Feasibility, reliability, and validity of the EQ-5D-Y: Results from a multinational study

Quality of Life Research

Volumn 19, Issue 6, 2010, Pages 887-897

  Ravens Sieberer, Ulrike ^a   Wille, Nora ^a   Badia, Xavier ^b   Bonsel, Gouke ^c   Burström, Kristina ^d   Cavrini, Gulia ^e   Devlin, Nancy ^f   Egmar, Ann Charlotte ^g   Gusi, Narcis ^h   Herdman, Michael ^i,j   Jelsma, Jennifer ^k   Kind, Paul ^l   Olivares, Pedro R ^h   Scalone, Luciana ^m   Greiner, Wolfgang ⁿ  

^a UNIVERSITY MEDICAL CENTER HAMBURG EPPENDORF   (Germany)

^b IQVIA   (United States)

^c ERASMUS MEDICAL CENTER   (Netherlands)

^d KAROLINSKA INSTITUTE   (Sweden)

^e UNIVERSITY OF BOLOGNA   (Italy)

^f Office of Health Economics   (United Kingdom)

^g Red Cross University College   (Sweden)

^h UNIVERSITY OF EXTREMADURA   (Spain)

ⁱ CIBER EPIDEMIOLOGÍA Y SALUD PÚBLICA CIBERESP   (Spain)

^j HOSPITAL DEL MAR   (Spain)

^k UNIVERSITY OF CAPE TOWN   (South Africa)

^l UNIVERSITY OF YORK   (United Kingdom)

^m UNIVERSITY OF MILAN   (Italy)

ⁿ BIELEFELD UNIVERSITY   (Germany)

more..

Author keywords

Adolescent health; Child health; EQ 5D; HRQOL; Measurement

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CHILD; CULTURAL FACTOR; DISABILITY; EUROPE; FEASIBILITY STUDY; FEMALE; HEALTH SURVEY; HUMAN; INSTRUMENTATION; MALE; PSYCHOMETRY; QUALITY OF LIFE; QUESTIONNAIRE; REPRODUCIBILITY; SOUTH AFRICA; VALIDATION STUDY;

ADOLESCENT; CHILD; CROSS-CULTURAL COMPARISON; DISABILITY EVALUATION; EUROPE; FEASIBILITY STUDIES; FEMALE; HEALTH STATUS INDICATORS; HUMANS; MALE; PSYCHOMETRICS; QUALITY OF LIFE; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS; SOUTH AFRICA; YOUNG ADULT;

EID: 77957585980     PISSN: 09629343     EISSN: None     Source Type: Journal    
DOI: 10.1007/s11136-010-9649-x     Document Type: Article

References (28)

1. Ravens-Sieberer, U., Erhart, M., Wille, N., Wetzel, R., Nickel, J., & Bullinger, M. (2006). Generic health-related quality of life assessment in children and adolescents: Methodological considerations. Pharmacoeconomics, 24, 1199-1220. (Pubitemid 44901676)
2. Sullivan, M. (2003). The new subjective medicine: Taking the patient's point of view on health care and health. Social Sciences & Medicine, 56, 1595-1604. (Pubitemid 36279491)
3. Eiser, C., & Morse, R. (2001). A review of measures of quality of life for children with chronic illness. Archives of Disease in Childhood, 84, 205-211. (Pubitemid 32250825)
4. Clarke, S., & Eiser, C. (2004). The measurement of health-related quality of life (QoL) in paediatric clinical trials: A systematic review. Health & Quality of Life Outcomes, 2, 66.
5. Riley, A. W. (2004). Evidence that school-age children can self-report on their health. Ambulatory Pediatrics, 4, 371-376. (Pubitemid 39136599)
6. Harter, S., & Whitesell, N. R. (1989). Developmental changes in children's understanding of single, multiple and blended emotion concepts. In E. Saarni & P. L. Harris (Eds.), Children's understanding of emotion (pp. 81-116). New York: Cambridge University Press.
7. Rabin, R., & de Charro, F. (2001). EQ-5D: A measure of health status from the EuroQol Group. Annals of Medicine, 33, 337-343. (Pubitemid 32675374)
8. Wille, N., Badia, X., Bonsel, G., Burström, K., Cavrini, G., Egmar, A.-C., et al. (2010). Development of the EQ-5D-Y: A child-friendly version of the EQ-5D. Quality of Life Research. doi:10.1007/s11136-010-9648-y.
9. Currie, C., Samdal, O., Boyce, W., et al. (Eds.) (2001). Health behaviour in school-aged children: A WHO Cross-National Study (HBSC), research protocol for the 2001/2002 survey. Child and Adolescent Health Research Unit (CAHRU), University of Edinburgh.
10. Ravens-Sieberer, U., Auquier, P., Erhart, M., Gosch, A., Rajmil, L., Bruil, J., et al. (2007). The Kidscreen-27 quality of life measure for children and adolescent: Psychometric results from a cross-cultural survey in 13 European countries. Quality of Life Research, 16, 1347-1356. (Pubitemid 47459880)
11. Ravens-Sieberer, U., & the European KIDSCREEN Group. (2006). The KIDSCREEN Questionnaires - Quality of life questionnaires for children and adolescents - Handbook. Lengerich: Papst Science Publisher.
12. Varni, J. W., Seid, M., & Rode, C. A. (1999). The PedsQL: Measurement model for the Pediatric Quality of Life Inventory. Medical Care, 37, 126-139.
13. Idler, E. L., & Benyamini, Y. (1997). Self-rated health and mortality: A review of twenty-seven community studies. Journal of Health and Social Behavior, 38, 21-37. (Pubitemid 127454450)
14. Cantril, H. (1965). The pattern of human concern. New Brunswick, NJ: Rutgers University Press.
15. Goodman, R. (1997). The Strengths and Difficulties Questionnaire: A research note. Journal of Child Psychology and Psychiatry, 38, 581-586. (Pubitemid 27341892)
16. Goodman, R., Meltzer, H., & Bailey, V. (1998). The strengths and difficulties questionnaire: A pilot study on the validity of the self-report version. European Child and Adolescent Psychiatry, 7, 125-130. (Pubitemid 28494056)
17. Cohen, J. (1968). Weighted kappa: Nominal scale agreement with provision for scaled disagreement or partial credit. Psychological Bulletin, 70, 213-220.
18. Fleiss, J. L., & Cohen, J. (1973). The equivalence of weighted kappa and the intraclass correlation coefficient as measures of reliability. Educational and Psychological Measurement, 33, 613-619.
19. Landis, J. R., & Koch, G. G. (1977). The measurement of observer agreement for categorical data. Biometrics, 33, 159-174. (Pubitemid 8054849)
20. Nunnally, J. C., & Bernstein, I. H. (1994). Psychometric theory (3rd ed.). New York, NY: McCraw-Hill.
21. Cohen, J. (1988). Statistical power analysis for the behavioural sciences (2nd ed.). Hillsdale, NJ: Lawrence Erlbaum Publishers.
22. Campbell, D. T., & Fiske, D. W. (1959). Convergent and discriminant validation by the multitrait-multimethod matrix. Psychological Bulletin, 56, 81-105.
23. Kind, P., Dolan, P., Gudex, C., & Williams, A. (1998). Variations in population health status: Results from a United Kingdom national questionnaire survey. BMJ, 316, 736-741. (Pubitemid 28121072)
24. Macran, S., Weatherly, H., & Kind, P. (2003). Measuring population health: A comparison of three generic health status measures. Medical Care, 41, 218-231.
25. Szende, A., Oppe, M., & Devlin, N. (2007). EQ-5D valuation sets: An inventory, comparative review and users' guide. Rotterdam: EuroQol Foundation, Springer.
26. Devlin, N., Tsuchiya, A., Buckingham, K., & Tilling, C. (2009). A uniform Time Trade Off method for states better and worse than dead: Feasibility study of the lead time approach. Economics Discussion Paper 09/08, City University. www.city.ac.uk/economics/dps/discussion-papers/0908.pdf.
27. Sculpher, M., & Gafni, A. (2002). Recognising diversity in public preferences: The use of preference sub-groups in cost-effectiveness analysis. Authors Reply. Health Economics, 11, 653.
28. Robinson, A., & Parkin, D. (2002). Recognising diversity in public preferences: The use of preference sub-groups in costeffectiveness analysis. A response to Sculpher and Gafni. Health Economics, 11, 649-651. (Pubitemid 35214720)