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Volumn 15, Issue 1, 2017, Pages

The use of the EQ-5D-Y health related quality of life outcome measure in children in the Western Cape, South Africa: Psychometric properties, feasibility and usefulness - a longitudinal, analytical study

Author keywords

Children; EQ 5D Y; Health conditions; HRQoL; Psychometric properties

Indexed keywords

ACUTE DISEASE; ANALYTICAL STUDY; ARTICLE; CHILD; CHRONIC DISEASE; COHORT ANALYSIS; CONCURRENT VALIDITY; CONTROLLED STUDY; CONVERGENT VALIDITY; DIFFERENTIAL DIAGNOSIS; DISCRIMINANT VALIDITY; EQ 5D Y; FACES PAIN SCALE; FEASIBILITY STUDY; HUMAN; LONGITUDINAL STUDY; MAJOR CLINICAL STUDY; OBSERVATIONAL STUDY; OUTCOME ASSESSMENT; PARAMETERS; PEDIATRIC QUALITY OF LIFE INVENTORY; PSYCHOMETRY; QUALITY OF LIFE; QUALITY OF LIFE ASSESSMENT; RESPONSIVENESS; SOUTH AFRICA; TEST RETEST RELIABILITY; TYPES OF STUDY; VISUAL ANALOG SCALE; WEEFIM INSTRUMENT; FEMALE; HOSPITALIZED CHILD; MALE; PAIN MEASUREMENT; PSYCHOLOGY; QUESTIONNAIRE; REPRODUCIBILITY; VALIDATION STUDY;

EID: 85009851680     PISSN: None     EISSN: 14777525     Source Type: Journal    
DOI: 10.1186/s12955-017-0590-3     Document Type: Article
Times cited : (50)

References (47)
  • 2
    • 84996253416 scopus 로고    scopus 로고
    • Practical guidelines for assessing the clinical significance of health-related quality of life changes within clinical trials
    • Sloan J, Symonds T, Vargas-Chanes D, Fridley B. Practical guidelines for assessing the clinical significance of health-related quality of life changes within clinical trials. Drug Inf J. 2003;37(1):23-31.
    • (2003) Drug Inf J , vol.37 , Issue.1 , pp. 23-31
    • Sloan, J.1    Symonds, T.2    Vargas-Chanes, D.3    Fridley, B.4
  • 3
    • 84876962029 scopus 로고    scopus 로고
    • Minimal clinically important differences for the EQ-5D and QWB-SA in Post-traumatic Stress Disorder (PTSD): results from a Doubly Randomized Preference Trial (DRPT)
    • Le QA, Doctor JN, Zoellner LA, Feeny NC. Minimal clinically important differences for the EQ-5D and QWB-SA in Post-traumatic Stress Disorder (PTSD): results from a Doubly Randomized Preference Trial (DRPT). Health Qual Life Outcomes. 2013;11(59):1-9.
    • (2013) Health Qual Life Outcomes. , vol.11 , Issue.59 , pp. 1-9
    • Le, Q.A.1    Doctor, J.N.2    Zoellner, L.A.3    Feeny, N.C.4
  • 5
    • 84888301520 scopus 로고    scopus 로고
    • Why do some patients prefer to leave decisions up to the doctor: lack of self-efficacy or a matter of trust?
    • Chawla N, Arora NK. Why do some patients prefer to leave decisions up to the doctor: lack of self-efficacy or a matter of trust? J Cancer Res Ther. 2013;7(4):592-601.
    • (2013) J Cancer Res Ther , vol.7 , Issue.4 , pp. 592-601
    • Chawla, N.1    Arora, N.K.2
  • 6
    • 84856104521 scopus 로고    scopus 로고
    • The proxy problem anatomized: Child-parent disagreement in Health related Quality of Life reports of chronically ill adolescents
    • Sattoe JNT, van Staa A, Moll Ha. The proxy problem anatomized: Child-parent disagreement in Health related Quality of Life reports of chronically ill adolescents. Health Qual Life Outcomes. 2012;10(10):1-13.
    • (2012) Health Qual Life Outcomes. , vol.10 , Issue.10 , pp. 1-13
    • Sattoe, J.N.T.1    van Staa, A.2    Moll, Ha.3
  • 8
    • 77955513872 scopus 로고    scopus 로고
    • How do children at special schools and their parents perceive their HRQoL compared to children at open schools?
    • Jelsma J, Ramma L. How do children at special schools and their parents perceive their HRQoL compared to children at open schools?. Health Qual Life Outcomes. 2010;8(72):1-7.
    • (2010) Health Qual Life Outcomes. , vol.8 , Issue.72 , pp. 1-7
    • Jelsma, J.1    Ramma, L.2
  • 9
    • 0442324864 scopus 로고    scopus 로고
    • Assessment of health-related quality of life in children: a review of conceptual, methodological, and regulatory issues
    • Matza LS, Swensen AR, Flood EM, Secnik K, Leidy NK. Assessment of health-related quality of life in children: a review of conceptual, methodological, and regulatory issues. Value Health. 2004;7(1):79-92.
    • (2004) Value Health , vol.7 , Issue.1 , pp. 79-92
    • Matza, L.S.1    Swensen, A.R.2    Flood, E.M.3    Secnik, K.4    Leidy, N.K.5
  • 10
    • 33846680598 scopus 로고    scopus 로고
    • How young can children reliably and validly self-report their health-related quality of life?: An analysis of 8,591 children across age subgroups with the PedsQL 4.0 Generic Core Scales
    • Varni JW, Limbers CA, Burwinkle TM. How young can children reliably and validly self-report their health-related quality of life?: An analysis of 8,591 children across age subgroups with the PedsQL 4.0 Generic Core Scales. Health Qual Life Outcomes. 2007;5(1):1-10.
    • (2007) Health Qual Life Outcomes. , vol.5 , Issue.1 , pp. 1-10
    • Varni, J.W.1    Limbers, C.A.2    Burwinkle, T.M.3
  • 11
    • 37349105705 scopus 로고    scopus 로고
    • Self-reported health status and quality of life in youth with cerebral palsy and typically developing youth
    • Bjornson KF, Belza B, Kartin D, Logsdon RG, McLaughlin J. Self-reported health status and quality of life in youth with cerebral palsy and typically developing youth. Arch Phys Med Rehabil. 2008;89(1):121-7.
    • (2008) Arch Phys Med Rehabil , vol.89 , Issue.1 , pp. 121-127
    • Bjornson, K.F.1    Belza, B.2    Kartin, D.3    Logsdon, R.G.4    McLaughlin, J.5
  • 13
    • 27344441386 scopus 로고    scopus 로고
    • Health-related quality of life measurement in pediatric clinical practice: an appraisal and precept for future research and application
    • Varni JW, Burwinkle TM, Lane MM. Health-related quality of life measurement in pediatric clinical practice: an appraisal and precept for future research and application. Health Qual Life Outcomes. 2005;3(34):1-9.
    • (2005) Health Qual Life Outcomes. , vol.3 , Issue.34 , pp. 1-9
    • Varni, J.W.1    Burwinkle, T.M.2    Lane, M.M.3
  • 14
    • 84876960252 scopus 로고    scopus 로고
    • Comparing children's self-report instruments for health-related quality of life using the International Classification of Functioning, Disability and Health for Children and Youth (ICF-CY)
    • Petersson C, Simeonsson RJ, Enskar K, Huus K. Comparing children's self-report instruments for health-related quality of life using the International Classification of Functioning, Disability and Health for Children and Youth (ICF-CY). Health Qual Life Outcomes. 2013;11(1):1-10.
    • (2013) Health Qual Life Outcomes. , vol.11 , Issue.1 , pp. 1-10
    • Petersson, C.1    Simeonsson, R.J.2    Enskar, K.3    Huus, K.4
  • 16
    • 84896124034 scopus 로고    scopus 로고
    • EQ-5D-Y as a health-related quality of life measure in children and adolescents with functional disability in Sweden: testing feasibility and validity
    • Burström K, Bartonek A, Broström EW, Sun S, Egmar C. EQ-5D-Y as a health-related quality of life measure in children and adolescents with functional disability in Sweden: testing feasibility and validity. Acta Paediatr Int J Paediatr. 2014;103(4):426-35.
    • (2014) Acta Paediatr Int J Paediatr , vol.103 , Issue.4 , pp. 426-435
    • Burström, K.1    Bartonek, A.2    Broström, E.W.3    Sun, S.4    Egmar, C.5
  • 17
    • 77953363688 scopus 로고    scopus 로고
    • A comparison of the performance of the EQ-5D and the EQ-5D-Y health-related quality of life instruments in South African children
    • Jelsma J. A comparison of the performance of the EQ-5D and the EQ-5D-Y health-related quality of life instruments in South African children. Int J Rehabil Res. 2010;33(2):172-77.
    • (2010) Int J Rehabil Res , vol.33 , Issue.2 , pp. 172-177
    • Jelsma, J.1
  • 19
    • 84872679158 scopus 로고    scopus 로고
    • Measuring preference-based quality of life in children aged 6-7 years: a comparison of the performance of the CHU-9D and EQ-5D-Y - the WAVES pilot study
    • Canaway AG, Frew EJ. Measuring preference-based quality of life in children aged 6-7 years: a comparison of the performance of the CHU-9D and EQ-5D-Y - the WAVES pilot study. Qual Life Res. 2013;22(1):173-83.
    • (2013) Qual Life Res , vol.22 , Issue.1 , pp. 173-183
    • Canaway, A.G.1    Frew, E.J.2
  • 20
    • 0027741403 scopus 로고
    • Psychometric considerations in evaluating health-related quality of life measures
    • Hays RD, Anderson R, Revicki D. Psychometric considerations in evaluating health-related quality of life measures. Qual Life Res. 1993;2(6):441-9.
    • (1993) Qual Life Res , vol.2 , Issue.6 , pp. 441-449
    • Hays, R.D.1    Anderson, R.2    Revicki, D.3
  • 21
    • 70449380765 scopus 로고    scopus 로고
    • Cross-Sectional Validity of the EQ-5D-Y as a Generic Health Outcome Instrument in Children and Adolescents with Cystic Fibrosis in Germany
    • Eidt-Koch D, Mittendorf T, Greiner W. Cross-Sectional Validity of the EQ-5D-Y as a Generic Health Outcome Instrument in Children and Adolescents with Cystic Fibrosis in Germany. BioMed Central Pediatr. 2009;9(55):1-8.
    • (2009) BioMed Central Pediatr. , vol.9 , Issue.55 , pp. 1-8
    • Eidt-Koch, D.1    Mittendorf, T.2    Greiner, W.3
  • 22
    • 84921485813 scopus 로고    scopus 로고
    • Measuring health-related quality of life with the EQ-5D-Y instrument in children and adolescents with asthma
    • Bergfors S, Åström M, Burström K, Egmar AC. Measuring health-related quality of life with the EQ-5D-Y instrument in children and adolescents with asthma. Acta Paediatr. 2015;104(2):167-73.
    • (2015) Acta Paediatr , vol.104 , Issue.2 , pp. 167-173
    • Bergfors, S.1    Åström, M.2    Burström, K.3    Egmar, A.C.4
  • 24
    • 70350462228 scopus 로고    scopus 로고
    • Using EQ-5D in children with asthma, rheumatic disorders, diabetes, and speech/language and/or hearing disorders
    • Willems DC, Joore MA, Nieman FH, Severens JL, Wouters EF, Hendriks JJ. Using EQ-5D in children with asthma, rheumatic disorders, diabetes, and speech/language and/or hearing disorders. Int J Technol Assess Health Care. 2009;25(3):391-9. doi: 10.1017/S0266462309990171.
    • (2009) Int J Technol Assess Health Care , vol.25 , Issue.3 , pp. 391-399
    • Willems, D.C.1    Joore, M.A.2    Nieman, F.H.3    Severens, J.L.4    Wouters, E.F.5    Hendriks, J.J.6
  • 26
    • 84255184052 scopus 로고    scopus 로고
    • Assessing quality of life in children and adolescents: development and validation of the Italian version of the EQ-5D-Y
    • Scalone L, Tomasetto C, Matteucci MC, Selleri P, Pacelli B, Cavrini G. Assessing quality of life in children and adolescents: development and validation of the Italian version of the EQ-5D-Y. Ital J Public Health. 2011;8(4):331-41.
    • (2011) Ital J Public Health , vol.8 , Issue.4 , pp. 331-341
    • Scalone, L.1    Tomasetto, C.2    Matteucci, M.C.3    Selleri, P.4    Pacelli, B.5    Cavrini, G.6
  • 27
    • 79951722505 scopus 로고    scopus 로고
    • Physical activity, quality of life, weight status and diet in adolescents
    • Boyle SE, Jones GL, Walters SJ. Physical activity, quality of life, weight status and diet in adolescents. Qual Life Res. 2010;19(7):943-54.
    • (2010) Qual Life Res , vol.19 , Issue.7 , pp. 943-954
    • Boyle, S.E.1    Jones, G.L.2    Walters, S.J.3
  • 29
    • 84873733390 scopus 로고    scopus 로고
    • Health-Related Quality of Life in Adolescents with Screening-Detected Celiac Disease, Before and One Year After Diagnosis and Initiation of Gluten-Free Diet, A Prospective Nested Case-Referent Study
    • Nordyke K, Norström F, Lindholm L, Stenlund H, Rosén A, Ivarsson A. Health-Related Quality of Life in Adolescents with Screening-Detected Celiac Disease, Before and One Year After Diagnosis and Initiation of Gluten-Free Diet, A Prospective Nested Case-Referent Study. BioMed Cent Publ Health. 2013;13(142):1-16.
    • (2013) BioMed Cent Publ Health. , vol.13 , Issue.142 , pp. 1-16
    • Nordyke, K.1    Norström, F.2    Lindholm, L.3    Stenlund, H.4    Rosén, A.5    Ivarsson, A.6
  • 30
    • 84896116253 scopus 로고    scopus 로고
    • Comparing responsiveness of the child-friendly version of the EQ-5D-Y with population specfic instruments, KINDL-R and KIDSCREEN-10 in a clinical sample of children and adolescents
    • Meyer-Moock S, Moock J, Morgenroth A, Kohlmann T. Comparing responsiveness of the child-friendly version of the EQ-5D-Y with population specfic instruments, KINDL-R and KIDSCREEN-10 in a clinical sample of children and adolescents. In: 28th Scientific Plenary Meeting of thr EuroQoL Group. 2011. p. 99-112.
    • (2011) 28th Scientific Plenary Meeting of thr EuroQoL Group , pp. 99-112
    • Meyer-Moock, S.1    Moock, J.2    Morgenroth, A.3    Kohlmann, T.4
  • 31
    • 33748891590 scopus 로고    scopus 로고
    • Impact of patient-reported outcome measures on routine practice: a structured review
    • Marshall S, Haywood K, Fitzpatrick R. Impact of patient-reported outcome measures on routine practice: a structured review. J Eval Clin Pract. 2006;12(5):559-68.
    • (2006) J Eval Clin Pract , vol.12 , Issue.5 , pp. 559-568
    • Marshall, S.1    Haywood, K.2    Fitzpatrick, R.3
  • 32
    • 0032757089 scopus 로고    scopus 로고
    • The effectiveness of the use of patient-based measures of health in routine practice in improving the process and outcomes of patient care: a literature review
    • Greenhalgh J, Meadows K. The effectiveness of the use of patient-based measures of health in routine practice in improving the process and outcomes of patient care: a literature review. J Eval Clin Pract. 1999;5(4):401-16.
    • (1999) J Eval Clin Pract , vol.5 , Issue.4 , pp. 401-416
    • Greenhalgh, J.1    Meadows, K.2
  • 33
    • 82955168379 scopus 로고    scopus 로고
    • EQ-5D for the assessment of health-related quality of life and resource allocation in children: a systematic methodological review
    • Noyes J, Edwards RT. EQ-5D for the assessment of health-related quality of life and resource allocation in children: a systematic methodological review. Value Health. 2011;14(8):1117-29.
    • (2011) Value Health , vol.14 , Issue.8 , pp. 1117-1129
    • Noyes, J.1    Edwards, R.T.2
  • 34
    • 84928610710 scopus 로고    scopus 로고
    • Valuation of Child Health-Related Quality of Life in the United States
    • Craig BM, Greiner W, Brown DS. Valuation of Child Health-Related Quality of Life in the United States. Health Econ. 2016;25:768-77.
    • (2016) Health Econ. , vol.25 , pp. 768-777
    • Craig, B.M.1    Greiner, W.2    Brown, D.S.3
  • 35
    • 0348161127 scopus 로고    scopus 로고
    • The PedsQL 4.0 as a pediatric population health measure: feasibility, reliability, and validity
    • Varni JW, Burwinkle TM, Seid M, Skarr D. The PedsQL 4.0 as a pediatric population health measure: feasibility, reliability, and validity. Ambul Pediatr. 2003;3(6):329-41.
    • (2003) Ambul Pediatr , vol.3 , Issue.6 , pp. 329-341
    • Varni, J.W.1    Burwinkle, T.M.2    Seid, M.3    Skarr, D.4
  • 36
    • 0034968031 scopus 로고    scopus 로고
    • The faces pain scale-revised: toward a common metric in pediatric pain measurement
    • Hicks CL, von Baeyer CL, Spafford P a, van Korlaar I, Goodenough B. The faces pain scale-revised: toward a common metric in pediatric pain measurement. Pain. 2001;93(2):173-83.
    • (2001) Pain , vol.93 , Issue.2 , pp. 173-183
    • Hicks, C.L.1    Baeyer, C.L.2    Spafford, P.3    Korlaar, I.4    Goodenough, B.5
  • 37
    • 80052548974 scopus 로고    scopus 로고
    • The WeeFIM II Clinical Guide
    • no. Version 6.0.
    • Uniform Data System for Medical Rehabilitation. The WeeFIM II Clinical Guide, no. Version 6.0. 2006;1-182. http://www.udsmr.org
    • (2006) , pp. 1-182
  • 38
    • 0017360990 scopus 로고
    • The measurement of observer agreement for categorical data
    • Landis JR, Koch GG. The measurement of observer agreement for categorical data. Biometrics. 1977;33(1):159-74.
    • (1977) Biometrics , vol.33 , Issue.1 , pp. 159-174
    • Landis, J.R.1    Koch, G.G.2
  • 39
    • 85009920601 scopus 로고
    • Statistical power analysis for the behavioral sciences
    • 2nd ed.
    • Cohen J. Statistical power analysis for the behavioral sciences. 2nd ed. 1988.
    • (1988)
    • Cohen, J.1
  • 42
    • 22944442223 scopus 로고    scopus 로고
    • Disability and Sunshine: Can Hedonic Predictions Be Improved by Drawing Attention to Focusing Illusions or Emotional Adaptation?
    • Ubel PA, Loewenstein G, Jepson C. Disability and Sunshine: Can Hedonic Predictions Be Improved by Drawing Attention to Focusing Illusions or Emotional Adaptation? J Exp Psychol Appl. 2005;11(2):111-23.
    • (2005) J Exp Psychol Appl. , vol.11 , Issue.2 , pp. 111-123
    • Ubel, P.A.1    Loewenstein, G.2    Jepson, C.3
  • 43
    • 0032984825 scopus 로고    scopus 로고
    • Integrating response shift into health-related quality of life research: a theoretical model
    • Sprangers M a, Schwartz CE. Integrating response shift into health-related quality of life research: a theoretical model. Soc Sci Med. 1999;48(11):1507-15.
    • (1999) Soc Sci Med , vol.48 , Issue.11 , pp. 1507-1515
    • Sprangers, M.1    Schwartz, C.E.2
  • 44
    • 84961159601 scopus 로고    scopus 로고
    • Prevalence and losses in quality-adjusted life years of child health conditions: a burden of disease analysis
    • Craig BM, Hartman JD, Owens MA, Brown DS. Prevalence and losses in quality-adjusted life years of child health conditions: a burden of disease analysis. Matern Child Health J. 2016;20(4):862-9.
    • (2016) Matern Child Health J , vol.20 , Issue.4 , pp. 862-869
    • Craig, B.M.1    Hartman, J.D.2    Owens, M.A.3    Brown, D.S.4
  • 45
    • 84931563675 scopus 로고    scopus 로고
    • The value adults place on child health and functional status
    • Craig BM, Brown DS, Reeve BB. The value adults place on child health and functional status. Value Health. 2015;18(4):449-56.
    • (2015) Value Health , vol.18 , Issue.4 , pp. 449-456
    • Craig, B.M.1    Brown, D.S.2    Reeve, B.B.3
  • 46
    • 84952892574 scopus 로고    scopus 로고
    • Valuation of Child Behavioral Problems From the Perspective of US Adults
    • Craig BM, Brown DS, Reeve BB. Valuation of Child Behavioral Problems From the Perspective of US Adults. Med Decis Making. 2016;36:199-209.
    • (2016) Med Decis Making. , vol.36 , pp. 199-209
    • Craig, B.M.1    Brown, D.S.2    Reeve, B.B.3


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