Decision-making involvement of individuals with dementia

Gerontologist

Volumn 47, Issue 6, 2007, Pages 810-819

  Menne, Heather L ^a   Whitlatch, Carol J ^a  

^a Benjamin Rose Institute   (United States)

Author keywords

Autonomy; Daily functioning; Impairment; Stress process; Well being

Indexed keywords

ADULT; ARTICLE; CAREGIVER; CONCEPTUAL FRAMEWORK; DAILY LIFE ACTIVITY; DECISION MAKING; DEMENTIA; DEPRESSION; EDUCATION; FEMALE; FUNCTIONAL ASSESSMENT; HUMAN; MAJOR CLINICAL STUDY; MALE; MULTIPLE REGRESSION; NONBIOLOGICAL MODEL; OUTCOME ASSESSMENT; PREDICTOR VARIABLE; QUALITY OF LIFE; SEX DIFFERENCE; STRESS; STRESS PROCESS MODEL; WELLBEING;

EID: 38649113577     PISSN: 00169013     EISSN: None     Source Type: Journal    
DOI: 10.1093/geront/47.6.810     Document Type: Article

References (42)

1. Albert, S. M., Jacobs, D. M., Sano, M., Marder, K., Bell, K., Devanand, D., et al. (2001). Longitudinal study of quality of life in people with advanced Alzheimer's disease. American Journal of Geriatric Psychiatry, 9, 160-168.
2. Alzheimer's Association. (2005, May 15). Fact sheet: Alzheimer's disease statistics. Retrieved on February 7, 2006, from http://www.alz.org/Resources/ FactSheets/FSAlzheimerStats.pdf
3. Alzheimer's Disease International. (2006). Common questions: How many people have dementia? Retrieved on February 7, 2006, from http://www.alz.co.uk/ alzheimers/faq.html
4. Bamford, C., & Bruce, E. (2000). Defining the outcomes of community care: The perspectives of older people with dementia and their carers. Ageing and Society, 20, 543-570.
5. Brechling, B. G., & Schneider, C. A. (1993). Preserving autonomy in early stage dementia. Journal of Gerontological Social Work, 20(1/2), 17-33.
6. Clare, L., & Cox, S. (2003). Improving service approaches and outcomes for people with complex needs through consultation and involvement. Disability & Society, 18, 935-953.
7. Conroy, J. W., & Yuskauskas, A. (1996). Independent evaluation of the Monadnock Self-Determination Project. Ardmore, PA: The Center for Outcomes Analysis.
8. Daaleman, T. P., Cobb, A. K., & Frey, B. B. (2001). Spirituality and well-being: An exploratory study of the patient petspective. Social Science & Medicine, 53, 1503-1511.
9. Davis, R. (1989). My journey into Alzheimer's disease. Wheaton, IL: Tyndale House.
10. Folstein, M. F., Folstein, S. E., & McHugh, P. R. (1975). "Mini-mental state": A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research, 12, 189-198.
11. Foreman, M. D. (1987). Reliability and validity of mental status questionnaires in elderly hospitalized patients. Nursing Research, 36, 216-220.
12. Gaugler, J. E., Zarit, S. H., & Pearlin, L. I. (2003). Family involvement following institutionalization: Modeling nursing home visits over time. International Journal of Aging and Human Development, 57, 91-117.
13. Gentile, K. M. (1991). A review of the literature on interventions and quality of life in the frail elderly. In J. E. Birren, J. E. Lubben, J. C. Rowe, & D. E. Deutchman (Eds.), The concept and measurement of quality of life in the frail elderly (pp. 74-88). San Diego, CA: Academic Press.
14. High, D. M., & Rowles, G. D. (1995). Nursing home residents, families, and decision making: Toward an understanding of progressive surrogacy. Journal of Aging Studies, 9, 101-117.
15. Hirschman, K. B., Joyce, C. M., James, B. D., Xie, S. X., & Karlawish, J. H. T. (2005). Do Alzheimer's disease patients want to participate in a treatment decision, and would their caregivers let them? The Gerontologist, 45, 381-388.
16. Kahana, E., King, C., Kahana, B., Menne, H., Webster, N., Dan, A., et al. (2004). Successful aging in the face of chronic disease. In M. L. Wykle, P. J. Whitehouse, and D. L. Morris (Eds.), Successful aging through the lifespan: Intergenerational issues in health (pp. 101-126). New York: Springer.
17. Karlawish, J. H. T., Casarett, D. J., & James, B. D. (2002). Alzheimer's disease patients' and caregivers' capacity, competency and reasons to enroll in an early phase Alzheimer's disease clinical trial. Journal of the American Geriatrics Society, 50, 2019-2024.
18. Kerner, D. N., Patterson, T. L., Grant, I., & Kaplan, R. M. (1998). Validity of the Quality of Well-Being scale for patients with Alzheimer's disease. Journal of Aging and Health, 10, 44-61.
19. Lawton, M. P. (1991) A multidimensional view of quality of life. In J. E. Birren, J. E. Lubben, J. C. Rowe, & D. E. Deutchman (Eds.), The concept and measurement of quality of life in the frail elderly (pp. 3-27). San Diego, CA: Academic Press.
20. Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal, and coping. New York: Springer.
21. Manton, K. G., Patrick, C. H., & Johnson, K. W. (1987). Health differentials between blacks and whites: Recent trends in mortality and morbidity. The Millbank Quarterly, 65(Supp. 1), 129-199.
22. McGowin, D. F. (1993). Living in the labyrinth: A personal journey through the maze of Alzheimer's. New York: Delacorte Press.
23. Menne, H. L. (2006). A stress process model of chronic illness: Understanding the well-being and decision-making involvement of individuals with dementia. Unpublished doctoral dissertation, Case Western Reserve University, Cleveland, Ohio.
24. Menne, H. L., Kinney, J. M., & Morhardt, D. J. (2002). "Trying to continue to do as much as they can do": Theoretical insights regarding continuity and meaning making in the face of dementia. Dementia: The International Journal of Social Research and Practice, 1, 367-382.
25. Menne, H. L., Tucke, S. S., Whitlatch, C. J., & Feinberg, L. F. (2007). Decision-making involvement scale for individuals with dementia and family caregivers. Manuscript submitted for publication.
26. Pearlin, L. I. (1982). The social context of stress. In L. Goldberger & S. Breznitz (Eds.), Handbook of stress (pp. 367-379). New York: Free Press.
27. Pearlin, L. I. (1989). The sociological study of stress. Journal of Health and Social Behavior, 30, 241-256.
28. Pearlin, L. I., Mullan, J. T., Semple, S. J., & Skaff, M. M. (1990). Caregiving and the stress process: An overview of concepts and their measures. The Gerontologist, 30, 583-594.
29. Pedhazur, E. J. (1982). Multiple regression in behavioral research: Explanation and prediction (2nd ed.). New York: CBS College.
30. Poulshock, S. W., & Deimling, G. T. (1984). Families caring for elders in residence: Issues in the measurement of burden. Gerontology, 39, 230-239.
31. Pratt, C. C., Jones, L. L., Shin, H. Y., & Walker, A. J. (1989). Autonomy and decision making between single older women and their caregiving daughters. The Gerontologist, 29, 792-797.
32. Rieker, P. P., & Bird, C. E. (2000). Sociological explanations of gender differences in mental and physical health. In C. E. Bird, P. Conrad, & A. M. Fremont (Eds.), Handbook of medical sociology (pp. 98-113). Upper Saddle River, NJ: Prentice-Hall.
33. Sabat, S. R., & Collins, M. (1999). Intact social, cognitive ability, and selfhood: A case study of Alzheimer's disease. American Journal of Alzheimer's Disease, 14, 11-19.
34. Siegel, K., & Schrimshaw, E. W. (2000). Perceiving benefits in adversity: Stress-related growth in women living with HIV/AIDS. Social Science & Medicine, 51, 1543-1554.
35. Skoog, I., Blennow, K., & Marcusson, J. (1996). Dementia. In J. E. Birren (Ed.), Encyclopedia of gerontology (Vol. 1, pp. 383-403). San Diego, CA: Academic Press.
36. Teri, L., Truax, P., Logsdon, R., Uomoto, J., Zarit, S., & Vitaliano, P. (1992). Assessment of behavioral problems in dementia: The revised Memory and Behavior Problems Checklist. Psychology and Aging, 7, 622-631.
37. Tombaugh, T. N., & McIntyre, N. J. (1992). The Mini-Mental State Examination: A comprehensive review. Journal of the American Geriatrics Society, 40, 922-935.
38. Turner, H. A., Pearlin, L. I., & Mullan, J. T. (1998). Sources and determinants of social support for caregivers of persons with AIDS. Journal of Health and Social Behavior, 39, 137-151.
39. Wetle, T. (1991). Resident decision making and quality of life in the frail elderly. In J. E. Birren, J. E. Lubben, J. C. Rowe, & D. E. Deutchman (Eds.), The concept and measurement of quality of life in the frail elderly (pp. 279-296). San Diego, CA: Academic Press.
40. Whitlatch, C. J., Feinberg, L. F., & Tucke, S. S. (2005). Measuring the values and preferences for everyday care of persons with cognitive impairment and their family caregivers. The Gerontologist, 45, 370-380.
41. Whitlatch, C. J., Judge, K., Zarit, S. H., & Femia, E. (2006). Dyadic intervention for family caregivers and care receivers in early-stage dementia. The Gerontologist, 46, 688-694.
42. Zarit, S. H., Femia, E. F., Watson, J., Rice-Oeschger, L., & Kakos, B. (2004). Memory club: A group intervention for people with early-stage dementia and their care partners. The Gerontologist, 44, 262-269.