Valuation of child health-related quality of life in the United States

Health Economics (United Kingdom)

Volumn 25, Issue 6, 2016, Pages 768-777

  Craig, Benjamin M ^a   Greiner, Wolfgang ^b   Brown, Derek S ^c   Reeve, Bryce B ^d  

^a H LEE MOFFITT CANCER CENTER AND RESEARCH INSTITUTE   (United States)

^b BIELEFELD UNIVERSITY   (Germany)

^c WASHINGTON UNIVERSITY IN ST LOUIS   (United States)

^d UNIVERSITY OF NORTH CAROLINA   (United States)

Author keywords

child HRQoL; discrete choice experiments; health related quality of life; patient reported outcomes; quality adjusted life years

Indexed keywords

ADULT; ANXIETY; ARTICLE; CHILD BEHAVIOR; CHILD HEALTH; CLINICAL PRACTICE; DEPRESSION; EMOTION; FEMALE; HEALTH ECONOMICS; HUMAN; MALE; PAIN; PRIORITY JOURNAL; QUALITY ADJUSTED LIFE YEAR; QUALITY OF LIFE; RESOURCE ALLOCATION; SADNESS; UNHAPPINESS; UNITED STATES; CHILD; HEALTH STATUS; MIDDLE AGED; QUESTIONNAIRE; STATISTICAL MODEL;

ADULT; CHILD; CHILD HEALTH; FEMALE; HEALTH STATUS; HUMANS; MALE; MIDDLE AGED; MODELS, ECONOMETRIC; QUALITY OF LIFE; QUALITY-ADJUSTED LIFE YEARS; SURVEYS AND QUESTIONNAIRES; UNITED STATES;

EID: 84928610710     PISSN: 10579230     EISSN: 10991050     Source Type: Journal    
DOI: 10.1002/hec.3184     Document Type: Article

References (40)

1. PROMIS Health Organization and PROMIS Cooperative Group. 2008-2012. PROMIS-29 Profile v1.0 [Online]. Available: https://www.assessmentcenter.net/ac1//files/pdf/44b7636201a34267a9213db7f69f2c6d.pdf [Accessed June 06, 2012].
2. 111th United States Congress. 2010. Patient Protection and Affordable Care Act, Pub. L. 111-148, 124 Stat. 119, (as amended by the Health and Education Reconciliation Act Pub. L. 111-152, 124 Stat. 1029. Subtitle D - Patient Centered Outcomes Research. US Government Printing Office.
3. Bansback N, Brazier J, Tsuchiya A, Anis A, 2012. Using a discrete choice experiment to estimate health state utility values. Journal of Health Economics 31: 306-318.
4. Basch E, Aronson N, Berg A, Flum D, Gabriel S, Goodman SN, et al,. 2012. Methodological standards and patient-centeredness in comparative effectiveness research: the PCORI perspective. Jama-Journal of the American Medical Association 307: 1636-1640.
5. Carroll AE, Downs SM,. 2009. Improving decision analyses: parent preferences (utility values) for pediatric health outcomes. Journal of Pediatrics 155: 21-25.
6. Cella DF,. 1995. Measuring quality-of-life in palliative care. Seminars in Oncology 22: 73-81.
7. Chiou CF, Weaver MR, Bell MA, Lee TA, Krieger JW,. 2005. Development of the multi-attribute Pediatric Asthma Health Outcome Measure (PAHOM). International Journal for Quality in Health Care 17: 23-30.
8. Craig B, Reeve B, Brown P, Cella D, Hays R, Lipscomb J, et al,. In Press. US valuation of health outcomes measured using the PROMIS-29. Value in Health.
9. Craig B, Reeve B,. 2013. Methods report on the PROMIS valuation study: year 1 [Online]. Moffitt Cancer Center. Available: http://labpages.moffitt.org/craigb/Publications/Report120928.pdf [Accessed October 31, 2012].
10. Craig BM,. 2009. The duration effect: a link between TTO and VAS values. Health Economics 18: 217-25.
11. Craig BM, Busschbach JJ,. 2009. The episodic random utility model unifies time trade-off and discrete choice approaches in health state valuation. Population Health Metrics 7: 3.
12. Craig BM, Pickard AS, Stolk E, Brazier JE,. 2013. US valuation of the SF-6D. Medical decision making: an international journal of the Society for Medical Decision Making 33: 793-803.
13. Eidt-Koch D, Mittendorf T, Greiner W,. 2009. Cross-sectional validity of the EQ-5D-Y as a generic health outcome instrument in children and adolescents with cystic fibrosis in Germany. BMC Pediatrics 9: 55.
14. Feeny D,. 2013. Standardization and regulatory guidelines may inhibit science and reduce the usefulness of analyses based on the application of preference-based measures for policy decisions. Medical Decision Making 33: 316-9.
15. Friedman JY, Reed SD, Weinfurt KP, Kahler KH, Walter EB, Schulman KA,. 2004. Parents' reported preference scores for childhood atopic dermatitis disease states. BMC Pediatrics, 4: 21.
16. Furlong WJ, Feeny DH, Torrance GW, Barr RD,. 2001. The Health Utilities Index (HUI (R)) system for assessing health-related quality of life in clinical studies. Annals of Medicine 33: 375-384.
17. Gerald JK, Mcclure LA, Harrington KF, Moore T, Hernandez-Martinez AC, Gerald LB,. 2012. Measurement characteristics of the Pediatric Asthma Health Outcome Measure. Journal of Asthma 49: 260-266.
18. Gold MR, Stevenson D, Fryback DG,. 2002. HALYs and QALYs and DALYs, oh my: similarities and differences in summary measures of population health. Annual Review of Public Health 23: 115-134.
19. Hauber AB, Itzler R, Johnson FR, Mohamed AF, Gonzalez JM, Cook JR, et al,. 2011. Healthy-days time equivalents for outcomes of acute rotavirus infections. Vaccine 29: 8086-8093.
20. Jelsma J,. 2010. A comparison of the performance of the EQ-5D and the EQ-5D-Y health-related quality of life instruments in South African children. International Journal of Rehabilitation Research 33: 172-7.
21. Lancsar E, Wildman J, Donaldson C, Ryan M, Baker R,. 2011. Deriving distributional weights for QALYs through discrete choice experiments. Journal of Health Economics 30: 466-478.
22. Mccabe CJ, Stevens KJ, Brazier JE,. 2005. Utility scores for the health utilities index mark 2: an empirical assessment of alternative mapping functions. Medical Care 43: 627-635.
23. Neumann PJ, Weinstein MC,. 2010. Legislating against use of cost-effectiveness information. New England Journal of Medicine 363: 1495-1497.
24. Prosser LA, Hammitt JK, Keren R,. 2007. Measuring health preferences for use in cost-utility and cost-benefit analyses of interventions in children: theoretical and methodological considerations. PharmacoEconomics 25: 713-726.
25. Ramos-Goni J, Errea M, Rivero-Arias O, Cabases JM, Pinto JL,. 2012. EQ-5D-5L valuation project for the Spanish population-a descriptive overview and preliminary results. Value in Health 15: A279-A279.
26. Ratcliffe J, Couzner L, Flynn T, Sawyer M, Stevens K, Brazier J, et al,. 2011. Valuing Child Health Utility 9D health states with a young adolescent sample: a feasibility study to compare best-worst scaling discrete-choice experiment, standard gamble and time trade-off methods. Applied Health Economics and Health Policy 9: 15-27.
27. Ravens-Sieberer U, Wille N, Badia X, Bonsel G, Burstrom K, Cavrini G, et al,. 2010. Feasibility, reliability, and validity of the EQ-5D-Y: results from a multinational study. Quality of Life Research 19: 887-97.
28. Rushby JF, Hanson K,. 2001. Calculating and presenting disability adjusted life years (DALYs) in cost-effectiveness analysis. Health Policy and Planning 16: 326-331.
29. Salomon JA, Vos T, Hogan DR, Gagnon M, Naghavi M, Mokdad A, et al,. 2012. Common values in assessing health outcomes from disease and injury: disability weights measurement study for the Global Burden of Disease Study 2010. Lancet 380: 2129-2143.
30. Sassi F,. 2006. Calculating QALYs, comparing QALY and DALY calculations. Health Policy and Planning 21: 402-408.
31. Schipper H, Clinch JJ, Olweny CL,. 1996. Quality of life studies: definitions and conceptual issues. In Quality of Life and Pharmacoeconomics in Clinical Trials, Spilker B, (ed.). Lippincott-Raven Publishers: Philadelphia.
32. Secnik K, Matza LS, Cottrell S, Edgell E, Tilden D, Mannix S,. 2005. Health state utilities for childhood attention-deficit/hyperactivity-disorder based on parent preferences in the United Kingdom. Medical Decision Making 25: 56-70.
33. Selby JV, Beal AC, Frank L,. 2012. The Patient-Centered Outcomes Research Institute (PCORI) National Priorities for Research and Initial Research Agenda. Jama-Journal of the American Medical Association 307: 1583-1584.
34. Stevens K,. 2012. Valuation of the Child Health Utility 9D Index. PharmacoEconomics 30: 729-747.
35. Torrance GW, Feeny DH, Furlong WJ, Barr RD, Zhang YM, Wang QN,. 1996. Multiattribute utility function for a comprehensive health status classification system: Health Utilities Index Mark 2. Medical Care 34: 702-722.
36. US Census Bureau. 2010. United States Census 2010 [Online]. Available: http://www.census.gov/2010census/pdf/2010-Questionnaire-Info.pdf [Accessed December 2012].
37. Ungar W,. 2009. Economic Evaluation in Child Health. Oxford University Press.
38. 2). In The Measurement and Prediction of Judgment and Choice, Bock RD, Jones LV, (eds.). Holden-Day: San Francisco.
39. Wille N, Badia X, Bonsel G, Burstrom K, Cavrini G, Devlin N, et al,. 2010. Development of the EQ-5D-Y: a child-friendly version of the EQ-5D. Quality of Life Research 19: 875-886.
40. World Health Organization 1958. The First Ten Years of the World Health Organization. World Health Organization: Geneva.