-
1
-
-
34250209501
-
Amyotrophic lateral sclerosis
-
[1] Mitchell, J.D., Borasio, G.D., Amyotrophic lateral sclerosis. Lancet 369:9578 (2007), 2031–2041.
-
(2007)
Lancet
, vol.369
, Issue.9578
, pp. 2031-2041
-
-
Mitchell, J.D.1
Borasio, G.D.2
-
2
-
-
34447281327
-
Palliative care for patients with amyotrophic lateral sclerosis: “prepare for the worst and hope for the best”
-
[2] Mitsumoto, H., Rabkin, J.G., Palliative care for patients with amyotrophic lateral sclerosis: “prepare for the worst and hope for the best”. JAMA 298:2 (2007), 207–216.
-
(2007)
JAMA
, vol.298
, Issue.2
, pp. 207-216
-
-
Mitsumoto, H.1
Rabkin, J.G.2
-
3
-
-
77952145684
-
Cognitive and behavioral challenges in caring for patients with frontotemporal dementia and amyotrophic lateral sclerosis
-
[3] Merrilees, J., Klapper, J., Murphy, J., Lomen-Hoerth, C., Miller, B.L., Cognitive and behavioral challenges in caring for patients with frontotemporal dementia and amyotrophic lateral sclerosis. Amyotrophic lateral sclerosis: official publication of the World Federation of Neurology Research Group on Motor Neuron Diseases 11:3 (2010), 298–302.
-
(2010)
Amyotrophic lateral sclerosis: official publication of the World Federation of Neurology Research Group on Motor Neuron Diseases
, vol.11
, Issue.3
, pp. 298-302
-
-
Merrilees, J.1
Klapper, J.2
Murphy, J.3
Lomen-Hoerth, C.4
Miller, B.L.5
-
4
-
-
79952486262
-
Amyotrophic lateral sclerosis
-
[4] Kiernan, M.C., Vucic, S., Cheah, B.C., Turner, M.R., Eisen, A., Hardiman, O., Burrell, J.R., Zoing, M.C., Amyotrophic lateral sclerosis. Lancet 377:9769 (2011), 942–955.
-
(2011)
Lancet
, vol.377
, Issue.9769
, pp. 942-955
-
-
Kiernan, M.C.1
Vucic, S.2
Cheah, B.C.3
Turner, M.R.4
Eisen, A.5
Hardiman, O.6
Burrell, J.R.7
Zoing, M.C.8
-
5
-
-
84887853465
-
What palliative care can do for motor neurone disease patients and their families
-
[5] Oliver, D., Aoun, S., What palliative care can do for motor neurone disease patients and their families. Eur. J. Palliat. Care 20:6 (2013), 286–289.
-
(2013)
Eur. J. Palliat. Care
, vol.20
, Issue.6
, pp. 286-289
-
-
Oliver, D.1
Aoun, S.2
-
6
-
-
84877771517
-
A 10-year literature review of family caregiving for motor neurone disease: moving from caregiver burden studies to palliative care interventions
-
[6] Aoun, S.M., Bentley, B., Funk, L., Toye, C., Grande, G., Stajduhar, K.J., A 10-year literature review of family caregiving for motor neurone disease: moving from caregiver burden studies to palliative care interventions. Palliat. Med. 27:5 (2013), 437–446.
-
(2013)
Palliat. Med.
, vol.27
, Issue.5
, pp. 437-446
-
-
Aoun, S.M.1
Bentley, B.2
Funk, L.3
Toye, C.4
Grande, G.5
Stajduhar, K.J.6
-
7
-
-
18844394047
-
Caregiver burden and patients' perception of being a burden in ALS
-
[7] Chio, A., Gauthier, A., Calvo, A., Ghiglione, P., Mutani, R., Caregiver burden and patients' perception of being a burden in ALS. Neurology 64:10 (2005), 1780–1782.
-
(2005)
Neurology
, vol.64
, Issue.10
, pp. 1780-1782
-
-
Chio, A.1
Gauthier, A.2
Calvo, A.3
Ghiglione, P.4
Mutani, R.5
-
8
-
-
33646750919
-
Predictors of psychological distress in carers of people with amyotrophic lateral sclerosis: a longitudinal study
-
[8] Goldstein, L.H., Atkins, L., Landau, S., Brown, R., Leigh, P.N., Predictors of psychological distress in carers of people with amyotrophic lateral sclerosis: a longitudinal study. Psychol. Med. 36:6 (2006), 865–875.
-
(2006)
Psychol. Med.
, vol.36
, Issue.6
, pp. 865-875
-
-
Goldstein, L.H.1
Atkins, L.2
Landau, S.3
Brown, R.4
Leigh, P.N.5
-
9
-
-
0038339564
-
Burden of care in amyotrophic lateral sclerosis
-
[9] Hecht, M.J., Graesel, E., Tigges, S., Hillemacher, T., Winterholler, M., Hilz, M.J., Heuss, D., Neundorfer, B., Burden of care in amyotrophic lateral sclerosis. Palliat. Med. 17:4 (2003), 327–333.
-
(2003)
Palliat. Med.
, vol.17
, Issue.4
, pp. 327-333
-
-
Hecht, M.J.1
Graesel, E.2
Tigges, S.3
Hillemacher, T.4
Winterholler, M.5
Hilz, M.J.6
Heuss, D.7
Neundorfer, B.8
-
10
-
-
0029809010
-
The amyotrophic lateral sclerosis (ALS) patient perspective on misdiagnosis and its repercussions
-
[10] Belsh, J.M., Schiffman, P.L., The amyotrophic lateral sclerosis (ALS) patient perspective on misdiagnosis and its repercussions. J. Neurol. Sci. 139:Suppl (1996), 110–116.
-
(1996)
J. Neurol. Sci.
, vol.139
, pp. 110-116
-
-
Belsh, J.M.1
Schiffman, P.L.2
-
11
-
-
84948158639
-
Receiving the news of a diagnosis of motor neuron disease: what does it take to make it better?
-
[11] Aoun, S.M., Breen, L.J., Howting, D., Edis, R., Oliver, D., Henderson, R., O'Connor, M., Harris, R., Birks, C., Receiving the news of a diagnosis of motor neuron disease: what does it take to make it better?. Amyotroph Lateral Scler Frontotemporal Degener 17:3–4 (2016), 168–178.
-
(2016)
Amyotroph Lateral Scler Frontotemporal Degener
, vol.17
, Issue.3-4
, pp. 168-178
-
-
Aoun, S.M.1
Breen, L.J.2
Howting, D.3
Edis, R.4
Oliver, D.5
Henderson, R.6
O'Connor, M.7
Harris, R.8
Birks, C.9
-
12
-
-
84859984906
-
Motor neurone disease family carers' experiences of caring, palliative care and bereavement: an exploratory qualitative study
-
[12] Aoun, S.M., Connors, S.L., Priddis, L., Breen, L.J., Colyer, S., Motor neurone disease family carers' experiences of caring, palliative care and bereavement: an exploratory qualitative study. Palliat. Med. 26:6 (2012), 842–850.
-
(2012)
Palliat. Med.
, vol.26
, Issue.6
, pp. 842-850
-
-
Aoun, S.M.1
Connors, S.L.2
Priddis, L.3
Breen, L.J.4
Colyer, S.5
-
13
-
-
77956650152
-
‘All in the same boat’? Patient and carer attitudes to peer support and social comparison in Motor Neuron Disease (MND)
-
[13] Locock, L., Brown, J.B., ‘All in the same boat’? Patient and carer attitudes to peer support and social comparison in Motor Neuron Disease (MND). Soc. Sci. Med. 71:8 (2010), 1498–1505.
-
(2010)
Soc. Sci. Med.
, vol.71
, Issue.8
, pp. 1498-1505
-
-
Locock, L.1
Brown, J.B.2
-
14
-
-
6444230579
-
Breaking the news: a survey of ALS patients and their caregivers
-
[14] McCluskey, L., Casarett, D., Siderowf, A., Breaking the news: a survey of ALS patients and their caregivers. Amyotroph. Lateral Scler. 5:3 (2004), 131–135.
-
(2004)
Amyotroph. Lateral Scler.
, vol.5
, Issue.3
, pp. 131-135
-
-
McCluskey, L.1
Casarett, D.2
Siderowf, A.3
-
15
-
-
79951737325
-
From symptom onset to a diagnosis of amyotrophic lateral sclerosis/motor neuron disease (ALS/MND): experiences of people with ALS/MND and family carers - a qualitative study
-
[15] O'Brien, M.R., Whitehead, B., Jack, B.A., Mitchell, J.D., From symptom onset to a diagnosis of amyotrophic lateral sclerosis/motor neuron disease (ALS/MND): experiences of people with ALS/MND and family carers - a qualitative study. Amyotroph. Lateral Scler. 12:2 (2011), 97–104.
-
(2011)
Amyotroph. Lateral Scler.
, vol.12
, Issue.2
, pp. 97-104
-
-
O'Brien, M.R.1
Whitehead, B.2
Jack, B.A.3
Mitchell, J.D.4
-
16
-
-
84976433393
-
Breaking the news of a diagnosis of Motor Neuron Disease: a national survey of neurologist's perspectives
-
[16] Aoun, S.M., Breen, L.J., Howting, D., Oliver, D., Edis, R., Henderson, R., O'Connor, M., Harris, R., Birks, C., Breaking the news of a diagnosis of Motor Neuron Disease: a national survey of neurologist's perspectives. J. Neurol. Sci. 367 (2016), 368–374.
-
(2016)
J. Neurol. Sci.
, vol.367
, pp. 368-374
-
-
Aoun, S.M.1
Breen, L.J.2
Howting, D.3
Oliver, D.4
Edis, R.5
Henderson, R.6
O'Connor, M.7
Harris, R.8
Birks, C.9
-
17
-
-
84895560372
-
Breaking bad news in amyotrophic lateral sclerosis: the need for medical education
-
[17] Schellenberg, K.L., Schofield, S.J., Fang, S., Johnston, W.S.W., Breaking bad news in amyotrophic lateral sclerosis: the need for medical education. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 15:1–2 (2014), 47–54.
-
(2014)
Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration
, vol.15
, Issue.1-2
, pp. 47-54
-
-
Schellenberg, K.L.1
Schofield, S.J.2
Fang, S.3
Johnston, W.S.W.4
-
18
-
-
84857044928
-
EFNS guidelines on the clinical management of amyotrophic lateral sclerosis (MALS)-revised report of an EFNS task force
-
[18] Anderson, P.M., Abrahams, S., Borasio, G.D., de Carvalho, M., Chio, A., Van Damme, P., et al. EFNS guidelines on the clinical management of amyotrophic lateral sclerosis (MALS)-revised report of an EFNS task force. Eur. J. Neurol. 19:3 (2012), 360–375.
-
(2012)
Eur. J. Neurol.
, vol.19
, Issue.3
, pp. 360-375
-
-
Anderson, P.M.1
Abrahams, S.2
Borasio, G.D.3
de Carvalho, M.4
Chio, A.5
Van Damme, P.6
-
19
-
-
70350138259
-
Practice parameter update: the care of the patient with amyotrophic lateral sclerosis: multidisciplinary care, symptom management, and cognitive/behavioral impairment (an evidence-based review): report of the quality standards Subcommittee of the American Academy of neurology
-
[19] Miller, R.G., Jackson, C.E., Kasarskis, E.J., England, J.D., Forshew, D., Johnston, W., Kalra, S., Katz, J.S., Mitsumoto, H., Rosenfeld, J., Shoesmith, C., Strong, M.J., Woolley, S.C., Practice parameter update: the care of the patient with amyotrophic lateral sclerosis: multidisciplinary care, symptom management, and cognitive/behavioral impairment (an evidence-based review): report of the quality standards Subcommittee of the American Academy of neurology. Neurology 73:15 (2009), 1227–1233.
-
(2009)
Neurology
, vol.73
, Issue.15
, pp. 1227-1233
-
-
Miller, R.G.1
Jackson, C.E.2
Kasarskis, E.J.3
England, J.D.4
Forshew, D.5
Johnston, W.6
Kalra, S.7
Katz, J.S.8
Mitsumoto, H.9
Rosenfeld, J.10
Shoesmith, C.11
Strong, M.J.12
Woolley, S.C.13
-
20
-
-
37349011221
-
ALS patients and caregivers communication preferences and information seeking behaviour
-
[20] Chio, A., Montuschi, A., Cammarosano, S., De Mercanti, S., Cavallo, E., Ilardi, A., Ghiglione, P., Mutani, R., Calvo, A., ALS patients and caregivers communication preferences and information seeking behaviour. Eur. J. Neurol. 15:1 (2008), 55–60.
-
(2008)
Eur. J. Neurol.
, vol.15
, Issue.1
, pp. 55-60
-
-
Chio, A.1
Montuschi, A.2
Cammarosano, S.3
De Mercanti, S.4
Cavallo, E.5
Ilardi, A.6
Ghiglione, P.7
Mutani, R.8
Calvo, A.9
-
21
-
-
33750452320
-
How does current care practice influence the experience of a new diagnosis of motor neuron disease? A qualitative study of current guidelines-based practice
-
[21] Hugel, H., Grundy, N., Rigby, S., Young, C.A., How does current care practice influence the experience of a new diagnosis of motor neuron disease? A qualitative study of current guidelines-based practice. Amyotroph. Lateral Scler. 7:3 (2006), 161–166.
-
(2006)
Amyotroph. Lateral Scler.
, vol.7
, Issue.3
, pp. 161-166
-
-
Hugel, H.1
Grundy, N.2
Rigby, S.3
Young, C.A.4
-
22
-
-
83655181814
-
The need for support services for family carers of people with motor neurone disease (MND): views of current and former family caregivers a qualitative study
-
[22] O'Brien, M.R., Whitehead, B., Jack, B.A., Mitchell, J.D., The need for support services for family carers of people with motor neurone disease (MND): views of current and former family caregivers a qualitative study. Disabil. Rehabil. 34:3 (2012), 247–256.
-
(2012)
Disabil. Rehabil.
, vol.34
, Issue.3
, pp. 247-256
-
-
O'Brien, M.R.1
Whitehead, B.2
Jack, B.A.3
Mitchell, J.D.4
-
23
-
-
85012025496
-
Identifying and addressing the support needs of family caregivers of people with motor neurone disease using the carer support needs assessment tool
-
[23] Aoun, S.M., Deas, K., Kristjanson, L.J., Kissane, D.W., Identifying and addressing the support needs of family caregivers of people with motor neurone disease using the carer support needs assessment tool. Palliat. Support. Care, 2016, 1–12.
-
(2016)
Palliat. Support. Care
, pp. 1-12
-
-
Aoun, S.M.1
Deas, K.2
Kristjanson, L.J.3
Kissane, D.W.4
-
24
-
-
84926408758
-
End-of-life management in patients with amyotrophic lateral sclerosis
-
[24] Connolly, S., Galvin, M., Hardiman, O., End-of-life management in patients with amyotrophic lateral sclerosis. Lancet Neurol. 14:4 (2015), 435–442.
-
(2015)
Lancet Neurol.
, vol.14
, Issue.4
, pp. 435-442
-
-
Connolly, S.1
Galvin, M.2
Hardiman, O.3
-
25
-
-
0033857066
-
SPIKES—A six-step protocol for delivering bad news: application to the patient with cancer
-
[25] Baile, W.F., Buckman, R., Lenzi, R., Glober, G., Beale, E.A., Kudelka, A.P., SPIKES—A six-step protocol for delivering bad news: application to the patient with cancer. Oncologist 5:4 (2000), 302–311.
-
(2000)
Oncologist
, vol.5
, Issue.4
, pp. 302-311
-
-
Baile, W.F.1
Buckman, R.2
Lenzi, R.3
Glober, G.4
Beale, E.A.5
Kudelka, A.P.6
-
26
-
-
0035845256
-
Qualitative research: standards, challenges, and guidelines
-
[26] Malterud, K., Qualitative research: standards, challenges, and guidelines. Lancet 358:9280 (2001), 483–488.
-
(2001)
Lancet
, vol.358
, Issue.9280
, pp. 483-488
-
-
Malterud, K.1
-
27
-
-
84929725784
-
A two-year longitudinal study on strain and needs in caregivers of advanced ALS patients
-
[27] Bruletti, G., Comini, L., Scalvini, S., Morini, R., Luisa, A., Paneroni, M., Vitacca, M., A two-year longitudinal study on strain and needs in caregivers of advanced ALS patients. Amyotroph Lateral Scler Frontotemporal Degener 16:3–4 (2015), 187–195.
-
(2015)
Amyotroph Lateral Scler Frontotemporal Degener
, vol.16
, Issue.3-4
, pp. 187-195
-
-
Bruletti, G.1
Comini, L.2
Scalvini, S.3
Morini, R.4
Luisa, A.5
Paneroni, M.6
Vitacca, M.7
-
28
-
-
84862501310
-
Respiratory function of people with amyotrophic lateral sclerosis and caregiver distress level: a correlational study
-
[28] Pagnini, F., Banfi, P., Lunetta, C., Rossi, G., Castelnuovo, G., Marconi, A., Fossati, F., Corbo, M., Molinari, E., Respiratory function of people with amyotrophic lateral sclerosis and caregiver distress level: a correlational study. BioPsychoSocial medicine, 6(1), 2012, 14.
-
(2012)
BioPsychoSocial medicine
, vol.6
, Issue.1
, pp. 14
-
-
Pagnini, F.1
Banfi, P.2
Lunetta, C.3
Rossi, G.4
Castelnuovo, G.5
Marconi, A.6
Fossati, F.7
Corbo, M.8
Molinari, E.9
-
29
-
-
84997483118
-
Economics analysis of Motor Neurone Disease in Australia, report for Motor Neurone Disease Australia
-
Deloitte Access Economics Canberra, ACT
-
[29] Access Economics, Deloitte, Economics analysis of Motor Neurone Disease in Australia, report for Motor Neurone Disease Australia. 2015, Deloitte Access Economics, Canberra, ACT.
-
(2015)
-
-
Access Economics, D.1
-
30
-
-
84951272686
-
Developing a person-centred approach to carer assessment and support
-
[30] Ewing, G., Austin, L., Diffin, J., Grande, G., Developing a person-centred approach to carer assessment and support. Br. J. Community Nurs. 20:12 (2015), 580–584.
-
(2015)
Br. J. Community Nurs.
, vol.20
, Issue.12
, pp. 580-584
-
-
Ewing, G.1
Austin, L.2
Diffin, J.3
Grande, G.4
-
31
-
-
84927545762
-
Supporting family caregivers to identify their own needs in end-of-life care: qualitative findings from a stepped wedge cluster trial
-
[31] Aoun, S., Deas, K., Toye, C., Ewing, G., Grande, G., Stajduhar, K., Supporting family caregivers to identify their own needs in end-of-life care: qualitative findings from a stepped wedge cluster trial. Palliat. Med. 29:6 (2015), 508–517.
-
(2015)
Palliat. Med.
, vol.29
, Issue.6
, pp. 508-517
-
-
Aoun, S.1
Deas, K.2
Toye, C.3
Ewing, G.4
Grande, G.5
Stajduhar, K.6
-
33
-
-
84923212796
-
Person-Centred Care Made Simple. What Everyone Should Know About Person-Centred Care
-
The Health Foundation London
-
[33] Health Foundation, Person-Centred Care Made Simple. What Everyone Should Know About Person-Centred Care. 2014, The Health Foundation, London.
-
(2014)
-
-
Health Foundation1
-
34
-
-
84955180334
-
A consensus review on the development of palliative care for patients with chronic and progressive neurological disease
-
[34] Oliver, D., Borasio, G., Caraceni, A., et al. A consensus review on the development of palliative care for patients with chronic and progressive neurological disease. Eur. J. Neurol. 23 (2016), 30–38.
-
(2016)
Eur. J. Neurol.
, vol.23
, pp. 30-38
-
-
Oliver, D.1
Borasio, G.2
Caraceni, A.3
|