Promoting health literacy

Journal of the American Medical Informatics Association

Volumn 12, Issue 2, 2005, Pages 152-163

  McCray, Alexa T ^a  

^a NATIONAL INSTITUTES OF HEALTH   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

HEALTH CARE; HEALTH CARE SYSTEM; HEALTH EDUCATION; HEALTH PROMOTION; INFORMATION PROCESSING; INTERPERSONAL COMMUNICATION; MEDICAL INFORMATION SYSTEM; PATIENT EDUCATION; READING; REVIEW;

EID: 14544304532     PISSN: 10675027     EISSN: None     Source Type: Journal    
DOI: 10.1197/jamia.M1687     Document Type: Article

References (204)

1. Health literacy: report of the Council on Scientific Affairs. Ad Hoc Committee on Health Literacy for the Council on Scientific Affairs, American Medical Association JAMA 281 6 1999 552 557
2. Carmona RH. Health Literacy in America: The Role of Health Care Professionals. American Medical Association House of Delegates meeting, June 14, 2003. Available at: http://www.surgeongeneral.gov/news/speeches/ama061403.htm. Accessed November 12, 2004.
3. L. Nielsen-Bohlman, A.M. Panzer, and D.A. Kindig Health Literacy: A Prescription to End Confusion. Institute of Medicine 2004 The National Academies Press Washington, DC p 345
4. R.E. Rudd, B.A. Moeykens, and T.C. Colton Health and Literacy: A Review of Medical and Public Health Literature Annual Review of Adult Learning and Literacy 2000 Jossey-Bass San Francisco, CA 158 199
5. Health literacy literature. Annotated bibliographies. Health Literacy Studies, Harvard School of Public Health, National Center for the Study of Adult Learning and Literacy. Available at: http://www.hsph.harvard.edu/ healthliteracy/literature.html. Accessed November 12, 2004.
6. M. Zorn, M.P. Allen, A.M. Horowitz, and compilers Understanding Health Literacy and Its Barriers. Current bibliographies in medicine; 651 citations; January 1998 through November 2003 2004 National Library of Medicine Bethesda, MD
7. Partnership for Clear Health Communication, compilers. A selection of health literacy articles and research. Bibliography. Partnership for Clear Health Communication; 2003. Available at: http://www.askme3.org/pdfs/ bibliography.pdf. Accessed November 12, 2004.
8. C.R. Selden, M. Zorn, S. Ratzan, R.M. Parker, and compilers Health Literacy. Current bibliographies in medicine; 479 citations; January 1990 through October 1999 2000 National Library of Medicine Bethesda, MD
9. I.S. Kirsch, A. Jungeblut, L. Jenkins, and A. Kolstad Adult Literacy in America: A first look at the findings of the National Adult Literacy Survey 2002 April U.S. Department of Education, Office of Education Research and Improvement Washington DC Report No.: NCES 1993-275, 176 p
10. Kolstad A. Literacy levels and the 80% response probability convention. Technical report and data file user's manual for the 1992 National Adult Literacy Survey. Washington DC: U.S. Department of Education, Office of Education Research and Improvement. Report No: NCES 2001-457. Chapter 14:357-79.
11. R. Rudd, I. Kirsch, and K. Yamamoto Literacy and Health in America 2004 Educational Testing Service Princeton, NJ p 48
12. OECD and statistics Canada, Literacy, Economy, and Society: Results of the First International Adult Literacy Survey 1995 OECD Publications Service Paris
13. OECD and statistics Canada, Literacy in the Information Age: Final Report of the International Adult Literacy Survey 2000 OECD Publications Service Paris
14. D. Nutbeam Health literacy as a public health goal: a challenge for contemporary health education and communication strategies into the 21st century Health Promot Int 15 3 2000 259 267
15. B.D. Weiss Health literacy: an important issue for communicating health information to patients Zhonghua Yi Xue Za Zhi (Taipei) 64 11 2001 603 608
16. Summerfield LM. National Standards for School Health Education. 1995, ERIC Digest. Available at: http://www.ericfacility.net/databases/ERIC_Digests/ ed387483.html. Accessed November 12, 2004.
17. Michigan Department of Education. Health education content standards and benchmarks, July 1998. Available at: http://www.emc.cmich.edu/cshp/hesb.htm. Accessed November 12, 2004.
18. State of Hawaii, Department of Education. Health Content Standards. 1999, RS 00-0092. Available at: www.hcps.k12.hi.us/.../ fbc32f9bf7fcc6bd0a2567e000146fc7/$FILE/Health+Ed.+Booklet.pdf. Accessed November 12, 2004.
19. R.E. Rudd, and B.A. Moeykens Adult educators' perceptions of health issues and topics in adult basic education programs. National Center for the Study of Adult Learning and Literacy (NCSALL) Report 1999 1 25
20. Kerka S. Health and adult literacy. ERIC Clearinghouse on Adult, Career, and Vocational Education. Practice Application Brief No. 7; 2000.
21. T.C. Davis, R. Michielutte, E.N. Askov, M.V. Williams, and B.D. Weiss Practical assessment of adult literacy in health care Health Educ Behav 25 5 1998 613 624
22. T.C. Davis, M.A. Crouch, and S.W. Long Rapid assessment of literacy levels of adult primary care patients Fam Med 23 6 1991 433 435
23. T.C. Davis, S.W. Long, and R.H. Jackson Rapid estimate of adult literacy in medicine: a shortened screening instrument Fam Med 25 6 1993 391 395
24. P.W. Murphy, T.C. Davis, S.W. Long, R.H. Jackson, and B.C. Decker Rapid estimate of adult literacy in medicine (REALM): a quick reading test for patients Journal of Reading 37 2 1993 124 130
25. C.R. Nath, S.T. Sylvester, V. Yasek, and E. Gunel Development and validation of a literacy assessment tool for persons with diabetes Diabetes Education 27 6 2001 857 864
26. E.C. Hanson-Divers Developing a medical achievement reading test to evaluate patient literacy skills: a preliminary study J Health Care Poor Underserved 8 1 1997 56 69
27. R.M. Parker, D.W. Baker, M.V. Williams, and J.R. Nurss The test of functional health literacy in adults: a new instrument for measuring patients' literacy skills J Gen Intern Med 10 10 1995 537 541
28. D.W. Baker, M.V. Williams, R.M. Parker, J.A. Gazmararian, and J. Nurss Development of a brief test to measure functional health literacy Patient Education and Counseling 38 1 1999 33 42
29. J.R. Nurss, R.M. Parker, M.V. Williams, and D.W. Baker TOFHLA test of functional health literacy in adults 2001 Peppercorn Books and Press Snow Camp, NC
30. R.D. Gibbs, P.H. Gibbs, and J. Henrich Patient understanding of commonly used medical vocabulary J Fam Pract 25 2 1987 176 178
31. M.V. Williams, R.M. Parker, and D.W. Baker Inadequate functional health literacy among patients at two public hospitals JAMA 274 21 1995 1677 1682
32. D.W. Baker, R.M. Parker, and M.V. Williams The health care experience of patients with low literacy Arch Fam Med 5 6 1996 329 334
33. N.S. Parikh, R.M. Parker, J.R. Nurss, D.W. Baker, and M.V. Williams Shame and health literacy: the unspoken connection Patient Education and Counseling 27 1 1996 33 39
34. J.R. Nurss, I.M. el-Kebbi, and D.L. Gallina Diabetes in urban African Americans: functional health literacy of municipal hospital outpatients with diabetes Diabetes Education 23 5 1997 563 568
35. J.R. Nurss Adult literacy and health care M.C. Smith Literacy for the Twenty-First Century: Research, Policy, Practices, and the National Adult Literacy Survey 1998 Praeger Westport, CT 195 206
36. N.J. Montalto, and G.E. Spiegler Functional health literacy in adults in a rural community health center W V Med J 97 2 2001 111 114
37. N.T. Artinian, M.P. Lange, T.N. Templin, L.G. Stallwood, and C.E. Hermann Functional health literacy in an urban primary care clinic Internet Journal of Advanced Nursing Practice 5 2 2003
38. A.S. Vivian, and E.J. Robertson 2nd Readability of patient education materials Clin Ther 3 2 1980 129 136
39. P. Ley, and T. Florio The use of readability formulas in health care Psychology, Health & Medicine 1 1 1996 7 28
40. L.D. Kubzansky, L.F. Berkman, T.A. Glass, and T.E. Seeman Is educational attainment associated with shared determinants of health in the elderly? Findings from the MacArthur Studies of Successful Aging Psychosom Med 60 5 1998 578 585
41. D.W. Baker, J.A. Gazmararian, J. Sudano, and M. Patterson The association between age and health literacy among elderly persons J Gerontol B Psychol Sci Soc Sci 55 6 2000 S368 S374
42. L. Tooth, M. Clark, and K. McKenna Poor functional health literacy: the silent disability for older people Australasian Journal on Ageing 19 1 2000 14 22
43. D.W. Baker, J.A. Gazmararian, J. Sudano, M. Patterson, R.M. Parker, and M.V. Williams Health literacy and performance on the Mini-Mental State Examination Aging Ment Health 6 1 2002 22 29
44. R. Flesch A new readability yardstick J Appl Psychol 32 1948 221 233
45. E. Fry A readability formula that saves time Journal of Reading 11 1968 513 516 575-8
46. G.H. McLaughlin SMOG Grading - a new readability formula Journal of Reading 12 1969 639 646
47. R. Gunning The art of clear writing (revised edition) 1973 McGraw Hill New York, NY
48. Kincaid JP, Fishburne RP, Rogers RL, Chissom BS. Derivation of new readability formula for navy enlisted personnel. Research Branch Report 8-75. Millington, Tenn, Naval Air Station 1975; NTIS No. AD A006 655/5.
49. Dale E, Chall JS. A formula for predicting readability. Educational Research Bulletin. 27;11-20.
50. E. Dixon, and R. Park Do patients understand written health information? Nurs Outlook 38 6 1990 278 281
51. D.R. Young, D.T. Hooker, and F.E. Freeberg Informed consent documents: increasing comprehension by reducing reading level IRB 12 3 1990 1 5
52. S.L. Merritt, M.A. Gates, and K. Skiba Readability levels of selected hypercholesterolemia patient education literature Heart Lung 22 5 1993 415 420
53. S.J. Jubelirer, J.C. Linton, and S.M. Magnetti Reading versus comprehension: implications for patient education and consent in an outpatient oncology clinic J Cancer Educ 9 1 1994 26 29
54. C.K. Miller, D.C. O'Donnell, H.R. Searight, and R.A. Barbarash The Deaconess Informed Consent Comprehension Test: an assessment tool for clinical research subjects Pharmacotherapy 16 5 1996 872 878
55. K.S. French, and J.H. Larrabee Relationships among educational material readability, client literacy, perceived beneficence, and perceived quality J Nurs Care Qual 13 6 1999 68 82
56. C.A. Estrada, M.M. Hryniewicz, V.B. Higgs, C. Collins, and J.C. Byrd Anticoagulant patient information material is written at high readability levels Stroke 31 12 2000 2966 2970
57. S.G. Forbis, and C.A. Aligne Poor readability of written asthma management plans found in national guidelines Pediatrics 109 4 2002 e52
58. M.K. Paasche-Orlow, H.A. Taylor, and F.L. Brancati Readability standards for informed-consent forms as compared with actual readability N Engl J Med 348 8 2003 721 726
59. L.G. Doak, and C.C. Doak Patient comprehension profiles: recent findings and strategies Patient Couns Health Educ 2 3 1980 101 106
60. T.C. Davis, M.A. Crouch, G. Wills, S. Miller, and D.M. Abdehou The gap between patient reading comprehension and the readability of patient education materials J Fam Pract 31 5 1990 533 538
61. B.T. Jolly, J.L. Scott, C.F. Feied, and S.M. Sanford Functional illiteracy among emergency department patients: a preliminary study Ann Emerg Med 22 3 1993 573 578
62. J.R. Kicklighter, and M.A. Stein Factors influencing diabetic clients' ability to read and comprehend printed diabetic diet material Diabetes Educ 19 1 1993 40 46
63. T.C. Davis, E.J. Mayeaux, and D. Fredrickson Reading ability of parents compared with reading level of pediatric patient education materials Pediatrics 93 3 1994 460 468
64. J.C. Reid, D.M. Klachko, C.A. Kardash, R.D. Robinson, R. Scholes, and D. Howard Why people don't learn from diabetes literature: influence of text and reader characteristics Patient Educ Couns 25 1 1995 Feb 31 38
65. M. Hearth-Holmes, P.W. Murphy, and T.C. Davis Literacy in patients with a chronic disease: systemic lupus erythematosus and the reading level of patient education materials J Rheumatol 24 12 1997 2335 2339
66. J. Gausman Benson, and W.B. Forman Comprehension of written health care information in an affluent geriatric retirement community: use of the Test of Functional Health Literacy Gerontology 48 2 2002 93 97
67. Schrefer S. (ed). Quick Reference to Cultural Assessment. In: Bloch's Ethnic/Cultural Assessment Guide St. Louis, MO: Mosby; 1994, pp 40-56.
68. J.J. Guidry, and P. Fagan The readability levels of cancer-prevention materials targeting African Americans J Cancer Educ 12 2 1997 108 113
69. J.J. Guidry, P. Fagan, and V. Walker Cultural sensitivity and readability of breast and prostate printed cancer education materials targeting African Americans J Natl Med Assoc 90 3 1998 165 169
70. C.C. Mohrmann, E.A. Coleman, and S.K. Coon An analysis of printed breast cancer information for African American women J Cancer Educ 15 1 2000 23 27
71. T.C. Davis, N.C. Dolan, and M.R. Ferreira The role of inadequate health literacy skills in colorectal cancer screening Cancer Invest 19 2 2001 193 200
72. J.R. Betancourt, A.R. Green, J.E. Carrillo, and O. Ananeh-Firempong 2nd Defining cultural competence: a practical framework for addressing racial/ethnic disparities in health and health care Public Health Rep 118 4 2003 293 302
73. N. Britten Does a prescribed treatment match a patient's priorities? BMJ 327 7419 2003 840
74. J. Fogel Internet use for cancer information among racial/ethnic populations and low literacy groups Cancer Control 10 5 Suppl 2003 Sep-Oct 45 51
75. F.L. Wilson, E. Racine, V. Tekieli, and B. Williams Literacy, readability and cultural barriers: critical factors to consider when educating older African Americans about anticoagulation therapy J Clin Nurs 12 2 2003 275 282
76. M.A. Graber, C.M. Roller, and B. Kaeble Readability levels of patient education material on the World Wide Web J Fam Pract 48 1 1999 58 61
77. M.H. Oermann, and F.L. Wilson Quality of care information for consumers on the Internet J Nurs Care Qual 14 4 2000 45 54
78. G.K. Berland, M.N. Elliott, and L.S. Morales Health information on the Internet: accessibility, quality, and readability in English and Spanish JAMA 285 20 2001 2612 2621
79. D.M. D'Alessandro, P. Kingsley, and J. Johnson-West The readability of pediatric patient education materials on the World Wide Web Arch Pediatr Adolesc Med 155 7 2001 807 812
80. M.J. Bernier Establishing the psychometric properties of a scale for evaluating quality in printed education materials Patient Educ Couns 29 3 1996 283 299
81. T.M. Duffy, and P. Kabance Testing a readable writing approach to text revision Journal of Educational Psychology 74 5 1982 733 748
82. D.D. Allensworth, and C.R. Luther Evaluating printed materials Nurse Educator 11 2 1986 18 22
83. L.G. Doak, and C.C. Doak Lowering the silent barriers to compliance for patients with low literacy skills Promot Health 8 4 1987 6 8
84. R. Michielutte, J. Bahnson, M.B. Dignan, and E.M. Schroeder The use of illustrations and narrative text style to improve readability of a health education brochure J Cancer Educ 7 3 1992 251 260
85. M.J. Bernier Developing and evaluating printed education materials: a prescriptive model for quality Orthopaedic Nursing 12 6 1993 39 46
86. S. Plimpton, and J. Root Materials and strategies that work in low literacy health communication Public Health Rep 109 1 1994 86 92
87. Furnas S, McClellan FM, Haywood J, et al. Literacy, Health and the Law: an Exploration of the Law and the Plight of Marginal Readers within the Health Care System: Advocating for Patients and Providers. In: Brandes WL (ed). Health Literacy Project, Health Promotion Council of Southeastern Pennsylvania, Inc.; Philadelphia, PA, 1996.
88. L.G. Doak, C.C. Doak, and C.D. Meade Strategies to improve cancer education materials Oncol Nurs Forum 23 8 1996 1305 1312
89. E.J. Mayeaux Jr., P.W. Murphy, C. Arnold, T.C. Davis, R.H. Jackson, and T. Sentell Improving patient education for patients with low literacy skills Am Fam Physician 53 1 1996 205 211
90. E.D. Paskett, C. Tatum, A. Wilson, M. Dignan, and R. Velez Use of a photoessay to teach low-income African American women about mammography J Cancer Educ 11 4 1996 216 220
91. P.S. Houts, R. Bachrach, J.T. Witmer, C.A. Tringali, J.A. Bucher, and R.A. Localio Using pictographs to enhance recall of spoken medical instructions Patient Educ Couns 35 2 1998 83 88
92. C. Lambert Removing the mystery: evaluation of a parent manual by adolescent parents Adolescence 33 129 1998 61 72
93. C.D. Meade Improving understanding of the informed consent process and document Semin Oncol Nurs 15 2 1999 124 137
94. S. Shepperd, D. Charnock, and B. Gann Helping patients access high quality health information BMJ 319 7212 1999 764 766
95. P.W. Murphy, A.L. Chesson, L. Walker, C.L. Arnold, and L.M. Chesson Comparing the effectiveness of video and written material for improving knowledge among sleep disorders clinic patients with limited literacy skills South Med J 93 3 2000 297 304
96. P.A. Quirk Screening for literacy and readability: implications for the advanced practice nurse Clin Nurse Spec 14 1 2000 26 32
97. P.S. Houts, J.T. Witmer, H.E. Egeth, M.J. Loscalzo, and J.R. Zabora Using pictographs to enhance recall of spoken medical instructions II Patient Educ Couns 43 3 2001 231 242
98. M.R. Andrus, and M.T. Roth Health literacy: a review Pharmacotherapy 22 3 2002 282 302
99. Reading for Understanding: Toward an R&D Program in Reading Comprehension 2002 RAND Santa Monica, CA
100. J.G. Schwartzberg Low health literacy: what do your patients really understand? Nurs Econ 20 3 2002 145 147
101. B.D. Weiss Health Literacy: A Manual for Clinicians [toolkit] 2003 American Medical Association Foundation and American Medical Association Chicago, IL
102. B. Moult, L.S. Franck, and H. Brady Ensuring quality information for patients: development and preliminary validation of a new instrument to improve the quality of written health care information Health Expect 7 2 2004 Jun 165 175
103. R.M. Parker Health literacy: a challenge for American patients and their health care providers Health Promot International 15 4 2000 277 283
104. B.D. Weiss, G. Hart, and R.E. Pust The relationship between literacy and health J Health Care Poor Underserved 1 4 1991 351 363
105. B.D. Weiss, G. Hart, D.L. McGee, and S. D'Estelle Health status of illiterate adults: relation between literacy and health status among persons with low literacy skills J Am Board Fam Pract 5 3 1992 257 264
106. T.C. Davis, H. Meldrum, P.K.P. Tippy, B.D. Weiss, and M.V. Williams How poor literacy leads to poor health care Patient Care 1996 94 127
107. D.W. Baker, R.M. Parker, M.V. Williams, W.S. Clark, and J. Nurss The relationship of patient reading ability to self-reported health and use of health services Am J Public Health 87 6 1997 1027 1030
108. Communicating with patients who have limited literacy skills. Report of the National Work Group on Literacy and Health J Fam Pract 46 2 1998 168 176
109. M.V. Williams, D.W. Baker, R.M. Parker, and J.R. Nurss Relationship of functional health literacy to patients' knowledge of their chronic disease. A study of patients with hypertension and diabetes Arch Intern Med 158 2 1998 166 172
110. P.P. Lee Why literacy matters. Links between reading ability and health Arch Ophthalmol 117 1 1999 100 103
111. S.C. Kalichman, and D. Rompa Functional health literacy is associated with health status and health-related knowledge in people living with HIV-AIDS J Acquir Immune Defic Syndr 25 4 2000 337 344
112. D. Foulk, P. Carroll, and S. Nelson Wood Addressing health literacy: a description of the intersection of functional literacy and health care American Journal of Health Studies 17 1 2001 7 14
113. D. Schillinger Improving the quality of chronic disease management for populations with low functional health literacy: a call to action Disease Management 4 3 2001 103 109
114. D.W. Baker, J.A. Gazmararian, and M.V. Williams Functional health literacy and the risk of hospital admission among Medicare managed care enrollees Am J Public Health 92 8 2002 1278 1283
115. D. Schillinger, K. Grumbach, and J. Piette Association of health literacy with diabetes outcomes JAMA 288 4 2002 475 482
116. Berkman ND, DeWalt DA, Pignone MP, et al. Literacy and health outcomes. Evidence Report/Technology Assessment No. 87. 2004, Agency for Healthcare Research and Quality.
117. D.H. Howard The Relationship between Health Literacy and Medical Costs L. Nielsen-Bohlman A.M. Panzer D.A. Kindig Health Literacy: A Prescription to End Confusion. Institute of Medicine 2004 The National Academies Press Washington, DC 256 266
118. N. Scott, and M.F. Weiner "Patientspeak": an exercise in communication J Med Educ 59 11 Pt 1 1984 Nov 890 893
119. R.Y. Bourhis, S. Roth, and G. MacQueen Communication in the hospital setting: a survey of medical and everyday language use amongst patients, nurses and doctors Soc Sci Med 28 4 1989 339 346
120. C.M. Spees Knowledge of medical terminology among clients and families Image J Nurs Sch 23 4 1991 225 229
121. J.R. Skelton, and F.D. Hobbs Concordancing: use of language-based research in medical communication Lancet 353 9147 1999 Jan 9 108 111
122. E.B. Lerner, D.V. Jehle, D.M. Janicke, and R.M. Moscati Medical communication: do our patients understand? Am J Emerg Med 18 7 2000 Nov 764 766
123. K. Chapman, C. Abraham, V. Jenkins, and L. Fallowfield Lay understanding of terms used in cancer consultations Psychooncology 12 6 2003 Sep 557 566
124. C.C. Doak, L.G. Doak, G.H. Friedell, and C.D. Meade Improving comprehension for cancer patients with low literacy skills: strategies for clinicians CA Cancer J Clin 48 3 1998 151 162
125. M.V. Williams, T. Davis, R.M. Parker, and B.D. Weiss The role of health literacy in patient-physician communication Fam Med 34 5 2002 383 389
126. G. Elwyn, A. Edwards, and N. Britten What information do patients need about medicines? "Doing prescribing": how doctors can be more effective BMJ 327 7419 2003 864 867
127. R.E. Ferner Is concordance the primrose path to health? BMJ 327 7419 2003 821 822
128. G. Jones Prescribing and taking medicines [letter] BMJ 327 2003 819
129. J.D. Piette, D. Schillinger, M.B. Potter, and M. Heisler Dimensions of patient-provider communication and diabetes self-care in an ethnically diverse population J Gen Intern Med 18 8 2003 624 633
130. D. Schillinger, J. Piette, and K. Grumbach Closing the loop: physician communication with diabetic patients who have low health literacy Arch Intern Med 163 1 2003 83 90
131. J.H. Larrabee The changing role of the consumer in health care quality J Nurs Care Qual 9 2 1995 8 15
132. M.J. Barry Involving patients in medical decisions: how can physicians do better? JAMA 282 24 1999 2356 2357
133. S.M. Auerbach Should patients have control over their own health care? Empirical evidence and research issues Ann Behav Med 22 3 2000 246 259
134. D. Dickinson, and D.K. Raynor What information do patients need about medicines? Ask the patients - they may want to know more than you think BMJ 327 7419 2003 861
135. D.K. Lewis, J. Robinson, and E. Wilkinson Factors involved in deciding to start preventive treatment: qualitative study of clinicians' and lay people's attitudes BMJ 327 7419 2003 841
136. F. Davidoff Time Ann Intern Med 127 6 1997 483 485
137. R.V. Lee, and F. Davidoff Speed: the challenge to medicine in the new era Ann Intern Med 132 1 2000 90 91
138. L.L. Berry, K. Seiders, and S.S. Wilder Innovations in access to care: a patient-centered approach Ann Intern Med 139 7 2003 568 574
139. Networking Health: Prescriptions for the Internet 2000 National Academy Press Washington, DC
140. T.R. Eng The eHealth Landscape: a terrain map of emerging information and communication technologies in health and health care 2001 The Robert Wood Johnson Foundation Princeton, NJ
141. R.J. Cline, and K.M. Haynes Consumer health information seeking on the Internet: the state of the art Health Educ Res 16 6 2001 671 692
142. P.F. Brennan Health informatics and community health: support for patients as collaborators in care Methods Inf Med 38 4-5 1999 274 278
143. A.R. Jadad Promoting partnerships: challenges for the Internet age BMJ 319 7212 1999 761 764
144. T. Ferguson Online patient-helpers and physicians working together: a new partnership for high quality health care BMJ 321 7269 2000 1129 1132
145. B.S. Gerber, and A.R. Eiser The patient physician relationship in the Internet age: future prospects and the research agenda J Med Internet Res 3 2 2001 E15
146. M. Hardey E-health: The Internet and the transformation of patients into consumers and producers of health knowledge Inf Commun Soc 4 3 2001 388 405
147. X. Chen, and L.L. Siu Impact of the media and the internet on oncology: survey of cancer patients and oncologists in Canada J Clin Oncol 19 23 2001 4291 4297
148. B. Kaplan, and P.F. Brennan Consumer informatics supporting patients as co-producers of quality J Am Med Inform Assoc 8 4 2001 309 316
149. M.R. Taylor, A. Alman, and D.K. Manchester Use of the Internet by patients and their families to obtain genetics-related information Mayo Clin Proc 76 8 2001 772 776
150. Patient/physician online communication: many patients want it, would pay for it, and it would influence their choice of doctors and health plans Health Care News 2 8 2002 1 4
151. H.W. Potts, and J.C. Wyatt Survey of doctors' experience of patients using the Internet J Med Internet Res 4 1 2002 e5
152. C.N. Sciamanna, M.A. Clark, T.K. Houston, and J.A. Diaz Unmet needs of primary care patients in using the Internet for health-related activities J Med Internet Res 4 3 2002 Dec E19
153. C. Gratzer, and T. Grimes-Gruczka Access, assessment, and action: key consumer metrics for evaluation of e-health information Cybercitizen Health 11 2000 1 10
154. N. Calabretta Consumer-driven, patient-centered health care in the age of electronic information J Med Libr Assoc 90 1 2002 32 37
155. Achieving Electronic connectivity in Healthcare: A preliminary roadmap from the nation's public and private-sector healthcare leaders. 2004, 71 pages. Connecting for Health. Available at: http://www.connectingforhealth.org/ resources/cfh_aech_roadmap_072004.pdf. Accessed November 12, 2004.
156. Fox S, Rainie L. The online health care revolution: How the web helps Americans take better care of themselves. 2000. Pew Internet & American Life Project. Available at: http://www.pewinternet.org. Accessed November 12, 2004.
157. Rainie L, Packel D. More online, doing more. 2001. Pew Internet & American Life Project. Available at: http://www.pewinternet.org. Accessed November 12, 2004.
158. J.C. Licciardone, P. Smith-Barbaro, and S.T. Coleridge Use of the internet as a resource for consumer health information: results of the second osteopathic survey of health care in America (OSTEOSURV-II) J Med Internet Res 3 4 2001 Oct-Dec E31
159. Cain MM, Sarasohn-Kahn J, Wayne JC. Health e-People: The Online Consumer Experience. 2002. Institute for the Future. Available at: http://www. informatics-review.com/thoughts/chf.html. Accessed November 12, 2004.
160. T.K. Houston, and J.J. Allison Users of Internet health information: differences by health status J Med Internet Res 4 2 2002 E7
161. Horrigan JB, Rainie L. Getting serious online. 2002. Pew Internet & American Life Project. Available at: http://www.pewinternet.org. Accessed November 12, 2004.
162. Madden M, Rainie L (eds). America's online pursuits: the changing picture of who's online and what they do. 2003. Internet & American Life Project. Available at: http://www.pewinternet.org. Accessed November 12, 2004.
163. L. Baker, T.H. Wagner, S. Singer, and M.K. Bundorf Use of the Internet and e-mail for health care information: results from a national survey JAMA 289 18 2003 2400 2406
164. No significant change in the number of "cyberchondriacs" - those who go online for health care information Health Care News 3 4 2003 Available at: http://www.harrisinteractive.com. Accessed November 12, 2004
165. Fox S. Older Americans and the Internet. 2004. Pew Internet & American Life Project. Available at: http://www.pewinternet.org. Accessed November 12, 2004.
166. T.R. Eng, A. Maxfield, K. Patrick, M.J. Deering, S.C. Ratzan, and D.H. Gustafson Access to health information and support: a public highway or a private road? JAMA 280 15 1998 1371 1375
167. A.A. Sorensen Promoting public health through electronic media: a challenge for schools of public health Am J Public Health 91 8 2001 Aug 1183 1185
168. C. Zarcadoolas, M. Blanco, J.F. Boyer, and A. Pleasant Unweaving the Web: an exploratory study of low-literate adults' navigation skills on the World Wide Web J Health Commun 7 4 2002 309 324
169. A.A. Hernandez-Borges, P. Macias-Cervi, M.A. Gaspar-Guardado, M.L. Torres-Alvarez de Arcaya, A. Ruiz-Rabaza, and A. Jimenez-Sosa Can examination of WWW usage statistics and other indirect quality indicators distinguish the relative quality of medical web sites? J Med Internet Res 1 1 1999 E1
170. P. Kim, T.R. Eng, M.J. Deering, and A. Maxfield Published criteria for evaluating health related web sites: review BMJ 318 7184 1999 647 649
171. G. Eysenbach, G. Yihune, K. Lampe, P. Cross, and D. Brickley Quality management, certification and rating of health information on the Net with MedCERTAIN: using a medPICS/RDF/XML metadata structure for implementing eHealth ethics and creating trust globally J Med Internet Res 2 2 Suppl 2000 2E1
172. N.P. Terry Rating the raters: legal exposure of trustmark authorities in the context of consumer health informatics J Med Internet Res 2 3 2000 E18
173. M.A. Winker, A. Flanagin, and B. Chi-Lum Guidelines for medical and health information sites on the Internet: principles governing AMA web sites. American Medical Association JAMA 283 12 2000 1600 1606
174. G. Eysenbach, and C. Köhler How do consumers search for and appraise health information on the world wide web? Qualitative study using focus groups, usability tests, and in-depth interviews BMJ 324 7337 2002 573 577
175. G. Eysenbach, J. Powell, O. Kuss, and E.R. Sa Empirical studies assessing the quality of health information for consumers on the world wide web: a systematic review JAMA 287 20 2002 2691 2700
176. A. Gagliardi, and A.R. Jadad Examination of instruments used to rate quality of health information on the internet: chronicle of a voyage with an unclear destination BMJ 324 7337 2002 569 573
177. L. Greenberg, G. D'Andrea, and D. Lorence Setting the Public Agenda for online public health: a white paper and Action Agenda 2003 URAC [Utilization Review Accreditation Commission] Washington, DC
178. C.N. Wathen, and J. Burkell Believe it or not: factors influencing credibility on the web J Am Soc Inf Sci Technol 53 2 2002 Jan 15 134 144
179. Institute of Medicine Committee on Communication for Behavior Change in the 21st Century: Improving the Health of Diverse Populations. Speaking of health: Assessing health communication strategies for diverse populations 2002 The National Academies Press Washington, DC
180. H. Kunst, D. Groot, P.M. Latthe, M. Latthe, and K.S. Khan Accuracy of information on apparently credible websites: survey of five common health topics BMJ 324 7337 2002 581 582
181. T. Delamothe Quality of websites: kitemarking the west wind BMJ 321 7265 2000 843 844
182. O. Bouhaddou, J.G. Lambert, and S. Miller Consumer health informatics: knowledge engineering and evaluation studies of medical HouseCall Proc AMIA Symp 1998 612 616
183. P.C. Tang, and C. Newcomb Informing patients: a guide for providing patient health information J Am Med Inform Assoc 5 6 1998 563 570
184. D.H. Gustafson, R. Hawkins, and E. Boberg Impact of a patient-centered, computer-based health information/support system Am J Prev Med 16 1 1999 1 9
185. P.F. Brennan, S.M. Moore, G. Bjornsdottir, J. Jones, C. Visovsky, and M. Rogers HeartCare: an Internet-based information and support system for patient home recovery after coronary artery bypass graft (CABG) surgery J Adv Nurs 35 5 2001 Sep 699 708
186. D.H. Gustafson, R. Hawkins, and S. Pingree Effect of computer support on younger women with breast cancer J Gen Intern Med 16 7 2001 435 445
187. A. Oenema, J. Brug, and L. Lechner Web-based tailored nutrition education: results of a randomized controlled trial Health Educ Res 16 6 2001 Dec 647 660
188. D. Revere, and P.J. Dunbar Review of computer-generated outpatient health behavior interventions: clinical encounters "in Absentia" J Am Med Inform Assoc 8 2001 January 62 79
189. L. Edgar, A. Greenberg, and J. Remmer Providing Internet lessons to oncology patients and family members: a shared project Psychooncology 11 5 2002 Sep-Oct 439 446
190. M.W. Kreuter, S.N. Lukwago, R.D. Bucholtz, E.M. Clark, and V. Sanders-Thompson Achieving cultural appropriateness in health promotion programs: targeted and tailored approaches Health Educ Behav 30 2 2002 Apr 133 146
191. M.W. Kreuter, K. Steger-May, and S. Bobra Sociocultural characteristics and responses to cancer education materials among African American women Cancer Control 10 5 Suppl 2003 Sep-Oct 69 80
192. D.F. Tate, E.H. Jackvony, and R.R. Wing Effects of Internet behavioral counseling on weight loss in adults at risk for type 2 diabetes: a randomized trial JAMA 289 14 2003 1833 1836
193. R.R. Weaver Informatics tools and medical communication: patient perspectives of "knowledge coupling" in primary care Health Commun 15 1 2003 59 78
194. J.B. Fowles, A.C. Kind, C. Craft, E.A. Kind, J.L. Mandel, and S. Adlis Patients' interest in reading their medical record: relation with clinical and sociodemographic characteristics and patients' approach to health care Arch Intern Med 164 7 2004 Apr 12 793 800
195. E.A. Hahn, D. Cella, and D. Dobrez The talking touchscreen: a new approach to outcomes assessment in low literacy Psychooncology 13 2 2004 Feb 86 95
196. P. Little, M. Dorward, and G. Warner Randomised controlled trial of effect of leaflets to empower patients in consultations in primary care BMJ 328 7437 2004 Feb 21 441 Epub 2004 Feb 13
197. Hersey JC, Matheson J, Lohr KN. Consumer Health Informatics and Patient Decision Making. AHCPR Publication No. 98-N001, 1997.
198. T.N. Robinson, K. Patrick, T.R. Eng, and D. Gustafson An evidence-based approach to interactive health communication: a challenge to medicine in the information age. Science Panel on Interactive Communication and Health JAMA 280 14 1998 1264 1269
199. T.L. Bessell, S. McDonald, C.A. Silagy, J.N. Anderson, J.E. Hiller, and L.N. Sansom Do Internet interventions for consumers cause more harm than good? A systematic review Health Expect 5 1 2002 28 37
200. G.L. Kreps Evaluating new health information technologies: expanding the frontiers of health care delivery and health promotion Stud Health Technol Inform 80 2002 205 212
201. National Institute for Literacy. Available at: http://www.nifl.gov/nifl/ faqs.html.
202. ProLiteracy Worldwide. Available at: http://www.proliteracy.org/about.
203. Understanding and promoting health literacy (RO1). PAR-04-116, Department of Health and Human Services. June 2004. Available at: http://grants1.nih.gov/ grants/guide/pa-files/PAR-04-116.html.
204. T.G. Thompson, and D.J. Brailer The Decade of Health Information Technology: Delivering consumer-centric and information-rich health care 2004 U.S. Department of Health and Human Services Washington, DC