Public priorities for osteoporosis and fracture research: results from a general population survey

Archives of Osteoporosis

Volumn 12, Issue 1, 2017, Pages

  Paskins, Zoe ^a,b   Jinks, Clare ^a   Mahmood, Waheed ^a   Jayakumar, Prakash ^c   Sangan, Caroline B ^d   Belcher, John ^a   Gwilym, Stephen ^c  

^a KEELE UNIVERSITY   (United Kingdom)

^b Staffordshire and Stoke on Trent Partnership NHS Trust   (United Kingdom)

^c UNIVERSITY OF OXFORD   (United Kingdom)

^d NATIONAL OSTEOPOROSIS SOCIETY   (United Kingdom)

Author keywords

Fracture; Osteoporosis; Patient and public involvement and engagement; Research priorities; Survey

Indexed keywords

ACCESS TO INFORMATION; ADULT; AGED; ARTICLE; CLINICAL RESEARCH; FEMALE; FRACTURE; HEALTH PRACTITIONER; HEALTH SURVEY; HUMAN; MALE; MEDICAL SOCIETY; OSTEOPOROSIS; PRIMARY MEDICAL CARE; PRIORITY JOURNAL; RISK BENEFIT ANALYSIS; SELF CARE; ATTITUDE TO HEALTH; COMMUNITY PARTICIPATION; COMPLICATION; MEDICAL RESEARCH; MIDDLE AGED; OSTEOPOROTIC FRACTURES; PRIMARY HEALTH CARE; PROCEDURES; QUESTIONNAIRE;

ADULT; AGED; ATTITUDE TO HEALTH; BIOMEDICAL RESEARCH; COMMUNITY PARTICIPATION; FEMALE; HUMANS; MALE; MIDDLE AGED; OSTEOPOROSIS; OSTEOPOROTIC FRACTURES; PRIMARY HEALTH CARE; SURVEYS AND QUESTIONNAIRES;

EID: 85018354267     PISSN: 18623522     EISSN: 18623514     Source Type: Journal    
DOI: 10.1007/s11657-017-0340-5     Document Type: Article

References (33)

1. Tallon D, Chard J, Dieppe P (2000) Relation between agendas of the research community and the research consumer. Lancet 355:2037–2040
2. Tallon D, Chard J, Dieppe P (2000) Exploring the priorities of patients with osteoarthritis of the knee. Arthritis Care & Research 13:312–319
3. Stewart R, Oliver S (2008) A systematic map of studies of patients’ and clinicians’ research priorities—James Lind Alliance, December 2008. London, UK
4. Staley K, Hanley B (2008) Scoping research priority setting (and the presence of PPI in priority setting) with UK clinical research organisations and funders
5. Chalmers I, Bracken MB, Djulbegovic B, Garattini S, Grant J, Gülmezoglu AM, Howells DW, Ioannidis JP, Oliver S (2014) How to increase value and reduce waste when research priorities are set. Lancet 383:156–165
6. Partridge N, Scadding J (2004) The James Lind Alliance: patients and clinicians should jointly identify their priorities for clinical trials. Lancet 364:1923–1924
7. Bryant J, Sanson-Fisher R, Walsh J, Stewart J (2014) Health research priority setting in selected high income countries: a narrative review of methods used and recommendations for future practice. Cost Effectiveness and Resource Allocation 12:23
8. de Wit MP, Berlo SE, Aanerud GJ, Aletaha D, Bijlsma JW, Croucher L, Da Silva JA, Glusing B, Gossec L, Hewlett S, Jongkees M, Magnusson D, Scholte-Voshaar M, Richards P, Ziegler C, Abma TA (2011) European league against rheumatism recommendations for the inclusion of patient representatives in scientific projects. Ann Rheum Dis 70:722–726
9. Crowe S, Fenton M, Hall M, Cowan K, Chalmers I (2015) Patients’, clinicians’ and the research communities’ priorities for treatment research: there is an important mismatch. Research Involvement and Engagement 1:1
10. Hernlund E, Svedbom A, Ivergård M, Compston J, Cooper C, Stenmark J, McCloskey EV, Jönsson B, Kanis JA (2013) Osteoporosis in the European Union: medical management, epidemiology and economic burden. Arch Osteoporos 8:136
11. Cooper C (1997) The crippling consequences of fractures and their impact on quality of life. Am J Med 103:S12–S19
12. Cochrane methods Priority Setting (2015) Top tips for research priority setting. Available at http://methods.cochrane.org/prioritysetting/top-tips-research-priority-setting-cochrane-vienna-2015-workshop
13. Mahmood W, Jinks C, Jayakumar P, Gwilym S, Paskins Z (2016) 115 public priority setting for research in osteoporosis. Rheumatology 55:i109–i110
14. Jinks C, Carter P, Rhodes C, Taylor R, Beech R, Dziedzic K, Blackburn S, Hughes R, Ong BN (2016) Patient and public involvement in primary care research-an example of ensuring its sustainability. Research Involvement and Engagement 2:1
15. Jinks C, Mahmood W, Jayakumar P, Gwilym S, Blackburn S, Worrall A, Paskins Z (2016) OP0251-PARE patient and public involvement in design, analysis and reporting of a public priority setting exercise for research in osteoporosis. Ann Rheum Dis 75:153
16. National Institute for Health and Care Excellence (2008) Alendronate, etidronate, risedronate, raloxifene and strontium ranelate for the primary prevention of osteoporotic fragility fractures in postmenopausal women. TAG 160
17. National Institute for Health and Care Excellence (2008) Alendronate, etidronate, risedronate, raloxifene, strontium ranelate and teriparatide for the secondary prevention of osteoporotic fragility fractures in postmenopausal women. TAG 161
18. Grossman JM, Gordon R, Ranganath VK, Deal C, Caplan L, Chen W, Curtis JR, Furst DE, McMahon M, Patkar NM (2010) American College of Rheumatology 2010 recommendations for the prevention and treatment of glucocorticoid-induced osteoporosis. Arthritis care & research 62:1515–1526
19. Cosman F, De Beur S, LeBoff M, Lewiecki E, Tanner B, Randall S, Lindsay R (2014) Clinician’s guide to prevention and treatment of osteoporosis. Osteoporosis Int 25:2359–2381
20. Scottish Intercollegiate Guidelines Network (SIGN) (2015) Management of osteoporosis and the prevention of fragility fractures SIGN publication no. 142
21. Compston J, Bowring C, Cooper A, Cooper C, Davies C, Francis R, Kanis J, Marsh D, McCloskey E, Reid D (2013) Diagnosis and management of osteoporosis in postmenopausal women and older men in the UK: National Osteoporosis Guideline Group (NOGG) update 2013. Maturitas 75:392–396
22. Compston J, Cooper A, Cooper C, Francis R, Kanis J, Marsh D, McCloskey E, Reid D, Selby P, Wilkins M (2009) Guidelines for the diagnosis and management of osteoporosis in postmenopausal women and men from the age of 50 years in the UK. Maturitas 62:105–108
23. Hemmelgarn BR, Pannu N, Ahmed SB, Elliott MJ, Tam-Tham H, Lillie E, Straus SE, Donald M, Barnieh L, Chong GC, Hillier DR, Huffman KT, Lei AC, Villanueva BV, Young DM, Fowler EA, Manns BJ, Laupacis A (2016) Determining the research priorities for patients with chronic kidney disease not on dialysis. Nephrology Dialysis Transplantation
24. Brown K, Dyas J, Chahal P, Khalil Y, Riaz P, Cummings-Jones J (2006) Discovering the research priorities of people with diabetes in a multicultural community: a focus group study. Br J Gen Pract 56:206–213
25. Elwyn G, Crowe S, Fenton M, Firkins L, Versnel J, Walker S, Cook I, Holgate S, Higgins B, Gelder C (2010) Identifying and prioritizing uncertainties: patient and clinician engagement in the identification of research questions. J Eval Clin Pract 16:627–631
26. Strauss VY, Carter P, Ong BN, Bedson J, Jordan KP, Jinks C, in collaboration with the Arthritis Research UK Research Users’ Group (2012) Public priorities for joint pain research: results from a general population survey. Rheumatology 51(11):2075–2082
27. Francisca Caron-Flinterman J, Broerse JE, Teerling J, Bunders JF (2005) Patients’ priorities concerning health research: the case of asthma and COPD research in the Netherlands. Health Expect 8:253–263
28. Autistica (2016) Your future: shaping further autism research. Available at https://www.autistica.org.uk/wp-content/uploads/2016/08/Autism-Top-10-Your-Priorities-for-Autism-Research.pdf.:pg 12
29. Manns B, Hemmelgarn B, Lillie E, Dip SC, Cyr A, Gladish M, Large C, Silverman H, Toth B, Wolfs W, Laupacis A (2014) Setting research priorities for patients on or nearing dialysis. Clin J Am Soc Nephrol 9:1813–1821
30. Office for National Statistics (2016) Statistical bulletin: internet users in the UK: 2016
31. Deane KHO, Flaherty H, Daley DJ, Pascoe R, Penhale B, Clarke CE, Sackley C, Storey S (2014) Priority setting partnership to identify the top 10 research priorities for the management of Parkinson's disease. BMJ Open 4
32. Tong A, Sainsbury P, Carter SM, Hall B, Harris DC, Walker RG, Hawley CM, Chadban S, Craig JC (2008) Patients' priorities for health research: focus group study of patients with chronic kidney disease. Nephrol Dial Transplant 23:3206–3214
33. Snilstveit B, Vojtkova M, Bhavsar A, Gaarder M (2013) Evidence gap maps: a tool for promoting evidence-informed policy and prioritizing future research. Policy Research Working Paper 6725