Decision-making involvement scale for individuals with dementia and family caregivers

American Journal of Alzheimer's Disease and other Dementias

Volumn 23, Issue 1, 2008, Pages 23-29

  Menne, Heather L ^a   Tucke, Shandra S ^a   Whitlatch, Carol J ^a   Feinberg, Lynn Friss ^b  

^a Benjamin Rose Institute   (United States)

^b National Center on Caregiving   (United States)

Author keywords

Autonomy; Caregiving dyads; Cognitive impairment; Well being

Indexed keywords

ADULT; AGED; ARTICLE; CAREGIVER; DECISION MAKING INVOLVEMENT SCALE; DEMENTIA; FEMALE; HUMAN; MAJOR CLINICAL STUDY; MALE; MEDICAL DECISION MAKING; PERCEPTION; PSYCHOMETRY; RATING SCALE; RELIABILITY; SCORING SYSTEM; WELLBEING; COGNITIVE DEFECT; DECISION MAKING; HOSPITALIZATION; MIDDLE AGED; NEUROPSYCHOLOGICAL TEST; QUESTIONNAIRE; VALIDATION STUDY;

CAREGIVERS; COGNITION DISORDERS; DECISION MAKING; DEMENTIA; HUMANS; MIDDLE AGED; NEUROPSYCHOLOGICAL TESTS; PSYCHOMETRICS; QUESTIONNAIRES; SEVERITY OF ILLNESS INDEX;

EID: 42949125840     PISSN: 15333175     EISSN: None     Source Type: Journal    
DOI: 10.1177/1533317507308312     Document Type: Article

References (25)

1. Martin VC, Roberto KA Assessing the stability of values and health care preferences of older adults. J Gerontol Nurs. 2006 ; 32: 23-31.
2. Zarit SH, Braungart ER Elders as care receivers: autonomy in the context of frailty. In: Wahl HW, Tesch-Rmer C, Hoff A, eds. New Dynamics in Old Age: Individual, Environmental and Societal Perspectives. Amityville, NY: Baywood; 2007.
3. Bamford C., Bruce E. Defining the outcomes of community care: the perspectives of older people with dementia and their carers. Ageing Soc. 2000 ; 20: 543-570.
4. Zarit SH, Leitsch SA Developing and evaluating community based intervention programs for Alzheimer's patients and their caregivers. Aging Ment Health. 2001 ; 5 (suppl 1). S84 - S98.
5. Feinberg LF, Whitlatch CJ Decision-making for persons with cognitive impairment and their family caregivers. Am J Alzheimer's Dis Other Demen. 2002 ; 17: 237-244.
6. Whitlatch CJ Including the person with dementia in family caregiving research. Aging Ment Health. 2001 ; 5 (suppl 1). S20 - S22.
7. Hirschman KB, Joyce CM, James BD, Xie SX, Karlawish JHT. Do Alzheimer's disease patients want to participate in a treatment decision, and would their caregivers let them? Gerontologist. 2005 ; 45: 381-388.
8. Pratt CC, Jones LL, Shin HY, Walker AJ Autonomy and decision making between single older women and their caregiving daughters. Gerontologist. 1989 ; 29: 792-797.
9. Conroy JW, Yuskauskas A. Independent evaluation of the Monadnock Self-Determination Project. Ardmore, PA: The Center for Outcomes Analysis ; 1996.
10. Wehmeyer ML, Schalock RL Self-determination and quality of life: implications for special education services and supports. Focus Except Child. 2001 ; 33: 1-16.
11. Feinberg LF, Whitlatch CJ, Tucke S. Making Hard Choices: Respecting Both Voices. Final report submitted to The Robert Wood Johnson Foundation ; 2000.
12. Horowitz A., Silverstone BM, Reinhardt JP A conceptual and empirical exploration of personal autonomy issues within family caregiving relationships. Gerontologist. 1991 ; 31: 23-31.
13. Feinberg LF, Whitlatch CJ Are persons with cognitive impairment able to state consistent and accurate choices ? Gerontologist. 2001 ; 41: 374-382.
14. Squillace MR, Mahoney KJ, Loughlin DM, Simon-Rusinowitz L., Desmond SM Personal assistance service choice and decision-making among persons with disabilities and surrogate representatives. J Ment Health Aging. 2002 ; 8: 225-240.
15. Whitlatch CJ, Feinberg LF, Tucke S. Accuracy and consistency of responses from persons with cognitive impairment. Dementia. 2005 ; 4: 171-184.
16. Tombaugh TN, McIntyre NJ The mini-mental state examination: a comprehensive review. J Am Geriatr Soc. 1992 ; 40: 922-935.
17. Fabrigar LR, Wegener DT, MacCallum RC, Strahan EJ Evaluating the use of exploratory factor analysis in psychological research. Psychol Methods. 1999 ; 4: 272-299.
18. Gorsuch RL Factor Analysis. 2 nd ed. Hillsdale, NJ: Lawrence Erlbaum Associates, Publishers ; 1983.
19. Folstein MF, Folstein SE, McHugh PR Mini-mental state: a practical method for grading the cognitive state of patients for the clinician. J Psychiatr Res. 1975 ; 12: 189-198.
20. Logsdon RG, Gibbons LE, McCurry SM, Teri L. Quality of life in Alzheimer's disease: patient and caregiver reports. J Ment Health Aging. 1999 ; 5: 21-32.
21. Teri L., Truax P., Logsdon R., Uomoto J., Zarit S., Vitaliano P. Assessment of behavioral problems in dementia: the revised memory and behavior problems checklist. Psychol Aging. 1992 ; 7: 622-631.
22. Radloff LS The CES-D Scale: a self-report depression scale for research in the general population. Appl Psych Meas. 1977 ; 1: 385-401.
23. Bass DM, Tausig MB, Noelker LS Elder impairment, social support and caregiver strain: a framework for understanding support's effects. J Appl Soc Sci. 1988 ; 13: 80-115.
24. Menne HL, Whitlatch CJ Decision-making involvement of individuals with dementia. Gerontologist. In press.
25. Aneshensel CS, Pearlin LI, Mullan JT, Zarit SH, Whitlatch CJ Profiles in Caregiving: The Unexpected Career. New York, NY: Academic Press ; 1995.