Families Living With Chronic Illness: Beliefs About Illness, Family, and Health Care

Journal of Family Nursing

Volumn 21, Issue 2, 2015, Pages 206-231

  Årestedt, Liselott ^a   Benzein, Eva ^a   Persson, Carina ^a  

^a LINNAEUS UNIVERSITY   (Sweden)

Author keywords

beliefs about families; beliefs about health care; beliefs about illness; chronic illness; families; hermeneutic inquiry; Illness Beliefs Model; Sweden

Indexed keywords

ADAPTIVE BEHAVIOR; ATTITUDE TO HEALTH; CHRONIC DISEASE; FAMILY; FAMILY NURSING; HUMAN; HUMAN RELATION; MENTAL STRESS; NURSING; PROCEDURES; PSYCHOLOGY;

ADAPTATION, PSYCHOLOGICAL; ATTITUDE TO HEALTH; CHRONIC DISEASE; FAMILY; FAMILY NURSING; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; PROFESSIONAL-FAMILY RELATIONS; STRESS, PSYCHOLOGICAL;

EID: 84990393868     PISSN: 10748407     EISSN: 1552549X     Source Type: Journal    
DOI: 10.1177/1074840715576794     Document Type: Article

References (53)

1. Ahlström B. H. Skärsäter I. Danielson E. (2010). The meaning of major depression in family life: The viewpoint of the ill parent. Journal of Clinical Nursing, 19, 284-293. doi:10.1111/j.1365-2702.2009.02851.x
2. Anderson H. Goolishian H. A. (2004). Från påverkan till medverkan—terapi med språksystemiskt synsätt [From manipulation to participation—Therapy from a language systems perspective]. Stockholm, Sweden: Mareld.
3. Årestedt L. Persson C. Benzein E. (2014). Living as a family in the midst of chronic illness. Scandinavian Journal of Caring Sciences, 28(1), 29-37. doi:10.1111/scs.12023
4. Ayres L. Kavanaugh K. Knafl K. A. (2003). Within-case and across-case approaches to qualitative data analysis. Qualitative Health Research, 13, 871-883. doi:10.1177/1049732303013006008
5. Bell J. M. Wright L. M. (2011). The Illness Beliefs Model: Creating practice knowledge for families experiencing illness suffering. In Svarvarsdottir E. K. Jonsdottir H. (Eds.), Family nursing in action (pp. 15-51). Reykjavik: University of Iceland Press.
6. Benzein E. Hagberg M. Saveman B.-I. (2008). “Being appropriately unusual”: A challenge for nurses in health-promoting conversations with families. Nursing Inquiry, 15, 106-115. doi:10.1111/j.1440-1800.2008.00401.x
7. Curtin M. Lubkin I. (1995). What is chronicity? In Lubkin I. (Ed.), Chronic illness: Impact and interventions (3rd ed., pp. 3-24). Boston, MA: Jones and Bartlett.
8. Darr A. Astin F. Atkin K. (2008). Causal attributions, lifestyle change, and coronary heart disease: Illness beliefs of patients of South Asian and European origin living in the United Kingdom. Heart & Lung, 37, 91-104. doi:10.1016/j.hrtlng.2007.03.004
9. dela Cruz F. A. Galang C. B. (2008). The illness beliefs, perceptions, and practices of Filipino Americans with hypertension. Journal of the American Academy of Nurse Practitioners, 20, 118-127. doi:10.1111/j.1745-7599.2007.00301.x
10. Eggenberger S. Meiers S. Krumwiede N. Bliesmer M. Earle P. (2011). Reintegration within families in the context of chronic illness: A family health promoting process. Journal of Nursing and Healthcare of Chronic Illness, 3, 283-292. doi:10.1111/j.1752-9824.2011.01101.x
11. Eggenberger S. Nelms T. (2007). Family interviews as a method for family research. Journal of Advanced Nursing, 58, 282-292. doi:10.1111/j.1365-2648.2007.04238.x
12. Ericson-Lidman E. Strandberg G. (2009). Meanings of being a supervisor for care providers suffering from burnout: From initial signs to recuperation. Journal of Nursing Management, 17, 366-375. doi:10.1111/j.1365-2834.2008.00933.x
13. Eriksson M. Asplund K. Svedlund M. (2010). Couples’ thoughts about and expectations of their future life after the patient's hospital discharge following acute myocardial infarction. Journal of Clinical Nursing, 19, 3485-3493. doi:10.1111/j.1365-2702.2010.03292.x
14. Friedman M. M. Bowden V. R. Jones E. (2003). Family nursing: Research, theory, & practice (5th ed.). Upper Saddle River, NJ: Prentice Hall.
15. Gadamer H.-G. (2004). Truth and method (2nd ed.). London, England: Continuum.
16. Ganong L. Coleman M. (2014). Qualitative research on family relationships. Journal of Social and Personal Relationships, 31, 451-459. doi:10.1177/0265407514520828
17. Gustafsson G. Strandberg G. (2009). Meanings of staying healthy in a context where others developed burnout—Phenomenological-hermeneutic interpretation of healthcare personnel's narratives. Scandinavian Journal of Caring Sciences, 23, 456-464. doi:10.1111/j.1471-6712.2008.00641.x
18. Hjelm K. Berntorp K. Apelqvist J. (2012). Beliefs about health and illness in Swedish and African-born women with gestational diabetes living in Sweden. Journal of Clinical Nursing, 21, 1374-1386. doi:10.1111/j.1365-2702.2011.03834.x
19. James I. Andershed B. Ternestedt B. M. (2007). A family's beliefs about cancer, dying, and death in the end of life. Journal of Family Nursing, 13, 226-252. doi:10.1177/1074840707300849
20. Järemo P. Arman M. (2011). Causes of illness-constraining and facilitating beliefs. International Journal of Nursing Practice, 17, 370-379. doi:10.1111/j.1440-172X.2011.01953.x
21. Karademas E. C. Zarogiannos A. Karamvakalis N. (2010). Cardiac patient-spouse dissimilarities in illness perception: Associations with patient self-rated health and coping strategies. Psychology & Health, 25, 451-463. doi:10.1080/08870440802652089
22. Kelly G. A. (1963). A theory of personality: The psychology of personal constructs. New York, NY: W.W. Norton.
23. Limacher L. H. Wright L. M. (2006). Exploring the therapeutic family intervention of commendations: Insights from research. Journal of Family Nursing, 12, 307-331. doi:10.1177/1074840706291696
24. Mahon G. O’Brien B. O’Conor L. (2014). The experience of chronic illness among a group of Irish patients: A qualitative study. Journal of Research in Nursing, 19, 330-342. doi:10.1177/1744987113490417
25. Marshall A. Bell J. M. Moules N. J. (2010). Beliefs, suffering, and healing: A clinical practice model for families experiencing mental illness. Perspectives in Psychiatric Care, 46, 197-208. doi:10.1111/j.1744-6163.2010.00259.x
26. McCaffrey G. Raffin-Bouchal S. Moules N. J. (2012). Hermeneutics as research approach: A reappraisal. International Journal of Qualitative Methods, 11, 214-229.
27. Moules N. J. (2009). Therapeutic letters in nursing: Examining the character and influence of the written word in clinical work with families experiencing illness. Journal of Family Nursing, 15, 31-49. doi:10.1177/1074840709331639
28. Moules N. J. Thirsk L. M. Bell J. M. (2006). A Christmas without memories: Beliefs about grief and mothering—A clinical case analysis. Journal of Family Nursing, 12, 426-441. doi:10.1177/1074840706294244
29. Ödman P.-J. (2007). Tolkning, förståelse, vetande: Hermeneutik i teori och praktik [Interpretation, understanding, knowing: Hermeneutics in theory and practice] (2nd ed.). Stockholm, Sweden: Norstedts Akademiska Förlag.
30. Ödman P.-J. Kerdeman D. (1997). Hermeneutics. In Keeves J. P. (Ed.), Educational research, methodology, and measurement (2nd ed., pp. 185-192). Oxford, UK: Pergamon.
31. Paterson B. L. (2001). The shifting perspectives model of chronic illness. Journal of Nursing Scholarship, 33, 21-26. doi:10.1111/j.1547-5069.2001.00021.x
32. Persson C. Benzein E. (2014). Family health conversations: How do they support health? Nursing Research and Practice, 2014, 547160. doi:10.1155/2014/547160
33. Radcliffe E. Lowton K. Morgan M. (2013). Co-construction of chronic illness narratives by older stroke survivors and their spouses. Sociology of Health & Illness, 35, 993-1007. doi:10.1111/1467-9566.12012
34. Robinson C. A. (1998). Women, families, chronic illness and nursing interventions: From burden to balance. Journal of Family Nursing, 4, 271-290. doi:10.1177/107484079800400304
35. Rohrbaugh M. J. Mehl M. R. Shoham V. Reilly E. S. Ewy G. A. (2008). Prognostic significance of spouse we talk in couples coping with heart failure. Journal of Consulting and Clinical Psychology, 76, 781-789. doi:10.1037/a0013238
36. Rolland J. S. (1998). Beliefs and collaboration in illness: Evolution over time. Families, Systems, & Health, 16, 7-25. doi:10.1037/h0089839
37. Rosland A. M. Heisler M. Piette J. D. (2012). The impact of family behaviors and communication patterns on chronic illness outcomes: A systematic review. Journal of Behavioral Medicine, 35, 221-239. doi:10.1007/s10865-011-9354-4
38. Skär L. Söderberg S. (2012). Complaints with encounters in healthcare—Men's experiences. Scandinavian Journal of Caring Sciences, 26, 279-286. doi:10.1111/j.1471-6712.2011.00930.x
39. Skerrett K. (2003). Couple dialogues with illness: Expanding the “we.” Families, Systems, & Health, 21, 69-80. Retrieved from http://dx.doi.org/10.1037/h0089503
40. Skerrett K. (2010). “Good enough stories”: Helping couples invest in one another's growth. Family Process, 49, 503-516. doi:10.1111/j.1545-5300.2010.01336.x
41. Söderberg S. Olsson M. Skär L. (2012). A hidden kind of suffering: Female patient's complaints to Patient's Advisory Committee. Scandinavian Journal of Caring Sciences, 26, 144-150. doi:10.1111/j.1471-6712.2011.00936.x
42. Thirsk L. M. Moules N. J. (2013). “I can just be me”: Advanced practice nursing with families experiencing grief. Journal of Family Nursing, 19, 74-98. doi:10.1177/1074840712471445
43. Tomm K. Liedén L. (2009). Systemisk intervjumetodik [Systemic interview methodology]. Stockholm, Sweden: Mareld.
44. Trief P. M. Sandberg J. Greenberg R. P. Graff K. Castronova N. Yoon M. Weinstock R. S. (2003). Describing support: A qualitative study of couples living with diabetes. Families, Systems, & Health, 21, 57-67. doi:10.1037/h0089502
45. Walsh F. (2006). Strengthening family resilience (2nd ed.). New York, NY: Guilford.
46. Weingarten K. (2013). The “cruel radiance of what is”: Helping couples live with chronic illness. Family Process, 52, 83-101. doi:10.1111/famp.12017
47. Werkander Harstäde C. Roxberg Å. Andershed B. Brunt D. (2012). Guilt and shame—A semantic concept analysis of two concepts related to palliative care. Scandinavian Journal of Caring Sciences, 26, 787-795. doi:10.1111/j.1471-6712.2012.00992.x
48. West C. H. Bell J. M. Woodgate R. L. Moules N. J. (2015). Waiting to return to normal: An exploration of family systems intervention in childhood cancer. Journal of Family Nursing, 21(2), 261-294. doi:10.1177/1074840715576795
49. Whall A. L. (1986). The family as the unit of care in nursing: A historical review. Public Health Nursing, 3, 240-249. doi:10.1111/j.1525-1446.1986.tb00495.x
50. World Medical Association. (2008). Declaration of Helsinki—Ethical principles for medical research involving human subjects. Retrieved from http://www.wma.net/en/30publications/10policies/b3/index.html.pdf
51. Wright L. M. Bell J. M. (2009). Beliefs and illness: A model for healing. Calgary, Alberta, Canada: 4th Floor Press.
52. Wright L. M. Leahey M. (2013). Nurses and families: A guide to family assessment and intervention (6th ed.). Philadelphia, PA: F.A. Davis.
53. Yorgason J. B. Roper S. O. Wheeler B. Crane K. Byron R. Carpenter L.Higley D. (2010). Older couples’ management of multiple-chronic illnesses: Individual and shared perceptions and coping in Type 2 diabetes and osteoarthritis. Families, Systems, & Health, 28, 30-47. doi:10.1037/a0019396