Health literacy: Report of the council on scientific affairs

JAMA

Volumn 281, Issue 6, 1999, Pages 552-557

  Bresolin, Linda B ^a  

^a AMERICAN MEDICAL ASSOCIATION   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; DOCTOR PATIENT RELATION; EDUCATION; INTERPERSONAL COMMUNICATION; MEDICAL SOCIETY; POLICY; PRIORITY JOURNAL; READING;

EID: 0033540714     PISSN: 00987484     EISSN: None     Source Type: Journal    
DOI: 10.1001/jama.281.6.552     Document Type: Article

References (71)

1. National Literacy Act, 20 USC §1201 (1991).
2. Kirsch I, Jungeblut A, Jenkins L, Kolstad A. Adult Literacy in America: A First Look at the Findings of the National Adult Literacy Survey. Washington, DC: National Center for Education Statistics, US Dept of Education; 1993.
3. Williams MV, Parker RM, Baker DW, et al. Inadequate functional health literacy among patients at 2 public hospitals. JAMA. 1995;274:1677-1682.
4. Mulrow C, Bailey S, Sonksen PH, Slavin B. Evaluation of an audiovisual diabetes education program: negative results of a randomized trial of patients with non-insulin-dependent diabetes mellitus. J Gen Intern Med. 1987;2:215-219.
5. Meade CD, Diekmann J, Thornhill DG. Readability of American Cancer Society patient education literature. Oncol Nurs Forum. 1992;19:51-55.
6. Davis TC, Mayeaux EJ, Fredrickson D, Bocchini JA Jr, Jackson RH, Murphy PW. Reading ability of parents compared with reading level of pediatric patient education materials. Pediatrics. 1994;93:460-468.
7. Glazer HR, Kirk LM, Bosler FE. Patient education pamphlets about prevention, detection, and treatment of breast cancer for low literacy women. Patient Educ Couns. 1996;27:185-189.
8. Powers RD. Emergency department patient literacy and the readability of patient-directed materials. Ann Emerg Med. 1988;17:124-126.
9. Jolly BT, Scott JL, Feied CF, Sanford SM. Functional illiteracy among emergency department patients: a preliminary study. Ann Emerg Med. 1993; 22:573-578.
10. Ledbetter C, Hall S, Swanson JM, Forrest K. Readability of commercial versus generic health instructions for condoms. Health Care Women Int. 1990; 11:295-304.
11. Wells JA. Readability of HIV/AIDS educational materials: the role of the medium of communication, target audience, and producer characteristics. Patient Educ Couns. 1994;24:249-259.
12. Morrow GR. How readable are subject consent forms? JAMA. 1980;244:56-58.
13. LoVerde ME, Prochazka AV, Byyny RL. Research consent forms: continued unreadability and increasing length. J Gen Intern Med. 1989;4:410-412.
14. Grossman SA, Piantadosi S, Covahey C. Are informed consent forms that describe clinical oncology research protocols readable by most patients and their families? J Clin Oncol. 1994;12:2211-2215.
15. Davis TC, Holcombe RF, Berkel HJ, Pramanik S, Divers SG. Informed consent for clinical trials: a comparative study of standard vs simplified forms. J Natl Cancer Inst. 1998;90:668-674.
16. Doak CC, Doak LG, Root JH. Teaching Patients With Low Literacy Skills. 2nd ed. Philadelphia, Pa: JB Lippincott Co; 1996.
17. Foege A. Inequality of income, illiteracy, and medical care as determinants of infant mortality in underdeveloped countries. Popul Stud. 1982;36:441-458.
18. Esrey SA, Habicht JP. Maternal literacy modifies the effect of toilets and piped water on infant survival in Malaysia. Am J Epidemiol. 1988;127:1079-1087.
19. Grosse RN, Auffrey C. Literacy and health status in developing countries. Annu Rev Public Health. 1989; 10:281-297.
20. Kitagawa E, Hauser P. Differential Mortality in the United States: A Study in Socioeconomic Epidemiology. Cambridge, Mass: Harvard University Press; 1973.
21. Feldman J, Makuc D, Kleinman J, Cornoni-Huntiey J. National trends in educational differentials in mortality. Am J Epidemiol. 1989;129:919-933.
22. Guralnik J, Land K, Blazer D, Fillenbaum G, Branch L. Educational status and active life expectancy among older blacks and whites. N Engl J Med. 1993;329: 110-116.
23. Prevalence of selected risk factors for chronic disease by education level in racial/ethnic populations - United States, 1991-1992. MMWR Morb Mortal Wkly Rep. 1995;43:894-899.
24. Williams MV, Baker DW, Parker RM, Nurss JR. Relationship of functional health literacy to patients' knowledge of their chronic disease: a study of patients with hypertension or diabetes. Arch Intern Med. 1998;158:166-172.
25. Williams MV, Baker DW, Honig EG, Lee TM, Nowlan A. Inadequate literacy is a barrier to asthma knowledge and self-care. Chest 1998;114:1008-1015.
26. Weiss BD,Hart G, McGee DL, D'Estelle S. Health status of illiterate adults: relation between literacy and health status among persons with low literacy skills. J Am Board Fam Pract. 1992;5:257-264.
27. Baker DW, Parker RM, Williams MV, Clark WS, Nurss J. The relationship of patient reading ability to self-reported health and use of health services. Am J Public Health. 1997;87:1027-1030.
28. Baker D, Parker R, Williams M, Clark W. Patient reading ability and use of health care services. J Gen Intern Med. In press.
29. Parker RM, Baker DW, Williams MV, Nurss JR. The test of functional health literacy in adults: a new instrument for measuring patients' literacy skills. J Gen Intern Med. 1995;10:537-541.
30. Stedman L, Kaestle C. Literacy and reading performance in the United States from 1880 to present. In: Kaestle C, ed. Literacy in the United States: Readers and Readings Since 1880 New Haven, Conn: Yale University Press; 1991:75-128.
31. Bennett CL, Ferreira MR, Davis TC, et al. Relation between literacy, race, and stage of presentation among low-income patients wtih prostate cancer. J Clin Oncol. 1998;16:3101-3104.
32. Weiss BD, Blanchard JS, McGee DL, et al. Illiteracy among Medicaid recipients and its relationship to health care costs. J Health Care Poor Underserved. 1994;5:99-111.
33. Weiss B. Hidden problems: low literacy. In: Weiss B, ed. 20 Common Problems in Primary Care. New York, NY: McGraw-Hill Book Co; 1999:498-509.
34. Expert Panel Report 2: Guidelines for the Diagnosis and Management of Asthma. Bethesda, Md: National Asthma Education and Prevention Program, National Heart, Lung, and Blood Institute, National Institutes of Health, US Dept of Health and Human Services; 1997.
35. Davidoff F. Time. Ann Intern Med. 1997;127: 483-485.
36. Davis TC, Arnold C, Berkel HJ, Nandy I, Jackson RH, Glass J. Knowledge and attitude on screening mammography among low-literate, low-income women. Cancer. 1996;78:1912-1920.
37. Boyle C. Differences between patients' and doctors' interpretations of common medical terms. BMJ. 1970;2:286-289.
38. Cole R. The understanding of medical terminology used in printed health education materials. Health Educ J. 1979;38:111-121.
39. Jolly B, Scott J, Sanford S. Simplification of emergency department discharge instructions improves patient comprehension. Ann Emerg Med. 1995;26:443-446.
40. Spandorfer JM, Karras DJ, Hughes LA, Caputo C. Comprehension of discharge instructions by patients in an urban emergency department. Ann Emerg Med. 1995;25:71-74.
41. Baker DW, Parker RM, Williams MV, et al. The health care experience of patients with low literacy. Arch Fam Med. 1996;5:329-334.
42. Braddock CH, Fihn SD, Levinson W, Jonsen AR, Pearlman RA. How doctors and patients discuss routine clinical decisions: informed decision making in the outpatient setting. J Gen Intern Med. 1997;12:339-345.
43. Cassileth BR, Zupkis RV, Sutton-Smith K, March V. Informed consent - why are its goals imperfectly realized? N Engl J Med. 1980;302:896-900.
44. Plimpton S, Root J. Materials and strategies that work in low literacy health communication. Public Health Rep. 1994;109:86-92.
45. US Department of Health and Human Services. Clear and Simple: Developing Effective Print Materials for Low Literacy Readers. Bethesda, Md: National Cancer Institute Office of Cancer Communication; 1994.
46. Davis TC, Bocchini JA Jr, Fredrickson D, et al. Parent comprehension of polio vaccine information pamphlets. Pediatrics. 1996;97:804-810.
47. Korff MV, Gruman J, Schaefer J, Curry SJ, Wagner EH. Collaborative management of chronic illness. Ann Intern Med. 1997;127:1097-1102.
48. Knowles M. The Adult Learner: A Neglected Species. Houston, Tex: Gulf Publishing Co; 1973.
49. Doak LG, Doak CC. Teaching Patients With Low Literacy Skills: American Academy of Family Practice Patient Education Conference. San Antonio, Tex: American Academy of Family Practice; 1991.
50. Weiss BD, Reed RL, Kligman EW. Literacy skills and communication methods of low-income older persons. Patient Educ Couns. 1995;25:109-119.
51. Davis TC, Crouch MA, Long SW, et al. Rapid assessment of literacy levels of adult primary care patients. Fam Med. 1991;23:433-435.
52. Davis TC, Jackson RH, George RB, et al. Reading ability in patients in substance misuse treatment centers. Int J Addict. 1993;28:571-582.
53. Davis TC, Berkel H, Arnold CL, Nandy I, Jackson RH, Murphy PW. Intervention study to increase mammography utilization in a public hospital. J Gen Intern Med. 1998;13:230-233.
54. Davis TC, Long SW, Jackson RH, et al. Rapid estimate of adult literacy in medicine: a shortened screening instrument. Fam Med. 1993;25:391-395.
55. Baker DW, Williams MV, Parker RM, Gazmararian JA, Nurss JR. Development of a brief test to measure functional health literacy. Patient Educ Couns. In press.
56. Weiss BD, Coyne C, Michielutte R, et al. Communicating with patients who have limited literacy skills: consensus statement from the National Work Group on Literacy and Health J Fam Pract. 1998;46:168-175.
57. Parikh NS, ParkerRM, Nurss JR, Baker DW, Williams MV. Shame and health literacy: the unspoken connection. Patient Educ Couns. 1996;27:33-39.
58. Young D, Hooker D, Freeberg F. Informed consent documents: increasing comprehension by reducing reading level. IRB Rev Hum Subjects Res. 1990; 12:1-6.
59. Overland JE, Hoskins PL, McGill MJ, Yue DK. Low literacy: a problem in diabetes education. Diabet Med. 1993;10:847-850.
60. Dowe MC, Lawrence PA, Carlson J, Keyserling TC. Patients' use of health-teaching materials at three readability levels. Appl Nurs Res. 1997;10:86-93.
61. Davis TC, Fredrickson DD, Arnold C, Murphy PW, Herbst M, Bocchini JA. A polio immunization pamphlet with increased appeal and simplified language does not improve comprehension to an acceptable level. Patient Educ Couns. 1998;33:25-37.
62. Rudd RE, Comings JP. Learner developed materials: an empowering product. Health Educ Q. 1994; 21:313-327.
63. Garber A. Pursuing the links between socioeconomic factors and health: critique, policy implications, and directions for future research. In: Bunker J, Gomby D, Kehrer B, eds. Pathways to Health. Menlo Park, Calif: Henry J Kaiser Family Foundation; 1989: 271-315.
64. Weiss BD, Coyne C. Communicating with patients who cannot read. N Engl J Med. 1997;337:272-274.
65. Gottfredson LS. Why g matters: the complexity of everyday life. Intelligence. 1997;24:79-132.
66. Wallerstein N. Powerlessness, empowerment, and health: implications for health promotion programs. Am J Health Promotion. 1992;6:197-205.
67. Brandes WL, Furnas S, McClellan FM, Haywood J, Oheme-Frempong J, Taylor-Watson M. Literacy, Health, and the Law. Philadelphia, Pa: Health Promotion Council of Southeastern Pennsylvania Inc; 1996.
68. NCQA Reviewer Guidelines for the Accreditation of Managed Care Organizations. Washington, DC: National Committee for Quality Assurance; 1995.
69. Patient and family education. In: Accreditation Manual for Hospitals. Chicago, Ill: Joint Commission on Accreditation of Healthcare Organizations; 1996.
70. Prescription drug product labeling: medication guide requirements: proposed rule, 60 Federal Register 44182, 44252 (1996).
71. US Department of Health and Human Services. Healthy People 2010 Directives: Draft for Public Comment. Washington, DC: Public Health Service; 1998.