J., Kouri, T. A., & Caswell, S. (1990). Partner sensitivity to communication behavior of young children with developmental disabilities. Journal of Speech and Hearing Disorder, 55, 679-693.
80. Williams, R. (1991). Choices, communication, and control: A call for expanding them in the lives of people with severe disabilities. In L.H. Meyer, C.A. Peck, & L. Brown, (Eds.), Critical issues in the lives of people with severe disabilities (pp. 543-544). Baltimore: Paul H. Brookes.
81. Woodyatt, G., Marinac, J., Darnell, J., Sigafoos, J., & Halle, J. (2004). Behavior state analysis in Rett Syndrome: Continuous data reliability measurement. International Journal of Disability, Development and Education, 51(4), 383-400.