-
1
-
-
34247188454
-
Bringing ‘The Public’ Into Health Technology Assessment and Coverage Policy Decisions: From Principles to Practice
-
Abelson, J., M., Giacomini, P., Lehoux, and F. P., Gauvin. 2007. “Bringing ‘The Public’ Into Health Technology Assessment and Coverage Policy Decisions: From Principles to Practice.” Health Policy 82 (1): 37–50.
-
(2007)
Health Policy
, vol.82
, Issue.1
, pp. 37-50
-
-
Abelson, J.1
Giacomini, M.2
Lehoux, P.3
Gauvin, F.P.4
-
4
-
-
0000912261
-
Huntington's Chorea in Victoria and Tasmania
-
Brothers, CRD. 1964. “Huntington's Chorea in Victoria and Tasmania.” Journal of Neurological Science 1 (5): 405–420.
-
(1964)
Journal of Neurological Science
, vol.1
, Issue.5
, pp. 405-420
-
-
Brothers, C.R.D.1
-
5
-
-
0029900871
-
Adrenal Lesions in a Large Kindred With Multiple Endocrine Neoplasia Type 1
-
Burgess, J. R., R. A., Harle, P., Tucker, V., Parameswaran, P., Davies, T. M., Greenaway, and J. J., Shepherd. 1996. “Adrenal Lesions in a Large Kindred With Multiple Endocrine Neoplasia Type 1.” Archives of Surgery 131 (7): 699–702.
-
(1996)
Archives of Surgery
, vol.131
, Issue.7
, pp. 699-702
-
-
Burgess, J.R.1
Harle, R.A.2
Tucker, P.3
Parameswaran, V.4
Davies, P.5
Greenaway, T.M.6
Shepherd, J.J.7
-
6
-
-
45149084128
-
Biobanking in British Columbia: Discussions of the Future of Personalized Medicine Through Deliberative Public Engagement
-
Burgess, M., K., O'Doherty, and D., Secko. 2008. “Biobanking in British Columbia: Discussions of the Future of Personalized Medicine Through Deliberative Public Engagement.” Personalized Medicine 5 (3): 285–296.
-
(2008)
Personalized Medicine
, vol.5
, Issue.3
, pp. 285-296
-
-
Burgess, M.1
O'Doherty, K.2
Secko, D.3
-
7
-
-
0242389605
-
Deliberative Democracy Theory
-
Chambers, S. 2003. “Deliberative Democracy Theory.” Annual Review of Political Science 6: 307–326. doi:10.1146/annurev.polisci.6.121901.085538
-
(2003)
Annual Review of Political Science
, vol.6
, pp. 307-326
-
-
Chambers, S.1
-
8
-
-
84879313334
-
Personalised Medicine in the Genome era
-
Chalmers, D., D., Nicol, M., Otlowski, and C., Critchley. 2013. “Personalised Medicine in the Genome era.” Journal of Law and Medicine 20 (3): 577–594.
-
(2013)
Journal of Law and Medicine
, vol.20
, Issue.3
, pp. 577-594
-
-
Chalmers, D.1
Nicol, D.2
Otlowski, M.3
Critchley, C.4
-
9
-
-
0008762169
-
Publics at the Technology Table: The Consensus Conference in Denmark, Canada, and Australia
-
Einseidel, E. F., E., Jelsøe, and T., Breck. 2001. “Publics at the Technology Table: The Consensus Conference in Denmark, Canada, and Australia.” Public Understanding of Science 10 (1): 83–89.
-
(2001)
Public Understanding of Science
, vol.10
, Issue.1
, pp. 83-89
-
-
Einseidel, E.F.1
Jelsøe, E.2
Breck, T.3
-
10
-
-
60749132520
-
Identification of a Prostate Cancer Susceptibility Gene on Chromosome 5p13q12 Associated With Risk of Both Familial and Sporadic Disease
-
FitzGerald, L. M., B., Patterson, R., Thomson, A., Polanowski, S., Quinn, J., Brohede, T., Thornton et al. 2009. “Identification of a Prostate Cancer Susceptibility Gene on Chromosome 5p13q12 Associated With Risk of Both Familial and Sporadic Disease.” European Journal of Human Genetics 17 (3): 368–377.
-
(2009)
European Journal of Human Genetics
, vol.17
, Issue.3
, pp. 368-377
-
-
FitzGerald, L.M.1
Patterson, B.2
Thomson, R.3
Polanowski, A.4
Quinn, S.5
Brohede, J.6
Thornton, T.7
-
11
-
-
0041861016
-
Survey Article: Recipes for Public Spheres: Eight Institutional Design Choices and Their Consequences
-
Fung, A. 2003. “Survey Article: Recipes for Public Spheres: Eight Institutional Design Choices and Their Consequences.” The Journal of Political Philosophy 11 (3): 338–367.
-
(2003)
The Journal of Political Philosophy
, vol.11
, Issue.3
, pp. 338-367
-
-
Fung, A.1
-
12
-
-
79952417119
-
Biobanks Need Publicity
-
Gaskell, G., and H., Gottweis. 2011. “Biobanks Need Publicity.” Nature 471 (7337): 159–160.
-
(2011)
Nature
, vol.471
, Issue.7337
, pp. 159-160
-
-
Gaskell, G.1
Gottweis, H.2
-
13
-
-
77951652460
-
‘It All Depends’: Conceptualizing Public Involvement in the Context of Health Technology Assessment Agencies
-
Gauvin, F.-P., J., Abelson, M., Giacomini, J., Eyles, and J. N., Lavis. 2010. “‘It All Depends’: Conceptualizing Public Involvement in the Context of Health Technology Assessment Agencies.” Social Sciences & Medicine 70 (10): 1518–1526.
-
(2010)
Social Sciences & Medicine
, vol.70
, Issue.10
, pp. 1518-1526
-
-
Gauvin, F.-P.1
Abelson, J.2
Giacomini, M.3
Eyles, J.4
Lavis, J.N.5
-
14
-
-
84880535720
-
ACMG Recommendations for Reporting of Incidental Findings in Clinical Exome and Genome Sequencing
-
Green, R. C., J. S., Berg, W. W., Grody, S. S., Kalia, B. R., Korf, C. L., Martin, A. L., McGuire et al. 2013. “ACMG Recommendations for Reporting of Incidental Findings in Clinical Exome and Genome Sequencing.” Genetics in Medicine 15 (7): 565–574.
-
(2013)
Genetics in Medicine
, vol.15
, Issue.7
, pp. 565-574
-
-
Green, R.C.1
Berg, J.S.2
Grody, W.W.3
Kalia, S.S.4
Korf, B.R.5
Martin, C.L.6
McGuire, A.L.7
-
15
-
-
46049085015
-
Generation Scotland: Consulting Publics and Specialists at an Early Stage in a Genetic Database's Development
-
Haddow, G., S., Cunningham-Burley, A., Bruce, and S., Parry. 2008. “Generation Scotland: Consulting Publics and Specialists at an Early Stage in a Genetic Database's Development.” Critical Public Health 18 (2): 139–149.
-
(2008)
Critical Public Health
, vol.18
, Issue.2
, pp. 139-149
-
-
Haddow, G.1
Cunningham-Burley, S.2
Bruce, A.3
Parry, S.4
-
16
-
-
80053306411
-
Reflexive Governance in Biobanking: On the Value of Policy Led Approaches and the Need to Recognise the Limits of Law
-
Laurie, G. 2011. “Reflexive Governance in Biobanking: On the Value of Policy Led Approaches and the Need to Recognise the Limits of Law.” Human Genetics 130 (3): 347–356.
-
(2011)
Human Genetics
, vol.130
, Issue.3
, pp. 347-356
-
-
Laurie, G.1
-
17
-
-
68049093880
-
UK Biobank: A Model for Public Engagement?
-
Levitt, M. 2005. “UK Biobank: A Model for Public Engagement?” Genomics, Society and Policy 1 (3): 78–81.
-
(2005)
Genomics, Society and Policy
, vol.1
, Issue.3
, pp. 78-81
-
-
Levitt, M.1
-
18
-
-
77749283114
-
Recruiting for Representation in Public Deliberation on the Ethics of Biobanks
-
Longstaff, H., and M. M., Burgess. 2010. “Recruiting for Representation in Public Deliberation on the Ethics of Biobanks.” Public Understanding of Science 19 (2): 212–224.
-
(2010)
Public Understanding of Science
, vol.19
, Issue.2
, pp. 212-224
-
-
Longstaff, H.1
Burgess, M.M.2
-
19
-
-
84858440360
-
Genetic Eye Research in Tasmania: A Historical Overview
-
Mackey, D. A., 2012. “Genetic Eye Research in Tasmania: A Historical Overview.” Clinical & Experimental Ophthalmology 40 (2): 205–210.
-
(2012)
Clinical & Experimental Ophthalmology
, vol.40
, Issue.2
, pp. 205-210
-
-
Mackey, D.A.1
-
20
-
-
79952364774
-
The Emancipatory Effect of Deliberations: Empirical Lessons from Mini Publics
-
Niemeyer, S. 2011. “The Emancipatory Effect of Deliberations: Empirical Lessons from Mini Publics.” Politics & Society 39 (1): 103–140.
-
(2011)
Politics & Society
, vol.39
, Issue.1
, pp. 103-140
-
-
Niemeyer, S.1
-
21
-
-
85045124426
-
Theorizing Deliberative Discourse
-
O'Doherty K., Einseidel E., (eds), Vancouver: UBC Press, ” In, edited by
-
O'Doherty, K. 2013. “Theorizing Deliberative Discourse.” In Public Engagement and Emerging Technologies, edited by K., O'Doherty, and E., Einseidel, 133–147. Vancouver: UBC Press.
-
(2013)
Public Engagement and Emerging Technologies
, pp. 133-147
-
-
O'Doherty, K.1
-
22
-
-
84865653047
-
Involving Citizens in the Ethics of Biobank Research: Informing Institutional Policy Through Structure Public Deliberation
-
O'Doherty, K. C., A. K., Hawkins, and M. M., Burgess. 2012. “Involving Citizens in the Ethics of Biobank Research: Informing Institutional Policy Through Structure Public Deliberation.” Social Science & Medicine 75 (9): 1604–1611.
-
(2012)
Social Science & Medicine
, vol.75
, Issue.9
, pp. 1604-1611
-
-
O'Doherty, K.C.1
Hawkins, A.K.2
Burgess, M.M.3
-
23
-
-
0034347168
-
Public Participation Methods: A Framework for Evaluation
-
Rowe, G., and L. J., Frewer. 2000. “Public Participation Methods: A Framework for Evaluation.” Science Technology & Human Values 25 (1): 3–29.
-
(2000)
Science Technology & Human Values
, vol.25
, Issue.1
, pp. 3-29
-
-
Rowe, G.1
Frewer, L.J.2
-
24
-
-
18344385134
-
Genetic Dissection of the Human Leukocyte Antigen Region by Use of Haplotypes of Tasmanians with Multiple Sclerosis
-
Rubio, J. P., M., Bahlo, H., Butzkueven, I. A., van Der Mei, M. M., Sale, J. L., Dickinson, P., Groom et al. 2002. “Genetic Dissection of the Human Leukocyte Antigen Region by Use of Haplotypes of Tasmanians with Multiple Sclerosis.” American Journal of Human Genetics 70 (5): 1125–1137.
-
(2002)
American Journal of Human Genetics
, vol.70
, Issue.5
, pp. 1125-1137
-
-
Rubio, J.P.1
Bahlo, M.2
Butzkueven, H.3
van Der Mei, I.A.4
Sale, M.M.5
Dickinson, J.L.6
Groom, P.7
-
25
-
-
84875626979
-
Enhancing Citizen Engagement in Cancer Screening Through Deliberative Democracy
-
Rychetnik, L., S. M., Carter, J., Abelson, H., Thornton, A., Barratt, V. A., Entwistle, G., Mackenzie, G., Salkeld, and P., Glasziou. 2013. “Enhancing Citizen Engagement in Cancer Screening Through Deliberative Democracy.” Journal of the National Cancer Institute 105 (6): 380–386.
-
(2013)
Journal of the National Cancer Institute
, vol.105
, Issue.6
, pp. 380-386
-
-
Rychetnik, L.1
Carter, S.M.2
Abelson, J.3
Thornton, H.4
Barratt, A.5
Entwistle, V.A.6
Mackenzie, G.7
Salkeld, G.8
Glasziou, P.9
-
26
-
-
61449342185
-
Perspectives on Engaging the Public in the Ethics of Emerging Biotechnologies: From Salmon to Biobanks to Neuroethics
-
Secko, D. M., M., Burgess, and K., O'Doherty. 2008. “Perspectives on Engaging the Public in the Ethics of Emerging Biotechnologies: From Salmon to Biobanks to Neuroethics.” Accountability in Research 15 (4): 283–302.
-
(2008)
Accountability in Research
, vol.15
, Issue.4
, pp. 283-302
-
-
Secko, D.M.1
Burgess, M.2
O'Doherty, K.3
-
27
-
-
84881420673
-
Whole-genome Sequencing in Health Care
-
Van El, C. G., M. C., Cornel, P., Borry, R. J., Hastings, F., Fellmann, S. V., Hodgson, H. C., Howard et al. 2013. “Whole-genome Sequencing in Health Care.” European Journal of Human Genetics 21: 580–584. doi:10.1038/ejhg.2013.46
-
(2013)
European Journal of Human Genetics
, vol.21
, pp. 580-584
-
-
Van El, C.G.1
Cornel, M.C.2
Borry, P.3
Hastings, R.J.4
Fellmann, F.5
Hodgson, S.V.6
Howard, H.C.7
-
28
-
-
34547947743
-
Genome and Nation: Iceland's Health Sector Database and its Legacy
-
Winickoff, D. E., 2006. “Genome and Nation: Iceland's Health Sector Database and its Legacy.” Innovations: Technology, Governance, Globalization 1 (2): 80–105.
-
(2006)
Innovations: Technology, Governance, Globalization
, vol.1
, Issue.2
, pp. 80-105
-
-
Winickoff, D.E.1
|