Living with ambiguity: A metasynthesis of qualitative research on mild cognitive impairment

Gerontologist

Volumn 55, Issue 5, 2015, Pages 892-912

  Gomersall, Tim ^a   Astell, Arlene ^a   Nygård, Louise ^b   Sixsmith, Andrew ^c   Mihailidis, Alex ^d   Hwang, Amy ^d  

^a UNIVERSITY OF SHEFFIELD   (United Kingdom)

^b KAROLINSKA INSTITUTE   (Sweden)

^c SIMON FRASER UNIVERSITY   (Canada)

^d UNIVERSITY OF TORONTO   (Canada)

Author keywords

Attitudes and perception toward aging aged; Cognition; Dementia; Ethics (research; individual choices); policy; practice; Qualitative research methods; Sociology of aging social gerontology; Well being

Indexed keywords

AGING; ATTITUDE TO HEALTH; COGNITION; COGNITIVE DYSFUNCTION; DAILY LIFE ACTIVITY; DEMENTIA; FEMALE; HUMAN; MALE; MEMORY; META ANALYSIS; PSYCHOLOGY; QUALITATIVE RESEARCH; QUALITY OF LIFE; SOCIAL SUPPORT; VERY ELDERLY;

ACTIVITIES OF DAILY LIVING; AGED, 80 AND OVER; AGING; COGNITION; COGNITIVE DYSFUNCTION; DEMENTIA; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; MALE; MEMORY; QUALITATIVE RESEARCH; QUALITY OF LIFE; SOCIAL SUPPORT;

EID: 84943423929     PISSN: 00169013     EISSN: 17585341     Source Type: Journal    
DOI: 10.1093/geront/gnv067     Document Type: Article

References (60)

1. Albert, M. S., DeKosky, S. T., Dickson, D., Dubois, B., Feldman, H. H., Fox, N. C., Phelps, C. H. (2011). The diagnosis of mild cognitive impairment due to Alzheimer's disease: Recommendations from the National Institute on Aging-Alzheimer's Association workgroups on diagnostic guidelines for Alzheimer's disease. Alzheimer's & Dementia, 7, 270-279. doi:10.1016/j.jalz.2011.03.008
2. Allen, J. O. (2015). Ageism as a risk factor for chronic disease. The Gerontologist. doi:10.1093/geront/gnu158
3. American Psychiatric Association. (2013). The diagnostic and statistical manual of mental disorders: DSM 5. Arlington, VA: BookpointUS.
4. Artero, S., Ancelin, M. L., Portet, F., Dupuy, A., Berr, C., Dartigues, J. F., Ritchie, K. (2008). Risk profiles for mild cognitive impairment and progression to dementia are gender specific. Journal of Neurology, Neurosurgery, and Psychiatry, 79, 979-984. doi:10.1136/jnnp.2007.136903
5. Banningh, J. W. L., Vernooij-Dassen, M., Rikkert, M. O., & Teunisse, J. P. (2008). Mild cognitive impairment: Coping with an uncertain label. International Journal of Geriatric Psychiatry, 23, 148-154. doi:10.1002/gps.1855
6. Barnett-Page, E., & Thomas, J. (2009). Methods for the synthesis of qualitative research: A critical review. BMC Medical Research Methodology, 9, 59. doi:10.1186/1471-2288-9-59
7. Beard, R. L., & Neary, T. M. (2013). Making sense of nonsense: Experiences of mild cognitive impairment. Sociology of Health & Illness, 35, 130-146. doi:10.1111/j.1467-9566.2012.01481.x
8. Berg, A. I., Wallin, A., Nordlund, A., & Johansson, B. (2013). Living with stable MCI: Experiences among 17 individuals evaluated at a memory clinic. Aging & Mental Health, 17, 293-299. doi:10. 1080/13607863.2012.751582
9. Binegar, D. L., Hynan, L. S., Lacritz, L. H., Weiner, M. F., & Cullum, C. M. (2009). Can a direct IADL measure detect deficits in persons with MCI? Current Alzheimer Research, 6, 48. doi:10.2174/156720509787313880
10. Blieszner, R., Roberto, K. A., Wilcox, K. L., Barham, E. J., & Winston, B. L. (2007). Dimensions of ambiguous loss in couples coping with mild cognitive impairment. Family Relations, 56, 196-219. doi:10.1111/j.1741-3729.2007.00452.x
11. Blieszner, R., & Roberto, K. A. (2010). Care partner responses to the onset of mild cognitive impairment. The Gerontologist, 50, 11-22. doi:10.1093/geront/gnp068
12. Britten, N., Campbell, R., Pope, C., Donovan, J., Morgan, M., & Pill, R. (2002). Using meta ethnography to synthesise qualitative research: A worked example. Journal of Health Services Research & Policy, 7, 209-215. doi:10.1258/135581902320432732
13. Campbell, R., Pound, P., Pope, C., Britten, N., Pill, R., Morgan, M., & Donovan, J. (2003). Evaluating meta-ethnography: A synthesis of qualitative research on lay experiences of diabetes and diabetes care. Social Science & Medicine (1982), 56, 671-684. doi:10.1016/S0277-9536(02)00064-3
14. Carlson, M. C., Saczynski, J. S., Rebok, G. W., Seeman, T., Glass, T. A., McGill, S., Fried, L. P. (2008). Exploring the effects of an everyday activity program on executive function and memory in older adults: Experience corps. The Gerontologist, 48, 793-801. doi:10.1093/geront/48.6.793
15. Chan, M. Y., Haber, S., Drew, L. M., & Park, D. C. (2014). Training older adults to use tablet computers: Does it enhance cognitive function? The Gerontologist. Advance online publication. doi:10.1093/geront/gnu057
16. Chertkow, H., Massoud, F., Nasreddine, Z., Belleville, S., Joanette, Y., Bocti, C., Bergman, H. (2008). Diagnosis and treatment of dementia: 3. Mild cognitive impairment and cognitive impairment without dementia. Canadian Medical Association Journal/journal de lAssociation medicale canadienne, 178, 1273-1285. doi:10.1503/cmaj.070797
17. Corner, L., & Bond, J. (2006). The impact of the label of mild cognitive impairment on the individual's sense of self. Philosophy, Psychiatry, & Psychology, 13, 3-12. doi:10.1353/ppp.2006.0036
18. Damianakis, T., Crete-Nishihata, M., Smith, K. L., Baecker, R. M., & Marziali, E. (2010). The psychosocial impacts of multimedia biographies on persons with cognitive impairments. The Gerontologist, 50, 23-35. doi:10.1093/geront/gnp104
19. Davies, H. D., Newkirk, L. A., Pitts, C. B., Coughlin, C. A., Sridhar, S. B., Zeiss, L. M., & Zeiss, A. M. (2010). The impact of dementia and mild memory impairment (MMI) on intimacy and sexuality in spousal relationships. International Psychogeriatrics, 22, 618-628. doi:10.1017/S1041610210000177
20. Eccles, A., Damodaran, L., Olphert, W., Hardill, I., & Gilhooly, M. (2013). Assistive technologies: Ethical practice, ethical research, and quality of life. In Springer Science & Business Media (Ed.), Technologies for active aging (pp. 47-68). New York: Springer. doi:10.1007/978-1-4419-8348-0-4
21. Erwin, E. J., Brotherson, M. J., & Summers, J. A. (2011). Understanding qualitative metasynthesis issues and opportunities in early childhood intervention research. Journal of Early Intervention, 33, 186-200. doi:10.1177/1053815111425493
22. Fischer, P., Jungwirth, S., Zehetmayer, S., Weissgram, S., Hoenigschnabl, S., Gelpi, E., Tragl, K. H. (2007). Conversion from subtypes of mild cognitive impairment to Alzheimer dementia. Neurology, 68, 288-291. doi:10.1212/01. wnl.0000252358.03285.9d
23. Flicker, C., Ferris, S. H., & Reisberg, B. (1991). Mild cognitive impairment in the elderly: Predictors of dementia. Neurology, 41, 1006-1009. doi:10.1212/WNL.41.7.1006
24. Frank, L., Lloyd, A., Flynn, J. A., Kleinman, L., Matza, L. S., Margolis, M. K., Bullock, R. (2006). Impact of cognitive impairment on mild dementia patients and mild cognitive impairment patients and their informants. International Psychogeriatrics, 18, 151-162. doi:10.1017/S1041610205002450
25. Gergen, K. J., Hoffman, L., & Anderson, H. (1996). Is diagnosis a disaster? A constructionist trialogue. In Handbook of relational diagnosis and dysfunctional family patterns, 102-118. New York: John Wiley & Sons Inc. Retrieved from http://www. swarthmore.edu/sites/default/files/assets/documents/kennethgergen/Is-Diagnosis-A-Disaster.pdf
26. Gomersall, T., Madill, A., & Summers, L. K. (2011). A metasynthesis of the self-management of type 2 diabetes. Qualitative Health Research, 21, 853-871. doi:10.1177/1049732311402096
27. Gomersall, T., & Madill, A. (2015). Chronotope disruption as a sensitizing concept for understanding chronic illness narratives. Health Psychology. 34, 407-416. doi:10.1037/hea0000151
28. Greenhalgh, T., Stones, R., & Swinglehurst, D. (2014). Choose and book: A sociological analysis of resistance to an expert system. Social Science & Medicine (1982), 104, 210-219. doi:10.1016/j. socscimed.2013.12.014
29. Kim, K. R., Lee, K. S., Cheong, H. K., Eom, J. S., Oh, B. H., & Hong, C. H. (2009). Characteristic profiles of instrumental activities of daily living in different subtypes of mild cognitive impairment. Dementia and Geriatric Cognitive Disorders, 27, 278-285. doi:10.1159/000204765
30. Kuo, L. M., & Shyu, Y. I. (2010). Process of ambivalent normalisation: Experience of family caregivers of elders with mild cognitive impairment in Taiwan. Journal of Clinical Nursing, 19, 3477-3484. doi:10.1111/j.1365-2702.2010.03240.x
31. Lingler, J. H., Nightingale, M. C., Erlen, J. A., Kane, A. L., Reynolds, C. F., III, Schulz, R., & DeKosky, S. T. (2006). Making sense of mild cognitive impairment: A qualitative exploration of the patient's experience. The Gerontologist, 46, 791-800. doi:10.1093/geront/46.6.791
32. Lu, Y. F., & Haase, J. E. (2009). Experience and perspectives of caregivers of spouse with mild cognitive impairment. Current Alzheimer Research, 6, 384. doi:10.2174/156720509788929309
33. Malpass, A., Shaw, A., Sharp, D., Walter, F., Feder, G., Ridd, M., & Kessler, D. (2009). Medication career or moral career? The two sides of managing antidepressants: A meta-ethnography of patients experience of antidepressants. Social Science & Medicine (1982), 68, 154-168. doi:10.1016/j.socscimed.2008.09.068
34. Merleau-Ponty, M. (1996). Phenomenology of perception. New Delhi, India: Motilal Banarsidass Publisher.
35. Misztal, B. A. (2001). Normality and trust in Goffman's theory of interaction order. Sociological Theory, 19, 312-324. doi:10.1111/0735-2751.00143
36. Morson, G. S. (1996. Narrative and freedom: The shadows of time. New Haven, CT: Yale University Press.
37. Noblit, G.W. & Hare, R.D. (1988) Meta-ethnography: Synthesising Qualitative Studies. London: Sage.
38. Nygard, L. (2003). Instrumental activities of daily living: A steppingstone towards Alzheimer's disease diagnosis in subjects with mild cognitive impairment? Acta neurologica Scandinavica. Supplementum, 179, 42-46. doi:10.1034/j.1600-0404.107. s179.8.x
39. Nygard, L. & Johansson, L. N. M. (2001). The experience and management of temporality in five cases of dementia. Scandinavian Journal of Occupational Therapy, 8, 85-95. doi:10.1080/11038120120542
40. Nygard, L., Pantzar, M., Uppgard, B., & Kottorp, A. (2012). Detection of activity limitations in older adults with MCI or Alzheimer's disease through evaluation of perceived difficulty in use of everyday technology: A replication study. Aging & Mental Health, 16, 361-371. doi:10.1080/13607863.2011.60 5055
41. Petersen, R. C., Doody, R., Kurz, A., Mohs, R. C., Morris, J. C., Rabins, P. V., & Winblad, B. (2001). Current concepts in mild cognitive impairment. Archives of Neurology, 58, 1985-1992.
42. Petersen, R. C., Smith, G. E., Waring, S. C., Ivnik, R. J., Kokmen, E., & Tangelos, E. G. (1997). Aging, memory, and mild cognitive impairment. International Psychogeriatrics, 9(Suppl. 1), 65-69. doi:10.1017/S1041610297004717
43. Petersen, R. C., Smith, G. E., Waring, S. C., Ivnik, R. J., Tangalos, E. G., & Kokmen, E. (1999). Mild cognitive impairment: Clinical characterization and outcome. Archives of Neurology, 56, 303-308. doi:10.1001/archneur.56.3.303
44. Petersen, R. C. (2004). Mild cognitive impairment as a diagnostic entity. Journal of Internal Medicine, 256, 183-194. doi:10.1111/j.1365-2796.2004.01388.x
45. Roberto, K. A., McCann, B. R., & Blieszner, R. (2013). Trajectories of care: Spouses coping with changes related to mild cognitive impairment. Dementia (London, England). doi:10.1177/1471301211421233
46. Roberto, K. A., Blieszner, R., McCann, B. R., & McPherson, M. C. (2011). Family triad perceptions of mild cognitive impairment. The Journal of Gerontology: Psychological Sciences and Social Sciences, 66, 756-768. doi:10.1093/geronb/gbr107
47. Roberts, J. L., & Clare, L. (2013). Meta-representational awareness in mild cognitive impairment: An interpretative phenomenological analysis. Aging & Mental Health, 17, 300-309. doi:10.1080/13607863.2012.732033
48. Rosenberg, L., & Nygard, L. (2013). Learning and using technology in intertwined processes: A study of people with mild cognitive impairment or Alzheimer's disease. Dementia, 13, 662-677. doi:10.1177/1471301213481224
49. Sabat, S. R. (2006). Mild cognitive impairment: What's in a name? Philosophy, Psychiatry, & Psychology, 13, 13-20. doi:10.1353/ppp.2006.0046
50. Sachdev, P. S., Lipnicki, D. M., Crawford, J., Reppermund, S., Kochan, N. A., Sydney Memory, Ageing Study Team. (2013). Factors predicting reversion from mild cognitive impairment to normal cognitive functioning: A populationbased study. PloS One, 8, e59649. doi:10.1371/journal. pone.0059649
51. Sandelowski, M., Docherty, S., & Emden, C. (1997). Focus on qualitative methods. Qualitative metasynthesis: Issues and techniques. Research in Nursing & Health, 20, 365-371. doi:10.1002/(SICI)1098-240X(199708)20:43.3.CO;2-7
52. Saunders, P. A., de Medeiros, K., & Bartell, A. (2011). Oh he was forgettable: Construction of self identity through use of communicative coping behaviors in the discourse of persons with cognitive impairment. Dementia, 10, 341-359. doi:10.1177/1471301211407805
53. Schulz, R., Wahl, H. W., Matthews, J. T., Dabbs, A. D. V., Beach, S. R., & Czaja, S. J. (2014). Advancing the aging and technology agenda in gerontology. The Gerontologist. doi:10.1093/geront/gnu071
54. Strauss, A., & Corbin, J. M. (Eds.). (1997). Grounded theory in practice. London, UK: Sage.
55. Thorne, S., Jensen, L., Kearney, M. H., Noblit, G., & Sandelowski, M. (2004). Qualitative metasynthesis: Reflections on methodological orientation and ideological agenda. Qualitative Health Research, 14, 1342-1365. doi:10.1177/1049732304269888
56. Tranter, L. J., & Koutstaal, W. (2008). Age and flexible thinking: An experimental demonstration of the beneficial effects of increased cognitively stimulating activity on fluid intelligence in healthy older adults. Neuropsychology, Development, and Cognition. Section B, Aging, Neuropsychology and Cognition, 15, 184-207. doi:10.1080/13825580701322163
57. Turner, S. P. (1980). Sociological explanation as translation. New York: Cambridge University Press.
58. Ward, A., Arrighi, H. M., Michels, S., & Cedarbaum, J. M. (2012). Mild cognitive impairment: Disparity of incidence and prevalence estimates. Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 8, 14-21. doi:10.1016/j. jalz.2011.01.002
59. Werner, P., & Korczyn, A. D. (2008). Mild cognitive impairment: Conceptual, assessment, ethical, and social issues. Clinical Interventions in Aging, 3, 413. Retrieved from http://www.ncbi. nlm.nih.gov/pmc/articles/PMC2682374/
60. Zimmer, L. (2006). Qualitative meta-synthesis: A question of dialoguing with texts. Journal of Advanced Nursing, 53, 311-318. doi:10.1111/j.1365-2648.2006.03721.x