The benefit sharing vision of H3Africa

Developing World Bioethics

Volumn 18, Issue 2, 2018, Pages 165-170

  Dauda, Bege ^a   Joffe, Steven ^a  

^a UNIVERSITY OF PENNSYLVANIA   (United States)

Author keywords

Benefit sharing; Capacity building; Fair benefit; Genomic research; H3Africa; Reasonable availability

Indexed keywords

AFRICA; BENEFICENCE; CAPACITY BUILDING; DEVELOPING COUNTRY; ETHICS; GENETICS; GENOMICS; HUMAN; INTERNATIONAL COOPERATION; RESEARCH ETHICS; UNITED STATES;

AFRICA; BENEFICENCE; CAPACITY BUILDING; DEVELOPING COUNTRIES; ETHICS, RESEARCH; GENETIC RESEARCH; GENOMICS; HUMANS; INTERNATIONAL COOPERATION; UNITED STATES;

EID: 85042005541     PISSN: 14718731     EISSN: 14718847     Source Type: Journal    
DOI: 10.1111/dewb.12185     Document Type: Article

References (30)

1. Dauda B, Dierickx K. Benefit Sharing: An Exploration on the Contextual Discourse of a Changing Concept. BMC Med Ethics. 2013; 14(36):1-8.
2. Ballantyne AJ. How to do Research Fairly in an Unjust World. Am J Bioeth 2010;10: 26–35.
3. Hughs RC. Justifying Community Benefit Requirement in International Research. Bioethics. 2014; 28(8):397-404
4. Hurst DJ. Benefit Sharing in a Global Context: Working Together Towards Solutions for Implementation. Dev World Bioeth. 2017; 17(2):70-76.
5. Council for International Organization of Medical Sciences (CIOMS). 2016. International Ethical Guidelines for Health Related Research Involving Humans. Geneva, Switzerland: CIOMS. Available at: https://cioms.ch/wp-content/uploads/2017/01/WEB-CIOMS-EthicalGuidelines.pdf [Accessed 23 Sept 2017]
6. Participants in the 2001 Conference on Ethical Aspects of Research in Developing Countries. Moral Standards for Research in Developing Countries: From Reasonable Availability to Fair Benefits. Hastings Cent Rep. 2004; 34(3):17-27.
7. Glantz LH, Annas GH, Grodin M, et al. Taking Benefits Seriously in Developing Countries. Hastings Cent Rep. 1998; 28(6):38-42
8. Lairumbi GM, Parker M, Fitzpatrick R, et al Forms of Benefit Sharing in Global Health Research Undertaken in Resource Poor Settings: A Qualitative Study of Stakeholders Views in Kenya. Philos Ethics Humanit Med. 2012; 7 (7): 1-8.
9. Emanuel EJ, Wendler D, Killen J, et al. What Makes Clinical Research in Developing Countries Ethical? The Benchmarks of Ethical Research. J Infect Dis. 2004; 189(5):930-937.
10. Benatar SR, Singer P. Responsibilities in International Research: A New Look Revisited. J Med Ethics 2010; 36(4): 194-197.
11. Lie R. Fair Benefit Approach Revisited. Hastings Cent Rep. 2010;40(4):3.
12. Wolitz R, Emanuel EJ, Shah S. Rethinking the Responsiveness Requirement for International Research. Lancet 2009; 374: 847-49.
13. The Malaria Genomic Epidemiology Network. A Global Network for Investigating the Genomic Epidemiology of Malaria. Nature. 2008; 456(7223): 732-737.
14. Ballantyne A. Fair benefits’ Accounts of Exploitation Require a Normative Principle of Fairness: Response to Gbadegesin and Wendler, and Emanuel et al. Bioethics. 2008; 22(4): 239-44.
15. London AJ, Zollmann K. Research at the Auction Block: Problems for the Fair Benefits Approach to International Research. Hastings Cent Rep. 2010; 40(4):34-45.
16. Joffe S, Miller F. Bench to Bedside: Mapping the Moral Terrain of Clinical Research. Hastings Cent Rep. 2008; 38(2):30-42.
17. H3Africa RFA. 2016. Human Hereditary and Health in Africa: Ethical, Legal, and Societal Issues (ELSI) Research Program (U01). Bethesda, MD: Available at: https://grants.nih.gov/grants/ guide/rfa-files/RFA-rm-16-013.html [Accessed 23 Sept 2017].
18. H3Africa Working Group. 2011. Harnessing Genomics Technologies Towards Improving Health in Africa: Opportunities and Challenges. Bethesda, MD: Available at: https://h3africa. org/images/PDF/h3africa_whitepaper.pdf [Accessed 23 Sept 2017].
19. Adewole I, Martin DN, Williams MJ, et al. Building Capacity for Sustainable Research Programmes for Cancer in Africa. Nat Rev Clin Oncol. 2014;11(5):251-259.
20. deVries J, Tindana P, Littler K, et al. The H3Africa Policy Framework: Negotiating Fairness in Genomics. Trends Genet. 2015; 31(3):117-119.
21. Bishop OT, Adebiyi EF, Alzohairy AM, et al. Bioinformatics Education-perspectives and Challenges Out of Africa. Brief Bioinform. 2014; 16(2):355-364.
22. H3Africa Consortium. Enabling the Genomic Revolution in Africa. Science. 2014; 344(6190): 1346-1348.
23. Mulder NJ, Adebiyi E, Alami R, et al. H3ABioNet, A sustainable Pan-African Bioinformatics Network for Human Hereditary and Health in Africa. Genome Res. 2016; 26(2): 271-277.
24. Parker M, Kingori P. Good and Bad Research Collaborations: Researchers’ Views on Science and Ethics in Global Health Research. PLoS One. 2016; 11(10): 1-19.
25. Council on Health Research and Development (COHRED). 2013. Where there is no Lawyer: Guidance for Fairer Contract Negotiation in Collaborative Research Partnership. Geneva, Switzerland: COHRED; Available at: http://www.cohred.org/wp-content/uploads/2012/04/ COHRED-guidancebookletv-web-ISBN.pdf[Assessed 20th November, 2017]
26. Dodani S, LaPorte RE. Brain Drain from Developing Countries: How Can Brain Drain Be Converted into Wisdom Gain? J R Soc Med. 2005; 98(1):487-491.
27. Bradley M. On the Agenda: North-South Research Partnership and Agenda-setting Process. Dev Pract. 2008; 18(6): 673-685.
28. Binka F. North-South Research Collaborations: A Move Towards a True Partnership. Trop Med Int Health. 2005; 10(3): 207-209.
29. Osafo C, Raji YR, Burke D, et al. Human Hereditary and Health (H3) in Africa Kidney Disease Research Network: A Focus on Methods in Sub-Saharan Africa. Clin J Am Soc Nephrol. 2015; 10(1):2279-2287.
30. Ayele FT, Adeyelo A, Finan C, et al. HLA Class II Locus and Susceptibility to Podoconiosis. N Engl J Med. 2012; 366(1): 1200-8.