Benefit sharing: An exploration on the contextual discourse of a changing concept

BMC Medical Ethics

Volumn 14, Issue 1, 2013, Pages

  Dauda, Bege ^a   Dierickx, Kris ^a  

^a UNIVERSITY OF LEUVEN   (Belgium)

Author keywords

Benefit sharing; Biodiversity; Common heritage of humankind; Developing countries; International research; Justice; Research ethics

Indexed keywords

ARTICLE; CONCEPT FORMATION; ETHICS; HUMAN; INFORMATION DISSEMINATION; INTERNATIONAL COOPERATION; LEGAL ASPECT; MEDICAL RESEARCH; RESEARCH ETHICS; SOCIAL JUSTICE;

BIOMEDICAL RESEARCH; CONCEPT FORMATION; ETHICS, RESEARCH; HUMANS; INFORMATION DISSEMINATION; INTERNATIONAL COOPERATION; SOCIAL JUSTICE;

EID: 84884307397     PISSN: None     EISSN: 14726939     Source Type: Journal    
DOI: 10.1186/1472-6939-14-36     Document Type: Review

References (44)

1. Benefit sharing: it's time for a definition. Schroeder D, J Med Ethics 2007 33 205 209 10.1136/jme.2006.016790 17400617
2. Benefit sharing: from obscurity to common knowledge. Schroeder D, Dev World Bioeth 2006 6 i 10.1111/j.1471-8847.2006.00176.x 17038002 (Pubitemid 44581537)
3. Benefit sharing: a look at the history of an ethics concern. Simm K, Nat Rev Genet 2007 8 496 (Pubitemid 46955217)
4. Vicissitudes of benefit sharing of crop genetic resources: downstream and upstream. De Jonge B, Korthals M, Dev World Bioeth 2006 6 144 157 17038006 (Pubitemid 44581541)
5. Legal implications of the concept of the common heritage of mankind. Joyner CC, Int Comp Law Q 1986 35 190 199
6. The common heritage principle: antarctica and the developing nations. Herber BP, Am J Econ Sociol 1991 50 391 406 10.1111/j.1536-7150.1991.tb03335.x
7. Basler K, The concept of the common heritage of mankind in International Law The Hague: Martinus Nijhoff Publishers 1998 96 97
8. Sayar M, Is technology a common heritage of all mankind? The Fountain Magazine 1993 7 8
9. United Nations, United Nations Convention on the Law of the Sea Montego Bay: United Nations Publication 1982 71
10. Plant genetic resources and the Law. Past, present, and future. Sullivan SN, Plant Physiol 2004 135 10 15 10.1104/pp.104.042572 15141062 (Pubitemid 38653648)
11. FAO, International Undertaking on Plant and Genetic Resources Rome: FAO Electronic Publishing 1983 10
12. Common heritage of mankind in the Law of the Sea. Holmila E, Acta Societatis Martensis 2005 1 187 205
13. Third world lecture 1984-ocean, space and mankind. Pardo A, Third World Q 1984 6 559 69
14. Justice and benefit sharing. Schroeder D, Indigenous Peoples, Consent and Benefit Sharing:Lessons from the San-Hoodia Case New York: Springer Science+Bussiness Media, Wynberg R, 2009 14
15. North-south Benefit Sharing Arrangements in Bioprospecting and Genetic Research: a critical ethical and legal analysis. Schuklenk U, Kleinsmidt A, Dev World Bioeth 2006 6 122 134 17038004 (Pubitemid 44581539)
16. United Nations, Convention on Biological Diversity Rio De Jeneiro: Secretariat of the Convention on Biological Diversity 1992 4
17. Nagoya Protocol, Access to Genetic Resources and the Fair and Equitable Sharing of Benefits Arising from their Utilization Montreal 2010 1 6
18. Sharing the benefits of biodiversity: a New international protocol and its implications for research and development. Olivia MJ, Planta Medica 2011 77 1221 1227 10.1055/s-0031-1279978 21674434
19. Schroeder D, Pisupati B, Ethics, Justice and the Convention on Biological Diversity United Nations Environmental Program 2010 13 14
20. 20. CBD COP Decision II, Report of the First Meeting of the Subsidiary Body on Scientific, Technical and Technological Advice Jakarta: Secretariat of the Convention on Biological Diversity 1995 22
21. Between the needy and the greedy: the quest for a just and fair ethics of clinical research. Garrafa V, Solbakk JH, Vidal S, Lorenzo C, J Med Ethics 2010 36 500 504 10.1136/jme.2009.032656 20663769
22. Clinical trials offshored: on private sector science and public health. Petryna A, BioSocieties 2007 2 21 40 10.1017/S1745855207005030
23. What makes clinical research in developing countries ethical? The benchmarks of ethical research. Emanuel EJ, Wendler D, Killen J, Grady C, J Infect Dis 2004 189 930 937 10.1086/381709 14976611 (Pubitemid 38328195)
24. Health, human right, and health inequalities: alternative concepts in placing health research as justice for global health. Dauda B, Dierickx K, Am J Bioeth 2012 12 42 44 23072679
25. UNESCO, UNESCO Declaration on Human Genome and Human Right Paris 1997 1
26. HUGO urges genetic benefit-sharing. HUGO Ethics Committee, Community Genet 2000 3 88 92 10.1159/000051110 11865922 (Pubitemid 32153909)
27. For-profit clinical trials in developing countries-those troublesome patient benefits. Schuklenk U, Am J Bioethics 2010 10 52 54
28. Research in developing countries: taking "benefit" seriously. Glantz LH, Annas GJ, Grodin MA, Mariner WK, Hastings Cent Rep 1998 28 38 42 9868610 (Pubitemid 128746716)
29. AZT trials and tribulations. Crouch RA, Arras JD, The Hastings Center report 1998 28 26 34 10.2307/3528266 9868608 (Pubitemid 128746714)
30. World Medical Association, Ethical Principles for Medical Research Involving Human Subjects Seoul 2008 6
31. Declaration of helsinki public consultation. World Medical Association, 2 [ http://www.wma.net/en/20activities/10ethics/10helsinki/15publicconsult/ ]
32. National Bioethics Advisory Commission, Ethical and Policy Issues Research: Clinical Trials in Developing Countries Maryland: NBAC Publication 2001 59
33. Protecting communities in health research from exploitation. Gbadegesin S, Wendler D, Bioethics 2006 20 248 253 10.1111/j.1467-8519.2006.00501.x 17100008 (Pubitemid 44199391)
34. Moral standards for research in developing countries. Participants of Conference on Ethical Aspects of Research, The Hastings Centre Report 2004 34 17 27
35. How to Do research fairly in an unjust world. Ballantyne A, Am J Bioethics 2010 10 6 26 35 10.1080/15265161.2010.482629
36. HIV international clinical research: exploitation and risk. Ballantyne A, Bioethics 2005 19 476 491 10.1111/j.1467-8519.2005.00459.x 16425485 (Pubitemid 41527504)
37. Fair benefits in developing countries: maximin as a good start. Macklin R, Am J Bioethics 2010 10 36 37
38. Equality [ http://plato.stanford.edu/cgi-bin/encyclopedia/archinfo.cgi? entry=equality ]
39. What is Fair and Equitable Benefit-sharing? De Jonge B, J Agric Environ Ethics 2010 24 127 146
40. Solidarity and justice as guiding principles in genomic research. Hoedemaekers R, Gordijn B, Pijnenburg M, Bioethics 2007 21 342 350 10.1111/j.1467-8519.2007.00562.x 17845458 (Pubitemid 46854981)
41. Justice and the human development approach to international research. London AJ, Hast Cent Rep 2005 35 24 37 (Pubitemid 40712162)
42. Morality, ethics and law: introductory concepts. Horner J, Semin Speech Lang 20003 24 263 274
43. Forms of benefit sharing in global health research undertaken in resource poor settings: a qualitative study of stakeholders' views in Kenya. Lairumbi GM, Parker M, Fitzpatrick R, English MC, Philos Ethics Humanit Med 2012 7 7 10.1186/1747-5341-7-7 22251457
44. Realizing benefit sharing-the case of post-study obligations. Schroeder D, Gefenas E, Bioethics 2012 26 305 314 10.1111/j.1467-8519.2010.01857.x 21241344