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Volumn 18, Issue 4, 2015, Pages 449-456

The Value Adults Place on Child Health and Functional Status

Author keywords

National Survey of Children with Special Health Care Needs; NS CSHCN; paired comparisons; patient reported outcomes; QALY; quality adjusted life years

Indexed keywords

ACTING OUT; ADULT; AGE; ANXIETY; ARTICLE; BEHAVIOR DISORDER; BULLYING; CHILD HEALTH; CHRONIC PAIN; DEPRESSION; FEMALE; FRIEND; FUNCTIONAL STATUS; HUMAN; INCOME; LEARNING DISORDER; LIFESPAN; MAJOR CLINICAL STUDY; MALE; MIDDLE AGED; PRIORITY JOURNAL; QUALITY ADJUSTED LIFE YEAR; ADOLESCENT; CHILD; CHILD WELFARE; FOLLOW UP; HANDICAPPED CHILD; HEALTH STATUS; HEALTH SURVEY; PROCEDURES; STANDARDS; YOUNG ADULT;

EID: 84931563675     PISSN: 10983015     EISSN: 15244733     Source Type: Journal    
DOI: 10.1016/j.jval.2015.02.012     Document Type: Article
Times cited : (11)

References (55)
  • 2
    • 64949140997 scopus 로고    scopus 로고
    • The episodic random utility model unifies time trade-off and discrete choice approaches in health state valuation
    • B.M. Craig, and J.J. Busschbach The episodic random utility model unifies time trade-off and discrete choice approaches in health state valuation Popul Health Metr 7 2009 3
    • (2009) Popul Health Metr , vol.7 , pp. 3
    • Craig, B.M.1    Busschbach, J.J.2
  • 3
    • 71849098473 scopus 로고    scopus 로고
    • From a different angle: a novel approach to health valuation
    • B.M. Craig, and M. Oppe From a different angle: a novel approach to health valuation Soc Sci Med 70 2010 169 174
    • (2010) Soc Sci Med , vol.70 , pp. 169-174
    • Craig, B.M.1    Oppe, M.2
  • 4
    • 80052844327 scopus 로고    scopus 로고
    • Revisiting United States valuation of EQ-5D states
    • B.M. Craig, and J.J.V. Busschbach Revisiting United States valuation of EQ-5D states J Health Econ 30 2011 1057 1063
    • (2011) J Health Econ , vol.30 , pp. 1057-1063
    • Craig, B.M.1    Busschbach, J.J.V.2
  • 5
    • 79953756096 scopus 로고    scopus 로고
    • Toward a more universal approach in health valuation
    • B.M. Craig, and J.J.V. Busschbach Toward a more universal approach in health valuation Health Econ 20 2011 864 875
    • (2011) Health Econ , vol.20 , pp. 864-875
    • Craig, B.M.1    Busschbach, J.J.V.2
  • 6
    • 67649794702 scopus 로고    scopus 로고
    • Improving decision analyses: parent preferences (utility values) for pediatric health outcomes
    • A.E. Carroll, and S.M. Downs Improving decision analyses: parent preferences (utility values) for pediatric health outcomes J Pediatr 155 2009 21 25
    • (2009) J Pediatr , vol.155 , pp. 21-25
    • Carroll, A.E.1    Downs, S.M.2
  • 7
    • 12944275357 scopus 로고    scopus 로고
    • Parents' reported preference scores for childhood atopic dermatitis disease states
    • J.Y. Friedman, S.D. Reed, and K.P. Weinfurt Parents' reported preference scores for childhood atopic dermatitis disease states BMC Pediatr 4 2004 21
    • (2004) BMC Pediatr , vol.4 , pp. 21
    • Friedman, J.Y.1    Reed, S.D.2    Weinfurt, K.P.3
  • 8
    • 80053631135 scopus 로고    scopus 로고
    • Healthy-days time equivalents for outcomes of acute rotavirus infections
    • A.B. Hauber, R. Itzler, and F.R. Johnson Healthy-days time equivalents for outcomes of acute rotavirus infections Vaccine 29 2011 8086 8093
    • (2011) Vaccine , vol.29 , pp. 8086-8093
    • Hauber, A.B.1    Itzler, R.2    Johnson, F.R.3
  • 9
    • 12344288239 scopus 로고    scopus 로고
    • Health state utilities for childhood attention-deficit/hyperactivity-disorder based on parent preferences in the United Kingdom
    • K. Secnik, L.S. Matza, and S. Cottrell Health state utilities for childhood attention-deficit/hyperactivity-disorder based on parent preferences in the United Kingdom Med Decis Making 25 2005 56 70
    • (2005) Med Decis Making , vol.25 , pp. 56-70
    • Secnik, K.1    Matza, L.S.2    Cottrell, S.3
  • 11
    • 78650639940 scopus 로고    scopus 로고
    • Valuing Child Health Utility 9D health states with a young adolescent sample: a feasibility study to compare best-worst scaling discrete-choice experiment, standard gamble and time trade-off methods
    • J. Ratcliffe, L. Couzner, and T. Flynn Valuing Child Health Utility 9D health states with a young adolescent sample: a feasibility study to compare best-worst scaling discrete-choice experiment, standard gamble and time trade-off methods Appl Health Econ Health Policy 9 2011 15 27
    • (2011) Appl Health Econ Health Policy , vol.9 , pp. 15-27
    • Ratcliffe, J.1    Couzner, L.2    Flynn, T.3
  • 12
    • 84863905655 scopus 로고    scopus 로고
    • Valuation of the Child Health Utility 9D Index
    • K. Stevens Valuation of the Child Health Utility 9D Index Pharmacoeconomics 30 2012 729 747
    • (2012) Pharmacoeconomics , vol.30 , pp. 729-747
    • Stevens, K.1
  • 13
    • 13844315306 scopus 로고    scopus 로고
    • Development of the multi-attribute Pediatric Asthma Health Outcome Measure (PAHOM)
    • C.F. Chiou, M.R. Weaver, and M.A. Bell Development of the multi-attribute Pediatric Asthma Health Outcome Measure (PAHOM) Int J Qual Health Care 17 2005 23 30
    • (2005) Int J Qual Health Care , vol.17 , pp. 23-30
    • Chiou, C.F.1    Weaver, M.R.2    Bell, M.A.3
  • 14
    • 84858391634 scopus 로고    scopus 로고
    • Measurement characteristics of the Pediatric Asthma Health Outcome Measure
    • J.K. Gerald, L.A. McClure, and K.F. Harrington Measurement characteristics of the Pediatric Asthma Health Outcome Measure J Asthma 49 2012 260 266
    • (2012) J Asthma , vol.49 , pp. 260-266
    • Gerald, J.K.1    McClure, L.A.2    Harrington, K.F.3
  • 15
    • 20544461331 scopus 로고    scopus 로고
    • Utility scores for the health utilities index mark 2 - an empirical assessment of alternative mapping functions
    • C.J. McCabe, K.J. Stevens, and J.E. Brazier Utility scores for the health utilities index mark 2 - an empirical assessment of alternative mapping functions Med Care 43 2005 627 635
    • (2005) Med Care , vol.43 , pp. 627-635
    • McCabe, C.J.1    Stevens, K.J.2    Brazier, J.E.3
  • 16
    • 0030191463 scopus 로고    scopus 로고
    • Multiattribute utility function for a comprehensive health status classification system - Health Utilities Index Mark 2
    • G.W. Torrance, D.H. Feeny, and W.J. Furlong Multiattribute utility function for a comprehensive health status classification system - Health Utilities Index Mark 2 Med Care 34 1996 702 722
    • (1996) Med Care , vol.34 , pp. 702-722
    • Torrance, G.W.1    Feeny, D.H.2    Furlong, W.J.3
  • 17
    • 77953080035 scopus 로고    scopus 로고
    • Pub. L. 111-148, (as amended by the Health and Education Reconciliation Act Pub. L. 111-152, 124 Stat. 1029). Subtitle D--Patient Centered Outcomes Research
    • US Government Printing Office, ed. Patient Protection and Affordable Care Act, Pub. L. 111-148, 124 Stat. 119 (as amended by the Health and Education Reconciliation Act Pub. L. 111-152, 124 Stat. 1029). Subtitle D--Patient Centered Outcomes Research. 2010.
    • (2010) Patient Protection and Affordable Care Act , vol.124 , pp. 119
    • US Government Printing Office1
  • 18
    • 84859864850 scopus 로고    scopus 로고
    • The Patient-Centered Outcomes Research Institute (PCORI) national priorities for research and initial research agenda
    • J.V. Selby, A.C. Beal, and L. Frank The Patient-Centered Outcomes Research Institute (PCORI) national priorities for research and initial research agenda JAMA 307 2012 1583 1584
    • (2012) JAMA , vol.307 , pp. 1583-1584
    • Selby, J.V.1    Beal, A.C.2    Frank, L.3
  • 19
    • 67649238813 scopus 로고    scopus 로고
    • Estimating preference-based Health Utilities Index Mark 3 utility scores for childhood conditions in England and Scotland
    • S. Petrou, and E. Kupek Estimating preference-based Health Utilities Index Mark 3 utility scores for childhood conditions in England and Scotland Med Decis Making 29 2009 291 303
    • (2009) Med Decis Making , vol.29 , pp. 291-303
    • Petrou, S.1    Kupek, E.2
  • 22
    • 77954926907 scopus 로고    scopus 로고
    • Relationship between presence of a reported medical home and emergency department use among children with asthma
    • A. Diedhiou, J.C. Probst, and J.W. Hardin Relationship between presence of a reported medical home and emergency department use among children with asthma Med Care Res Rev 67 2010 450 475
    • (2010) Med Care Res Rev , vol.67 , pp. 450-475
    • Diedhiou, A.1    Probst, J.C.2    Hardin, J.W.3
  • 23
    • 79952624033 scopus 로고    scopus 로고
    • The medical home as a mediator of the relation between mental health symptoms and family burden among children with special health care needs
    • R.M. Ghandour, D.F. Perry, M.D. Kogan, and B.B. Strickland The medical home as a mediator of the relation between mental health symptoms and family burden among children with special health care needs Acad Pediatr 11 2011 161 169
    • (2011) Acad Pediatr , vol.11 , pp. 161-169
    • Ghandour, R.M.1    Perry, D.F.2    Kogan, M.D.3    Strickland, B.B.4
  • 24
    • 67650066976 scopus 로고    scopus 로고
    • Association of medical home care and disparities in emergency care utilization among children with special health care needs
    • J.L. Raphael, Y.Q. Zhang, and H. Liu Association of medical home care and disparities in emergency care utilization among children with special health care needs Acad Pediatr 9 2009 242 248
    • (2009) Acad Pediatr , vol.9 , pp. 242-248
    • Raphael, J.L.1    Zhang, Y.Q.2    Liu, H.3
  • 25
    • 74249100460 scopus 로고    scopus 로고
    • Comparing medical homes for children with ADHD and asthma
    • S.L. Toomey, C.J. Homer, and J.A. Finkelstein Comparing medical homes for children with ADHD and asthma Acad Pediatr 10 2010 56 63
    • (2010) Acad Pediatr , vol.10 , pp. 56-63
    • Toomey, S.L.1    Homer, C.J.2    Finkelstein, J.A.3
  • 26
    • 59449095511 scopus 로고    scopus 로고
    • Planning for health care transitions: results from the 2005-2006 National Survey of Children With Special Health Care Needs
    • D.S. Lotstein, R. Ghandour, and A. Cash Planning for health care transitions: results from the 2005-2006 National Survey of Children With Special Health Care Needs Pediatrics 123 2009 E145 E152
    • (2009) Pediatrics , vol.123 , pp. E145-E152
    • Lotstein, D.S.1    Ghandour, R.2    Cash, A.3
  • 27
    • 71749089886 scopus 로고    scopus 로고
    • What factors are associated with state performance on provision of transition services to CSHCN?
    • D.J. Kane, L. Kasehagen, and J. Punyko What factors are associated with state performance on provision of transition services to CSHCN? Pediatrics 124 Suppl. 4 2009 S375 S383
    • (2009) Pediatrics , vol.124 , pp. S375-S383
    • Kane, D.J.1    Kasehagen, L.2    Punyko, J.3
  • 28
    • 77956229751 scopus 로고    scopus 로고
    • Factors that affect parent perceptions of provider-family partnership for children with special health care needs
    • C.A. Knapp, V.L. Madden, and M.I. Marcu Factors that affect parent perceptions of provider-family partnership for children with special health care needs Matern Child Health J 14 2010 742 750
    • (2010) Matern Child Health J , vol.14 , pp. 742-750
    • Knapp, C.A.1    Madden, V.L.2    Marcu, M.I.3
  • 29
    • 79952623877 scopus 로고    scopus 로고
    • Health care services and the transition to young adulthood: challenges and opportunities
    • M.J. Park, S.H. Adams, and C.E. Irwin Health care services and the transition to young adulthood: challenges and opportunities Acad Pediatr 11 2011 115 122
    • (2011) Acad Pediatr , vol.11 , pp. 115-122
    • Park, M.J.1    Adams, S.H.2    Irwin, C.E.3
  • 30
    • 80052369952 scopus 로고    scopus 로고
    • Receipt of health care transition counseling in the National Survey of Adult Transition and Health
    • G.S. Sawicki, R. Whitworth, and L. Gunn Receipt of health care transition counseling in the National Survey of Adult Transition and Health Pediatrics 128 2011 E521 E529
    • (2011) Pediatrics , vol.128 , pp. E521-E529
    • Sawicki, G.S.1    Whitworth, R.2    Gunn, L.3
  • 31
    • 21844474058 scopus 로고    scopus 로고
    • Economic impact on families caring for children with special health care needs in New Hampshire: the effect of socioeconomic and health-related factors
    • J. Bumbalo, L. Ustinich, D. Ramcharran, and R. Schwalberg Economic impact on families caring for children with special health care needs in New Hampshire: the effect of socioeconomic and health-related factors Matern Child Health J 9 2005 S3 11
    • (2005) Matern Child Health J , vol.9 , pp. S3-S11
    • Bumbalo, J.1    Ustinich, L.2    Ramcharran, D.3    Schwalberg, R.4
  • 32
    • 21844467251 scopus 로고    scopus 로고
    • Impact of caring for children with special health care needs on the family: Rhode Island's experience
    • S.I. Viner-Brown, and H.K. Kim Impact of caring for children with special health care needs on the family: Rhode Island's experience Matern Child Health J 9 2005 S59 S66
    • (2005) Matern Child Health J , vol.9 , pp. S59-S66
    • Viner-Brown, S.I.1    Kim, H.K.2
  • 33
    • 33745319139 scopus 로고    scopus 로고
    • Mental health care services for children with special health care needs and their family members: prevalence and correlates of unmet needs
    • M.L. Ganz, and S.A. Tendulkar Mental health care services for children with special health care needs and their family members: prevalence and correlates of unmet needs Pediatrics 117 2006 2138 2148
    • (2006) Pediatrics , vol.117 , pp. 2138-2148
    • Ganz, M.L.1    Tendulkar, S.A.2
  • 34
    • 52049122245 scopus 로고    scopus 로고
    • Parental perceptions of dental/oral health among children with and without special health care needs
    • M.K. Kenney, M.D. Kogan, and J.J. Crall Parental perceptions of dental/oral health among children with and without special health care needs Ambul Pediatr 8 2008 312 320
    • (2008) Ambul Pediatr , vol.8 , pp. 312-320
    • Kenney, M.K.1    Kogan, M.D.2    Crall, J.J.3
  • 35
    • 73649086258 scopus 로고    scopus 로고
    • Parents of children with special health care needs who have better coping skills have fewer depressive symptoms
    • S.S. Churchill, N.L. Villareale, and T.A. Monaghan Parents of children with special health care needs who have better coping skills have fewer depressive symptoms Matern Child Health J 14 2010 47 57
    • (2010) Matern Child Health J , vol.14 , pp. 47-57
    • Churchill, S.S.1    Villareale, N.L.2    Monaghan, T.A.3
  • 36
    • 77953075104 scopus 로고    scopus 로고
    • Family-centered care for US children with special health care needs: who gets it and why?
    • T.R. Coker, M.A. Rodriguez, and G. Flores Family-centered care for US children with special health care needs: who gets it and why? Pediatrics 125 2010 1159 1167
    • (2010) Pediatrics , vol.125 , pp. 1159-1167
    • Coker, T.R.1    Rodriguez, M.A.2    Flores, G.3
  • 37
    • 75749151740 scopus 로고    scopus 로고
    • Children with special health care needs: impact of health care expenditures on family financial burden
    • L.C. Lindley, and B.A. Mark Children with special health care needs: impact of health care expenditures on family financial burden J Child Fam Stud 19 2010 79 89
    • (2010) J Child Fam Stud , vol.19 , pp. 79-89
    • Lindley, L.C.1    Mark, B.A.2
  • 38
    • 33646364039 scopus 로고    scopus 로고
    • Satisfaction with care and ease of using health care services among parents of children with special health care needs: the roles of race/ethnicity, insurance, language, and adequacy of family-centered care
    • E.M. Ngui, and G. Flores Satisfaction with care and ease of using health care services among parents of children with special health care needs: the roles of race/ethnicity, insurance, language, and adequacy of family-centered care Pediatrics 117 2006 1184 1196
    • (2006) Pediatrics , vol.117 , pp. 1184-1196
    • Ngui, E.M.1    Flores, G.2
  • 39
    • 38049103383 scopus 로고    scopus 로고
    • Unmet needs for specialty, dental, mental, and allied health care among children with special health care needs: are there racial/ethnic disparities?
    • E.M. Ngui, and G. Flores Unmet needs for specialty, dental, mental, and allied health care among children with special health care needs: are there racial/ethnic disparities? J Health Care Poor Underserved 18 2007 931 949
    • (2007) J Health Care Poor Underserved , vol.18 , pp. 931-949
    • Ngui, E.M.1    Flores, G.2
  • 40
    • 70350475664 scopus 로고    scopus 로고
    • Progress in ensuring adequate health insurance for children with special health care needs
    • L.E. Honberg, M.D. Kogan, and D. Allen Progress in ensuring adequate health insurance for children with special health care needs Pediatrics 124 2009 1273 1280
    • (2009) Pediatrics , vol.124 , pp. 1273-1280
    • Honberg, L.E.1    Kogan, M.D.2    Allen, D.3
  • 41
    • 79960511048 scopus 로고    scopus 로고
    • White-black disparities in family-centered care among children with autism in the United States: evidence from the NS-CSHCN 2005-2006
    • G. Montes, and J.S. Halterman White-black disparities in family-centered care among children with autism in the United States: evidence from the NS-CSHCN 2005-2006 Acad Pediatr 11 2011 297 304
    • (2011) Acad Pediatr , vol.11 , pp. 297-304
    • Montes, G.1    Halterman, J.S.2
  • 42
    • 84864145552 scopus 로고    scopus 로고
    • Unmet need and problems accessing core health care services for children with autism spectrum disorder
    • G. Chiri, and M.E. Warfield Unmet need and problems accessing core health care services for children with autism spectrum disorder Matern Child Health J 16 2012 1081 1091
    • (2012) Matern Child Health J , vol.16 , pp. 1081-1091
    • Chiri, G.1    Warfield, M.E.2
  • 43
    • 84961987049 scopus 로고    scopus 로고
    • Patient-reported outcomes and preference research: igniting the candle at both ends and the middle
    • B. Craig, and B. Reeve Patient-reported outcomes and preference research: igniting the candle at both ends and the middle ISPOR Connect Uniting Res Pract 18 2012 8
    • (2012) ISPOR Connect Uniting Res Pract , vol.18 , pp. 8
    • Craig, B.1    Reeve, B.2
  • 44
    • 84888304808 scopus 로고    scopus 로고
    • Accessed June 6, 2012
    • PROMIS-29 Profile v1.0. 2008-2012. Available from: https://www.assessmentcenter.net/ac1//files/pdf/44b7636201a34267a9213db7f69f2c6d.pdf. [Accessed June 6, 2012].
    • PROMIS-29 Profile v1.0. 2008-2012
  • 45
    • 84875691439 scopus 로고    scopus 로고
    • Standardization and regulatory guidelines may inhibit science and reduce the usefulness of analyses based on the application of preference-based measures for policy decisions
    • D. Feeny Standardization and regulatory guidelines may inhibit science and reduce the usefulness of analyses based on the application of preference-based measures for policy decisions Med Decis Making 33 2013 316 319
    • (2013) Med Decis Making , vol.33 , pp. 316-319
    • Feeny, D.1
  • 49
    • 12344257034 scopus 로고    scopus 로고
    • Are QALYs based on time trade-off comparable? A systematic review of TTO methodologies
    • T. Arnesen, and M. Trommald Are QALYs based on time trade-off comparable? A systematic review of TTO methodologies Health Econ 14 2005 39 53
    • (2005) Health Econ , vol.14 , pp. 39-53
    • Arnesen, T.1    Trommald, M.2
  • 50
    • 0004246774 scopus 로고
    • Routledge & Kegan Paul New York
    • J. Harris The Value of Life 1985 Routledge & Kegan Paul New York
    • (1985) The Value of Life
    • Harris, J.1
  • 51
    • 70449380765 scopus 로고    scopus 로고
    • Cross-sectional validity of the EQ-5D-Y as a generic health outcome instrument in children and adolescents with cystic fibrosis in Germany
    • D. Eidt-Koch, T. Mittendorf, and W. Greiner Cross-sectional validity of the EQ-5D-Y as a generic health outcome instrument in children and adolescents with cystic fibrosis in Germany BMC Pediatr 9 2009 55
    • (2009) BMC Pediatr , vol.9 , pp. 55
    • Eidt-Koch, D.1    Mittendorf, T.2    Greiner, W.3
  • 52
    • 77953363688 scopus 로고    scopus 로고
    • A comparison of the performance of the EQ-5D and the EQ-5D-Y health-related quality of life instruments in South African children
    • J. Jelsma A comparison of the performance of the EQ-5D and the EQ-5D-Y health-related quality of life instruments in South African children Int J Rehabil Res 33 2010 172 177
    • (2010) Int J Rehabil Res , vol.33 , pp. 172-177
    • Jelsma, J.1
  • 53
    • 77957585980 scopus 로고    scopus 로고
    • Feasibility, reliability, and validity of the EQ-5D-Y: results from a multinational study
    • U. Ravens-Sieberer, N. Wille, and X. Badia Feasibility, reliability, and validity of the EQ-5D-Y: results from a multinational study Qual Life Res 19 2010 887 897
    • (2010) Qual Life Res , vol.19 , pp. 887-897
    • Ravens-Sieberer, U.1    Wille, N.2    Badia, X.3
  • 54
    • 77957564312 scopus 로고    scopus 로고
    • Development of the EQ-5D-Y: a child-friendly version of the EQ-5D
    • N. Wille, X. Badia, and G. Bonsel Development of the EQ-5D-Y: a child-friendly version of the EQ-5D Qual Life Res 19 2010 875 886
    • (2010) Qual Life Res , vol.19 , pp. 875-886
    • Wille, N.1    Badia, X.2    Bonsel, G.3
  • 55
    • 84931584824 scopus 로고    scopus 로고
    • Learning and satisficing: an analysis of sequence effects in health valuation
    • In press
    • Craig B, Runge S, Rand-Hendriksen K, et al. Learning and satisficing: an analysis of sequence effects in health valuation. Value Health. In press.
    • Value Health
    • Craig, B.1    Runge, S.2    Rand-Hendriksen, K.3


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