Public priorities for joint pain research: Results from a general population survey

Rheumatology (United Kingdom)

Volumn 51, Issue 11, 2012, Pages 2075-2082

  Strauss, Vicky Y ^a   Carter, Pam ^a   Ong, Bie Nio ^a   Bedson, John ^a   Jordan, Kelvin P ^a   Jinks, Clare ^a  

^a KEELE UNIVERSITY   (United Kingdom)

Author keywords

Factor analysis; Joint pain; Latent class analysis; Logistic regression; Patient priority; Survey

Indexed keywords

ADULT; AGED; ARTHRALGIA; ARTICLE; COHORT ANALYSIS; DIET; FACTOR MIXTURE ANALYSIS; FACTORIAL ANALYSIS; FEMALE; FOOT PAIN; HEALTH SURVEY; HIP PAIN; HUMAN; JOINT PROSTHESIS; LIFESTYLE; MAJOR CLINICAL STUDY; MALE; PRIORITY JOURNAL; SELF CARE; SELF REPORT; WEIGHT REDUCTION;

AGED; ARTHRALGIA; ENGLAND; FEMALE; HEALTH PRIORITIES; HUMANS; LIFE STYLE; MALE; MIDDLE AGED; PATIENT PREFERENCE; PUBLIC OPINION; QUESTIONNAIRES; RESEARCH; SELF CARE; SOCIOECONOMIC FACTORS; WEIGHT LOSS;

EID: 84867817139     PISSN: 14620324     EISSN: 14620332     Source Type: Journal    
DOI: 10.1093/rheumatology/kes179     Document Type: Article

References (36)

1. Hanley B, Bradburn J, Barnes M et al. Involving the public in NHS, public health and social care research: briefing notes for researchers, 2nd edn. London: INVOLVE, 2003.
2. Abelson J, Forest P-G, Eyles J et al. Deliberations about deliberative methods: issues in the design and evaluation of public participation processes. Soc Sci Med 2003; 57: 239-51.
3. Gooberman-Hill R, Horwood J, Calnan M. Citizens' juries in planning research priorities: process, engagement and outcome. Health Expect 2008; 11: 272-81.
4. Menon D, Stafinski T. Engaging the public in priority-setting for health technology assessment: findings from a citizens' jury. Health Expect 2008; 11: 282-93.
5. Owens C, Ley A, Aitken P. Do different stakeholder groups share mental health research priorities? A four-arm Delphi study. Health Expect 2008; 11: 418-31.
6. Corner J, Wright D, Hopkinson J et al. The research priorities of patients attending UK cancer treatment centres: findings from a modified nominal group study. Br J Cancer 2007; 96: 875-81.
7. Elwyn G, Crowe S, Fenton M et al. Identifying and prioritizing uncertainties: patients and clinician engagement in the identification of research questions. J Eval Clin Pract 2010; 16: 627-31.
8. Foster N, Dziedzic K, van der Windt D et al. Research priorities for non-pharmacological therapies for common musculoskeletal problems: nationally and internationally agreed recommendations. BMC Musculoskelet Disord 2009; 10: 3.
9. Welfare MR, Colligan J, Molyneux S et al. The identification of topics for research that are important to people with ulcerative colitis. Eur J Gastroenterol Hepatol 2006; 18: 939-44.
10. Smith E, Ross F, Mackenzie A et al. Developing a service user framework to shape priorities for nursing and midwifery research. J Res Nurs 2005; 10: 107-18.
11. Tong A, Sainsbury P, Carter SM et al. Patients' priorities for health research: focus group study of patients with chronic kidney disease. Nephrol Dial Transplant 2008; 23: 3206-14.
12. Brown K, Dyas J, Chahal P et al. Discovering the research priorities of people with diabetes in a multicultural community. Br J Gen Pract 2006; 56: 206-13.
13. Marsden J, Bradburn J. Patient and clinician collaboration in the design of a national randomized breast cancer trial. Health Expect 2004; 7: 6-17.
14. Kjeken I, Ziegler C, Bagge J et al. How to develop patient-centered research: some perspectives based on surveys among people with rheumatic diseases in Scandinavia. Phys Ther 2010; 90: 450-60.
15. Tallon D, Chard J, Dieppe P. Relation between agendas of the research community and the research consumer. Lancet 2000; 355: 2037-40.
16. Mitchell H, Hurley M. Management of chronic knee pain: a survey of patient preferences and treatment received. BMC Musculoskelet Disord 2008; 9: 123.
17. Oliver S, Clarke-Jones L, Rees R et al. Involving consumers in research and development agenda setting for the NHS: developing an evidence-based approach. Health Technol Assess 2004; 8: 1-148, iii-iv.
18. Oliver S, Gray J. A bibliography of research reports about patients', clinicians' and researchs' priorities for new research. London: James Lind Alliance, 2006.
19. Stewart R, Oliver S. A systematic map of studies of patients' and clinicians' research priorities. London: James Lind Alliance, 2008.
20. Gagnon M, Desmartis M, Lepage-Savary D et al. Introducing patients' and the public's perspectives to a health technology assessment: a systematic review of international experiences. Int J Technol Assess Health Care 2011; 27: 31-42.
21. Kirwan J, Heiberg T, Hewlett S et al. Outcomes from the Patient Perspective Workshop at OMERACT 6. J Rheumatol 2003; 30: 868-72.
22. Shea B, Santesso N, Qualman A et al. Consumer-driven health care: building partnerships in research. Health Expect 2005; 8: 352-59.
23. Kirwan JR, Ahlmén M, de Wit M et al. Progress since OMERACT 6 on including patient perspective in rheumatoid arthritis outcome assessment. J Rheumatol 2005; 32: 2246-49.
24. Tallon D, Chard J, Dieppe P. Exploring the priorities of patients with osteoarthritis of the knee. Arthritis Care Res 2000; 13: 312-19.
25. Department of Health. The musculoskeletal services framework. A joint responsibility: doing it differently. London: DH Publications, 2006.
26. Jordan KP, Kadam UT, Hayward R et al. Annual consultation prevalence of regional musculoskeletal problems in primary care: an observational study. BMC Musculoskelet Disord 2010; 11: 144.
27. Thomas E, Peat G, Harris L et al. The prevalence of pain and pain interference in a general population of older adults: cross-sectional findings from the North Staffordshire Osteoarthritis Project (NorStop). Pain 2004; 110: 361-68.
28. Office for National Statistics. National statistics socio-economic classification (NS-SEC 2002). London: Stationery Office, 2002.
29. Muthén B, Shedden K. Finite mixture modeling with mixture outcomes using the EM algorithm. Biometrics 1999; 55: 463-69.
30. National Institute for Health and Clinical Excellence. Osteoarthritis. The care and management of adults with osteoarthritis. London: NICE, 2008.
31. Judge A, Welton NJ, Sandhu J et al. Geographical variation in the provision of elective primary hip and knee replacement: the role of socio-demographic, hospital and distance variables. J Public Health 2009; 31: 413-22.
32. Garrow A, Silman A, Macfarlane G. The Cheshire Foot Pain and Disability Survey: a population survey assessing prevalence and associations. Pain 2004; 110: 378-84.
33. Figaro M, Russo P, Allegrante J. Preferences for arthritis care among urban African Americans: 'I don't want to be cut'. Health Psychol 2004; 23: 324-29.
34. Grime J, Richardson J, Ong BN. Perceptions of joint pain and keeping well in older people who reported being healthy: a qualitative study. Br J Gen Pract 2010; 60: 597-603.
35. Ong BN, Jinks C, Morden A. The hard work of self-management: living with chronic knee pain. Int J Qual Stud Health Well-Being 2011; 6: 7035.
36. Oliver SR, Rees RW, Clarke-Jones L et al. A multidimensional conceptual framework for analysing public involvement in health services research. Health Expect 2008; 11: 72-84.