Social media methods for studying rare diseases

Pediatrics

Volumn 133, Issue 5, 2014, Pages

  Schumacher, Kurt R ^a   Stringer, Kathleen A ^b   Donohue, Janet E ^a   Yu, Sunkyung ^a   Shaver, Ashley ^a   Caruthers, Regine L ^a   Zikmund Fisher, Brian J ^c   Fifer, Carlen ^a   Goldberg, Caren ^a   Russell, Mark W ^a  

^a UNIVERSITY OF MICHIGAN   (United States)

^b UNIVERSITY OF MICHIGAN   (United States)

^c UNIVERSITY OF MICHIGAN SCHOOL OF PUBLIC HEALTH   (United States)

Author keywords

Fontan; Rare disease; Social media

Indexed keywords

ACCESS TO INFORMATION; AFRICAN AMERICAN; ARTICLE; ASIAN; BRONCHITIS; CAUCASIAN; CHILD; CHILDHOOD DISEASE; COHORT ANALYSIS; COMPARATIVE STUDY; CONTROLLED STUDY; CROUPOUS BRONCHITIS; FEASIBILITY STUDY; FEMALE; FONTAN PROCEDURE; GEOGRAPHIC DISTRIBUTION; HEALTH SURVEY; HISPANIC; HUMAN; INTERNET; MAJOR CLINICAL STUDY; MALE; MEDICAL RESEARCH; ONLINE SYSTEM; PACIFIC ISLANDER; PATIENT ATTITUDE; PATIENT HISTORY OF SURGERY; PATIENT PARTICIPATION; PATIENT REFERRAL; PRIORITY JOURNAL; PROTEIN LOSING GASTROENTEROPATHY; RARE DISEASE; SELF REPORT; SOCIAL MEDIA; SOCIAL NETWORK; STUDY DESIGN; UNITED STATES; VALIDATION PROCESS; ADOLESCENT; BRONCHITIS, CHRONIC; CONSUMER HEALTH INFORMATION; PROTEIN-LOSING ENTEROPATHIES; QUESTIONNAIRE; RESEARCH SUBJECT;

ADOLESCENT; BRONCHITIS, CHRONIC; CONSUMER HEALTH INFORMATION; FEMALE; FONTAN PROCEDURE; HEALTH SURVEYS; HUMANS; MALE; PROTEIN-LOSING ENTEROPATHIES; QUESTIONNAIRES; RARE DISEASES; RESEARCH SUBJECTS; SOCIAL MEDIA; UNITED STATES;

EID: 84899814251     PISSN: 00314005     EISSN: 10984275     Source Type: Journal    
DOI: 10.1542/peds.2013-2966     Document Type: Article

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