A revised Self- and Family Management Framework

Nursing Outlook

Volumn 63, Issue 2, 2015, Pages 162-170

  Grey, Margaret ^a   Schulman Green, Dena ^a   Knafl, Kathleen ^b   Reynolds, Nancy R ^a  

^a YALE UNIVERSITY SCHOOL OF NURSING   (United States)

^b UNIVERSITY OF NORTH CAROLINA   (United States)

Author keywords

Chronic conditions; Family management; Frameworks; Self management

Indexed keywords

CHRONIC DISEASE; DISEASE MANAGEMENT; FAMILY NURSING; HUMAN; ORGANIZATION AND MANAGEMENT; SELF CARE; TREATMENT OUTCOME;

CHRONIC DISEASE; DISEASE MANAGEMENT; FAMILY NURSING; HUMANS; OUTCOME AND PROCESS ASSESSMENT (HEALTH CARE); SELF CARE;

EID: 84925953517     PISSN: 00296554     EISSN: 15283968     Source Type: Journal    
DOI: 10.1016/j.outlook.2014.10.003     Document Type: Article

References (69)

1. Adams K., Greiner A.C., Corrigan J.M. Report of a summit. The 1st annual crossing the quality chasm summit: A focus on communities 2004, Washington, DC: Institute of Medicine.
2. The high concentration of U. S. health care expenditures. Research in Action 2006, 19:1-4. Agency for Healthcare Research and Quality (AHRQ).
3. Antoni M.H., Cruess S., Cruess D.G., Kumar M., Lutgendorf S., Ironson G., Schneiderman N., et al. Cognitive-behavioral stress management reduces distress and 24-hour urinary free cortisol output among symptomatic HIV-infected gay men. Annals of Behavioral Medicine 2000, 22(1):29-37.
4. Audulv A., Asplund K., Norbergh K.G. The integration of chronic illness self-management. Qualitative Health and Research 2012, 22(3):332-345.
5. Balfe M. Healthcare routines of university students with type 1 diabetes. Journal of Advanced Nursing 2009, 65:2367-2375.
6. Bandura A. Social foundations of thought and action: A social cognitive theory 1986, Prentice Hall, Englewood Cliffs, NJ.
7. Beacham B., Deatrick J. Health care autonomy in children with chronic conditions: Implications for self-care and family management. Nursing Clinics of North America 2013, 48:305-317.
8. Chasens E.R., Olshansky E. Daytime sleepiness, diabetes, and psychological well-being. Issues in Mental Health Nursing 2008, 29:1134-1150.
9. Chesla K. Do family interventions improve health?. Journal of Family Nursing 2010, 16:355-377.
10. Chudyk A., Shapiro S., Russell-Minda E., Petrella R. Self-monitoring technologies for type 2 diabetes and the prevention of cardiovascular complications: perspectives from end users. Journal of Diabetes Science & Technology 2011, 5:394-401.
11. Corbin J.M., Strauss A. Anursing model for chronic illness management based upon the trajectory framework. Scholarly Inquiry for Nursing Practice: An International Journal 1991, 5(3):155-174.
12. Cruess D.G., Antoni M.H., McGregor B.A., Kilbourne K.M., Boyers A., Alferi S.M., Kumar M., et al. Cognitive-behavioral stress management reduces serum cortisol by enhancing benefit finding among women being treated for early stage breast cancer. Psychosomatic Medicine 2000, 2:301-380.
13. Department of Health and Human Services. (2011). HHS Initiative on Multiple Chronic Conditions. Retrieved from . http://www.hhs.gov/ash/initiatives/mcc/.
14. Devol R. An unhealthy America: The economic burden of chronic disease-Charting a new course to save lives and increase productivity and economic growth 2007, Miliken Institute, New York.
15. Epstein L.H., Paluch R.A., Gordy C.C., Dorn J. Decreasing sedentary behaviors in treating pediatric obesity. Archives of Pediatric & Adolescent Medicine 2000, 154:220-226.
16. Fiese B., Everhart R. Medical adherence and childhood chronic illness: Family daily management skills and emotional climate as emerging contributors. Current Opinion in Pediatrics 2006, 18:551-557.
17. Grey M., Boland E., Davidson M., Tamborlane W.V. Clinical and psychosocial factors associated with achievement of treatment goals in adolescents with diabetes. Journal of Adolescent Health 2001, 28:377-385.
18. Grey M., Boland E.A., Davidson M., Li J., Tamborlane W.V. Coping skills training has long-lasting effects on metabolic control and quality of life in adolescents on intensive therapy. Journal of Pediatrics 2000, 137:107-113.
19. Grey M., Knafl K., McCorkle R. Aframework for the study of self- and family management of chronic conditions. Nursing Outlook 2006, 54(5):278-286.
20. Grey M., Liberti L., Dumser S., Whittemore R. Development and maintenance costs of internet programs for youth with T1D. Diabetes 2014, 63(Suppl. 1):A199.
21. Grey M., Whittemore R., Jeon S., Murphy K., Faulkner M., Delamater A. Internet psycho-education programs improve outcomes in youth with type 1 diabetes. Diabetes Care 2013, 36:2475-2482.
22. Haas L., Maryniuk M., Beck J., Cox C.E., Duker P., Edwards L., et al. National standards for diabetes self-management education and support. Diabetes Care 2014, 37(Suppl 1):S144-153. Standards Revision Task, F.
23. Horner S., Fouladi R. Home asthma management for rural families. Journal for Specialists in Pediatric Nursing 2003, 8:52-61.
24. Horsman J., Furlong W., Feeny D., Torrance D. The Health Utilities Index (HUI®): Concepts, measurement properties and applications. Health and Quality of Life Outcomes 2003, 1(1):54-67.
25. Hwu Y.J., Yu C.C. Exploring health behavior determinants for people with chronic illness using the constructs of planned behavior theory. Nursing Research 2006, 14:261-270.
26. The future of nursing: Leading change, advancing health 2010, Institute of Medicine, Institute of Medicine, Washington, DC.
27. Toward an integrated science of research on families 2011, Institute of Medicine, & National Research Council, National Academies Press, Washington, DC.
28. Jaser S.S., Whittemore R., Chao A., Jeon S., Faulkner M.S., Grey M. Mediators of 12-month outcomes of two internet interventions for youth with type 1 diabetes. Journal of Pediatric Psychology 2013, 39:306-315.
29. Jones C.J., Smith H., Llewellyn C. Evaluating the effectiveness of health belief model interventions in improving adherence: A systematic review. Health Psychology Review 2014, 8(3):253-269.
30. Knafl K., Deatrick J., Havill N. Continued development of the Family Management Style Framework. Journal of Family Nursing 2012, 18(1):11-34.
31. Knafl K.A., Deatrick J.A., Knafl G.J., Gallo A.M., Grey M., Dixon J. Patterns of family management of childhoodchronic conditions and their relationship to child and family functioning. Journal of Pediatric Nursing 2013, 28(6):523-535.
32. Laffel L.M., Vangsness L., Connell A., Goebel-Fabbri A., Butler D., Anderson B.J. Impact of ambulatory, family-focused teamwork intervention on glycemic control in youth with type 1 diabetes. Journal of Pediatrics 2003, 142(4):409-416.
33. Lee J.M., Rhee K., O'Grady M.J., Basu A., Winn A., John P., Huang E.S., et al. Health utilities for children and adults with type 1 diabetes. Medical Care 2011, 49:924-931.
34. Levine C., Halper D., Peist A., Gould D.A. Bridging troubled waters: family caregivers, transitions, and long-term care. Health Affairs 2009, 29(1):116-124.
35. Lorig K.R., Holman H.R. Self-management education: History, definition, outcomes, and mechanisms. Annals of Behavioral Medicine 2003, 26:1-7.
36. Lorig K.R., Ritter P., Stewart A.L., Sobel D.S., Brown B.W.J., Bandura A., Holman H.R., et al. Chronic disease self-management program: 2-year health status and health care utilization outcomes. Medical Care 2001, 39:1217-1223.
37. Martire L., Lustig A., Schulz R., Miller G., Helgeson V. Is it beneficial to involve a family member? A meta-analysis of pscyhoscial interventions for chronic illness. Health Psychology 2004, 23:599-611.
38. Mitchell N.S., Catenacci V.A., Wyatt H.R., Hill J.O. Obesity: Overview of an epidemic. Psychiatric Clinics of North America 2011, 34:717-732.
39. Murray C.J., Lopez A.D. Measuring the global burden of disease. New England Journal of Medicine 2013, 369(5):448-457.
40. National Institute of Nursing Research. (2011). NINR Strategic Plan: Bringing science to life. Retrieved from . https://http://www.ninr.nih.gov/sites/www.ninr.nih.gov/files/ninr-strategic-plan-2011.pdf.
41. Newman S., Steed L., Mulligan K. Chronic physical illness: Self-management and behavioural interventions 2009, McGraw Hill Open University Press, Maidenhead, UK.
42. O'Halloran P.D., Blackstock F., Shields N., Holland A., Iles R., Kingsley M., Taylor N.F., et al. Motivational interviewing to increase physical activity in people with chronic health conditions: A systematic review and meta-analysis. Clinical Rehabilitation 2014, 10.1177/0269215514536210.
43. Parekh A.K., Goodman R.A., Gordon C., Koh H.K. Managing multiple chronic conditions: A strategic framework for improving outcomes and quality of life. Public Health Reports 2011, 126:460-471. HHS Intra-agency Workgroup on Multiple Chronic Conditions.
44. Patrick D.L., Erickson P. Health status and health policy: Quality of life in health care evaluation and resource allocation 1993, Oxford University, New York.
45. Penckofer S.M., Ferrans C., Mumby P., Byrn M., Emanuele M.A., Harrison P.R., Lustman P., et al. Apsychoeducational intervention (SWEEP) for depressed women with diabetes. Annals of Behavioral Medicine 2012, 44(2):192-206.
46. Ploughman M., Austin M.W., Murdoch M., Kearney A., Godwin M., Stefanelli M. The path to self-management: A qualitative study involving older people with multiple sclerosis. Physiotherapy Canada 2012, 64:6-17.
47. Radina M. Toward a theory of health-related family quality of life. Journal of Family Theory & Review 2013, 5:35-50.
48. Resnicow K., Jackson A., Wang T., Anindya K., McCarty F., Dudley W.N., Baranowski T. Amotivational interviewing intervention to increase fruit and vegetable intake through black churches. American Journal of Public Health 2001, 91:1686-1693.
49. Reynolds N.R., Testa M.A., Marc L.G., Chesney M.A., Neidig J.L., Smith S.R., et al. Factors Influencing medication adherence beliefs and self-efficacy in persons naïve to antiretroviral therapy: A multi-center, cross-sectional study. AIDS and Behavior 2004, 8:141-150. the Protocol Teams of ACTG 384, ACTG 731, & ACTG 5031s.
50. Richard A.A., Shea K. Delineation of self-care andassociated concepts. Journal of Nursing Scholarship 2011, 43:255-264.
51. Riegel B., Carlson B. Facilitators and barriers to heart failure self-care. Patient Education and Counselling 2002, 46:287-295.
52. Riegel B., Dickson V.V., Kuhn L., Page K., Worrall-Carter L. Gender-specific barriers and facilitators to heart failure self-care: A mixed methods study. International Journal of Nursing Studies 2010, 47:888-895.
53. Rijken M., van Kerkhof M., Dekker J., Schellevis F.G. Comorbidity of chronic diseases: Effects of disease pairs on physical and mental functioning. Quality of Life Research 2005, 15:45-55.
54. Ruggiero L., Glasgow R., Dryfoos J.M., Rossi J.S., Prochaska J.O., Orleans C.T., Johnson S., et al. Diabetes self-management. Self-reported recommendations and patterns in a large population. Diabetes Care 1997, 20:568-576.
55. Ryan P., Sawin K. The Individual and Family Self-management Theory: Background and perspectives on context, process, and outcomes. Nursing Outlook 2009, 57:217-225.
56. Schilling L.S., Knafl K.A., Grey M. Changing patterns of self-management in youth with type 1 diabetes. Journal of Pediatric Nursing 2006, 21:412-424.
57. Schulman-Green D., Jaser S., Martin F., Alonzo A., Grey M., MCorkle R., Whittemore R., et al. Processes of self-management in chronic illness. Journal of Nursing Scholarship 2012, 44:136-144.
58. Schulman-Greene, D., Jaser, S., Park, C., & Whittemore, R. Factors affecting self-management of chronic illness. Manuscript submitted for publication.
59. Song M., Donovan H., Piraino B., Choi J., Bernardini B., Verosky D., Ward S. Effects of an intervention to improve communication about end-of-life care among African Americans with chronic kidney disease. Applied Nursing Research 2010, 23:65-72.
60. Stewart A.L. Conceptual and methodologic issues in defining quality of life: state of the art. Progress in Cardiovascular Nursing 1992, 7:3-11.
61. Tarride J.-E., Burke N., Bischof M., Hopkins R.B., Goeree L., Campbell K., Goeree R., et al. Areview of health utilities across conditions common in pediatric and adult populations. Health and Quality of Life Outcomes 2010, 8:12.
62. Taylor J.Y., Maddox R., Wu C.Y. Genetic and environmental risks for hypertension among African American girls and their mothers. Biological Research for Nursing 2009, 11:53-65.
63. Temel J.S., Greer J.A., Muzikansky A., Gallagher E.R., Admane S., Jackson V.A., Lynch T.J., et al. Early palliative care for patients with metastatic non-small-cell lung cancer. New England Journal of Medicine 2010, 363:733-742.
64. Vest B.M., Kahn L.S., Danzo A., Tumiel-Berhalter L.M., Schuster R.C., Karl K., Fox C.H., et al. Diabetes self-management in a low-income population: Impacts of social support and relationships with the health care system. Chronic Illness 2013, 9(2):145-155.
65. Wagner E.H., Austin B.T., Davis C.E., Hindmarsh M., Schaefer J., Bonomi A. Improving chronic illness care: Translating evidence into action. Health Affairs 2001, 20(6):64-78.
66. Ward B.W., Schiller J.S. Prevalence of multiple chronic conditions among US adults: Estimates from the National Health Interview Survey. Preventing Chronic Disease 2013, 10:E65.
67. Williams B., Mukhopadhyay S., Dowell J., Coyle J. From child to adult: An exploration of shifting family roles and responsibilities in managing physiotherapy for cystic fibrosis. Social Science and Medicine 2007, 65:2135-2146.
68. Wood J., Maahs R., Beck R.W., DiMeglio L., Libman I., Quinn M., et al. Most youth withtype 1 diabetes do not meet ISPAD or ADA clinical guidelines in the T1D Exchange Clinic Registry. Diabetes Care 2013, 36:2035-2037. T1D Exchange Clinic Registry Group.
69. Wortz K., Cade A., Menard J.R., Lurie S., Lykens K., Bae S., Coultas D., et al. Aqualitative study of patients' goals and expectations for self-management of COPD. Primary Care Respiratory Journal 2012, 21:384-391.