Quality of Life for Dementia Caregiving Dyads: Effects of Incongruent Perceptions of Everyday Care and Values

Gerontologist

Volumn 57, Issue 4, 2017, Pages 657-666

  Moon, Heehyul ^a   Townsend, Aloen L ^b   Whitlatch, Carol J ^c   Dilworth Anderson, Peggye ^d  

^a UNIVERSITY OF LOUISVILLE   (United States)

^b CASE WESTERN RESERVE UNIVERSITY   (United States)

^c Benjamin Rose Institute   (United States)

^d IL   (United States)

Author keywords

Caregiving; Dyad; Mild to moderate dementia; Quality of life

Indexed keywords

ADULT; AGED; CAREGIVER; CROSS-SECTIONAL STUDY; DECISION MAKING; DEMENTIA; FEMALE; HUMAN; HUMAN RELATION; INTERVIEW; MALE; MIDDLE AGED; PSYCHOLOGY; QUALITY OF LIFE; VERY ELDERLY;

ADULT; AGED; AGED, 80 AND OVER; CAREGIVERS; CROSS-SECTIONAL STUDIES; DECISION MAKING; DEMENTIA; FEMALE; HUMANS; INTERPERSONAL RELATIONS; INTERVIEWS AS TOPIC; MALE; MIDDLE AGED; QUALITY OF LIFE;

EID: 85026894689     PISSN: 00169013     EISSN: 17585341     Source Type: Journal    
DOI: 10.1093/geront/gnw055     Document Type: Article

References (49)

1. Alzheimer's Association. (2015). Alzheimer's disease facts and figures. Retrieved from http://www.alz.org/national/documents/report-alzfactsfigures2015.pdf
2. Antonucci, T. C., Israel, B. A. (1986). Veridicality of social support: A comparison of principal and network members' responses. Journal of Consulting and Clinical Psychology, 54, 432-437. doi:10.1037/0022-006X.54.4.432
3. Bertrand, R. M., Fredman, L., Saczynski, J. (2006). Are all caregivers created equal Stress in caregivers to adults with and without dementia. Journal of Aging and Health, 18, 534-551. doi:10.1177/0898264306289620
4. Blieszner, R., Roberto, K. A. (2010). Care partner responses to the onset of mild cognitive impairment. The Gerontologist, 50, 11-22. doi:10.1093/geront/gnp068
5. Bryk, A., Raudenbush, S. W. (1992). Hierarchical linear models: Applications and data analysis methods. Newbury Park, CA: Sage.
6. Burgener, S., Twigg, P. (2002). Relationships among caregiver factors and quality of life in care recipients with irreversible dementia. Alzheimer Disease and Associated Disorders, 16, 88-102. doi:10.1097/00002093-200204000-00006
7. Braun, M., Scholz, U., Bailey, B., Perren, S., Hornung, R., Martin, M. (2009). Dementia caregiving in spousal relationships: A dyadic perspective. Aging and Mental Health, 13, 426-436. doi:10.1080/13607860902879441
8. Brown, E. (2007). Care recipients' psychological well-being: The role of sense of control and caregiver type. Aging and Mental Health, 11, 405-414. doi:10.1080/13607860600963570
9. Carpenter, B. D., Kissel, E. C., Lee, M. M. (2007). Preferences and life evaluations of older adults with and without dementia: Reliability, stability, and proxy knowledge. Psychology and Aging, 22, 650-655. doi:10.1037/0882-7974.22.3.650
10. Conroy, J., Yuskauskas, A. (1996). Independent evaluation of the Monadnock self-determination project. Submitted to the Robert Wood Johnson Foundation. Ardmore, PA: Center for Outcome Analysis.
11. Davis, L. L. (1993). Family scores revisited-A comparison of three approaches to data aggregation. Western Journal of Nursing Research, 15, 649-657. doi:10.1177/019394599301500511
12. Feinberg, L. F., Whitlatch, J. (2002). Decision-making for persons with cognitive impairment and their family caregivers. American Journal of Alzheimer's Disease and Other Dementias, 17, 237-244. doi:10.1177/153331750201700406.
13. Ferri, C. V., Pruchno, R. A. (2009). Quality of life in endstage renal disease patients: Differences in patient and spouse perceptions. Aging and Mental Health, 13, 706-714. doi:10.1080/13607860902845558
14. Gomersall, T., Astell, A., Nygd, L., Sixsmith, A., Mihailidis, A., Hwang, A. (2015). Living with ambiguity: A metasynthesis of qualitative research on mild cognitive impairment. The Gerontologist, 55, 892-912. doi:10.1093/geront/gnv067
15. Horowitz, A., Goodman, C. R., Reinhardt, J. P. (2004). Congruence between disabled elders and their primary caregivers. The Gerontologist, 44, 532-542. doi:10.1093/geront/44.4.532
16. Horton-Deutsch, S. S. (2007). Health care decision-making of persons with dementia. Dementia, 6, 105-120. doi:10.1177/1471301207075643
17. Katz, S., Ford, A. B., Moskowitz, R. W., Jackson, B. A., Jaffe, M. W. (1963). Studies of illness in the aged: The index of ADL: A standardized measure of biological and psychosocial function. The Journal of the American Medical Association, 185, 914-919. doi:10.1001/jama.1963.03060120024016.
18. Kelley, H. H., Thibaut, J. W. (1978). Interpersonal relations: A theory of interdependence. New York: Wiley.
19. Kelley, H., Holmes, J., Kerr, N., Reis, H., Rusbult, C., Van Lange, P. (2003). An atlas of interpersonal situations. New York: Cambridge University Press.
20. Kenny, D. A., Kashy, D. A., Cook, W. L. (2006). Dyadic data analysis. The Guilford Press.
21. Lawton, M. P. (1997). Assessing quality of life in Alzheimer disease research. Alzheimer Disease and Associated Disorders, 11(Suppl. 6), 91-99.
22. Logsdon, R. G., Gibbons, L. E., McCurry, S. M., Teri, L. (1999). Quality of life in Alzheimer's disease: Patient and caregiver reports. Journal of Mental Health and Aging, 5, 21-32.
23. Logsdon, R. G., Gibbons, L. E., McCurry, S. M., Teri, L. (2002). Assessing quality of life in older adults with cognitive impairment. Psychosomatic Medicine, 64, 510-519. doi:10.1097/00006842-200205000-00016
24. Logsdon, R. G., Gibbons, L. E., McCurry, S. M., Teri, L. (2005). Assessing changes in quality of life in Alzheimer's disease. In B. Vellas, M. Grundman, H. Feldman, L. J. Fitten, B. Winblad, & E. Giacobini (Eds.), Research and practice in Alzheimer's disease and cognitive decline (Vol. 10, pp. 221-225). New York: Springer.
25. Lyons, K. S., Zarit, S. H., Sayer, A. G., Whitlatch, C. J. (2002). Caregiving as a dyadic process perspectives from caregiver and receiver. The Journals of Gerontology, Series B: Psychological Sciences and Social Sciences, 57, 195-204. doi:10.1093/geronb/57.3.P195
26. Menne, H. L., Whitlatch, C. J. (2007). Decision-making involvement of individuals with dementia. The Gerontologist, 47, 810-819. doi:10.1093/geront/47.6.810
27. Menne, H. L., Tucke, S. S., Whitlatch, C. J., Feinberg, L. F. (2008). Decision-making involvement scale for individuals with dementia and family caregivers. American Journal of Alzheimer's Disease and Other Dementias, 23, 23-29. doi:10.1177/1533317507308312
28. Moon, H., Dilworth-Anderson, P. (2015). Baby boomer caregiver and dementia caregiving: Findings from the National Study of Caregiving. Age and Ageing, 44, 300-306. doi:10.1093/ageing/afu119
29. Naglie, G. (2007). Quality of life in dementia. Canadian Journal of Neurological Sciences, 34, 57-61. doi:10.1017/S0317167100005588
30. Nunnally, J. C., Bernstein, I. H. (1994). The assessment of reliability. Psychometric Theory, 3, 248-292.
31. Poulshock, S. W., Deimling, G. T. (1984). Families caring for elders in residence: Issues in the measurement of burden. Journal of Gerontology, 39, 230-239. doi:10.1093/geronj/39.2.230
32. Raudenbush, W. R., Byrk, A. S. (2002). Hierarchical linear models: Applications and data analysis methods (2nd ed.). Thousand Oaks, CA: Sage
33. Raudenbush, S. W., Bryk, A. S. (2002). Hierarchical linear models: Applications and data analysis methods (2nd ed.). Thousand Oaks, CA: Sage.
34. Raudenbush, S. W., Bryk, A. S., Congdon, R. (2004). HLM 6 for Windows [Computer software]. Lincolnwood, IL: Scientific Software International.
35. Ready, R. E., Ott, B. R. (2003). Quality of life measures for dementia. Health and Quality of Life Outcomes, 1, 1-9. doi:10.1186/1477-7525-1-11
36. Reamy, A. M., Kim, K., Zarit, S. H., Whitlatch, C. J. (2011). Understanding discrepancy in perceptions of values: Individuals with mild to moderate dementia and their family caregivers. The Gerontologist, 51, 473-483. doi:10.1093/geront/gnr010
37. Riley-Doucet, C. (2005). Beliefs about the controllability of pain: Congruence between older adults with cancer and their family caregivers. Journal of Family Nursing, 11, 225-241.
38. Roberts, R., Knopman, D. S. (2013). Classification and epidemiology of MCI. Clinics in Geriatric Medicine, 29, 753-772. doi:10.1016/j.cger.2013.07.003
39. Rusbult, C. E., Van Lange, P. A. (2003). Interdependence, interaction, and relationships. Annual Review of Psychology, 54, 351-375. doi:10.1146/annurev.psych.54.101601.145059
40. Sayer, A. G., Klute, M. M. (2004). Analyzing couples and families: Multilevel methods. In V. L. Bengston, A. Acock, K. R. Allen, P. Dilworth-Anderson, & D. M. Klein (Eds.), Sourcebook of family theory and research (pp. 289-313). Newbury Park, CA: Sage.
41. Selwood, A., Thorgrimsen, L., Orrell, M. (2005). Quality of life in dementia-A one-year follow-up study. International Journal of Geriatric Psychiatry, 20, 232-237. doi:10.1002/gps.1271
42. Sensen, S., Conwell, Y. (2011). Issues in dementia caregiving: Effects on mental and physical health, intervention strategies, and research needs. The American Journal of Geriatric Psychiatry, 19, 491. doi:10.1097/JGP.0b013e31821c0e6e
43. Springate, B., Tremont, G. (2013). Caregiver burden and depression in mild cognitive impairment. Journal of Applied Gerontology, 32, 765-775. doi:10.1177/0733464811433486
44. Thompson, L., Walker, A. J. (1982). The dyad as the unit of analysis: Conceptual and methodological issues. Journal of Marriage and the Family, 44, 889-900. doi:10.2307/351453
45. Whitlatch, C. J., Feinberg, L. F., Tucke, S. S. (2005). Measuring the values and preferences for everyday care of persons with cognitive impairment and their family caregivers. The Gerontologist, 45, 370-380. doi:10.1093/geront/45.3.370
46. Whitlatch, C. J., Judge, K., Zarit, S. H., Femia, E. (2006). Dyadic intervention for family caregivers and care receivers in earlystage dementia. The Gerontologist, 46, 688-694. doi:10.1093/geront/46.5.688
47. Whitlatch, C. J., Piiparinen, R., Feinberg, L. F. (2009). How well do family caregivers know their relatives' care values and preferences Dementia, 8, 223-243. doi:10.1177/1471301209103259
48. Whitlatch, C. (2008). Informal caregivers: Communication and decision making. The American Journal of Nursing, 108, 73-77. doi:10.1097/01.NAJ.0000336426.65440.87
49. Zarit, S. H., Femia, E. E., Watson, J., Rice-Oeschger, L., Kakos, B. (2004). Memory club: A group intervention for people with early-stage dementia and their care partners. The Gerontologist, 44, 262-269. doi:10.1093/geront/44.2.262