The Theory of Dyadic Illness Management

Journal of Family Nursing

Volumn 24, Issue 1, 2018, Pages 8-28

  Lyons, Karen S ^a   Lee, Christopher S ^a  

^a OREGON HEALTH AND SCIENCE UNIVERSITY   (United States)

Author keywords

dyadic appraisal; dyadic health; dyadic management

Indexed keywords

ADULT; ARTICLE; BEHAVIOR; HUMAN; PATIENT CARE;

EID: 85042757347     PISSN: 10748407     EISSN: 1552549X     Source Type: Journal    
DOI: 10.1177/1074840717745669     Document Type: Article

References (68)

1. Årestedt L., Benzein E., Persson C., (2015). Families living with chronic illness: Beliefs about illness, family, and health care. Journal of Family Nursing, 21, 206-231. doi:10.1177/1074840715576794
2. Badr H., Acitelli L. K., (2017). Re-thinking dyadic coping in the context of chronic illness. Current Opinion in Psychology, 13, 44-48. doi:10.1016/j.copsyc.2016.03.001
3. Bell J. M., Wright L. M., (2015). The Illness Beliefs Model: Advancing practice knowledge about illness beliefs, family healing, and family interventions [Editorial]. Journal of Family Nursing, 21, 179-185. doi:10.1177/1074840715586889
4. Berg C. A., Upchurch R., (2007). A developmental-contextual model of couples coping with chronic illness across the adult life span. Psychological Bulletin, 133, 920-954. doi:10.1037/0033-2909.133.6.920
5. Bidwell J. T., Lyons K. S., Mudd J. O., Gelow J. M., Chien C. V., Hiatt S. O... Lee C. S., (2017). Quality of life, depression, and anxiety in ventricular assist device therapy: Longitudinal outcomes for patients and caregivers. Journal of Cardiovascular Nursing, 32, 455-463. doi:10.1097/JCN.0000000000000378
6. Bidwell J. T., Vellone E., Lyons K. S., D’Agostino F., Riegel B., Paturzo M... Lee C. S., (2017). Caregiver determinants of patient clinical event risk in heart failure. European Journal of Cardiovascular Nursing, 16, 707-714. doi:10.1177/1474515117711305
7. Bidwell J. T., Vellone E., Lyons K. S., D’Agostino F., Riegel B., Vela R. J... Lee C. S., (2015). Determinants of heart failure self-care maintenance and management: A dyadic analysis. Research in Nursing & Health, 38, 392-402. doi:10.1002/nur.21675
8. Buck H. G., Kitko L., Hupcey J. E., (2013). Dyadic heart failure care types: Qualitative evidence for a novel typology. Journal of Cardiovascular Nursing, 28, E37-E46. doi:10.1097/JCN.0b013e31827fcc4c
9. ®, 118, 369-379. doi:10.1016/j.pain.2005.09.003
10. Carter J. H., Stewart B. J., Lyons K. S., Archbold P. G., (2008). Do motor and nonmotor symptoms in PD patients predict caregiver strain and depression? Movement Disorders, 23, 1211-1216. doi:10.1002/mds.21686
11. Dodd M., Janson S., Facione N., Faucett J., Froelicher E. S., Humphreys J... Taylor D., (2001). Advancing the science of symptom management. Journal of Advanced Nursing, 33, 668-676. doi:10.1046/j.1365-2648.2001.01697.x
12. Fletcher B. S., Miaskowski C., Given B., Schumacher K., (2012). The cancer family caregiving experience: An updated and expanded conceptual model. European Journal of Oncology Nursing, 16, 387-398. doi:10.1016/j.ejon.2011.09.001
13. Grey M., Schulman-Green D., Knafl K., Reynolds N. R., (2015). A revised Self- and Family Management Framework. Nursing Outlook, 63, 162-170. doi:10.1016/j.outlook.2014.10.003
14. Hagedoorn M., Sanderman R., Coyne J. C., Bolks H. N., Tuinstra J., (2008). Distress in couples coping with cancer: A meta-analysis and critical review of role and gender effects. Psychological Bulletin, 134, 1-30. doi:10.1037/0033-2909.134.1.1
15. Heid A. R., Bangerter L. R., Abbott K. M., Van Haitsma K., (2017). Do family proxies get it right? Concordance in reports of nursing home residents’ everyday preferences. Journal of Applied Gerontology, 36, 667-691. doi:10.1177/0733464815581485
16. Hooker S. A., Grigsby M. E., Riegel B., Bekelman D. B., (2015). The impact of relationship quality on health-related outcomes in heart failure patients and informal family caregivers: An integrative review. Journal of Cardiovascular Nursing, 30(4, Suppl. 1), S52-S63. doi:10.1097/JCN.0000000000000270
17. Janssen J. A., Spruit M. A., Wouters E. F. M., Schols J. M. G. A. (2012). Symptom distress in advanced chronic organ failure: Disagreement among patients and family caregivers. Journal of Palliative Medicine, 15, 447-456. doi:10.1089/jpm.2011.0394
18. Kenny D. A., Kashy D. A., Cook W. L., (2006). Dyadic data analysis. New York, NY: Guilford.
19. Knafl K., Deatrick J. A., Gallo A. M., (2008). The interplay of concepts, data, and methods in the development of the Family Management Style Framework. Journal of Family Nursing, 14, 412-428. doi:10.1177/1074840708327138
20. Knafl K., Deatrick J. A., Havill N., (2012). Continued development of the Family Management Style Framework. Journal of Family Nursing, 18, 11-34. doi:10.1177/1074840711427294
21. Knafl K., Deatrick J. A., Knafl G. J., Gallo A. M., Grey M., Dixon J., (2013). Patterns of family management of childhood chronic conditions and their relationship to child and family functioning. Journal of Pediatric Nursing, 28, 523-535. doi:10.1016/j.pedn.2013.03.006
22. Lazarus R. S., Folkman S., (1984). Stress appraisal and coping. New York, NY: Springer.
23. Lee C. S., Mudd J. O., Auld J., Gelow J. M., Hiatt S. O., Chien C. V... Lyons K. S., (2017). Patterns, relevance and predictors of heart failure dyadic symptom appraisal. European Journal of Cardiovascular Nursing, 16, 595-604. doi:10.1177/1474515117700760
24. Lee C. S., Vellone E., Lyons K. S., Cocchieri A., ’Bidwell J. T. D., Agostino F... Riegel B., (2015). Patterns and predictors of patient and caregiver engagement in heart failure care: A multi-level dyadic study. International Journal of Nursing Studies, 52, 588-597. doi:10.1016/j.ijnurstu.2014.11.005
25. Li Q., Loke A. Y., (2014). A literature review on the mutual impact of the spousal caregiver–cancer patients dyads: “Communication,” “reciprocal influence,” and “caregiver–patient congruence.” European Journal of Oncology Nursing, 18, 58-65. doi:10.1016/j.ejon.2013.09.003
26. Lobchuk M. M., Degner L. F., (2002). Symptom experiences: Perceptual accuracy between advanced-stage cancer patients and family caregivers in the home care setting. Journal of Clinical Oncology, 20, 3495-3507. doi:10.1200/JCO.2002.01.153
27. Lyons K. S., Bennett J. A., Nail L. M., Fromme E. K., Dieckmann N., Sayer A. G., (2014). The role of patient pain and physical function on depressive symptoms in couples with lung cancer: A longitudinal dyadic analysis. Journal of Family Psychology, 28, 692-700. doi:10.1037/fam0000017
28. Lyons K. S., Gelow J. M., Hiatt S. O., Mudd J. O., Auld J., Chien C. V., Lee C. S., (2017). The role of dyadic confidence on engagement in heart failure care behaviors. The Gerontologist. Advance online publication. doi:10.1093/geront/gnx030
29. Lyons K. S., Hiatt S. O., Gelow J. M., Auld J., Mudd J. O., Chien C., Lee C. S., (2017). Depressive symptoms in couples living with heart failure: The role of congruent engagement in heart failure management. Aging & Mental Health. Advance online publication. doi:10.1080/13607863.2017.1381945
30. Lyons K. S., Jones K. D., Bennett R. M., Hiatt S. O., Sayer A. G., (2013). Couple perceptions of fibromyalgia symptoms: The role of communication. PAIN®, 154, 2417-2426. doi:10.1016/j.pain.2013.07.018
31. Lyons K. S., Lee C. S., Bennett J. A., Nail L. M., Fromme E. K., Hiatt S. O., Sayer A. G., (2014). Symptom incongruence trajectories in lung cancer dyads. Journal of Pain and Symptom Management, 48, 1031-1040. doi:10.1016/j.jpainsymman.2014.02.004
32. Lyons K. S., Miller L. M., McCarthy M. J., (2016). The roles of dyadic appraisal and dyadic coping in couples with lung cancer. Journal of Family Nursing, 22, 493-514. doi:10.1177/1074840716675976
33. Lyons K. S., Sayer A. G., Archbold P. G., Hornbrook M. C., Stewart B. J., (2007). The enduring and contextual effects of physical health and depression on care dyad mutuality. Research in Nursing & Health, 30, 84-98. doi:10.1002/nur.20165
34. Lyons K. S., Stewart B. J., Archbold P. G., Carter J. H., (2009). Optimism, pessimism, mutuality, and gender: Predicting 10-year role strain in Parkinson’s disease spouses. The Gerontologist, 49, 378-387. doi:10.1093/geront/gnp046
35. Lyons K. S., Zarit S. H., Sayer A. G., Whitlatch C. J., (2002). Caregiving as a dyadic process: Perspectives from caregiver and receiver. The Journals of Gerontology, Series B: Psychological Sciences, 57, P195-P204. doi:10.1093/geronb/57.3.P195
36. McCarthy M. J., Lyons K. S., (2015). Incongruence between stroke survivor and spouse perceptions of survivor functioning and effects on spouse mental health: A mixed-methods pilot study. Aging & Mental Health, 19, 46-54. doi:10.1080/13607863.2014.913551
37. McPherson C. J., Addington-Hall J. M., (2003). Judging the quality of care at the end of life: Can proxies provide reliable information? Social Science & Medicine, 56, 95-109. doi:10.1016/S0277-9536(02)00011-4
38. McPherson C. J., Wilson K. G., Lobchuk M. M., Brajtman S., (2008). Family caregivers’ assessment of symptoms in patients with advanced cancer: Concordance with patients and factors affecting accuracy. Journal of Pain and Symptom Management, 35, 70-82. doi:10.1016/j.jpainsymman.2007.02.038
39. Merz E. L., Malcarne V. L., Ko C. M., Sadler M., Kwack L., Varni J. W., Sadler G. R., (2011). Dyadic concordance among prostate cancer patients and their partners and health-related quality of life: Does it matter? Psychology & Health, 26, 651-666. doi:10.1080/08870441003721251
40. Miller L. M., Lyons K. S., Bennett J. A., (2015). Incongruent perceptions of pain and physical function among families living with lung cancer. Supportive Care in Cancer, 23, 2755-2762. doi:10.1007/s00520-015-2640-x
41. Miller L. M., Whitlatch C. J., Lee C. S., Lyons K. S., (2017). Incongruent perceptions of the care values of hospitalized persons with dementia: A pilot study of patient-family caregiver dyads. Aging & Mental Health. Advance online publication. doi:10.1080/13607863.2017.1280766
42. Miller L. M., Whitlatch C. J., Lyons K. S., (2016). Shared decision-making in dementia: A review of patient and family carer involvement. Dementia, 15, 1141-1157. doi:10.1177/1471301214555542
43. Moon H., Townsend A. L., Whitlatch C. J., Dilworth-Anderson P., (2017). Quality of life for dementia caregiving dyads: Effects of incongruent perceptions of everyday care and values. The Gerontologist, 57, 657-666. doi:10.1093/geront/gnw055
44. Northouse L. L., (2012). Helping patients and their family caregivers cope with cancer. Oncology Nursing Forum, 39, 500-506. doi:10.1188/12.ONF.500-506
45. Northouse L. L., Williams A. L., Given B. A., McCorkle R., (2012). Psychosocial care for family caregivers of patients with cancer. Journal of Clinical Oncology, 30, 1227-1234. doi:10.1200/JCO.2011.39.5798
46. Orsulic-Jeras S., Whitlatch C. J., Szabo S. M., Shelton E. G., Johnson J., (2016). The SHARE program for dementia: Implementation of an early-stage dyadic care-planning intervention. Dementia. Advance online publication. doi:10.1177/1471301216673455
47. Pearlin L. I., Mullan J. T., Semple S. J., Skaff M. M., (1990). Caregiving and the stress process: An overview of concepts and their measures. The Gerontologist, 30, 583-594. doi:10.1093/geront/30.5.583
48. Pinquart M., Sorensen S., (2005). Ethnic differences in stressors, resources, and psychological outcomes of family caregiving: A meta-analysis. The Gerontologist, 45, 90-106. doi:10.1093/geront/45.1.90
49. Pruchno R., Wilson-Genderson M., Cartwright F., (2009). Self-rated health and depressive symptoms in patients with end-stage renal disease and their spouses: A longitudinal dyadic analysis of late-life marriages. The Journals of Gerontology, Series B: Psychological Sciences, 64, 212-221. doi:10.1093/geronb/gbp006
50. Pucciarelli G., Vellone E., Savini S., Simeone S., Ausili D., Alvaro R... Lyons K. S., (2017). Roles of changing physical function and caregiver burden on quality of life in stroke: A longitudinal dyadic analysis. Stroke, 48, 733-739. doi:10.1161/STROKEAHA.116.014989
51. Quinn C., Dunbar S. B., Clark P. C., Strickland O. L., (2010). Challenges and strategies of dyad research: Cardiovascular examples. Applied Nursing Research, 23, e15-e20. doi:10.1016/j.apnr.2008.10.001
52. Raudenbush S. W., Brennan R. T., Barnett R. C., (1995). A multivariate hierarchical model for studying psychological change within married couples. Journal of Family Psychology, 9, 161-174. doi:10.1037/0893-3200.9.2.161
53. Reamy A. M., Kim K., Zarit S. H., Whitlatch C. J., (2011). Understanding discrepancy in perceptions of values: Individuals with mild to moderate dementia and their family caregivers. The Gerontologist, 51, 473-483. doi:10.1093/geront/gnr010
54. Regan T. W., Lambert S. D., Kelly B., Falconier M., Kissane D., Levesque J. V., (2015). Couples coping with cancer: Exploration of theoretical frameworks from dyadic studies. Psycho-Oncology, 24, 1605-1617. doi:10.1002/pon.3854
55. Retrum J. H., Nowels C. T., Bekelman D. B., (2013). Patient and caregiver congruence: The importance of dyads in heart failure care. Journal of Cardiovascular Nursing, 28, 129-136. doi:10.1097/JCN.0b013e3182435f27
56. Revenson T. A., DeLongis A., (2011). Couples coping with chronic illness. In Folkman S., (Ed.), The Oxford handbook of stress, health, and coping (pp. 101-123). New York, NY: Oxford University Press.
57. Revenson T. A., Griva K., Luszczynska A., Morrison V., Panagopoulou E., Vilchinsky N., Hagedoorn M., (2016). Caregiving in the illness context. New York, NY: Palgrave Macmillan.
58. Riegel B., Jaarsma T., Stromberg A., (2012). A middle-range theory of self-care of chronic illness. Advances in Nursing Science, 35, 194-204. doi:10.1097/ANS.0b013e318261b1ba
59. Ryan P., Sawin K. J., (2009). The Individual and Family Self-Management Theory: Background and perspectives on context, process, and outcomes. Nursing Outlook, 57, 217-225. doi:10.1016/j.outlook.2008.10.004
60. Sayer A. G., Klute M. M., (2005). Analyzing couples and families: Multilevel methods. In Bengtson V. L., Acock A. C., Allen K. R., Dilworth-Anderson P., Klein D. M., (Eds.), Sourcebook on family theory and research (pp. 289-313). Thousand Oaks, CA: SAGE.
61. Sebern M., Brown R., Flatley-Brennan P., (2016). Shared care contributions to self-care and quality of life in chronic cardiac patients. Western Journal of Nursing Research, 38, 837-857. doi:10.1177/0193945915626877
62. Skerrett K., (2003). Couple dialogues with illness: Expanding the “we.” Families, Systems, & Health, 21, 69-80. doi:10.1037/h0089503
63. Vellone E., Chung M. L., Cocchieri A., Rocco G., Alvaro R., Riegel B., (2014). Effects of self-care on quality of life in adults with heart failure and their spousal caregivers: Testing dyadic dynamics using the actor-partner interdependence model. Journal of Family Nursing, 20, 120-141. doi:10.1177/1074840713510205
64. Ward-Griffin C., Oudshoorn A., Clark K., Bol N., (2007). Mother-adult daughter relationships within dementia care: A critical analysis. Journal of Family Nursing, 13, 13-32. doi:10.1177/1074840706297424
65. Whitlatch C. J., Judge K., Zarit S. H., Femia E., (2006). Dyadic intervention for family caregivers and care receivers in early-stage dementia. The Gerontologist, 46, 688-694. doi:10.1093/geront/46.5.688
66. Winters-Stone K. M., Lyons K. S., Bennett J. A., Beer T. M., (2014). Patterns and predictors of symptom incongruence in older couples coping with prostate cancer. Supportive Care in Cancer, 22, 1341-1348. doi:10.1007/s00520-013-2092-0
67. Winters-Stone K. M., Lyons K. S., Dobek J., Dieckmann N. F., Bennett J. A., Nail L. M., Beer T. M., (2016). Benefits of partnered strength training for prostate cancer survivors and spouses: Results from a randomized controlled trial of the Exercising Together project. Journal of Cancer Survivorship, 10, 633-644. doi:10.1007/s11764-015-0509-0
68. Winters-Stone K. M., Lyons K. S., Nail L. M., Beer T. M., (2012). The Exercising Together project: Design and recruitment for a randomized, controlled trial to determine the benefits of partnered strength training for couples coping with prostate cancer. Contemporary Clinical Trials, 33, 342-350. doi:10.1016/j.cct.2011.10.015