Preferences and Life Evaluations of Older Adults With and Without Dementia: Reliability, Stability, and Proxy Knowledge

Psychology and Aging

Volumn 22, Issue 3, 2007, Pages 650-655

  Carpenter, Brian D ^a   Kissel, Emily C ^a   Lee, Monica M ^a  

^a WASHINGTON UNIVERSITY   (United States)

Author keywords

dementia; preferences; proxies; reliability; stability

Indexed keywords

ADULT; AGED; AGING; ARTICLE; CONTROLLED STUDY; CORRELATION ANALYSIS; DEMENTIA; DISEASE SEVERITY; FEMALE; HUMAN; KNOWLEDGE; MAJOR CLINICAL STUDY; MALE; MEDICAL RESEARCH; PERCEPTION; QUALITY OF LIFE; RELIABILITY; SOCIAL PSYCHOLOGY;

ACTIVITIES OF DAILY LIVING; AGED; AGED, 80 AND OVER; ALZHEIMER DISEASE; CHOICE BEHAVIOR; FEMALE; HUMANS; LIFE SUPPORT CARE; MALE; MARRIAGE; MIDDLE AGED; PATIENT ACCEPTANCE OF HEALTH CARE; PROXY; QUALITY OF LIFE; REPRODUCIBILITY OF RESULTS; SPOUSES;

EID: 34948897520     PISSN: 08827974     EISSN: None     Source Type: Journal    
DOI: 10.1037/0882-7974.22.3.650     Document Type: Article

References (33)

1. Allen R.S., Haley W.E., Small B.J., and McMillan S.C. Pain reports by older hospice cancer patients and family caregivers: The role of cognitive functioning. The Gerontologist 42 (2002) 507-514
2. Allen-Burge R., and Zwahr M.D. Test manual for the Brief Treatment Planning Questionnaire (1996), The Pennsylvania State University, University Park
3. Brod M., Stewart A.L., Sands L., and Walton P. Conceptualization and measurement of quality of life in dementia: The Dementia Quality of Life Instrument (DQoL). The Gerontologist 39 (1999) 25-35
4. Carmel S., and Mutran E.J. Stability of elderly persons' expressed preferences regarding the use of life-sustaining treatments. Social Science & Medicine 49 (1999) 303-311
5. Carpenter B.D., Van Haitsma K., Ruckdeschel K., and Lawton M.P. The psychosocial preferences of older adults: A pilot examination of content and structure. The Gerontologist 40 (2000) 335-348
6. Ditto P.H., Danks J.H., Smucker W.D., Bookwala J., Coppola K.M., Dresser R., et al. Advance directives as acts of communication: A randomized controlled trial. Archives of Internal Medicine 161 (2001) 421-430
7. Ditto P.H., and Hawkins N.A. Advance directives and cancer decision making near the end of life. Health Psychology 24 (2005) S63-S70
8. Ditto P.H., Smucker W.D., Danks J.H., Jacobson J.A., Houts R.M., Fagerlin A., et al. Stability of older adults' preferences for life-sustaining medical treatment. Health Psychology 22 (2003) 605-615
9. Everhart M.A., and Pearlman R.A. Stability of patient preferences regarding life-sustaining treatments. Chest 97 (1990) 159-164
10. Feinberg L.F., and Whitlatch C.J. Are persons with cognitive impairment able to state consistent choices?. The Gerontologist 41 (2001) 374-382
11. Ferrell B.A., Stein W.M., and Beck J.C. The Geriatric Pain Measure: Validity, reliability and factor analysis. Journal of the American Geriatrics Society 48 (2000) 1669-1673
12. Fleiss J.L. Statistical methods for rates and proportions. 2nd ed. (1981), Wiley, New York
13. Gwyther L.P. The perspective of the person with Alzheimer disease: Which outcomes matter in early to middle stages of dementia?. Alzheimer Disease and Associated Disorders 11 Suppl. 6 (1997) 18-24
14. Hawkins N.A., Ditto P.H., Danks J.H., and Smucker W.D. Micromanaging death: Process preferences, values, and goals in end-of-life medical decision making. The Gerontologist 45 (2005) 107-117
15. Haywood K.L., Garratt A.M., and Fitzpatrick R. Older people specific health status and quality of life: A structured review of self-assessed instruments. Journal of Evaluation in Clinical Practice 11 (2005) 315-327
16. Hirschman K.B., Joyce C.M., James B.D., Xie S.X., and Karlawish J.H.T. Do Alzheimer's disease patients want to participate in a treatment decision, and would their caregivers let them?. The Gerontologist 45 (2005) 381-388
17. Hirschman, K. B., Kapo, J. M., & Karlawish, J. H. T. (2005, November). What do family members of persons with dementia see as the barriers and facilitators to planning for the future? Paper session at the 58th annual meeting of the Gerontological Society of America, Orlando, FL.
18. Layde P.M., Beam C.A., Broste S.K., Connors A.F., Desbiens N., Lynn J., et al. Surrogates' predictions of seriously ill patients' resuscitation preferences. Archives of Family Medicine 4 (1995) 518-524
19. Logsdon R.G., Gibbons L.E., McCurry S.M., and Teri L. Quality of life in Alzheimer's disease: Patient and caregiver reports. Journal of Mental Health and Aging 5 (1999) 21-32
20. Long K., Sudha S., and Mutran E.J. Elder-proxy agreement concerning the functional status and medical history of the older person: The impact of caregiver burden and depressive symptomatology. Journal of the American Geriatrics Society 46 (1998) 1103-1111
21. Maguire M.C. Treating the dyad as the unit of analysis: A primer on three analytic approaches. Journal of Marriage and the Family 61 (1999) 213-223
22. Mattimore T.J., Wenger N.S., Desbiens N.A., Teno J.M., Hamel M.B., Liu H., et al. Surrogate and physician understanding of patients' preferences for living permanently in a nursing home. Journal of the American Geriatrics Society 45 (1997) 818-824
23. McGraw K.O., and Wong S.P. Forming inferences about some intraclass correlation coefficients. Psychological Methods 1 (1996) 30-46
24. Morris J.C. The Clinical Dementia Rating (CDR): Current version and scoring rules. Neurology 43 (1993) 2412-2414
25. Muncie H.L., Magaziner J., Hebel R., and Warren J.W. Proxies' decisions about clinical research participation for their charges. Journal of the American Geriatrics Society 45 (1997) 929-933
26. Olson D.H., Portner J., and Lavee Y. FACES III (1985), University of Minnesota, St. Paul
27. Ready R.E., Ott B.R., and Grace J. Patient versus informant perspectives of quality of life in mild cognitive impairment and Alzheimer's disease. International Journal of Geriatric Psychiatry 19 (2004) 256-265
28. Rogers J., Ridley S., Chrispin P., Scotton H., and Lloyd D. Reliability of the next of kins' estimates of critically ill patients' quality of life. Anaesthesia 52 (1997) 1137-1143
29. Rousseau F.L., Pushkar D., and Reis M. Dimensions and predictors of activity engagement: A short-term longitudinal study. Activities, Adaptation & Aging 29 (2005) 11-33
30. Sabat S.R. Capacity for decision-making in Alzheimer's disease: Selfhood, positioning and semiotic people. Australian and New Zealand Journal of Psychiatry 39 (2005) 1030-1035
31. Sansone P., Schmitt L., Nichols J., Phillips M., and Belisle S. Determining the capacity of demented nursing home residents to name a health care proxy. Clinical Gerontologist 19 (1998) 35-50
32. Teno J.M., and Lynn J. Putting advance-care planning into action. Journal of Clinical Ethics 7 (1996) 205-213
33. Weiner M.F., Svetlik D., and Risser R.C. What depressive symptoms are reported in Alzheimer's patients?. International Journal of Geriatric Psychiatry 12 (1997) 648-652