Like or dislike? impact of facebook on ewing sarcoma treatment

JMIR Cancer

Volumn 2, Issue 2, 2016, Pages

  Ruckenstuhl, Paul ^a   Schippinger, Michael ^a   Liebmann, Paul ^b   Leithner, Andreas ^a   Bernhardt, Gerwin ^a  

^a MEDICAL UNIVERSITY OF GRAZ   (Austria)

^b Evangelisches Krankenhaus Vienna   (Austria)

Author keywords

Ewing sarcoma; Facebook; Social media; Social media networking

Indexed keywords

EID: 85076968022     PISSN: None     EISSN: 23691999     Source Type: Journal    
DOI: 10.2196/cancer.5367     Document Type: Article

References (50)

1. Fox S. Pew Research Center. Washington, DC: Pew Internet & American Life Project; 2008. The engaged e-patient population URL:http://www.pewinternet.org/files/old-media//Files/Reports/2008/PIP_Health_Aug08.pdf.pdf [accessed 2016-08-05] [WebCite Cache ID 6jXBztKkj]
2. Moorhead SA, Hazlett DE, Harrison L, Carroll JK, Irwin A, Hoving C. A new dimension of health care: Systematic review of the uses, benefits, and limitations of social media for health communication. J Med Internet Res 2013 Apr; 15(4):e85 [FREE Full text] [doi: 10.2196/jmir.1933] [Medline: 23615206]
3. Hoffman-Goetz L, Donelle L, Thomson MD. Clinical guidelines about diabetes and the accuracy of peer information in an unmoderated online health forum for retired persons. Inform Health Soc Care 2009 Mar; 34(2):91-99. [doi: 10.1080/17538150902865136] [Medline: 19412842]
4. Kreps GL, Neuhauser L. New directions in eHealth communication: Opportunities and challenges. Patient Educ Couns 2010 Mar; 78(3):329-336. [doi: 10.1016/j.pec.2010.01.013] [Medline: 20202779]
5. Vance K, Howe W, Dellavalle RP. Social internet sites as a source of public health information. Dermatol Clin 2009 Apr; 27(2):133-6, vi. [doi: 10.1016/j.det.2008.11.010] [Medline: 19254656]
6. Sudau F, Friede T, Grabowski J, Koschack J, Makedonski P, Himmel W. Sources of information and behavioral patterns in online health forums: Observational study. J Med Internet Res 2014; 16(1):e10 [FREE Full text] [doi: 10.2196/jmir.2875] [Medline: 24425598]
7. Lau AS. Hospital-based nurses' perceptions of the adoption of Web 2.0 tools for knowledge sharing, learning, social interaction and the production of collective intelligence. J Med Internet Res 2011 Nov; 13(4):e92 [FREE Full text] [doi: 10.2196/jmir.1398] [Medline: 22079851]
8. Gholami-Kordkheili F, Wild V, Strech D. The impact of social media on medical professionalism: A systematic qualitative review of challenges and opportunities. J Med Internet Res 2013 Aug; 15(8):e184 [FREE Full text] [doi: 10.2196/jmir.2708] [Medline: 23985172]
9. Farmer AD, Bruckner HC, Cook M, Hearing S. Social networking sites: A novel portal for communication. Postgrad Med J 2009; 85(1007):455-459. [doi: 10.1136/pgmj.2008.074674.85/1007/455]
10. Greenhalgh T. Patientpublic involvement in chronic illness: Beyond the expert patient. BMJ 2009; 338:629-631.
11. McMullan M. Patients using the Internet to obtain health information: How this affects the patient-health professional relationship. Patient Educ Couns 2006 Oct; 63(1-2):24-28. [doi: 10.1016/j.pec.2005.10.006] [Medline: 16406474]
12. Statista. 2015. The Statistics Portal URL:http://www.statista.com/statistics/346167/facebook-global-dau/[accessed 2016-08-03] [WebCite Cache ID 6jUKdOn5H]
13. Alexa. 2010. The top 500 websites URL:http://www.alexa.com/topsites [accessed 2016-08-03] [WebCite Cache ID 6jUKdyCGs]
14. Facebook. 2015. Press Room: Statistics 2015 URL:http://www.facebook.com/common/browser.php[WebCite Cache ID 5umfX04H2]
15. Jha A, Lin L, Savoia E. The Use of Social Media by State Health Departments in the US: Analyzing Health Communication Through Facebook. J Community Health 2016 Feb; 41(1):174-179. [doi: 10.1007/s10900-015-0083-4] [Medline: 26318742]
16. Thompson LA, Dawson K, Ferdig R, Black EW, Boyer J, Coutts J, et al. The intersection of online social networking with medical professionalism. J Gen Intern Med 2008 Jul; 23(7):954-957 [FREE Full text] [doi: 10.1007/s11606-008-0538-8] [Medline: 18612723]
17. Fox S, Jones S. Pew Research Center. 2009. The Social Life of Health Information URL:http://pewinternet.org.Reports/2007/Information-Searches [accessed 2016-08-03] [WebCite Cache ID 6jUKhpGXz]
18. Bender JL, Jimenez-Marroquin M, Jadad AR. Seeking support on facebook: A content analysis of breast cancer groups. J Med Internet Res 2011 Feb; 13(1):e16 [FREE Full text] [doi: 10.2196/jmir.1560] [Medline: 21371990]
19. Schumacher KR, Stringer KA, Donohue JE, Yu S, Shaver A, Caruthers RL, et al. Social media methods for studying rare diseases. Pediatrics 2014; 133(5):e1345-e1353. [Medline: 24733869]
20. Abramson K, Keefe B, Chou WS. Communicating about cancer through Facebook: A qualitative analysis of a breast cancer awareness page. J Health Commun 2015 Dec; 20(2):237-243. [doi: 10.1080/10810730.2014.927034] [Medline: 25495200]
21. Gaspar N, Hawkins DS, Dirksen U, Lewis IJ, Ferrari S, Le DM, van den Berg Hendrik, et al. Ewing Sarcoma: Current Management and Future Approaches Through Collaboration. J Clin Oncol 2015 Sep 20; 33(27):3036-3046. [doi: 10.1200/JCO.2014.59.5256] [Medline: 26304893]
22. Cote GM, Choy E. Update in treatment and targets in Ewing sarcoma. Hematol Oncol Clin North Am 2013; 27(5):1007-1019. [Medline: 24093173]
23. Seker MM, Kos T, Ozdemir N, Seker A, Aksoy S, Uncu D, et al. Treatment and outcomes of Ewing sarcoma in Turkish adults: A single centre experience. Asian Pac J Cancer Prev 2014; 15(1):327-330 [FREE Full text] [Medline: 24528050]
24. Lenhart A. Pew Research Center. Washington, DC: Pew Internet & American Life Project; 2009. Adults and social network sites URL:http://pewinternet.org/-/media//Files/Reports/2009/PIP_Adult_social_networking_data_memo_FINAL.pdf.pdf [accessed 2016-08-05] [WebCite Cache ID 6jXG1blCC]
25. Duggan M, Brenner J. Pew Research Center. Washington, DC: Pew Internet and American Life Project The demographics of social media users 2012 URL:http://pewinternet.org/-/media//Files/Reports/2013/PIP_SocialMediaUsers.pdf [accessed 2016-08-03] [WebCite Cache ID 6jUKmMVCW]
26. Ramo DE, Thrul J, Chavez K, Delucchi KL, Prochaska JJ. Feasibility and Quit Rates of the Tobacco Status Project: A Facebook Smoking Cessation Intervention for Young Adults. J Med Internet Res 2015 Dec; 17(12):e291 [FREE Full text] [doi: 10.2196/jmir.5209] [Medline: 26721211]
27. Leithner A, Maurer-Ertl W, Glehr M, Friesenbichler J, Leithner K, Windhager R. Wikipedia and osteosarcoma: A trustworthy patients' information? J Am Med Inform Assoc 2010; 17(4):373-374 [FREE Full text] [doi: 10.1136/jamia.2010.004507] [Medline: 20595302]
28. Burcher N. Nickburcher. 2008. Facebook users per country and Facebook usage by country as a percentage of the population URL:http://www.nickburcher.com/2008/07/facebook-user-numbers-by-country-and.html [accessed 2016-08-03] [WebCite Cache ID 6jUKpT9vD]
29. SurveyMonkey. 2014. Create Surveys, Get Answers URL:https://www.surveymonkey.com/mp/aboutus/[accessed 2016-08-03] [WebCite Cache ID 6jUKpzqg4]
30. Eysenbach G. Improving the quality of Web surveys : The Checklist for Reporting Results of Internet E-Surveys (CHERRIES). J Med Internet Res 2004 Sep 29; 6(3):e34. [doi: 10.2196/jmir.6.3.e34]
31. Greene JA, Choudhry NK, Kilabuk E, Shrank WH. Online social networking by patients with diabetes: A qualitative evaluation of communication with Facebook. J Gen Intern Med 2011 Mar; 26(3):287-292 [FREE Full text] [doi: 10.1007/s11606-010-1526-3] [Medline: 20945113]
32. Gajaria A, Yeung E, Goodale T, Charach A. Beliefs about attention-deficit/hyperactivity disorder and response to stereotypes: Youth postings in Facebook groups. J Adolesc Health 2011 Jul; 49(1):15-20. [doi: 10.1016/j.jadohealth.2010.09.004] [Medline: 21700151]
33. Farmer AD, Bruckner H, Cook MJ, Hearing SD. Social networking sites: A novel portal for communication. Postgrad Med J 2009 Sep; 85(1007):455-459. [doi: 10.1136/pgmj.2008.074674] [Medline: 19734511]
34. De la Torre-Díez I, Díaz-Pernas FJ, Antón-Rodríguez M. A content analysis of chronic diseases social groups on Facebook and Twitter. Telemed J E Health 2012 Jul; 18(6):404-408. [doi: 10.1089/tmj.2011.0227] [Medline: 22650380]
35. Hale TM, Pathipati AS, Zan S, Jethwani K. Representation of health conditions on Facebook: Content analysis and evaluation of user engagement. J Med Internet Res 2014 Aug; 16(8):e182 [FREE Full text] [doi: 10.2196/jmir.3275] [Medline: 25092386]
36. Lampe C, Vitak J, Gray R, Ellison N. Perceptions of Facebook's value as an information source. 2012 Presented at: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems; May 5-10, 2012; New York, NY p. 3195-3204. [doi: 10.1145/2207676.2208739]
37. Hale TM, Pathipati AS, Zan S, Jethwani K. Representation of health conditions on Facebook: Content analysis and evaluation of user engagement. J Med Internet Res 2014 Aug; 16(8):e182 [FREE Full text] [doi: 10.2196/jmir.3275] [Medline: 25092386]
38. Cline R, Haynes K. Consumer health information seeking on the Internet: The state of the art. Health Educ Res Dec 2001; 16(6):671-692.
39. Pennbridge J, Moya R, Rodrigues L. Questionnaire survey of California consumers' use and rating of sources of health care information including the Internet. West J Med 1999; 171(5-6):302-305. [Medline: 10639865]
40. Cobb NK, Graham AL, Abrams DB. Social network structure of a large online community for smoking cessation. Am J Public Health 2010 Jul; 100(7):1282-1289 [FREE Full text] [doi: 10.2105/AJPH.2009.165449] [Medline: 20466971]
41. Chou WS, Hunt YM, Beckjord EB, Moser RP, Hesse BW. Social media use in the United States: Implications for health communication. J Med Internet Res 2009 Nov; 11(4):e48 [FREE Full text] [doi: 10.2196/jmir.1249] [Medline: 19945947]
42. Kontos EZ, Emmons KM, Puleo E, Viswanath K. Communication inequalities and public health implications of adult social networking site use in the United States. J Health Commun 2010 Dec; 15 Suppl 3:216-235 [FREE Full text] [doi: 10.1080/10810730.2010.522689] [Medline: 21154095]
43. Lenhart A. Pew Research Center. Washington, DC: Pew Internet & American Life Project; 2009. Adults and social network sites URL:http://www.pewinternet.org/files/old-media//Files/Reports/2009/PIP_Adult_social_networking_data_memo_FINAL.pdf.pdf [accessed 2016-08-08] [WebCite Cache ID 6jbV3oGEK]
44. Davison KP, Pennebaker J, Dickerson S. Who talks? The social psychology of illness support groups. Am Psychol 2000 Feb; 55(2):205-217. [Medline: 10717968]
45. Moreno M, Parks M, Richardson L. What are adolescents showing the world about their health risk behaviors on MySpace? MedGenMed. MedGenMed 2007; 9(4):9.
46. Baptist AP, Thompson M, Grossman KS, Mohammed L, Sy A, Sanders GM. Social media, text messaging, and email-preferences of asthma patients between 12 and 40 years old. J Asthma 2011 Oct; 48(8):824-830. [doi: 10.3109/02770903.2011.608460] [Medline: 21864099]
47. Schippinger M, Ruckenstuhl P, Friesenbichler J, Leithner A. [Osteosarcoma: Reliability and quality of the information in the internet]. Wien Med Wochenschr 2014 Sep; 164(17-18):353-357. [doi: 10.1007/s10354-014-0304-y] [Medline: 25205186]
48. Donaldson L. Expert patients usher in a new era of opportunity for the NHS. BMJ 2003 Jun 14; 326(7402):1279-1280 [FREE Full text] [doi: 10.1136/bmj.326.7402.1279] [Medline: 12805129]
49. Brown J, Ryan C, Harris A. How doctors view and use social media: A national survey. J Med Internet Res 2014 Dec; 16(12):e267 [FREE Full text] [doi: 10.2196/jmir.3589] [Medline: 25470407]
50. Cutrona SL, Roblin DW, Wagner JL, Gaglio B, Williams AE, Torres SR, et al. Adult Willingness to Use Email and Social Media for Peer-to-Peer Cancer Screening Communication: Quantitative Interview Study. JMIR Res Protoc 2013; 2(2):e52 [FREE Full text] [doi: 10.2196/resprot.2886] [Medline: 24287495]